Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,877 members • 5,431 posts

All posts for November 2013

Bipolar, autoimmune disorder, raynauds and a vitamin b12 problem.

Hi, this is a bit long winded so my apologies. I have bipolar and in february of this year I was diagnosed with raynauds. Since then it transpires i have an...

Hi, this is a bit long winded so my apologies. I have bipolar and in february of...

Anjuna

•11 years ago

6 Replies

Please sign petition. Winter fuel allowance for people affected by the cold. Thank you.

I would be grateful if you could sign petition. The cold weather not only affect people with Raynaud's and Scleroderma but has an impact on so many others. I...

I would be grateful if you could sign petition. The cold weather not only affect...

bluesgirl

•11 years ago

12 Replies

Just found in LIDL instant hand warmers £1.49 for 2 in 3 shape, instant heat, then when they cool (1hr)use the 'old'sort to take over.X

RSA

Dodder2012

•11 years ago

4 Replies

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My Reynauds over the past 17 years has now progressed to Scleroderma. I am finding it difficult to cope.

I won't admit that bleeding of the bowels worries and embarrasses me. Why am I broadcasting this to the forum? Together with various other problems(scleroderma...

I won't admit that bleeding of the bowels worries and embarrasses me. Why am I b...

titanicus

•11 years ago

11 Replies

I have this itch that come and go my fingers itch and under my feet the more I scratch the more itch some of my fingers have these hard spot

I went to the doctor did an allergie test I don't know what it is

lorrainebb

•11 years ago

4 Replies

Hi, first of all I really empathise with everyone who is suffering with raynauds and scleroderma , it is such as a difficult disease to

treat. I was diagnosed in 1997 after suffering years of raynauds and undergoing numerous bowel operations. Apart from the bowel and difficulty with...

treat. I was diagnosed in 1997 after suffering years of raynauds and undergoing...

Monika

•11 years ago

6 Replies

How do you differentiate between primary & secondary Raynauds?

I have been plagued with raynauds for about a year now (53) and have problems with one of my fingers going completely "white" but the rest of my hands change...

I have been plagued with raynauds for about a year now (53) and have problems wi...

Castlepoint

•11 years ago

2 Replies

My index finger spasem at the tip in june and since has developed an ulcer, advice as i am seeing a surgeon this friday

the ulcer is at the tip of my index finger and under my nail, all i want is a noghts sleep and a day free from painkillers, has this happened to anyone on here...

the ulcer is at the tip of my index finger and under my nail, all i want is a no...

SuzCurran

•11 years ago

3 Replies

Cold nose at night

This probably sounds ridiculous, but I wake up several times in the night with a freezing cold nose. I have all the usual bedding, electric blanket etc, and...

This probably sounds ridiculous, but I wake up several times in the night with a...

Pipsmum

•11 years ago

10 Replies

Was tested positive for Romberg's at Royal Free last month.

I have been feeling unsteady on my feet for over a year and was finally given the Romberg's test which proved positive. MRI on 7 December. Have searched the...

I have been feeling unsteady on my feet for over a year and was finally given th...

Hidden

•11 years ago

4 Replies

Can anyone in the forum recommend where alpaca lined gloves can be obtained. I remember this subject being aired recently.Any advice?

titanicus

•11 years ago

5 Replies

40 pairs of handwarmers £8.99!!

Thought I'd share my bargain... http://www.mandmdirect.com/01/details/MM2932/Little-Hotties-Hand-Warmers-Multis

Thought I'd share my bargain... http://www.mandmdirect.com/01/details/MM2932/Lit...

Deece13

•11 years ago

5 Replies

primary raynoids

i was diagnosed with primary raynoids a few years ago n suffer with it only in my feet n occasionly in my nose, i get it really bad in the winter months with...

i was diagnosed with primary raynoids a few years ago n suffer with it only in m...

Emma020884

•11 years ago

2 Replies

Anyone: have you been diagnosed with Achenbach syndrome (paroxysmal haematoma of fingers (& toes)) or Ehlers Danlos?

In September I posted a ? asking if anyone has what I called "tissue bleeds" in their fingers & toes, and I described my version of these. Basically, they...

In September I posted a ? asking if anyone has what I called "tissue bleeds" in ...

Barnclown

•11 years ago

Be the first to reply

anyone else suffer with real achy/painful legs from raynoids???

hi i was diagnosed with raynoids a couple of years ago n am really suffering this winter, ive never had leg pain before but this winter ive woke up with...

hi i was diagnosed with raynoids a couple of years ago n am really suffering thi...

Emma020884

•11 years ago

6 Replies

terrible Russian medicine

Hi Everyone, At first I want to say sorry for my English and tell about my moms. She's on a foto) She has ssd from 2000 but starts treatment 4 years ago,...

Hi Everyone, At first I want to say sorry for my English and tell about my moms....

Anna_Gahan

•11 years ago

6 Replies

Am not coping at all ? - I have CREST & my Raynauds is very troublesome - the whole condition is getting me down..

I have had this for 10 years & the past couple of years it has got worse- anyone else struggling ?

I have had this for 10 years & the past couple of years it has got worse- anyone...

AliW

•11 years ago

5 Replies

help with day to day living with raynoids? ?

was diagnosed with raynoids 2 years ago n was told by my rheumatologist doctor it was severe primary raynoids, I am on nifedipine to help but I find even...

was diagnosed with raynoids 2 years ago n was told by my rheumatologist doctor i...

