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Endometriosis UK

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appointment with consultant soon, possibly surgery, and im terrified because of my ptsd and i dont know what to expect <3

tldr (summary) 1 - im looking for any advice/ some reassuring/ validating/ seeing im not alone as im shitting bricks for my upcoming appointment following an...

tldr (summary) 1 - im looking for any advice/ some reassuring/ validating/ seein...

velvetonion

•11 hours ago

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referral to gynaecologist rejected?

Suspected endo - referral rejected? UK Hi just posting here as I have been investigated via X-rays scans bloods etc over the last couple of months with my...

Suspected endo - referral rejected? UK Hi just posting here as I have been in...

Forestgreen90

•1 day ago

3 Replies

Endo detection after surgery

Hi. I was just wondering when/how people who had surgery realised they still had endo in their bodies? I just had a laproscopy on May 3 and recovering fairly...

Hi. I was just wondering when/how people who had surgery realised they still had...

sha_pow_

•3 days ago

7 Replies

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Not sure of next steps after recent endometriosis diagnosis

Hi, I have suffered with heavy periods and pain during sex for years but I was told it was due to fibroids. In December 2020 I had emergency surgery to for a...

Hi, I have suffered with heavy periods and pain during sex for years but I was t...

Sazcoops

•8 days ago

4 Replies

Stomach swelling

Hello! I have been diagnosed with endometriosis now for around 8 years, following the usually long winded process. Things back then were managed with...

Hello! I have been diagnosed with endometriosis now for around 8 years, follo...

TIAHRHIANNE1

•8 days ago

13 Replies

Returning Endometriosis with a vengeance!

So approximately two years ago I had surgery for severe endometriosis. It didn’t particularly help with the pain as I also have adenomyosis, but I was just...

So approximately two years ago I had surgery for severe endometriosis. It didn’t...

AnissaEndo

•9 days ago

9 Replies

is my pain Endo + did it cause my miscarriages?

finally a community that I can ask! Please help as I’ve seen so many docs and none can give me an answer. I’ve had 3 miscarriages in 12 months. From...

finally a community that I can ask! Please help as I’ve seen so many docs and...

Maybeendo

•13 days ago

3 Replies

Unknowingly discharged

I have today been discharged from gynaecology unknowingly after having surgery to remove severe endometriosis in October 2023, I called them end of December...

I have today been discharged from gynaecology unknowingly after having surgery t...

Highlandcow96

•17 days ago

4 Replies

Laparoscopy breathing tube

Hi everyone, I've finally had my initial appointment with a specialist endotriosis centre come through. Yay! I'm not sure yet whether I would even want a...

Hi everyone, I've finally had my initial appointment with a specialist endotrios...

CitizenErased

•19 days ago

19 Replies

Endometriosis +/- Adenomyosis: does anyone else experience cold sensitivity?

Good morning lovelies! I just wondered if anyone had any sources that support the presence of cold sensitivity in those who have endo/adeno. I did see a...

Good morning lovelies! I just wondered if anyone had any sources that support ...

MangoStickyRice

•19 days ago

5 Replies

Can ovestin cause endo flare?

Hello😊 I'm new here and thought this might be a good place to ask this question. Ive suffered endo since my periods began. It caused fertility issues. Ive had...

Hello😊 I'm new here and thought this might be a good place to ask this question...

Earthmother1

•21 days ago

8 Replies

Is this endo belly?

Hi everyone, I'm still only at the 'endo suspected' stage as I've been on a waiting list for a specialist centre since August last year. But I've got a new...

Hi everyone, I'm still only at the 'endo suspected' stage as I've been on a wait...

CitizenErased

•25 days ago

10 Replies

Help and Advice Needed

Hiya I am 22 years old and been diagnosed this month with endo. It is believed I have had it for a good few months now but doctors wouldnt look further into my...

Hiya I am 22 years old and been diagnosed this month with endo. It is believed I...

rfb1928

•27 days ago

4 Replies

Stage 4 & POD obliteration

Hi all, Just wanted to come and get some general advice and personal experience please! I had surgery in Dec 2022 but due to the severity, they did what...

Hi all, Just wanted to come and get some general advice and personal experien...

RooLouise

•29 days ago

1 Reply

Newly diagnosed and confused?

Hii! New here and I've recently been diagnosed with endo after months of irregular periods and cramps. However, now that I have this diagnosis, I don't feel...

Hii! New here and I've recently been diagnosed with endo after months of irregul...

Violetskyss

•30 days ago

4 Replies

I stopped Prostap, started the mini pill but I keep bleeding.

Hi,I'm stage 4 endometriosis, with 3 cysts measuring around 18x18x18cm in total. Tethered to my bowl, colon and bladder and i am now awaiting surgery. I'm...

Hi,I'm stage 4 endometriosis, with 3 cysts measuring around 18x18x18cm in total....

StolenMist

•30 days ago

6 Replies

endometrioma and IVF

Any advice please. After debilitating pelvic pain and large bilateral endometriomas I went privately for laparoscopy surgery with endometriosis specialist...

