Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,877 members • 5,431 posts

All posts for October 2019

Mycophenolate

I have limited scleroderma now for 10 years I have just been prescribed mycophenolate has anybody have any tips or advise as I feel a little worried about...

I have limited scleroderma now for 10 years I have just been prescribed mycophen...

satellite

•5 years ago

19 Replies

Is a Hiatus hernia related to my systemic sclerosis?

Hello I suffer with limited cutaneous systemic sclerosis. Due to swallowing problems, heartburn and acid I had an endoscopy where they discovered a sliding...

Hello I suffer with limited cutaneous systemic sclerosis. Due to swallowing prob...

-missymoo

•5 years ago

17 Replies

Length of Iloprost Side Effects following infusion

I had 5 days of Iloprost 14/10 -18/10. I found it pretty tough going with the awful side effects. Expected some, however, never anticipated they would be so...

I had 5 days of Iloprost 14/10 -18/10. I found it pretty tough going with the a...

Slinky72

•5 years ago

12 Replies

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Unable to extend legs at knee

Hello, My hands cant straighten as many of you experienced but I’m unable to straighten my leg, it’s like trying to straighten my fingers. I’ve researched &...

Hello, My hands cant straighten as many of you experienced but I’m unable to str...

lennyplus4

•5 years ago

6 Replies

Purple toe!

My toe has been purple for a few months now...secondary Raynauds, just the one next to my big toe. It is swollen and I can't really feel it belongs to me from...

My toe has been purple for a few months now...secondary Raynauds, just the one n...

marilynmcl

•5 years ago

11 Replies

ANA titer 1:2560 no diagnosis and discharged from rheumatology with no further testing.

New to this. I had bloods done last year positive for ANA, consultant said nothing to worry about and go back in 1 year. On speaking to the nurse taking my...

New to this. I had bloods done last year positive for ANA, consultant said nothi...

WeeAng

•5 years ago

6 Replies

Spontaneous finger bruising

Hello everyone, I new here and have found all the Information very helpful. I haven't been formally diagnosed with Raynaud's but I have all the symptoms....

Hello everyone, I new here and have found all the Information very helpful. I...

BJFlower

•5 years ago

2 Replies

Calcinosis

Could anyone tell me if this is calcinosis it’s on the joint of my finger it’s getting bigger and painful thanks

Could anyone tell me if this is calcinosis it’s on the joint of my finger it’s g...

160376

•5 years ago

2 Replies

Sclerederma versus scleredema?

Hello I am new to this site and hope to hear from others with my condition. I have an Autoimmune disease that mimics scleroderma and was originally diagnosed...

Hello I am new to this site and hope to hear from others with my condition. I ha...

Hidden

•5 years ago

3 Replies

Hi .. Has anyone else had rayaulds attacks on there nipples and breasts.. And how have they handled pregnancy

Im not sure weather I keep having extreme raynaulds attacks in my breasts and nipples .. As I'm only 9 weeks pregnant, I think its way to early for them to...

Im not sure weather I keep having extreme raynaulds attacks in my breasts and ni...

fairygoddess83

•5 years ago

1 Reply

Gastro !

I have been suffering very badly with gastro problems . Lady night I was up for long lengths of time being sick and the burning sensation today is horrendous...

I have been suffering very badly with gastro problems . Lady night I was up for ...

forevermu

•5 years ago

6 Replies

N-1 study...

I’ve just suddenly come into a period of super strong pain in my bones/limbs and I’ve decided to try compression on my limbs to see if it has any effect at all...

I’ve just suddenly come into a period of super strong pain in my bones/limbs and...

Hidden

•5 years ago

4 Replies

Screloderma & Raynauds

Screloderma with secondry Raynauds i got ulcers on my feet 6wks ago and my toes have just healed now. But one toe has been left pinky purple colour has anyone...

Screloderma with secondry Raynauds i got ulcers on my feet 6wks ago and my toes ...

Pammy1966

•5 years ago

4 Replies

Iloprost infusion

Does anyone have elective Iloprost infusions annually? I had one last December and it worked really well. I am wondering if I should ask for one before the...

Does anyone have elective Iloprost infusions annually? I had one last December a...

UCTD

•5 years ago

8 Replies

Free Flu vaccination

Does anyone one know if you have systemic sclerosis and on hydroxychloroquine whether you are entitled to a free annual flu vaccine?

Does anyone one know if you have systemic sclerosis and on hydroxychloroquine wh...

Hidden

•5 years ago

9 Replies

Sildenifil when trying to conceive

I take sildenifil for secondary raynauds disease and am also trying for a baby. If you have been in this situation what was the advice you were given from...

I take sildenifil for secondary raynauds disease and am also trying for a baby. ...

Dancingc21

•5 years ago

2 Replies

Calcinosis??

