Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,877 members • 5,431 posts

All posts for November 2016

That time of year, plasters and antiseptic creams

Ugh, so I've got several potential digital ulcer outbreaks. It's that time of year whereby any minor breakage of skin on fingers has the potential to...

Ugh, so I've got several potential digital ulcer outbreaks. It's that time of ye...

gindy

•7 years ago

19 Replies

I am due to have Iloprost for the first time

Hi all I am due to have illoprost shortly. I have very bad raynauld which has lead to terrible ulcerated fingers. They are extremely painful and I have not...

Hi all I am due to have illoprost shortly. I have very bad raynauld which has le...

ceceliac10

•8 years ago

6 Replies

Dizzy unbalanced spells and flying

Hi everyone, I'm currently being investigated for numerous symptoms associated with my conditions, but at the moment I've been struggling in particular with...

Hi everyone, I'm currently being investigated for numerous symptoms associated ...

Croft1987

•8 years ago

11 Replies

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Cold feet ☃️

I am looking for advice about socks ! I can not seem to keep my feet warm, my toes are not so sore at the moment but they do feel like blocks of ice. I am...

I am looking for advice about socks ! I can not seem to keep my feet warm, my to...

weathervane

•8 years ago

33 Replies

possible raynauds or arthritis

hi need a bit of advice , ive been having problems with my fingers /cold aching cracking in both hands and getting lots of cramp especially in left hand an...

hi need a bit of advice , ive been having problems with my fingers /cold aching ...

eggbox1970

•8 years ago

6 Replies

raymonds condition

I HAVE raymonds condition fingers in real pain going for iproust treatment next week want to know will it stop the pain

I HAVE raymonds condition fingers in real pain going for iproust treatment next ...

marcuspaul123

•8 years ago

4 Replies

Raynauds breast pain

I am 35 and ever since I started to develop first hint of breasts at puberty I have had bouts of extreme pain in them. I used to get it when walking to school...

I am 35 and ever since I started to develop first hint of breasts at puberty I h...

lauraalice

•8 years ago

15 Replies

problem eating

Having problems eating starts off all right but then food gets lodged in my chest I get hiccups and pain , I have to be sick to get rid of the blockage ,it is...

Having problems eating starts off all right but then food gets lodged in my ches...

galaxie

•8 years ago

9 Replies

constipation and problems with bowel movement

My name is Roni (30) and I have Scleroderma. When I was 18 I was diagnosed with Scleroderma and Raynaud's. During the years I've been dealing with the...

My name is Roni (30) and I have Scleroderma. When I was 18 I was diagnosed with...

roni_wsbrg

•8 years ago

11 Replies

Hot Topic

If someone else has written about this...apologies....may have missed it! Anyway, does anyone else get bouts of heat flushing...not menopause but...

If someone else has written about this...apologies....may have missed it! Anywa...

marilynmcl

•8 years ago

10 Replies

Try Moringa

Your hands look better than mine. Am taking 5000 mg of Moringa each morning. If needed, also take another 5000 mg in the evening. It helps. I only wish the...

Your hands look better than mine. Am taking 5000 mg of Moringa each morning. If ...

Richmi

•8 years ago

Be the first to reply

Iloprost

I have raynuards scleroderma copd and vascular disease rematolgy want me to go in for iloprost and my vascular surgeon said no anyone got answers

I have raynuards scleroderma copd and vascular disease rematolgy want me to go ...

Billyboy240863

•8 years ago

1 Reply

Burning Pain.

Good morning you lovely people .Does anybody out there have burning pain ? every morning when I wake my thigh is burning so much so it feels like I have a...

Good morning you lovely people .Does anybody out there have burning pain ? ever...

GillSuffolk

•8 years ago

4 Replies

Anybody else?

Hands look like this? Why

Tay171

•8 years ago

33 Replies

Shaky hands

Anyone get this symptom or twitches

Tay171

•8 years ago

9 Replies

Try Moringa. Works for me.

Am studying Medical coding at 63 years of age. Just finished reading about Pernicious Anemia and it symptoms. I have Raynaud's and it looks as if it could be...

Am studying Medical coding at 63 years of age. Just finished reading about Perni...

Richmi

•8 years ago

Be the first to reply

Newely Diagnosis " Crest" & waiting appointment in January

Not all sunk in and frightened to death of what's going to happpen 😞 I have been reading about it & understand bits, but can this come on very quick ?

Not all sunk in and frightened to death of what's going to happpen 😞 I have bee...

