Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,477 members • 38,437 posts

All posts for August 2021

Worried to take nortripyline

Hi everyone it is my first time taking nortriptyline is it a good medication I get nerve pain and spasms. And feel bit anxious to take it will it effect me...

Hi everyone it is my first time taking nortriptyline is it a good medication I ...

Alban2004

•3 years ago

19 Replies

Just been diagnosed with Takayasu Arteritis and feeling very anxious

Hi I have just been diagnosed with TAK. I started last year with severe headaches, constant dry cough and aching joints. I then got covid in December and...

Hi I have just been diagnosed with TAK. I started last year with severe headache...

DawnMezza

•3 years ago

57 Replies

Possible link between lowered folate reading in blood test and numbness

Just been put on a 3 month course of Folic Acid tablets 5mg 1 per day to boost my folate readings. Apparently it helps restore nerve issues and boosts red...

Just been put on a 3 month course of Folic Acid tablets 5mg 1 per day to boost m...

cycli

•3 years ago

1 Reply

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Not sure whether to take nortripyline

I had my covid vaccine nearly 2 weeks ago now can I take nortrypyline 10mg tablets first time taking. I am getting nerve pain after having a lletz procedure...

I had my covid vaccine nearly 2 weeks ago now can I take nortrypyline 10mg table...

Alban2004

•3 years ago

4 Replies

Kidney Issues

Under my Rheumatologist’s guidance, I have been slowly reducing prednisone by 1 mg a month and am down to 6mg, but probably will go down to 5 tomorrow. Just...

Under my Rheumatologist’s guidance, I have been slowly reducing prednisone by 1 ...

507Trail

•3 years ago

9 Replies

How can I help my mum get another vaccination?

Hello everyone, I'm new here and just trying to find some information for my mum. She has polymyalgia and was on a high (don't know the number I'm afraid) dose...

Hello everyone, I'm new here and just trying to find some information for my mum...

kkkmc

•3 years ago

23 Replies

Omega 3

For love nor Money can I work this out. Which has higher omega 3 please. See pic attached.

For love nor Money can I work this out. Which has higher omega 3 please. See pi...

Uglow

•3 years ago

8 Replies

I don't think I have PMR anymore

Since the beginning of June,I have not had the slightest twinge of PMR, which makes me think it has gone away. However I am on 5mgs of Prednisolone and am...

Since the beginning of June,I have not had the slightest twinge of PMR, which ma...

Sumdial

•3 years ago

18 Replies

Fall

I fell on the stairs a week ago and landed on my left buttock. the pain is debilitating. It is the same place as I have previously had polymialgia pain....

I fell on the stairs a week ago and landed on my left buttock. the pain is deb...

bBarnabus

•3 years ago

7 Replies

Excellent Rheumatologist appointment.

After phone call only consultations owing to the pandemic, I had a very welcome face to face meeting with a quite excellent rheumatologist a couple of weeks...

After phone call only consultations owing to the pandemic, I had a very welcome ...

Hidden

•3 years ago

32 Replies

Best vaccination

Best vaccination for polymyalgia rheumatica and giant cell arteritis

Chookiehen

•3 years ago

17 Replies

Feeling spaced out

Hi all, on day 6 of 10mg and feel really spaced out today.

Hidden

•3 years ago

1 Reply

Off Pred

Hi I havnt posted in a while because I’ve had to take myself completely off Pred ..because I’ve gone from seeing a private Consultant to waiting for months to...

Hi I havnt posted in a while because I’ve had to take myself completely off Pred...

Toobusyforthis

•3 years ago

18 Replies

Will this affect us?

From the Telegraph. A bit worrying. FAMILY doctors are being paid £100 an hour to work from home carrying out video and phone consultations, The Daily...

From the Telegraph. A bit worrying. FAMILY doctors are being paid £100 an hour...

piglette

•3 years ago

27 Replies

Adjusting Dose of Prednisone

I’m new here. Diagnosed 3 months ago. Maybe I am not understanding but it seems that people are adjusting meds for PMR on their own. Why without doctor’s...

I’m new here. Diagnosed 3 months ago. Maybe I am not understanding but it seems...

Hidden

•3 years ago

17 Replies

Is nicotinic acid( Vitamin B3) a useful supplement for sufferers from PMR?

There was an interesting article in Saturdays Times by a sufferer from Long Covid finding nicotinic acid helpful. I ‘m wondering if anyone knows anything about...

There was an interesting article in Saturdays Times by a sufferer from Long Covi...

Mindful3

•3 years ago

6 Replies

Polymyalgia

I am on 3x5mg a day instead of morning can I take these at night

Teddybear69

•3 years ago

11 Replies

NHS Adrenal advice

I’ve received the emergency card and notes from my GP. It advises to double the steroid dose whilst I have an infection which I currently do, sore throat,...

I’ve received the emergency card and notes from my GP. It advises to double the ...

