Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

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All posts for May 2024

Pudendal nueralgia

Hi! I have just been diagnosed with pudendal neuralgia which is apparently common with endo. Does anyone else have it? Have you found a medication that helps?...

Hi! I have just been diagnosed with pudendal neuralgia which is apparently commo...

allym92

•2 hours ago

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Does anyone know how long surgery is from your MDT meeting?

Hi warriors, I've just had my results from my MDT meeting. I've got to have a consent/discussion consultation and another with a bowel consultation incase I...

Hi warriors, I've just had my results from my MDT meeting. I've got to have a co...

Loveneige

•10 hours ago

5 Replies

Tiberlone and zoledex

I started hrt tiberlone 10 days ago same time as my 2nd injection and after i take the hrt with 2 hours ive got major flare ups that last hours then i feel...

I started hrt tiberlone 10 days ago same time as my 2nd injection and after i ta...

Chartolfrey

•13 hours ago

2 Replies

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appointment with consultant soon, possibly surgery, and im terrified because of my ptsd and i dont know what to expect <3

tldr (summary) 1 - im looking for any advice/ some reassuring/ validating/ seeing im not alone as im shitting bricks for my upcoming appointment following an...

tldr (summary) 1 - im looking for any advice/ some reassuring/ validating/ seein...

velvetonion

•13 hours ago

3 Replies

Personal Independence Payment. Can I ask who has applied for Endometriosis and if anyone has actually been successful?

Hello,I applied for PIP last year and it was declined, I appealed and have just received my decision letter to be told it has been declined again. After it...

Hello,I applied for PIP last year and it was declined, I appealed and have just ...

JadeH92

•17 hours ago

2 Replies

Recommendations for private specialist.

Hello, I’ve decided to pay for a private consultation while I wait for my second nhs referral. Can anyone recommend a private specialist that they have seen?...

Hello, I’ve decided to pay for a private consultation while I wait for my seco...

Tiff22

•1 day ago

2 Replies

referral to gynaecologist rejected?

Suspected endo - referral rejected? UK Hi just posting here as I have been investigated via X-rays scans bloods etc over the last couple of months with my...

Suspected endo - referral rejected? UK Hi just posting here as I have been in...

Forestgreen90

•1 day ago

3 Replies

Mirena coil replacement

Hi I have the Mirena coil (my first) as well as the progesterone only pill for endometriosis management . I understand that the Mirena is licenced for 5 years...

Hi I have the Mirena coil (my first) as well as the progesterone only pill for e...

Jojams

•2 days ago

3 Replies

What to bring to hospital

Hey everyone, sorry this is a really obvious question just want to be sure🤣 what do you take with you to hospital? Is there anything in particular and what...

Hey everyone, sorry this is a really obvious question just want to be sure🤣 wha...

Santorini2022

•2 days ago

12 Replies

Endometriosis

In January 2024 i started my infertility treatment, later they diagnosed that i have ovarian cyst so doctors decided to have laproscopy surgery in which they...

In January 2024 i started my infertility treatment, later they diagnosed that i ...

Ayshaseen

•2 days ago

1 Reply

Prostap injection

Hi everyone. I had my first prostap injection 3 weeks ago as told I would have no bleeding. Yesterday I started spotting with some stomach ache. Not terrible...

Hi everyone. I had my first prostap injection 3 weeks ago as told I would have n...

Doglover73

•2 days ago

14 Replies

dineogest & mirena coil

I’m in a bit of a predicament & I understand asking for advice on here isn’t exactly medical professionals but hoping to hear other’s experiences to help give...

I’m in a bit of a predicament & I understand asking for advice on here isn’t exa...

Markie16

•2 days ago

6 Replies

Is this bladder endo

Hi all. I'm wondering if anyone with bladder endo has experienced anything like this, I have not had bladder endo mentioned however DIE rectosigmoid/ovarian...

Hi all. I'm wondering if anyone with bladder endo has experienced anything like ...

Lornalost89

•3 days ago

3 Replies

Flare up

*TRIGGER* Some may be offended by what I'm saying here, so apologies. Does anyone else have a large flare up with their ovaries after masturbation/coming?...

*TRIGGER* Some may be offended by what I'm saying here, so apologies. Does an...

CrochetWitch99

•3 days ago

11 Replies

Having to decide best option for endo

I've just today been seen by gyne at the hospital I've had symptoms of endo for 17 year long story short in 2016 I had a cyst and ovary removed as we thought...

I've just today been seen by gyne at the hospital I've had symptoms of endo for ...

Pinkyprint

•3 days ago

3 Replies

Endo detection after surgery

Hi. I was just wondering when/how people who had surgery realised they still had endo in their bodies? I just had a laproscopy on May 3 and recovering fairly...

Hi. I was just wondering when/how people who had surgery realised they still had...

sha_pow_

•3 days ago

7 Replies

Bilateral salpingo oophorecromy

Hi all,I wonder has anyone experienced similar to me, I had the above July last year. Since then I have been on Livial for about 3 months and then in January...

