Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

5,790 members • 3,469 posts

All posts for September 2019

Support for my dad

My dad has recently been diagnosed with stage 4 metastatic lung cancer. He has bee started on Pembro and really struggling physically and emotionally. Is...

My dad has recently been diagnosed with stage 4 metastatic lung cancer. He has b...

NatashaSimmonds1975

•5 years ago

Upper arm pain.

Hi all. Does anybody else have painful upper arms after having a Lobectomy? Mine were really sore during and after pneumonia and up until the Lobectomy for...

Hi all. Does anybody else have painful upper arms after having a Lobectomy? Mine...

•5 years ago

My mums journey with stage IV NSCLC

My dear mum was diagnosed with stage IV nsclc Adenocarcinoma back in July. This was found by chance on a scan for another unrelated issue. What a shock it was....

My dear mum was diagnosed with stage IV nsclc Adenocarcinoma back in July. This ...

•5 years ago

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Alectinib and low heart rate

My wife has been on alectinib for approx 8 months now with excellent results so far. She has recently had to be taken off the drug for a 1 or 2 week period on...

My wife has been on alectinib for approx 8 months now with excellent results so ...

•5 years ago

Radiation to the chest (the mediastinal region)?

Has anyone had radiation to the chest area? Specifically the mediastinal region? My radiation oncologist is going to do hypofractionated (which is a shorter...

Has anyone had radiation to the chest area? Specifically the mediastinal region...

•5 years ago

Sore joints

How long will my joints be sore after I completed Taxol in July?? My shoulders elbows wrists and pelvis are sore then I take 600 Motrin to move, dr says I’m...

How long will my joints be sore after I completed Taxol in July?? My shoulders e...

•5 years ago

Cessation of Pembrolizumab immunotherapy after two years

Just wondering how others are faring who have completed the 2 year maximum treatment period on Pembrolizumab? I have the PD-L1 expression at only 5 percent but...

Just wondering how others are faring who have completed the 2 year maximum treat...

•5 years ago

Travel insurance logic

In April I went to Spain for a short holiday. I used Insurewith travel insurance then and was pleased. I had an excess of £300 on top of policy. With my wife...

In April I went to Spain for a short holiday. I used Insurewith travel insurance...

•5 years ago

Silent Reflux after Lung Surgery for Early Cancer

I had a right lower lobectomy in February. My consultant is pleased with my recovery and I am now just being monitored. However after this surgery I had...

I had a right lower lobectomy in February. My consultant is pleased with my rec...

•5 years ago

Missed diagnosis for lung cancer.

I have been looking through previous posts for lung cancer and the treatment and diagnosis for lung cancer and a couple of people wrote about the appalling...

I have been looking through previous posts for lung cancer and the treatment and...

•5 years ago

New here.

Hi all. I am new to this site. I had a right upper Lobectomy last September for Adenocarcinoma but have had pain ever since and also a cough which crackles,...

Hi all. I am new to this site. I had a right upper Lobectomy last September for ...

•5 years ago

Macclesfield lung cancer patient information day 26th Sept

The Tytherington Club, 90 Dorchester Way, Macclesfield. SK10 2JP Our next lung cancer information day is in Macclesfield. These days are a great opportunity...

The Tytherington Club, 90 Dorchester Way, Macclesfield. SK10 2JP Our next lung...

Partner•5 years ago

Almost 3 weeks since first Immunotherapy

Hi all Haven't posted for a while, feel that I've been so busy, but after thinking about it I realise that I'm not any busier that I used to be, everything is...

Hi all Haven't posted for a while, feel that I've been so busy, but after think...

•5 years ago

One year on!

So last September I was on my annual break in beautiful Weymouth when I received an urgent message to contact my Doctor at home. Prior to going I had been...

So last September I was on my annual break in beautiful Weymouth when I received...

•5 years ago

Live in Scotland? Want to share your experience of immunotherapy for non small cell lung cancer (NSCLC)?

We would like to hear from anyone who lives in Scotland, has had immunotherapy for non small cell lung cancer (NSCLC) and would be happy to share their...

We would like to hear from anyone who lives in Scotland, has had immunotherapy f...

RoyCastleHelpline

Partner•5 years ago

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Immunotherapy - small cell lung cancer

Hello there! My mum has just completed her 6 cycle of chemo for smcl. Has anyone heard of any trials or immunotherapy that is treating this too? Just...

Hello there! My mum has just completed her 6 cycle of chemo for smcl. Has anyon...

•5 years ago