Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,477 members • 38,437 posts

All posts for April 2024

Antibiotic and Actemra

Hello folks, I have an infection in my tooth and need to take an antibiotic for 10 days. If I'm understanding the guidelines for Actemra correctly,...

Hello folks, I have an infection in my tooth and need to take an antibiotic for...

ILbbHpmr

•1 month ago

10 Replies

Tapering after a flare

I posted at the beginning of April saying I had a flare up of my PMR At the time I was on 5/4 mgs and I rang the rheumatology nurses as my rheumatologist was...

I posted at the beginning of April saying I had a flare up of my PMR At the ti...

Magictherabbit

•1 month ago

7 Replies

potassium

I was recently told I had high potassium!! I’m on methotrexate for RA.. also have hyperparathyroidism!!! !!! Anyone else had this???

I was recently told I had high potassium!! I’m on methotrexate for RA.. also hav...

Jakey2020

•1 month ago

1 Reply

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update

Not sure what’s going on, I had blood tests because of headaches and temple pain but I’ve just had a call from rheumatologist now making an urgent appointment...

Not sure what’s going on, I had blood tests because of headaches and temple pain...

Numptybrain

•1 month ago

11 Replies

PMR and covid vaccination

I’ve been asked to have a seasonal covid vaccination because of my weakened autoimmune system, due to PMR. There’s a lot online about covid vaccines and PMR,...

I’ve been asked to have a seasonal covid vaccination because of my weakened auto...

Freshairfiend

•1 month ago

36 Replies

Calcium Citrate questions

I’ve been taking Calcium Carbonate on and off for over 5 years but my stomach really doesn’t like it. It makes me gassy and and causes me to have stomach...

I’ve been taking Calcium Carbonate on and off for over 5 years but my stomach re...

Floridafan

•1 month ago

2 Replies

Parkinsons

I started with PMR over 2 years ago and have slowly tapered to 4mg. I went to my Dr with a few strange symptoms and she thinks I have Parkinsons as well as...

I started with PMR over 2 years ago and have slowly tapered to 4mg. I went to my...

Booklist

•1 month ago

7 Replies

Benefit of coherent breathing

Before PMR, I was experiencing bouts of arrythmia. Even on controlling drugs, it still occurred about every 25 days. At the start of PMR, I was diagnosed with...

Before PMR, I was experiencing bouts of arrythmia. Even on controlling drugs, it...

PhilFreeToAsk

•1 month ago

2 Replies

New to PMR

I just wanted to introduce myself and to say thank you for the wealth of information and advice from those on this forum. I was given a diagnosis of PMR by my...

I just wanted to introduce myself and to say thank you for the wealth of informa...

Trentside

•1 month ago

31 Replies

GCA or Occipital Neauralgia

confused. I’ve seen a rheumatologist three times in the last year Re:Temporal Arteritis . I’ve had a biopsy which came back negative, because previously my...

confused. I’ve seen a rheumatologist three times in the last year Re:Temporal Ar...

Qscrabble8

•1 month ago

18 Replies

GCA not sure if I have it or not

I started feeling a heartbeat in my temple. It wasn't very often but also my temple would ache sometimes. I contacted Dr. They sent me to fast track...

I started feeling a heartbeat in my temple. It wasn't very often but also my te...

jls12

•1 month ago

10 Replies

Generic TCZ---is it available in the UK?

My friends, Without this forum, my GCA journey would have been entirely different. You have all been there to support me, educate me, and reinforce me when...

My friends, Without this forum, my GCA journey would have been entirely differ...

Grammy80

•1 month ago

8 Replies

Hospital stay: expecting too much?

Two weeks ago I had a successful shoulder replacement op. When I was taken to ward from recovery, a nurse stressed that I should not hesitate to use the...

Two weeks ago I had a successful shoulder replacement op. When I was taken to wa...

IlovePorridge

•1 month ago

18 Replies

Biopsy Negative for GCA

The vascular surgeon said the biopsy for GCA was negative. I asked him if the biopsy result depends on where he took the biopsy. He said no and that it’s...

The vascular surgeon said the biopsy for GCA was negative. I asked him if the b...

Moaningxcat

•1 month ago

30 Replies

useful articles and video on PMR by rheumatologists

not sure if these have been noted before, but I recently came across a website called rheumnow. It appears to be for rheumatologists to discuss different...

not sure if these have been noted before, but I recently came across a website c...

Freshairfiend

•1 month ago

4 Replies

GCA/pmr

blood results CRP 1 ESR 19 up from 7 two weeks ago . How would you experienced people determine this

blood results CRP 1 ESR 19 up from 7 two weeks ago . How would you experienced...

CavalierKC3

•1 month ago

12 Replies

A&E AGAIN!!

So, not only have I enjoyed the delights of sampling A&E, Colchester a few weeks ago but I was also given the opportunity to sample Warwicks A&E offering on...

So, not only have I enjoyed the delights of sampling A&E, Colchester a few weeks...

