PMRGCAuk | HealthUnlocked

PMRGCAuk

20,326 members • 38,082 posts

Coopersmummy7

Hi,I am new to this awful condition.Had nearly a year of being undiagnosed and finally rushed into hospital Dec.22 with GCAand loss of sight in one eye.Long...

Hi,I am new to this awful condition.Had nearly a year of being undiagnosed and f...

Angelsmummy

•3 days ago

81 Replies

Turmeric Drink Shots

Mmmmmm. I am trying out Turmeric shots as a way to alleviate pain and aches... I had my first one at about noon and the aching and pains have gone. Just that...

Mmmmmm. I am trying out Turmeric shots as a way to alleviate pain and aches... ...

discoballs

•1 day ago

42 Replies

Covid vaccination in England for 75 & over & those on 20mg steroids at this moment, & 20mg for over one month

I arrived at my appointment for Covid vax this morning, and told the truth, the whole truth & nothing but the truth. I suffer fromPolymyalgia Rheumatica,...

I arrived at my appointment for Covid vax this morning, and told the truth, the...

Pixix

•6 days ago

93 Replies

New & Confused with GCA

Hello, I’m asking for help and advice as the wife (and carer) for my husband who was diagnosed with GCA on April 1st…I wish it had been an Fools’ Day prank,...

Hello, I’m asking for help and advice as the wife (and carer) for my husband who...

Hidden

•25 days ago

158 Replies

Stabbing headache..GCA?

I've been plateauing on 2.5mg prednisolone for the last 2 months as we've had lots of visitors and it's been difficult to keep to our normal low key routine ....

I've been plateauing on 2.5mg prednisolone for the last 2 months as we've had lo...

Clarbeston

•5 hours ago

15 Replies

Impact of a Mediterranean Diet

Hello all I don't post often now but wanted to share some very positive news, that might be useful to some of you. I'm 4.5 years into PMR and am currently...

Hello all I don't post often now but wanted to share some very positive news, th...

Coffeebeans

•19 hours ago

27 Replies

More Challenges to Overcome!

Some of you may recall that for some years, I've frequently experienced ectopic beats. They've been calmed down with a lowish dose of a beta blocker...

Some of you may recall that for some years, I've frequently experienced ectopic ...

Kendrew

•24 days ago

129 Replies

Disappointed and worried

Hi, Finally, i had my appointment with a Rheumatologist consultant. I went through my history of pain, I was initially diagnosed with PMR in sept last year...

Hi, Finally, i had my appointment with a Rheumatologist consultant. I went thr...

Cooper02

•8 days ago

64 Replies

Incidence of Large Vessel Vasculitis in late diagnosis of PMR

When I read members’ experiences of prompt PMR diagnoses I’m truly pleased for them but I have to admit to feeling a degree of envy. My diagnosis arrived...

When I read members’ experiences of prompt PMR diagnoses I’m truly pleased for t...

123-go

•4 days ago

42 Replies

Between a rock and a hard place!!

I was so delighted to report that I took my last Prednisolone on 28th April 2024 and wasn’t totally surprised that I experienced the usual ‘drop’ symptoms that...

I was so delighted to report that I took my last Prednisolone on 28th April 2024...

Prof99

•21 hours ago

20 Replies

Prednisolone and diabetes / high bp worried sick about all the side effects

hi everyone I was diagnosed with PMR in February this year And despite being a diabetic with high bp was put on Prednisolone and alendronic acid - I was...

hi everyone I was diagnosed with PMR in February this year And despite being a d...

Pol53

•7 days ago

54 Replies

Knee Replacement Yesterday

Thanks to those of you who wished me well yesterday. I had full knee replacement surgery yesterday afternoon. On the advice of the surgical team I had my...

Thanks to those of you who wished me well yesterday. I had full knee replacemen...

Janet57

•2 days ago

31 Replies

Thoughts please on dissolving Prednisolone in water to drink instead of swallowing whole.

I only spotted this yesterday on the information in the Prednisolone tablets. In "Method of administration" section it says: "The tablets can be swallowed...

I only spotted this yesterday on the information in the Prednisolone tablets. In...

Positive__

•8 days ago

57 Replies

Cortisol issues

I'm fortunate in having a good GP who is very concerned about my total exhaustion and inability to cope with everyday life. She wrote to my rheumy who...

I'm fortunate in having a good GP who is very concerned about my total exhaustio...

Sammo47

•11 days ago

65 Replies

GCA? or something else?

Yesterday was an even more stressful day than most others. I had worked, as I usually do, for about 4 hours online, when I got a twinge of a headache in my...

