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Well, three years in…..
Since initial DX of Gleason 4+4….. at that time was stage 4 high volume metastic disease. PSA can move up and down quickly. went up 10 points in a week went down 33 points in a month, without treatment. i went from NED of disease to PSA of 28.5 in six months. it’s a spunky little bastard. sorta like
Since initial DX of Gleason 4+4….. at that time was stage 4 high volume metastic disease. PSA can move up and down quickly. went up 10 points in a week went down 33 points in a month, without treatment. i went from NED of disease to PSA of 28.5 in six months. it’s a spunky little bastard. sorta like
FulThrotl
in
Advanced Prostate Cancer
1 day ago
Disappointed
After Lupron, NUBEQA and Zytega … and a recent FDG Cat scan Several nodes lit up in the periodonal aorta area of his abdomen. Being totally right up against the aorta, a decision was made to remove them robotically. Surgery went well. All lymph’s were removed that lit up on the scan. docs felt PSA
After Lupron, NUBEQA and Zytega … and a recent FDG Cat scan Several nodes lit up in the periodonal aorta area of his abdomen. Being totally right up against the aorta, a decision was made to remove them robotically. Surgery went well. All lymph’s were removed that lit up on the scan. docs felt PSA
JolleySprings
in
Advanced Prostate Cancer
2 days ago
Mikemike
Hello....I am here and happy to help in any way I can. Will try to be concise. G-9...radiation only(28 sessions IMRT) a breeze. Declined lupron...because of a continuing anxiety condition. Metastices showed up 14 most later...PSA 6.7 up to 16.2 in 6 weeks. PSMA pet showed two rib mets and 1 other on
Hello....I am here and happy to help in any way I can. Will try to be concise. G-9...radiation only(28 sessions IMRT) a breeze. Declined lupron...because of a continuing anxiety condition. Metastices showed up 14 most later...PSA 6.7 up to 16.2 in 6 weeks. PSMA pet showed two rib mets and 1 other on
Poppy1952
in
Advanced Prostate Cancer
2 days ago
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Lupron - are there heart risks?
My father , 83 , recently got diagnosed with Prostate cancer with mets to some bones , as per PSMA test. We have not done a biopsy as one doctor said there is no need to do it as treatment options won’t change but another doctor says it’s good to do it in case later down the line we need to add treatments
My father , 83 , recently got diagnosed with Prostate cancer with mets to some bones , as per PSMA test. We have not done a biopsy as one doctor said there is no need to do it as treatment options won’t change but another doctor says it’s good to do it in case later down the line we need to add treatments
Tinkudi
in
Advanced Prostate Cancer
2 days ago
Dad,83 - is biopsy necessary ?
My dad , 83 had an elevated psa at 18. Dr ordered MRI which showed a pirads 5 with 2-3 bone metastases in the pelvic region and femur. Went to an oncologist who said to do a PSMA and then to start him on Lupron and bicalutamide. And maybe radiation for the bone met pain. He said he did not really
My dad , 83 had an elevated psa at 18. Dr ordered MRI which showed a pirads 5 with 2-3 bone metastases in the pelvic region and femur. Went to an oncologist who said to do a PSMA and then to start him on Lupron and bicalutamide. And maybe radiation for the bone met pain. He said he did not really
Tinkudi
in
Advanced Prostate Cancer
3 days ago
Lupron lump
Got a small lump on my right hip after my last 6mo. lupron shot. Never noticed one before. Its been 10 days and still there. Is this unusual?
Got a small lump on my right hip after my last 6mo. lupron shot. Never noticed one before. Its been 10 days and still there. Is this unusual?
Papa1
in
Advanced Prostate Cancer
4 days ago
What Next After Xtandi Fail?
Morning all. Don't post much but now is the time. Been fighting the Beast since Nov 2016. On Lupron from the beginning and Xtandi since Nov 2019. Hit Nadir of .21 in Dec 2022. Since then, PSA has been jumping around, but trending upward. End of 2023, it was at .67. Feb 2024, PSA up to .87. Yesterday
Morning all. Don't post much but now is the time. Been fighting the Beast since Nov 2016. On Lupron from the beginning and Xtandi since Nov 2019. Hit Nadir of .21 in Dec 2022. Since then, PSA has been jumping around, but trending upward. End of 2023, it was at .67. Feb 2024, PSA up to .87. Yesterday
ppulatie
in
Advanced Prostate Cancer
4 days ago
Is it worth it?
