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The Roy Castle Lung Cancer Foundation

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EGFR Exon 20 NSCLC

Hello, My partner was diagnosed with Stage 4 NSCLC recently aged 30. He doesn’t like looking up anything on the internet, and prefers if I do it. I have so...

Hello, My partner was diagnosed with Stage 4 NSCLC recently aged 30. He doesn’t...

gg1408

•2 years ago

10 Replies

Hot weather and breathing

Hubby struggling to breath in heat. Any ideas? He is Stage 4 NSCLC for 18 months and not currently on treatment but left lung collapsed so working on 1 only...

Hubby struggling to breath in heat. Any ideas? He is Stage 4 NSCLC for 18 mon...

snoopy6691

•3 years ago

5 Replies

What and how to trust the Keytruda is the right drug

I have stage IV Lung Cancer and found out when a tumor showed up on my Left hip and could not walk. It was tested and was (+) for cancer which spread from my...

I have stage IV Lung Cancer and found out when a tumor showed up on my Left hip ...

Lady1958

•4 years ago

8 Replies

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Steroids causing coughing to worsen?

My mum is starting her taxodere/Docetaxel treatment tomorrow. She’s been given steroids to take before she’s goes in. Since taking them her cough immediately...

My mum is starting her taxodere/Docetaxel treatment tomorrow. She’s been given s...

LewLew19

•4 years ago

4 Replies

Scared of going to hospital for scan

Is it important to have CT scans during chemo/immunotherapy? OH wants to cancel in case catches Covid. Is this wise?

Is it important to have CT scans during chemo/immunotherapy? OH wants to cancel ...

snoopy6691

•4 years ago

4 Replies

My mums journey with stage IV NSCLC

My dear mum was diagnosed with stage IV nsclc Adenocarcinoma back in July. This was found by chance on a scan for another unrelated issue. What a shock it was....

My dear mum was diagnosed with stage IV nsclc Adenocarcinoma back in July. This ...

LewLew19

•5 years ago

19 Replies

Delayed nausea and vomiting after chemo

My husband started carboplatin and pemetrexed for NSCLC 4 days ago. He is now feeling very sick and vomiting. He's not bringing much up as he can hardly eat....

My husband started carboplatin and pemetrexed for NSCLC 4 days ago. He is now fe...

Goingcuckoo

•5 years ago

6 Replies

Mum's stage 4 diagnosis

Last Monday my mum was diagnosed with a non-specific stage 4 lung cancer. I say non-specific as the consultant does not want to put her through a bronchoscopy...

Last Monday my mum was diagnosed with a non-specific stage 4 lung cancer. I say ...

Polly2018

•6 years ago

4 Replies

Delirium - infection, dexamethasone withdrawal or brain mets??

Hi all This may be a long post as it's been a stressful few days! I am interested to hear of anyone's experience of brain mets? What were the symptoms? My...

Hi all This may be a long post as it's been a stressful few days! I am intereste...

MissyD1

•7 years ago

2 Replies

Anxious and uncertain

My mum has sclc. And to cut it short... has been told she has now 2 months left to live. At what point do I get McMillan involved in care? I don't want to...

My mum has sclc. And to cut it short... has been told she has now 2 months left ...

Becks1

•7 years ago

5 Replies

Fresh from first visit to oncologist Is palliative chemo worth it?

This is my first post here. Today I saw my specialist for the first time. I've had all manner of tests to find a cause for my upset stomach and weight loss. He...

This is my first post here. Today I saw my specialist for the first time. I've h...

Ghost-by-the-coast

•7 years ago

11 Replies

Navelbine tablet form

Hi my name is clair I was diagnosed in 2015 with stage 4 lung cancer adeno. I couldn't have surgery as cancer was to close to heart so I went on Chemo...

Hi my name is clair I was diagnosed in 2015 with stage 4 lung cancer adeno. I co...

Claifo1

•7 years ago

6 Replies

Mother stage 4 lung and liver cancer

hello, My mother was diagnosed last month with stage 4 lung cancer that has spread to the liver. We will find out on the 18th what the plan is since we have...

hello, My mother was diagnosed last month with stage 4 lung cancer that has spre...

lauriejean123

•7 years ago

4 Replies

Mum diagnosed with stage 4 lung cancer - The fight is on!!

Hi all, Well firstly i cant believe i am here but also very grateful to find this site. Its unbelievable how quickly your life can turn upside down in moments....

Hi all, Well firstly i cant believe i am here but also very grateful to find thi...

juliepoolie01

•7 years ago

5 Replies

Advice re flying with oxygen

Hi I'm writing on behalf of my dad, who has just been diagnosed with stage 4 lung cancer and very poor prognosis. He would really like to fly for a couple of...

Hi I'm writing on behalf of my dad, who has just been diagnosed with stage 4 lun...

digimum

•7 years ago

7 Replies

Mum's deteriorated rapidly

Hi mum has had chemo(didn't work) but was hospitalised for 10 days over Xmas due to lung clots, chest infection then put on steroids since then she literally...

Hi mum has had chemo(didn't work) but was hospitalised for 10 days over Xmas due...

BusyBee75

•7 years ago

5 Replies

Chemo being stopped!

