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Leigh's Disease
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Supporting evidence for PIP
I’m ploughing through the online form and it keeps saying about supporting evidence. I was diagnosed in 2021 by my then GP in the midlands over the Covid period - so not many doctor visits. Not much prescribed, using paracetamol and/or ibuprofen as and when necessary. Basically have been self-managing
I’m ploughing through the online form and it keeps saying about supporting evidence. I was diagnosed in 2021 by my then GP in the midlands over the Covid period - so not many doctor visits. Not much prescribed, using paracetamol and/or ibuprofen as and when necessary. Basically have been self-managing
Gulfstream_Maggie
in
Fibromyalgia Action UK
19 days ago
Holistic POSITIVE results
Hello, I was dx with PD in 2019. I’ve progressed to stage 3 and have tried a lot of synthetic meds. I wont take tgem if the side effects worsen my current symptoms. That excludes most. I have read a million articles on new and upcoming tests and trials. I’m tired of chasing the rabbit. Although I cant
Hello, I was dx with PD in 2019. I’ve progressed to stage 3 and have tried a lot of synthetic meds. I wont take tgem if the side effects worsen my current symptoms. That excludes most. I have read a million articles on new and upcoming tests and trials. I’m tired of chasing the rabbit. Although I cant
GigiOf8
in
Cure Parkinson's
27 days ago
Slimpod feedback, please
I am really interested in whether hypothyroid people with a weight problem have had any experience of Slimpod. I don't snack or eat junk (except occasionally) and wonder if Slimpod can help someone with an underachieve thyroid whose choices about food are already fairly healthy. Have you tried it
I am really interested in whether hypothyroid people with a weight problem have had any experience of Slimpod. I don't snack or eat junk (except occasionally) and wonder if Slimpod can help someone with an underachieve thyroid whose choices about food are already fairly healthy. Have you tried it
DandyThyro
in
Thyroid UK
5 months ago
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Webinar: Exploring Valeda light therapy for AMD
We will be delving into the science behind Valeda light therapy for treating age-related macular degeneration (AMD). In this session, we’ll be joined Professor Tim Jackson, consultant ophthalmic surgeon from King’s College Hospital, to explore the science behind the Valeda photobiomodulation technique
We will be delving into the science behind Valeda light therapy for treating age-related macular degeneration (AMD). In this session, we’ll be joined Professor Tim Jackson, consultant ophthalmic surgeon from King’s College Hospital, to explore the science behind the Valeda photobiomodulation technique
Carol_MacularSociety
Partner
in
Macular Society
1 month ago
red light therapy
Hi I have been looking into the benefits of red light therapy for muscle issues and wondered if anyone had tried this - I can’t see any contradictions with hydroxi and will be mainly using this on my neck , upper back and thyroid areas - I know this won’t help ET as such but using for other issues.
Hi I have been looking into the benefits of red light therapy for muscle issues and wondered if anyone had tried this - I can’t see any contradictions with hydroxi and will be mainly using this on my neck , upper back and thyroid areas - I know this won’t help ET as such but using for other issues.
BeckyDing
in
MPN Voice
1 month ago
The 40 Hz flickering light restores synaptic plasticity and mitochondrial phenotype in experimental model of Alzheimer's disease May 2024
The 40 Hz flickering light restores synaptic plasticity and mitochondrial phenotype in experimental model of Alzheimer's disease May 2024
- https://www.researchgate.net/publication/380600451_The_40_Hz_flickering_light_restores_synaptic_plasticity_and_mitochondrial_phenotype_in_experimental_model_of_Alzheimer
The 40 Hz flickering light restores synaptic plasticity and mitochondrial phenotype in experimental model of Alzheimer's disease May 2024
- https://www.researchgate.net/publication/380600451_The_40_Hz_flickering_light_restores_synaptic_plasticity_and_mitochondrial_phenotype_in_experimental_model_of_Alzheimer
Bolt_Upright
in
Cure Parkinson's
15 days ago
Any successful treatment with red light therapy for peripheral neuropathy?
Hello, I am wondering whether or not it’s worth pursuing some sort of photobiomodulation (red light) therapy as a way of addressing idiopathic peripheral neuropathy which, in my case, means numb feet with burning soles at night. Has anybody had any success with these types of intervention, either through
Hello, I am wondering whether or not it’s worth pursuing some sort of photobiomodulation (red light) therapy as a way of addressing idiopathic peripheral neuropathy which, in my case, means numb feet with burning soles at night. Has anybody had any success with these types of intervention, either through
1jay
in
Neuropathy Support
3 months ago
Incontinence - A major problem
I have had Parkinson's since the spring of 2014. I had my first major fall (any fall that requires a trip to the ER) in Oct. of 2018, and I have gone downhill since that night. The Parkinson's symptom that's keeping me from leading a normal life is a freezing gait, although I do have overall tightness
I have had Parkinson's since the spring of 2014. I had my first major fall (any fall that requires a trip to the ER) in Oct. of 2018, and I have gone downhill since that night. The Parkinson's symptom that's keeping me from leading a normal life is a freezing gait, although I do have overall tightness
ZOOM4522
in
Cure Parkinson's
3 months ago
A question for anyone who built a red light therapy helmet/hat.
Hello. I’m interested in building a red light therapy hat. But I’m having trouble finding a source for 670nm and 810nm led strips. I was wondering if anyone who has built a hat using these specific wavelengths could share a link to where they purchased them. Thank you.