I'm a 64 year old gay man married for 30+ years. I went to get my testosterone checked and it was slightly low but the doctor said before he prescribed T he wanted to do a PSA test. My PSA was 8, so he told me no sex or biking for 10 days and we retested and it was down to 5 which he said was still
I'm a 64 year old gay man married for 30+ years. I went to get my testosterone checked and it was slightly low but the doctor said before he prescribed T he wanted to do a PSA test. My PSA was 8, so he told me no sex or biking for 10 days and we retested and it was down to 5 which he said was still
IsItWorthIt
in
Prostate Cancer And Gay Men
4 days ago
Strong negative reaction to first Docetaxel treatment
I am participating in an NIH study combining Docetaxel with an immunotherapy. I had my first treatment of only Docetaxel this Tuesday. I lasted 2 minutes and 7cc before I had a severe reaction - severe flushing (glowing red from head to toe), difficulty breathing, sweating, uncontrollable shivering.
I am participating in an NIH study combining Docetaxel with an immunotherapy. I had my first treatment of only Docetaxel this Tuesday. I lasted 2 minutes and 7cc before I had a severe reaction - severe flushing (glowing red from head to toe), difficulty breathing, sweating, uncontrollable shivering.
4tunate1
in
Advanced Prostate Cancer
4 days ago
Toronto Prostate Cancer Specialist for Dad
My dad (68 years old) is visiting me (For my delivery in the first week of June) from India and he is going to be in Ontario, Canada for the next 3 months. He was diagnosed in Feb 2024 with a PSA of 24 and is completely asymptomatic. He is on hormone therapy with Gleason 8 and distant mets in his bones
My dad (68 years old) is visiting me (For my delivery in the first week of June) from India and he is going to be in Ontario, Canada for the next 3 months. He was diagnosed in Feb 2024 with a PSA of 24 and is completely asymptomatic. He is on hormone therapy with Gleason 8 and distant mets in his bones
Justgettingitright
in
Advanced Prostate Cancer
5 days ago
Update, small cell
Hi everyone, It's been a while since I posted but check in time to time. I'm not really sure of the purpose of this update is except we don't have a lot of family so I'm hoping writing it down will help. Please be sensitive as I'm struggling. I really can't hear about should of dones. My husband was
Hi everyone, It's been a while since I posted but check in time to time. I'm not really sure of the purpose of this update is except we don't have a lot of family so I'm hoping writing it down will help. Please be sensitive as I'm struggling. I really can't hear about should of dones. My husband was
Fdccs
in
Advanced Prostate Cancer
5 days ago
Casodex(tablet) Vs lupron(injection)
Hi allCasodex (bicalutamide) 57% for driving down PSA Lupron 87% BUT........ maybe for an individual would it be worth trying to see if casodex tablets worked better for driving down PSA instead of the lupron injection????
Hi allCasodex (bicalutamide) 57% for driving down PSA Lupron 87% BUT........ maybe for an individual would it be worth trying to see if casodex tablets worked better for driving down PSA instead of the lupron injection????