Emma020884

•11 years ago

Be the first to reply

help with day to day living with raynoids? ?

I was diagnosed with raynoids 2 years ago n was told by my rheumatologist doctor it was severe primary raynoids, I am on nifedipine to help but I find even...

I was diagnosed with raynoids 2 years ago n was told by my rheumatologist doctor...

Emma020884

•11 years ago

1 Reply

Baby with raynauds and this freezing weather,help please?

my 15 month old was diagnosed with raynauds a few months back.I'm slowly learning how to manage it then this sudden cold weather have hit and I'm back to...

my 15 month old was diagnosed with raynauds a few months back.I'm slowly learnin...

confusedmum26

•11 years ago

2 Replies

The Raynaud's Winter Survival Kit: 2013 Update!

Hi there! I've just finished updating the 'Raynaud's Winter Survival Kit' for 2013 and added some new items that might help us keep warm as the weather begins...

Hi there! I've just finished updating the 'Raynaud's Winter Survival Kit' for 20...

medsoph

•11 years ago

5 Replies

My face is always red like I'm hot or blushing.......?!?!

Hi does anyone else suffer from redness in the face? Mine started about a week ago, first it was like a rash all blotchy and raised and now it's constantly red...

Hi does anyone else suffer from redness in the face? Mine started about a week a...

jogoody

•11 years ago

5 Replies

Going to the dermo tomorrow. Are they things I need to ask to have done to rule out scleroderma?

Just a bit worried this is not just raynauds. No color changes ever. Just red and fingers and palms wrinkly. Better since I've been using eurecin. Nail folds...

Just a bit worried this is not just raynauds. No color changes ever. Just red an...

Tiny1966

•11 years ago

8 Replies

PLease help , has anyone had problems ordering items from RSA web site. Can;t be.lieve I'm the only one

grannyannie

•11 years ago

6 Replies

Anyone else been diagnosed with polyps in the gall bladder?

Should I be worried? The Dr found one when doing an abdo scan ... I have CREST ....

Should I be worried? The Dr found one when doing an abdo scan ... I have CREST ...

AliW

•11 years ago

1 Reply

Can you have red wrinkled fingers and red nail folds with raynauds?

Tiny1966

•11 years ago

4 Replies

New Here :)

Ive known for a while i had raynauds but dr didnt diagnose me until earlier this year as i went into hospital for an unrelated reason and they asked if i had...

Ive known for a while i had raynauds but dr didnt diagnose me until earlier this...

mum32008

•11 years ago

6 Replies

I would like to ask members of the forum what their experiences are regards loss of balance and dizziness?

I have had reynauds for 17 years and only been diagnosed with Scleroderma this year. As we all know Reynauds is a problem with circulation. Over the past 2...

I have had reynauds for 17 years and only been diagnosed with Scleroderma this y...

titanicus

•11 years ago

13 Replies

Any advice on practical footwear?

I work outside and am on my feet a lot. In winter I wear Doc Martens with thermal insoles, and silver undersocks but am finding that this isn't enough any...

I work outside and am on my feet a lot. In winter I wear Doc Martens with therma...

cheesemonger

•11 years ago

13 Replies

Need help on deciding what volunteer work i can do...

really need to do something im getting so bored of just being in trying to keep warm.. help before i go insane....

really need to do something im getting so bored of just being in trying to keep ...

fairygoddess83

•11 years ago

5 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for November 2013

Bipolar, autoimmune disorder, raynauds and a vitamin b12 problem.

Please sign petition. Winter fuel allowance for people affected by the cold. Thank you.

Just found in LIDL instant hand warmers £1.49 for 2 in 3 shape, instant heat, then when they cool (1hr)use the 'old'sort to take over.X

My Reynauds over the past 17 years has now progressed to Scleroderma. I am finding it difficult to cope.

I have this itch that come and go my fingers itch and under my feet the more I scratch the more itch some of my fingers have these hard spot

Hi, first of all I really empathise with everyone who is suffering with raynauds and scleroderma , it is such as a difficult disease to

How do you differentiate between primary & secondary Raynauds?

My index finger spasem at the tip in june and since has developed an ulcer, advice as i am seeing a surgeon this friday

Cold nose at night

Was tested positive for Romberg's at Royal Free last month.

Can anyone in the forum recommend where alpaca lined gloves can be obtained. I remember this subject being aired recently.Any advice?

40 pairs of handwarmers £8.99!!

primary raynoids

Anyone: have you been diagnosed with Achenbach syndrome (paroxysmal haematoma of fingers (& toes)) or Ehlers Danlos?

anyone else suffer with real achy/painful legs from raynoids???

terrible Russian medicine

Am not coping at all ? - I have CREST & my Raynauds is very troublesome - the whole condition is getting me down..

help with day to day living with raynoids? ?

help with day to day living with raynoids? ?

Baby with raynauds and this freezing weather,help please?

The Raynaud's Winter Survival Kit: 2013 Update!

My face is always red like I'm hot or blushing.......?!?!

Going to the dermo tomorrow. Are they things I need to ask to have done to rule out scleroderma?

PLease help , has anyone had problems ordering items from RSA web site. Can;t be.lieve I'm the only one

Anyone else been diagnosed with polyps in the gall bladder?

Can you have red wrinkled fingers and red nail folds with raynauds?

New Here :)

I would like to ask members of the forum what their experiences are regards loss of balance and dizziness?

Any advice on practical footwear?

Need help on deciding what volunteer work i can do...

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