Hello all, I posted a while ago, quick history Mum had lobectomy in Jan, all clear then cancer back in June, started chemo end July (4 rounds of 2 goes) had ct...

Hello all, I posted a while ago, quick history Mum had lobectomy in Jan, all cle...

BusyBee75

•8 years ago

1 Reply

Any advise please

Went with dad today for results of scan last 3 have been good shrunk by half, stable, stable again - this time the scan showed that the tumour looked like it...

Went with dad today for results of scan last 3 have been good shrunk by half, st...

TERRIpassword

•8 years ago

3 Replies

Docetaxel

I have NSC adenocarcinoma and am about to start Docetaxel as my third line treatment I would like to hear from anyone who is or has been on this chemo....

I have NSC adenocarcinoma and am about to start Docetaxel as my third line treat...

mags03

•8 years ago

7 Replies

Dad

My Dad has done great for 4 years. Now struggling for every breath on movement Can anyone tell me what going to happened. I am dad's carer. Thanks

My Dad has done great for 4 years. Now struggling for every breath on movement ...

debz1

•9 years ago

2 Replies

Wheel of Fortune Update

Rights fellow gamblers I have spun the Wheel of Chemo 4 times and ended up on..... Stable!,,!! Okay it's not the jackpot and it's not the booby prize so we say...

Rights fellow gamblers I have spun the Wheel of Chemo 4 times and ended up on......

Hidden

•9 years ago

9 Replies

More tests

Hi everyone It's been a while since I posted. I finished my chemo/radiation treatment in December 2014 and had a few ups and downs but overall a general...

Hi everyone It's been a while since I posted. I finished my chemo/radiation trea...

Jenco

•9 years ago

4 Replies

Gone to brain ...

Havent posted for a while but thought i should..coming to the end of my first chemo (6 sessions) have had no sickness at all. Tumour in my lung has reduced by...

Havent posted for a while but thought i should..coming to the end of my first ch...

EvaSamantha

•9 years ago

3 Replies

Rapid decline

Hello, my mom was dx stage 3 Oct 3rd then after a week of radiation therapy combined with chemo carbo/almita she had malignant pleural effusion and was given a...

Hello, my mom was dx stage 3 Oct 3rd then after a week of radiation therapy comb...

Hidden

•9 years ago

1 Reply

Work

Hi I was diagnosed with stage four nscl two years ago , I haven't been to work sinse , to be honest the whole Cancer thing has fried my head as I'm sure you...

Hi I was diagnosed with stage four nscl two years ago , I haven't been to work s...

steveisfab

•9 years ago

7 Replies

Are you in the midlands? Do you have an experience of late diagnosis?

We have been approached by Midlands Radio to find someone with experience of late diagnosis, whether a patient or family member. This is for an interview...

We have been approached by Midlands Radio to find someone with experience of lat...

LorraineD

Partner•10 years ago

Be the first to reply

My dad has finished gem/carbo chemo and it has not been successful.he is supposed to start radio today but he cant do it because he is weak

what is next?

Hidden

•10 years ago

13 Replies

Help about proposed treatment

Hi everyone I saw the medical oncologist yesterday for the first time and he is proposing a course of Cisplatin & Pemetrexed (Alimta) combined. Then, if this...

Hi everyone I saw the medical oncologist yesterday for the first time and he is...

snorman1

•10 years ago

12 Replies

Stage 4 lung cancer, pneumonia advice

Hi my brother has been diagnosed with stage 4 lung cancer, mets to the brain. He is asthmatic, has the start of emphysema and has now got pneumonia.... Would...

Hi my brother has been diagnosed with stage 4 lung cancer, mets to the brain. He...

Mactyler

•10 years ago

Be the first to reply

Lung Cancer Stigma

My mom passed away on 21 October 2013 from stage 4 lung cancer (adeno). Mom had quit smoking over 30 years ago and was 67 when she died. The thing that...

My mom passed away on 21 October 2013 from stage 4 lung cancer (adeno). Mom had...

enjsmith

•11 years ago

9 Replies

Write a post or ask a question

Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

Stage IV posts

EGFR Exon 20 NSCLC

Hot weather and breathing

What and how to trust the Keytruda is the right drug

Steroids causing coughing to worsen?

Scared of going to hospital for scan

My mums journey with stage IV NSCLC

Delayed nausea and vomiting after chemo

Mum's stage 4 diagnosis

Delirium - infection, dexamethasone withdrawal or brain mets??

Anxious and uncertain

Fresh from first visit to oncologist Is palliative chemo worth it?

Navelbine tablet form

Mother stage 4 lung and liver cancer

Mum diagnosed with stage 4 lung cancer - The fight is on!!

Advice re flying with oxygen

Mum's deteriorated rapidly

Chemo being stopped!

Any advise please

Docetaxel

Dad

Wheel of Fortune Update

More tests

Gone to brain ...

Rapid decline

Work

Are you in the midlands? Do you have an experience of late diagnosis?

My dad has finished gem/carbo chemo and it has not been successful.he is supposed to start radio today but he cant do it because he is weak

Help about proposed treatment

Stage 4 lung cancer, pneumonia advice

Lung Cancer Stigma

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