Posted picture of ? Early Calcinosis

UCTD

•5 years ago

1 Reply

Phototherapy UVA1

Hello, has anyone benefited from phototherapy for morphea/skin tightening. I'm about to start some treatment

Hello, has anyone benefited from phototherapy for morphea/skin tightening. I'm ...

shopaddict

•5 years ago

5 Replies

Weird swelling in one ankle/foot only?

Bit of back history first... Likely broke my foot about 10 weeks ago now (drs aren't certain, but pretty sure, xray not 100% definitive.) Still fair lump over...

Bit of back history first... Likely broke my foot about 10 weeks ago now (drs a...

bengali

•5 years ago

6 Replies

Calcinosis

I noticed today on the inside of my wrist two white lumps. My wrist is very tight. They have literally appeared over night. Could this be Calcinosis? I have...

I noticed today on the inside of my wrist two white lumps. My wrist is very tigh...

UCTD

•5 years ago

2 Replies

Head fullness /swollen legs

Hi there wondering if anyone has advice on head fullness , ive been getting the worst of it the last 3 months or so , i get whooshing in my head and nearly...

Hi there wondering if anyone has advice on head fullness , ive been getting the ...

Emfrenette

•5 years ago

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Mobility Issues

Firstly I want to thank every single person who took the time to respond to my previous post regarding my horrid doctor, it meant more than you know and gave...

Firstly I want to thank every single person who took the time to respond to my p...

PickledGinger

•5 years ago

1 Reply

Gut affected by Scleroderma

Hi, My wife was diagnosed with Scleroderma in May 2019 and have been in and out of hospital since. In July, she had renal failure and was admitted to...

Hi, My wife was diagnosed with Scleroderma in May 2019 and have been in and out ...

simon_m

•5 years ago

9 Replies

Wrist warmers

I have just discovered these wrist warmers. They are brilliant for me. I have had Reynauds for 38 years along with other things and these are the the best...

I have just discovered these wrist warmers. They are brilliant for me. I have ha...

Hidden

•5 years ago

4 Replies

strange taste and smell

I have limited scleroderma and recently lost my sense of taste and smell and now I have a sense of taste and smell that is absolutely awful, everything tastes...

I have limited scleroderma and recently lost my sense of taste and smell and now...

Abbybobtim

•5 years ago

13 Replies

Mobility issues

I have scleroderma, lupus, osteoarthritis, sero negative arthritis, myelopathy, antiphosphilipid syndrome and a bunch of horrible other stuff. For the last 18...

I have scleroderma, lupus, osteoarthritis, sero negative arthritis, myelopathy, ...

PickledGinger

•5 years ago

6 Replies

Calcinosis

I think I’ve just developed my first (noticed) blob of calcinosis on my finger - my question is: What’s the mechanism in the body with scleroderma-related...

I think I’ve just developed my first (noticed) blob of calcinosis on my finger -...

Hidden

•5 years ago

18 Replies

Average Age of first Raynauds outward symptoms. What were they? How are you now?

I was 27. (47 now) And the very tips of a finger or 2 would get white in freezer section of grocery store. Without touching anything. A year later in the...

I was 27. (47 now) And the very tips of a finger or 2 would get white in freezer...

Magsterly

•5 years ago

23 Replies

Cold weather prep

Hi everyone, our season is starting to begin cold weather 😪 Anyone have suggestions for pre-winter Raynaud’s- swelling /aches/pains/stiffness? I have my...

Hi everyone, our season is starting to begin cold weather 😪 Anyone have suggest...

lennyplus4

•5 years ago

7 Replies

Club feet

My granddaughters 3 and a halve she had surgery 15 days ago she woke up 3 or 4 times a night screaming it hurts drs at Shriners said she's not in pdin doesn't...

My granddaughters 3 and a halve she had surgery 15 days ago she woke up 3 or 4 t...

Sonyaburke

•5 years ago

2 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for October 2019

Mycophenolate

Is a Hiatus hernia related to my systemic sclerosis?

Length of Iloprost Side Effects following infusion

Unable to extend legs at knee

Purple toe!

ANA titer 1:2560 no diagnosis and discharged from rheumatology with no further testing.

Spontaneous finger bruising

Calcinosis

Sclerederma versus scleredema?

Hi .. Has anyone else had rayaulds attacks on there nipples and breasts.. And how have they handled pregnancy

Gastro !

N-1 study...

Screloderma & Raynauds

Iloprost infusion

Free Flu vaccination

Sildenifil when trying to conceive

Calcinosis??

Phototherapy UVA1

Weird swelling in one ankle/foot only?

Calcinosis

Head fullness /swollen legs

Mobility Issues

Gut affected by Scleroderma

Wrist warmers

strange taste and smell

Mobility issues

Calcinosis

Average Age of first Raynauds outward symptoms. What were they? How are you now?

Cold weather prep

Club feet

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