Mrtroxely
in
Advanced Prostate Cancer
6 days ago
Lupron/zolodex for endometriosis
hello, I went to see my gynaecologist yesterday who suggested having Lupron/zolodex injection once every 3 months to help with the pain until I have my laparoscopy . He said it puts your ovary’s to sleep but then once you stop the injections they go back to normal which worried me what it would do
hello, I went to see my gynaecologist yesterday who suggested having Lupron/zolodex injection once every 3 months to help with the pain until I have my laparoscopy . He said it puts your ovary’s to sleep but then once you stop the injections they go back to normal which worried me what it would do
Croissant1243
in
Endometriosis UK
9 days ago
stage 4 Gleason 8/9
I lake low volume Metastatic PCA. Found in 4 lymph nodes / couple spots on pelvic bones . I m on 1m mgs Abby 5 mgs Pred, had a shot of Fermigon and start Lupron next week , Radiation starting end of month . let me know if any suggestions other than a positive attitude? Right now I exercise regularly
I lake low volume Metastatic PCA. Found in 4 lymph nodes / couple spots on pelvic bones . I m on 1m mgs Abby 5 mgs Pred, had a shot of Fermigon and start Lupron next week , Radiation starting end of month . let me know if any suggestions other than a positive attitude? Right now I exercise regularly
Pjford
in
Advanced Prostate Cancer
11 days ago
Chemo Side Effects
On lupron since 2011, recurrance, SPLASH TRIAL, Provenge NOv 2023. Strarted on Taxatere (doxcetel) in March. My MO put me on an 18 infusion schedule (I believe 1/2 normal dose) because of my age, 84. I get infused ever week for 3 weeks, then 1 week off and continue for 28 infusions. I have had 6 infusions
On lupron since 2011, recurrance, SPLASH TRIAL, Provenge NOv 2023. Strarted on Taxatere (doxcetel) in March. My MO put me on an 18 infusion schedule (I believe 1/2 normal dose) because of my age, 84. I get infused ever week for 3 weeks, then 1 week off and continue for 28 infusions. I have had 6 infusions
Joeym1040
in
Advanced Prostate Cancer
11 days ago
Making a Case for Intermittent ADT in Metastatic Hormone Sensitive Prostate Cancer
FPC'ers, Many times, we hear people claim that you should only stop ADT if you can't tolerate it any longer, and that it will not slow castrate resistance; that it increases risk for stroke, and heart attack; that it will likely take years for your testosterone to recover; that it increases mortality
FPC'ers, Many times, we hear people claim that you should only stop ADT if you can't tolerate it any longer, and that it will not slow castrate resistance; that it increases risk for stroke, and heart attack; that it will likely take years for your testosterone to recover; that it increases mortality
NPfisherman
in
Fight Prostate Cancer
11 days ago
Next step after completed Oligometastatic prostate cancer treatment..
In 2022 I completed six weeks of RT to three periaortic metastatic lymph notes and two lesions on ribs and started Lupron and Erleada in April 2022 till now. Because numerus SEs including progressing spine arthritis I'd like to stop HT and watch my PSA. For now PSA <0.02. Any advise greatly appreciated
In 2022 I completed six weeks of RT to three periaortic metastatic lymph notes and two lesions on ribs and started Lupron and Erleada in April 2022 till now. Because numerus SEs including progressing spine arthritis I'd like to stop HT and watch my PSA. For now PSA <0.02. Any advise greatly appreciated
Maxi54
in
Advanced Prostate Cancer
12 days ago
Ct scan of abdomen and pelvis and full body bone scan?
Hello, I have been advised to get a ct scan of abdomen and pelvis with and without contrast, along with a full body bone scan prior to my next appointment with my urologist. PSA has been undetectable since completion 9/9/20 of image guided radiation to the prostate bed and lymph nodes with a 6 month
Hello, I have been advised to get a ct scan of abdomen and pelvis with and without contrast, along with a full body bone scan prior to my next appointment with my urologist. PSA has been undetectable since completion 9/9/20 of image guided radiation to the prostate bed and lymph nodes with a 6 month
realtorjohn42
in
Advanced Prostate Cancer
13 days ago
How to say it
I just cancelled my upcoming appointment for next week. I am also due for Lupron infusion. How do I tell my well meaning MO that I will not be taking anymore infusions. I have been on it for almost two years this time. Why am I doing it? Because I feel miserable, the hot flashes, the sweat especially
I just cancelled my upcoming appointment for next week. I am also due for Lupron infusion. How do I tell my well meaning MO that I will not be taking anymore infusions. I have been on it for almost two years this time. Why am I doing it? Because I feel miserable, the hot flashes, the sweat especially
Blueribbon63
in
Advanced Prostate Cancer
13 days ago
asking for a friend (really) oncologist referral Chicago or Mayo Rochester
I am an open book for people newly diagnosed with prostate cancer and often hear from friends of friends. Looking back on my journey, I feel that I too quickly went the surgery route after consulting with a very good urologist/surgeon/oncologist and I erred not consulting with a Medical Oncologist first
I am an open book for people newly diagnosed with prostate cancer and often hear from friends of friends. Looking back on my journey, I feel that I too quickly went the surgery route after consulting with a very good urologist/surgeon/oncologist and I erred not consulting with a Medical Oncologist first
darlingdb
in
Advanced Prostate Cancer
14 days ago
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