Any advice please. After debilitating pelvic pain and large bilateral endometri...

Mim9

•1 month ago

8 Replies

Private Consultant Recommendations

I have been given a list of 6 consultants to chose from by my healthcare provider 3 at Ramsey Springfield and 3 at Nuffield Ipswich looking for recommendations...

I have been given a list of 6 consultants to chose from by my healthcare provide...

Sara1978

•1 month ago

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Chinese Medicine

Hi guys, has anyone tried Gui Zhi Fu Ling Wan for their endometriosis? The main symptoms I'm bothered about with my endometriosis are: nausea, stomach pain,...

Hi guys, has anyone tried Gui Zhi Fu Ling Wan for their endometriosis? The ma...

Kloe1998

•1 month ago

1 Reply

HRT stops pain increases bleeding

Hi everyone I’m on a really long waiting list for a gyno appointment to check for Endo and Ando. Had loads of tests and an ultrasound. All clear. Since...

Hi everyone I’m on a really long waiting list for a gyno appointment to check...

Citrusheights79

•1 month ago

10 Replies

what do my results mean?

hi u may have seen me before but I have three different results within a few months. first scan showed - private immobile left ovary located in pouch of...

hi u may have seen me before but I have three different results within a few mon...

Cutiepatootie

•1 month ago

2 Replies

Not sure what to do....

Advice, personal experiences, and comments most welcome.... Apologies for the long post, but it covers my story so far to provide context. So.... probably the...

Advice, personal experiences, and comments most welcome.... Apologies for the lo...

fed_up_of_endo

•1 month ago

25 Replies

Tens pain relief

Hi all I'm just looking for any information on the beurer em50. I've been looking everywhere for a storage case to make it better when carrying it round with...

Hi all I'm just looking for any information on the beurer em50. I've been lookin...

Lornalost89

•2 months ago

5 Replies

I need some advice..

Hi everyone,I'm new here, so hello community. I was diagnosed with endometriosis in 2017 I was 17, I had my first laprascopy and they removed around a stone...

Hi everyone,I'm new here, so hello community. I was diagnosed with endometriosi...

AdeptTurtle

•2 months ago

2 Replies

Pelvic MRI

Hi warriors, for those who have had a pelvic MRI did you get the contrast? Also interested to see if anyone had results that showed bowel endo? This is why...

Hi warriors, for those who have had a pelvic MRI did you get the contrast? Also ...

endowarrior12

•2 months ago

12 Replies

PMDD and endometriosis help

Hi guys, hoping to get not only advice but to hear whether anyone else experiences what I do..I have had awful periods my whole life with endometriosis which...

Hi guys, hoping to get not only advice but to hear whether anyone else experienc...

superprin

•2 months ago

4 Replies

Private Consultation

Hi all. Looking for advice/ info from any one who has been to a private consultation. Long story short, I have been referred to a endo specialist centre by...

Hi all. Looking for advice/ info from any one who has been to a private consult...

Lornalost89

•2 months ago

18 Replies

Start of my Endo diagnosis journey

hi! I have an appointment with a gyne consultant in July (hopefully), im documenting all my symptoms from January 24 till the appointment to take with me. I...

hi! I have an appointment with a gyne consultant in July (hopefully), im docume...

Pastaislife93

•2 months ago

1 Reply

What happens if I refuse hormonal medication?

I am in the early stages of any diagnosis so there's no treatment plan as of yet. I'm on a waiting list for a gynecologist, which I've been told can take up to...

I am in the early stages of any diagnosis so there's no treatment plan as of yet...

Elsa150

•2 months ago

8 Replies

Advice Please

Hello all! I was diagnosed with stage 2 endo in November and had excision surgery which was successful - Mirena fitted during surgery. All seemed to be going...

Hello all! I was diagnosed with stage 2 endo in November and had excision surg...

nikogirl18

•2 months ago

5 Replies

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Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

Endometriosis UK posts

appointment with consultant soon, possibly surgery, and im terrified because of my ptsd and i dont know what to expect <3

referral to gynaecologist rejected?

Endo detection after surgery

Not sure of next steps after recent endometriosis diagnosis

Stomach swelling

Returning Endometriosis with a vengeance!

is my pain Endo + did it cause my miscarriages?

Unknowingly discharged

Laparoscopy breathing tube

Endometriosis +/- Adenomyosis: does anyone else experience cold sensitivity?

Can ovestin cause endo flare?

Is this endo belly?

Help and Advice Needed

Stage 4 & POD obliteration

Newly diagnosed and confused?

I stopped Prostap, started the mini pill but I keep bleeding.

endometrioma and IVF

Private Consultant Recommendations

Chinese Medicine

HRT stops pain increases bleeding

what do my results mean?

Not sure what to do....

Tens pain relief

I need some advice..

Pelvic MRI

PMDD and endometriosis help

Private Consultation

Start of my Endo diagnosis journey

What happens if I refuse hormonal medication?

Advice Please

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