Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,891 members • 5,441 posts

All posts for April 2020

Raynauds type symptoms but confusing

I was hoping to get your thoughts while I'm waiting for the results of an ANA screen and while referrals to a rheumatologist are still closed in my part of the...

I was hoping to get your thoughts while I'm waiting for the results of an ANA sc...

•4 years ago

Weird cramp type pain in outer, lower thigh (just above knee)?

It spans no more than the circumference of a wine glass, but it feels very strange; it is a mild tightening/pain (feels rather like like cramp), and I have...

It spans no more than the circumference of a wine glass, but it feels very stran...

•4 years ago

Dental work....Yes or No

Hi everyone, Not sure if anyone can advise me on this.... I am investigating the possibility of having Dental Implants (4) however i don't know if that is...

Hi everyone, Not sure if anyone can advise me on this.... I am investigating the...

•4 years ago

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Conference Call every Sunday @ 11am

Hi folks, a gentle reminder that we will be having our usual conference call at 11am GMT. I have been playing around with some ideas as most want to see each...

Hi folks, a gentle reminder that we will be having our usual conference call at ...

•4 years ago

Recently diagnosed

Hi, I’m 49, soon to be 50 & I never thought my year leading up to this milestone would be like this. I was so looking forward to celebrating it with my family...

Hi, I’m 49, soon to be 50 & I never thought my year leading up to this milestone...

•4 years ago

Conference Call every Sunday @ 11am

Hi folks, a gentle reminder that we will be having our usual conference call at 11am GMT. I have been playing around with some ideas as most want to see each...

Hi folks, a gentle reminder that we will be having our usual conference call at ...

•4 years ago

Be the first to reply

covid l9 worries

I have limited cutaneous systmic sclerosis type of sclerderma no lung involvement on no medication at present concerned about how my body would react to covid...

I have limited cutaneous systmic sclerosis type of sclerderma no lung involvemen...

•4 years ago

Scleroderma & Raynaud's UK (SRUK) virtual quiz

Save the date - Wednesday 15th April from 8pm - First ever SRUK virtual quiz You are invited to our fun quiz, broadcast live from East London - hosted by our...

Save the date - Wednesday 15th April from 8pm - First ever SRUK virtual quiz Yo...

•4 years ago

Be the first to reply

Struggling with lump feeling in throat that feels worse when I bend forward. Came on suddenly feels uncomfortable when I burp

Heartburn got worse Then suddenly this limp feeling began. Prior to that muscles in throat were painful and achy on swallowing and had been getting food stuck...

Heartburn got worse Then suddenly this limp feeling began. Prior to that muscles...

•4 years ago

Wrinkly and " Jagged looking lips"

Hello all, trust you're all keeping well and staying safe☺️! Is there anyone out there who could give me advise on what i could do to my lips. Got both...

Hello all, trust you're all keeping well and staying safe☺️! Is there anyone out...

•4 years ago

Confusing Covid 19 advice

Hi all.I live in dundee in scotland,i have limited cutaneous scleroderma ,i don't have heart or lung involvement and do not need to take immunosuppressants,I...

Hi all.I live in dundee in scotland,i have limited cutaneous scleroderma ,i don'...

•4 years ago

Weird painful skin - help!

Hey guys, The last few days I’ve developed telangiectasia around my eyelids and under my eyebrows but yesterday red botches spread alongside my eyes and over...

Hey guys, The last few days I’ve developed telangiectasia around my eyelids and...

•4 years ago

Does scleroderma qualify for the government priory list

I don’t think it does unless of course your lungs are badly damaged but I just wondered if anyone had info. I am self isolating as I am 77 yrs of age and...

I don’t think it does unless of course your lungs are badly damaged but I just ...

•4 years ago

Am I at risk having Raynauds

I am recently diagnosed and would like to know if I am at increase risk of contracting Covid 19 as a healthcare worker? I am on medication for this.

I am recently diagnosed and would like to know if I am at increase risk of contr...

•4 years ago

Raynaud's connected to iron levels?

Recently my doctor noticed my ferritin levels have been rising and are double what they should be, I'd been getting a lot of pins and needles in my hands, arms...

Recently my doctor noticed my ferritin levels have been rising and are double wh...

•4 years ago

Raising my temperature....

Any tips on how to check if you have a high temperature without a thermometer when you have Raynaud's and coronavirus symptoms? The NHS website does give some...

Any tips on how to check if you have a high temperature without a thermometer wh...

•4 years ago

Conference Call every Sunday @ 11am

Hi folks, a gentle reminder that we will be having our (becoming) usual conference call at 11am. I have been playing around with some ideas as most want to see...

Hi folks, a gentle reminder that we will be having our (becoming) usual conferen...

•4 years ago

Be the first to reply

Conference Call every Sunday @ 11am

Hi folks, a gentle reminder that we will be having our (becoming) usual conference call at 11am. I have been playing around with some ideas as most want to see...

Hi folks, a gentle reminder that we will be having our (becoming) usual conferen...

•4 years ago

Scleroderma

Hi I was told by the rheumatologist I have scleroderma systemic sclerosis waiting to have CT mri scan etc. test on my lungs and heart, also a chance my non...

Hi I was told by the rheumatologist I have scleroderma systemic sclerosis waitin...

•4 years ago

Capillaroscopy "not normal"?

Hey everyone! I am new here, recently found this helpful community that helps me make clear many questions. Thanks a lot for that :) I am female, 35 years...

Hey everyone! I am new here, recently found this helpful community that helps me...

•4 years ago

Ulcer on finger under the nail

I have been taking doxycycline for over two weeks and my finger is still infected. What do I do now? I didn't try the nitro paste bcause i am scared that it...

I have been taking doxycycline for over two weeks and my finger is still infecte...

•4 years ago

Could this be scleroderma

Have not seen rheumatologist in over a year. Have an appointment next week but think it will be cancelled with all that's going on at the moment. Here is a...

Have not seen rheumatologist in over a year. Have an appointment next week but t...

•4 years ago