Hi all,I wonder has anyone experienced similar to me, I had the above July last ...

dev1984

•3 days ago

5 Replies

endo / adenomyosis diagnosis and fertility advice

Hi there, New to this forum and hoping for some advice. i am having secondary fertility issues following my first child (born 2019), and have now had x5...

Hi there, New to this forum and hoping for some advice. i am having secondary f...

Falafelrovers

•3 days ago

12 Replies

Anyone else get bad Mood swings?

Hi all, I've had endo for about a decade now, and for some reason in the last year my moods have got worse the week before and during my bleed. I know outside...

Hi all, I've had endo for about a decade now, and for some reason in the last ye...

melwise42

•4 days ago

2 Replies

Confused about supplements..any advice or experience welcome!

Hello all, I've been working my way through Dian Shepperson-Mill's book A Key to Healing Endometriosis through Nutrition and getting a bit confused with...

Hello all, I've been working my way through Dian Shepperson-Mill's book A Key t...

Whoosh451

•4 days ago

1 Reply

Advice Needed Please

Hi. I’m hoping for some advice. I have an appointment next week to discuss starting on Prostap or Zolodex. I’ve been told I’d have to start HRT alongside it...

Hi. I’m hoping for some advice. I have an appointment next week to discuss star...

Laulou87

•4 days ago

21 Replies

Surgery waiting times

Hello 👋 I was finally given the best news in March and was put on the waiting list to have suspected endometrioma removed and csection wound exploration. I...

Hello 👋 I was finally given the best news in March and was put on the waiting l...

ItsMeBe

•4 days ago

11 Replies

Fibroids and Norethisterone, bleeding and spotting

Hi all, I know you've each got enough to deal with, but I've been having a difficult few months and am after some advice. In February I was diagnosed with...

Hi all, I know you've each got enough to deal with, but I've been having a dif...

Laura2306

•4 days ago

11 Replies

Laparoscopy endo excision overnight stay?

Hi all. I’ve finally got a date for my excision surgery and have been told I’ll be staying in as an inpatient afterwards for a few nights. I’ve never had...

Hi all. I’ve finally got a date for my excision surgery and have been told I’ll...

anonymousunicorn

•4 days ago

6 Replies

post hysterectomy endo

I’m 44. Have had full hysterectomy with bilateral ovary removal. Have endometriosis and adenymosis. Still having endo pain symptoms. Have been told it’s not a...

I’m 44. Have had full hysterectomy with bilateral ovary removal. Have endometrio...

Sickofthisshit

•4 days ago

12 Replies

ovarian cyst & endometriosis?

November 2023 I returned to the gp with bleeding and bloating again and wasn't sure if it was hormonal changes. Was sent for a scan and received my results...

November 2023 I returned to the gp with bleeding and bloating again and wasn...

Mrsbear063

•5 days ago

2 Replies

2 weeks post hysterectomy

I was scheduled to have a robotic laparoscopic hysterectomy and some endometriomas and any other endometriosis removed. This was supposed to take no more than...

I was scheduled to have a robotic laparoscopic hysterectomy and some endometrio...

Esmeisthebest

•5 days ago

9 Replies

Right iliac fossa lump

Hello all. I’m just wondering if anyone has experienced a lump near their hip bone? I’m 6 weeks post laparoscopy but I’ve struggled with a couple of lumps...

Hello all. I’m just wondering if anyone has experienced a lump near their hip bo...

endotheline

•5 days ago

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11 days post laparoscopy excision surgery

Hi, Looking for some reassurance from those of you who have had laparosopy excision surgery. I am 11 days post op and i am struggling mentally and a...

Hi, Looking for some reassurance from those of you who have had laparosopy ex...

Starburst11

•5 days ago

15 Replies

2 months on the pill, Are my symptoms normal?

Hi, My gynae recently put me on Rigevidon for 3 months to see what happens to my endo symptoms. Apparently the symptoms I have are puzzling as they don't fit...

Hi, My gynae recently put me on Rigevidon for 3 months to see what happens to my...

TomatoGirl97

•5 days ago

1 Reply

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for May 2024

Pudendal nueralgia

Does anyone know how long surgery is from your MDT meeting?

Tiberlone and zoledex

appointment with consultant soon, possibly surgery, and im terrified because of my ptsd and i dont know what to expect <3

Personal Independence Payment. Can I ask who has applied for Endometriosis and if anyone has actually been successful?

Recommendations for private specialist.

referral to gynaecologist rejected?

Mirena coil replacement

What to bring to hospital

Endometriosis

Prostap injection

dineogest & mirena coil

Is this bladder endo

Flare up

Having to decide best option for endo

Endo detection after surgery

Bilateral salpingo oophorecromy

endo / adenomyosis diagnosis and fertility advice

Anyone else get bad Mood swings?

Confused about supplements..any advice or experience welcome!

Advice Needed Please

Surgery waiting times

Fibroids and Norethisterone, bleeding and spotting

Laparoscopy endo excision overnight stay?

post hysterectomy endo

ovarian cyst & endometriosis?

2 weeks post hysterectomy

Right iliac fossa lump

11 days post laparoscopy excision surgery

2 months on the pill, Are my symptoms normal?

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