Suziandscarlett

•8 years ago

7 Replies

Raynaurds

I lost over 40 lbs this year and was when I first noticed raynaurds . Iv been taking contraception pill and gaining weight and it looks better already I'm...

I lost over 40 lbs this year and was when I first noticed raynaurds . Iv been ta...

Tay171

•8 years ago

2 Replies

Increasing mycophenolate dose

Hi everyone, I've been taking mycophenolate for 6 months, 500mg a day. At my annual check up with the rheumy last week, she said that she felt it should be...

Hi everyone, I've been taking mycophenolate for 6 months, 500mg a day. At my an...

Wengc

•8 years ago

9 Replies

Below knee amputation

I have. Had below knee amputation 6 month ago anyone help me what socks to wear and cream to put on my scar seems to rub all the time when I walk

I have. Had below knee amputation 6 month ago anyone help me what socks to wear ...

Billyboy240863

•8 years ago

2 Replies

Ten fingers and toes

What works for you for the pain and the sores that develops with raynods

Delissedoesclay

•8 years ago

11 Replies

I'm am going in for iloprost anyone had it before and did it help

Iloprost

Billyboy240863

•8 years ago

13 Replies

Raynaurds ?

My Doctor keeps telling me raynaurds is common and I have nothing to worry about . But my hands are always red. Never blue or white ? They go red and blotchy...

My Doctor keeps telling me raynaurds is common and I have nothing to worry about...

Tay171

•8 years ago

14 Replies

Kidney issues

Hi, I Have both Raynauds & Scleroderma which I manage quite well some medication but mostly being sensible. This last week now the weather has got colder I...

Hi, I Have both Raynauds & Scleroderma which I manage quite well some medication...

newton

•8 years ago

2 Replies

Auto immune diseases and dizziness in the work place... advice needed

Hi, I'm new to this site and sites like this in general but I'm at a loss and seeking some advice. Over the last year or so I've been diagnosed with an...

Hi, I'm new to this site and sites like this in general but I'm at a loss and se...

Croft1987

•8 years ago

12 Replies

Ginkgo biloba

I have been recommended Ginkgo for Raynaud's but I see there is more than one type of Ginkgo, does anyone know which is best? Thanks

I have been recommended Ginkgo for Raynaud's but I see there is more than one ty...

foxglove

•8 years ago

9 Replies

Paper type cuts appearing on fingers

Yup, seems there's yet another wonderful symptom developed... Has anyone else had paper cuts (it's the closest thing I can call them) appearing on your finger...

Yup, seems there's yet another wonderful symptom developed... Has anyone else ha...

gindy

•8 years ago

12 Replies

Employment Ended

Hi All Well we're do I start, I was diagnosed with Scleroderma in March and I'm still trying to get my head round it all! I'm am/was working full time, my...

Hi All Well we're do I start, I was diagnosed with Scleroderma in March and I'm ...

sharon2751

•8 years ago

6 Replies

Acidy taste in throat and lungs

I suffer with this acidy taste in my throat and it feels like the acid sits on my lungs is this dangerous and what can it do if it is on my lungs as I'm...

I suffer with this acidy taste in my throat and it feels like the acid sits on m...

Rd12345

•8 years ago

5 Replies

Saw neurologist about Erythromelalgia

I was able to see my neurologist on Tuesday and he agrees that I have Erythromelalgia. He feels it's just another piece of the puzzle in my non-specific...

I was able to see my neurologist on Tuesday and he agrees that I have Erythromel...

Goldyukr

•8 years ago

5 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for November 2016

That time of year, plasters and antiseptic creams

I am due to have Iloprost for the first time

Dizzy unbalanced spells and flying

Cold feet ☃️

possible raynauds or arthritis

raymonds condition

Raynauds breast pain

problem eating

constipation and problems with bowel movement

Hot Topic

Try Moringa

Iloprost

Burning Pain.

Anybody else?

Shaky hands

Try Moringa. Works for me.

Newely Diagnosis " Crest" & waiting appointment in January

Raynaurds

Increasing mycophenolate dose

Below knee amputation

Ten fingers and toes

I'm am going in for iloprost anyone had it before and did it help

Raynaurds ?

Kidney issues

Auto immune diseases and dizziness in the work place... advice needed

Ginkgo biloba

Paper type cuts appearing on fingers

Employment Ended

Acidy taste in throat and lungs

Saw neurologist about Erythromelalgia

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