Yesterday was an even more stressful day than most others. I had worked, as I u...

agingfeminist

•5 days ago

40 Replies

question

Does anyone get a pulsating sensation in their head on prednisone? I keep getting like my heartbeat really loud thumping in my head , sometimes it causes a...

Does anyone get a pulsating sensation in their head on prednisone? I keep gettin...

Numptybrain

•1 day ago

21 Replies

Rheumatologist referral

Hi everyone I was diagnosed in October 2021 with PMR. I followed the doctors ‘normal’ reduction plan at first. I was able to get down to 5 mg with reasonable...

Hi everyone I was diagnosed in October 2021 with PMR. I followed the doctors ‘n...

MrsPractical

•8 hours ago

11 Replies

Good bye and good luck to you all !

I am leaving PMRGCA uk and this group sadly I have to deal with terminal lung cancer that has moved into the bones. The NHS cannot cure only seek containment....

I am leaving PMRGCA uk and this group sadly I have to deal with terminal lung ca...

DevonMichael

•28 days ago

95 Replies

After PMR---energy and strength

Hi everyone, I haven't posted on here for quite a long time but I'm rearing my ugly head again. Hubby ceased taking Pred in September 2022 and the...

Hi everyone, I haven't posted on here for quite a long time but I'm rearing my ...

piggylovesgolf

•1 month ago

104 Replies

Severe mental reaction to prednisolone

As you can see if you read my profile I have spent almost the whole of the last 4 months struggling with a long list of frightening mood changes which have and...

As you can see if you read my profile I have spent almost the whole of the last ...

tinlid

•5 days ago

39 Replies

GCA Heart Issues

Hi, I was hospitalized with severe pain on my right side temporal artery and diagnosed with GCA. I am currently taking 50 mg prednisone and will taper to 40...

Hi, I was hospitalized with severe pain on my right side temporal artery and dia...

Moaningxcat

•2 days ago

24 Replies

Ozempic?

Has anyone used, or discussed with thier doctor, taking Ozempic to help with the weight gain from predizone?

Has anyone used, or discussed with thier doctor, taking Ozempic to help with the...

fairtree

•5 days ago

37 Replies

GCA, tinnitus etc

has anyone been diagnosed with pulsatile tinnitus, to do with GCA. I have buzzing in one ear 24/7 which comes & goes with vibrations in head. I have now...

has anyone been diagnosed with pulsatile tinnitus, to do with GCA. I have buzz...

CavalierKC3

•4 days ago

33 Replies

Hi, just wanted to introduce myself and say hello

Hi, having been diagnosed with PMR in March and joining this fantastic forum around the same time, I’ve finally got round to completing my profile! I am an...

Hi, having been diagnosed with PMR in March and joining this fantastic forum aro...

GRB8

•3 days ago

28 Replies

Is it a flare or not??

In August I will have had PMR for 4 years but I still struggle knowing whether I’m flaring or not. I have trouble reducing my Prednisolone dose despite doing...

In August I will have had PMR for 4 years but I still struggle knowing whether I...

Tiggy70

•17 days ago

63 Replies

Recieved rheumatologist letter and conclusion

Hi all, here is an update. I received my Rheumatologist letter and the conclusion was Fibromyalgia as expected. He is without any doubt that i have fibro and...

Hi all, here is an update. I received my Rheumatologist letter and the conclusi...

Cooper02

•2 days ago

22 Replies

Synacthen test results

Update on Synacthen test results from 26/4/24. Thought this may be of interest. 9.20 cortisol blood test - 220 (better than cortisol test on 26/3/24 - 131)...

Update on Synacthen test results from 26/4/24. Thought this may be of interest. ...

Bluey-1

•3 hours ago

6 Replies

Cracked finger tips, could this be caused by prednisolone?

The tips of my fingers are getting cracks, which can be a bit painful but mainly annoying as it makes opening things awkward. Started with a little crack by...

The tips of my fingers are getting cracks, which can be a bit painful but mainly...

Preposterous

•8 hours ago

9 Replies

Weight loss

Recently diagnosed taking 15mg predisilone per day. .I have followed dietary advice found on the forum for around 1 week.Over the past 3 weeks I have lost 10...

Recently diagnosed taking 15mg predisilone per day. .I have followed dietary adv...

Shires123

•1 month ago

86 Replies

From Prednisone to Morphine

I was wondering if anyone had been offered Morphine as an alternative to Prednisone? It’s been suggested to me by my new Rheumatologist recently. He’s...

I was wondering if anyone had been offered Morphine as an alternative to Prednis...

Chelseadog

•3 days ago

24 Replies

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Patience

A Rough Guide to PMR GCA uk history : so far May 2020 - by a...

PMR Guidelines 2015: https://www.rheumatology.org/Portals/0/...

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