Rancho

•3 years ago

6 Replies

Is it OK to regulate yourself on Prednisilone?

I was diagnosed with PMR in 2018 and then my GP said I had temporal arteritis this year. I have other medical issues. In 2018 I was put on a reducing dose of...

I was diagnosed with PMR in 2018 and then my GP said I had temporal arteritis t...

Morant

•3 years ago

8 Replies

No wonder I am struggling.

I have had the blood results back today from last Monday. The Dr, not my normal Dr, suggested that my CRP increased but not loads. Well. Back at the beginning...

I have had the blood results back today from last Monday. The Dr, not my normal ...

IdasMum

•3 years ago

7 Replies

Pred and gastroscopy

I’m having a gastroscope on Wednesday at 8.30 am. I usually take me Pred with breakfast around 8.30 - 9.00. I’ve been given conflicting advice about when to...

I’m having a gastroscope on Wednesday at 8.30 am. I usually take me Pred with b...

Plantmad

•3 years ago

6 Replies

PMR - vertigo and left shoulder/neck stiffness, slight jaw stiffness on waking

I have recently noticed stiffness in left shoulder/neck with headache above left eye, some vertigo and some tiredness. Also slightly stiff left jaw on waking...

I have recently noticed stiffness in left shoulder/neck with headache above left...

Miserere

•3 years ago

8 Replies

Post dental extraction

I had a molar removed yesterday afternoon due to severe pain and swelling. In my ignorant bliss I thought tooth out, pain and facial swelling will be gone, how...

I had a molar removed yesterday afternoon due to severe pain and swelling. In my...

ParsnipSoup

•3 years ago

14 Replies

Covid related posts

Further to my recent post about Covid vaccinations (link below) I wanted to add some further clarification about Covid related posts....

Further to my recent post about Covid vaccinations (link below) I wanted to add ...

Fran_Benson

Partner•3 years ago

5 Replies

What is an acceptable level of discomfort when tapering?

Yesterday was my first reduction in prednisolone, 15mg down to 12.5mg. My day was normal and fine, this morning I have woken with a slight increase in...

Yesterday was my first reduction in prednisolone, 15mg down to 12.5mg. My day wa...

Billiebobdog

•3 years ago

9 Replies

Reducing Prednisone, not working

Hi Wanted to see what others thought of the way I am trying to decrease prednisone. I have read and tried many of the ways it has been suggested to reduce...

Hi Wanted to see what others thought of the way I am trying to decrease predniso...

Linny3

•3 years ago

3 Replies

Hello all. I have had 3 blood tests recently, with a few problems. The latest test shows my cortisol level at 62. GP has marked this as OK.

Low serum cortisol level

Hirondelle

•3 years ago

7 Replies

Tapering 10% - wildfire stress

Hello all, This is a really stupid math question, if 10% of 13 is 1.3, does that mean it’s OK to go from 13 to 11? My excuse: I’ve had to...

Hello all, This is a really stupid math question, if 10% of 13 is 1.3...

Mstiles

•3 years ago

27 Replies

Coping with PMR

Absolutely new, 77 on the outside but younger on the inside. Would appreciate any advice relating to PMR please, just any tips that you found helped you. Have...

Absolutely new, 77 on the outside but younger on the inside. Would appreciate an...

Jodi365

•3 years ago

11 Replies

Arms oh my aching arms wrists back.

Arms oh my aching arms wrists and back. Right I’m going on 17.5mg for 3 weeks no tapering. Then I’ll drop 1 mg every 3 weeks thereafter. Unless I get really...

Arms oh my aching arms wrists and back. Right I’m going on 17.5mg for 3 weeks ...

Uglow

•3 years ago

1 Reply

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2021

Worried to take nortripyline

Just been diagnosed with Takayasu Arteritis and feeling very anxious

Possible link between lowered folate reading in blood test and numbness

Not sure whether to take nortripyline

Kidney Issues

How can I help my mum get another vaccination?

Omega 3

I don't think I have PMR anymore

Fall

Excellent Rheumatologist appointment.

Best vaccination

Feeling spaced out

Off Pred

Will this affect us?

Adjusting Dose of Prednisone

Is nicotinic acid( Vitamin B3) a useful supplement for sufferers from PMR?

Polymyalgia

NHS Adrenal advice

Is it OK to regulate yourself on Prednisilone?

No wonder I am struggling.

Pred and gastroscopy

PMR - vertigo and left shoulder/neck stiffness, slight jaw stiffness on waking

Post dental extraction

Covid related posts

What is an acceptable level of discomfort when tapering?

Reducing Prednisone, not working

Hello all. I have had 3 blood tests recently, with a few problems. The latest test shows my cortisol level at 62. GP has marked this as OK.

Tapering 10% - wildfire stress

Coping with PMR

Arms oh my aching arms wrists back.

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