Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

5,790 members • 3,469 posts

All posts for September 2016

Folded nails from Gefitinib?

My Dad started Gefitinib on 19th Sept and has just developed the side-effect where one of his thumbnails has started to kink and fold. Apparently this is a...

My Dad started Gefitinib on 19th Sept and has just developed the side-effect whe...

lostsheepie

•8 years ago

4 Replies

Crizotinib as a first line treatment for ALK+ patients

We are pleased that crizotinib (xalkori) has been approved by NICE for use with a sub-group of people affected by lung cancer. It had previously been approved...

We are pleased that crizotinib (xalkori) has been approved by NICE for use with ...

LorraineD

Partner•8 years ago

1 Reply

Osmertinib (Tagrisso)

If you are currently on a trial, or being considered for a trial please contact us. We need to hear the patient and family perspective. This information will...

If you are currently on a trial, or being considered for a trial please contact ...

NicF4

Partner•8 years ago

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Pemrolizumab (Keytruda)

If you are currently on a trial, or being considered for a trial please contact us. We need to hear the patient and family perspective. This information will...

If you are currently on a trial, or being considered for a trial please contact...

NicF4

Partner•8 years ago

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Chemo being stopped!

Hello all, I posted a while ago, quick history Mum had lobectomy in Jan, all clear then cancer back in June, started chemo end July (4 rounds of 2 goes) had ct...

Hello all, I posted a while ago, quick history Mum had lobectomy in Jan, all cle...

BusyBee75

•8 years ago

1 Reply

Liver mets

Apparently after having a ct scan the mets in my liver have increased and grown. The lungs are looking not to shabby. Due to paclitaxel not working on that...

Apparently after having a ct scan the mets in my liver have increased and grown....

Giblets9

•8 years ago

1 Reply

Is the Subtype of Lung Cancer NSCLC important in establishing treatment options?

Mum has recently been diagnosed with lung cancer (NSCLC carcinoma). They have started her on chemo (Vinorelbine + Cisplatin). Handling it amazingly and will...

Mum has recently been diagnosed with lung cancer (NSCLC carcinoma). They have st...

GH86

•8 years ago

6 Replies

EGFR+ taking Iressa

Hi. I was diagnosed August 2015 with stage iv, adenocarcinoma, egfr+, exon 19 deletion, with mets to both lungs and spine. I started with radiation to my...

Hi. I was diagnosed August 2015 with stage iv, adenocarcinoma, egfr+, exon 19 de...

PLHLisa

•8 years ago

4 Replies

New here

Hi I'm new to this community and have already found reading the posts helpful. I was diagnosed Nov 2015 with stage 4 NSCLC with mets to lymph nodes and pleura....

Hi I'm new to this community and have already found reading the posts helpful. I...

Jkrico1

•8 years ago

1 Reply

Adenocarcinoma

Hi I am prasun Mukherjee from India , in the month of may 2016 I have been dignosed of NSCLC ( Adenocarcinoma) of right lung. I have already given 5 cycles of...

Hi I am prasun Mukherjee from India , in the month of may 2016 I have been digno...

Prasun68

•8 years ago

9 Replies

"Ask the expert" feature in "Inspire" magazine

Do you have a question you would like to ask our lung cancer nurse specialist? We would like to feature your questions that lung cancer nurse specialist Simon...

Do you have a question you would like to ask our lung cancer nurse specialist? ...

OllieScott

•8 years ago

2 Replies

Radiotherapy

Hi everyone, I am on. Short break with my very dear friend Linda in Edinburgh. Since having my radiotherapy treatment which finished on 12 August I have felt...

Hi everyone, I am on. Short break with my very dear friend Linda in Edinburgh. S...

hilde

•8 years ago

2 Replies

Tooth extraction and antibiotics whilst taking crizotinib

My husband is taking oral crizotinib and is shortly going to have a tooth extracted. He will probably need antibiotics afterwards but we are worried about...

My husband is taking oral crizotinib and is shortly going to have a tooth extrac...

nannyjanny

•8 years ago

2 Replies

Prognosis for Lung cancer that's spread : (

Hi, I was hoping somebody could help me. My mum has just been diagnosed with lung cancer which has spread to her liver, her thyroid in her neck, her bone in...

Hi, I was hoping somebody could help me. My mum has just been diagnosed with lun...