Kendrew

•1 month ago

58 Replies

Synacthen test results

Update on Synacthen test results from 26/4/24. Thought this may be of interest. 9.20 cortisol blood test - 220 (better than cortisol test on 26/3/24 - 131)...

Update on Synacthen test results from 26/4/24. Thought this may be of interest. ...

Bluey-1

•1 month ago

19 Replies

How to handle a “mild” flare

Hi I was diagnosed mid- January ‘24 and my Rheumy is a bit on the aggressive side. Started at 20 mg and felt amazing. After a mo th we dropped to 15. All...

Hi I was diagnosed mid- January ‘24 and my Rheumy is a bit on the aggressive si...

NCStateLine

•1 month ago

4 Replies

Stabbing headache..GCA?

I've been plateauing on 2.5mg prednisolone for the last 2 months as we've had lots of visitors and it's been difficult to keep to our normal low key routine ....

I've been plateauing on 2.5mg prednisolone for the last 2 months as we've had lo...

Clarbeston

•1 month ago

21 Replies

low carb bread, rolls. Worth trying?

greetings lovely people. In to week 5 after confirmed PMR diagnosis. Feeling tons better. just started VERY slow tapering from 15mg Lots in today’s forum...

greetings lovely people. In to week 5 after confirmed PMR diagnosis. Feeling ton...

Scaredofpred

•1 month ago

5 Replies

Rheumatologist referral

Hi everyone I was diagnosed in October 2021 with PMR. I followed the doctors ‘normal’ reduction plan at first. I was able to get down to 5 mg with reasonable...

Hi everyone I was diagnosed in October 2021 with PMR. I followed the doctors ‘n...

MrsPractical

•1 month ago

11 Replies

Cracked finger tips, could this be caused by prednisolone?

The tips of my fingers are getting cracks, which can be a bit painful but mainly annoying as it makes opening things awkward. Started with a little crack by...

The tips of my fingers are getting cracks, which can be a bit painful but mainly...

Preposterous

•1 month ago

27 Replies

Hot flushes returned since PMR diagnosis

I thought my hot flushes had gone after 8 years of surviving the menopause but since being diagnosed with PMR in March this year they have returned. I wonder...

I thought my hot flushes had gone after 8 years of surviving the menopause but s...

Shadowboxes

•1 month ago

7 Replies

Grateful to be at 10mg finally

Hi everyone, after 21 months of GCA and PMR I am finally down to 10mg. I tried Methotrexate but the side effects were too much. I took weekly injections for 5...

Hi everyone, after 21 months of GCA and PMR I am finally down to 10mg. I tried M...

potterylady

•1 month ago

13 Replies

Impact of a Mediterranean Diet

Hello all I don't post often now but wanted to share some very positive news, that might be useful to some of you. I'm 4.5 years into PMR and am currently...

Hello all I don't post often now but wanted to share some very positive news, th...

Coffeebeans

•1 month ago

37 Replies

Between a rock and a hard place!!

I was so delighted to report that I took my last Prednisolone on 28th April 2024 and wasn’t totally surprised that I experienced the usual ‘drop’ symptoms that...

I was so delighted to report that I took my last Prednisolone on 28th April 2024...

Prof99

•1 month ago

22 Replies

neck pain with clicking and popping when I move

I've had clicking and popping and pain in the muscles of my neck for a couple of months . I just figured it was a stiff neck from reading and looking down and...

I've had clicking and popping and pain in the muscles of my neck for a couple of...

Paperroses

•1 month ago

6 Replies

Turmeric Drink Shots

Mmmmmm. I am trying out Turmeric shots as a way to alleviate pain and aches... I had my first one at about noon and the aching and pains have gone. Just that...

Mmmmmm. I am trying out Turmeric shots as a way to alleviate pain and aches... ...

Hidden

•1 month ago

59 Replies

Looking for a private Rheumatologist

Hello, forgive me if I’ve asked this before. Does anyone see a private Rheumatologist who is also practicing in the NHS who will treat the whole person and...

Hello, forgive me if I’ve asked this before. Does anyone see a private Rheumato...

Bramble2000

•1 month ago

18 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2024

Antibiotic and Actemra

Tapering after a flare

potassium

update

PMR and covid vaccination

Calcium Citrate questions

Parkinsons

Benefit of coherent breathing

New to PMR

GCA or Occipital Neauralgia

GCA not sure if I have it or not

Generic TCZ---is it available in the UK?

Hospital stay: expecting too much?

Biopsy Negative for GCA

useful articles and video on PMR by rheumatologists

GCA/pmr

A&E AGAIN!!

Synacthen test results

How to handle a “mild” flare

Stabbing headache..GCA?

low carb bread, rolls. Worth trying?

Rheumatologist referral

Cracked finger tips, could this be caused by prednisolone?

Hot flushes returned since PMR diagnosis

Grateful to be at 10mg finally

Impact of a Mediterranean Diet

Between a rock and a hard place!!

neck pain with clicking and popping when I move

Turmeric Drink Shots

Looking for a private Rheumatologist

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