TracyMattLeslie22

•8 years ago

2 Replies

new, dx adeno carcinoma right lung with pleural effusion.

just diagnosed last week and am due to start treatment in Sheffield in a few weeks time. any help advice support very welcome regards Sally aged 53

just diagnosed last week and am due to start treatment in Sheffield in a few wee...

Wingdramapurple

•8 years ago

6 Replies

Travel insurance

Hi all its been a while since iv been on here and a lot has happened!!! Dad went through 3 cycles of chemotherapy which we found out had massively shrunk his...

Hi all its been a while since iv been on here and a lot has happened!!! Dad went...

Yvonne84

•8 years ago

6 Replies

Constant stabbing

Hi everyone not wrote on here for a while I've been ok doing well on the cannabis oil, had a scan about 3 months ago and it showed a little growth and no more...

Hi everyone not wrote on here for a while I've been ok doing well on the cannabi...

Littleannies

•8 years ago

6 Replies

Small cell lung cancer

Hi my mum has been diagnosed with extensive SCLC with mets to bones (legs, spine and ribs) and other locations. She's not seen oncologist yet will be this week...

Hi my mum has been diagnosed with extensive SCLC with mets to bones (legs, spine...

Sammystar

•8 years ago

5 Replies

Trial at the Christie

Hi, Since my last post about Immunotherapy a lot has happened, I was initially going to start on Docetaxel/Nintedanib tomorrow as the trial at the Christie was...

Hi, Since my last post about Immunotherapy a lot has happened, I was initially g...

caitesnan59

•8 years ago

4 Replies

weight gain

my husband has just had his 3rd cycle of chemo,no side effects touch wood only feeling very tired,the oncologist has put him on steroids for this to see if it...

my husband has just had his 3rd cycle of chemo,no side effects touch wood only f...

sue2428

•8 years ago

3 Replies

Lung Cancer Information Day - Inverness 3rd November

Hi Everyone, We are hosting a Lung Cancer Information Day in Inverness 3rd November, which offers support and information to people affected by lung cancer....

Hi Everyone, We are hosting a Lung Cancer Information Day in Inverness 3rd Novem...

InformationTeam

Roy Castle•8 years ago

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Have you been given Pembrolizumab (Keytruda) or Osimertinib (Tagrisso)

Drug submission time again! This time the Scottish Medicine Consortium have asked us to do submissions on behalf of patients on Prembrolizumab (Keytruda) and...

Drug submission time again! This time the Scottish Medicine Consortium have ask...

NicF4

Partner•8 years ago

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Docetaxel and Nintedanib

I was diagnosed with NSCLC stage one ( T1A N2. M0) in May 2014 and since then have been treated initially with Cisplatin and vinorelbine plus radiotherapy...

I was diagnosed with NSCLC stage one ( T1A N2. M0) in May 2014 and since then h...

tilstongal

•8 years ago

8 Replies

NSCLC, Stage 4, EGFR Mutation, Gefitinib, pain on left side of abdomen

Hello All, my Mum was diagnosed: stage 4 NSCLC, metastasis to spine and lymph nodes. It was a shock to the whole family as she was asymptomatic. Mum has just...

Hello All, my Mum was diagnosed: stage 4 NSCLC, metastasis to spine and lymph no...

Batgirlx

•8 years ago

14 Replies

Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

All posts for September 2016

Folded nails from Gefitinib?

Crizotinib as a first line treatment for ALK+ patients

Osmertinib (Tagrisso)

Pemrolizumab (Keytruda)

Chemo being stopped!

Liver mets

Is the Subtype of Lung Cancer NSCLC important in establishing treatment options?

EGFR+ taking Iressa

New here

Adenocarcinoma

"Ask the expert" feature in "Inspire" magazine

Radiotherapy

Tooth extraction and antibiotics whilst taking crizotinib

Prognosis for Lung cancer that's spread : (

new, dx adeno carcinoma right lung with pleural effusion.

Travel insurance

Constant stabbing

Small cell lung cancer

Trial at the Christie

weight gain

Lung Cancer Information Day - Inverness 3rd November

Have you been given Pembrolizumab (Keytruda) or Osimertinib (Tagrisso)

Docetaxel and Nintedanib

NSCLC, Stage 4, EGFR Mutation, Gefitinib, pain on left side of abdomen

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