Hello. I’m interested in building a red light therapy hat. But I’m having trouble finding a source for 670nm and 810nm led strips. I was wondering if anyone who has built a hat using these specific wavelengths could share a link to where they purchased them. Thank you.
Glenfarclas
in
Cure Parkinson's
3 months ago
enlarged sore breasts
hi - rather embarrassing but here goes! Approximately 2 weeks ago I had to increase levothyroxine to 100 mcgs- breasts are now enlarged and sore. I can’t be pregnant- I happen to of had routine breast scan just prior to meds increase and no abnormalities detected. Has anyone else experienced this
hi - rather embarrassing but here goes! Approximately 2 weeks ago I had to increase levothyroxine to 100 mcgs- breasts are now enlarged and sore. I can’t be pregnant- I happen to of had routine breast scan just prior to meds increase and no abnormalities detected. Has anyone else experienced this
Purplepuffin
in
Thyroid UK
6 months ago
Light Therapy Trial: Update starting to recruit in March 2024
Below is text from an email I received from PhotoPharmics a company that is testing a light therapy device for Parkinson's Disease. I posted about this trial over a year ago and it is now recruiting (see link below): Light Therapy Trial: Update starting to r... - Cure Parkinson's (healthunlocked.com
Below is text from an email I received from PhotoPharmics a company that is testing a light therapy device for Parkinson's Disease. I posted about this trial over a year ago and it is now recruiting (see link below): Light Therapy Trial: Update starting to r... - Cure Parkinson's (healthunlocked.com
Canddy
in
Cure Parkinson's
3 months ago
A Miracle
Hi Everyone, It's been a while and I pray that everyone is one step closer to healing. I'm back to share good news and hopefully offer a glimpse of hope to others. My husband has recovered from PMR! This community was so helpful, encouraging and supportive that I had to come back and share. Moreover
Hi Everyone, It's been a while and I pray that everyone is one step closer to healing. I'm back to share good news and hopefully offer a glimpse of hope to others. My husband has recovered from PMR! This community was so helpful, encouraging and supportive that I had to come back and share. Moreover
Popsca
in
PMRGCAuk
3 months ago
PSA back up after radiation
After 4 .5 weeks of radiation PSA dropped from 6.6 to 3.46 but on 6/3 went up to 5.88. I have MO appt 6/11 and he has previously indicated that docetaxel could be the next step. Following last PSA increase switched from Zytiga to Xtandi. I am guessing that a PET scan is in order and maybe SBRT prior
After 4 .5 weeks of radiation PSA dropped from 6.6 to 3.46 but on 6/3 went up to 5.88. I have MO appt 6/11 and he has previously indicated that docetaxel could be the next step. Following last PSA increase switched from Zytiga to Xtandi. I am guessing that a PET scan is in order and maybe SBRT prior
alperk
in
Advanced Prostate Cancer
2 hours ago
Provenge immunotherapy
After 5.5 years on Lupron (no Zytiga, Xtandi, Daro, etc.), my PSA hit its highest points ever (1.92), although I'm still not 2 points above my lowest reading of 0.5 (only one of those). I'm metastatic and was at diagnosis, so still have prostate. I've been researching Provenge a bit, and understand that
After 5.5 years on Lupron (no Zytiga, Xtandi, Daro, etc.), my PSA hit its highest points ever (1.92), although I'm still not 2 points above my lowest reading of 0.5 (only one of those). I'm metastatic and was at diagnosis, so still have prostate. I've been researching Provenge a bit, and understand that
dhccpa
in
Advanced Prostate Cancer
6 hours ago
I'm so scared....could someone please help?
Hi. I'm so glad I stumbled on this site and I'm hoping that someone could be kind enough to reach out to me? I'm so very, very scared, and it's all my own fault. I have suffered from an anxiety disorder for 15 - 20 years and used wine to cope....and lots of it. I was diagnosed with compensated cirrhosis
Hi. I'm so glad I stumbled on this site and I'm hoping that someone could be kind enough to reach out to me? I'm so very, very scared, and it's all my own fault. I have suffered from an anxiety disorder for 15 - 20 years and used wine to cope....and lots of it. I was diagnosed with compensated cirrhosis
puddy68
in
British Liver Trust
12 hours ago
Anyone here with Cushings Disease or Cyclical Cushings?
Hey all, Having an MRI in 2 weeks time for my pituitary. I am unable to be on thyroid replacement I used to be on, raising doses seem to increase my cortisol further. Any helpful info would be amazing! Thanks x
Hey all, Having an MRI in 2 weeks time for my pituitary. I am unable to be on thyroid replacement I used to be on, raising doses seem to increase my cortisol further. Any helpful info would be amazing! Thanks x
Incoguto
in
Thyroid UK
2 days ago
High ELF score
Hi there, I’m Liz and this is my first post. I have recently had an ELF score of 9.9. My GP didn’t request this test - I requested it myself because I just wanted to know if my liver was in good condition and healthy. I have had an ELF test In the past which was raised but not unduly so and over the
Hi there, I’m Liz and this is my first post. I have recently had an ELF score of 9.9. My GP didn’t request this test - I requested it myself because I just wanted to know if my liver was in good condition and healthy. I have had an ELF test In the past which was raised but not unduly so and over the
Nellieblue
in
British Liver Trust
2 days ago
Stage 1 Compensated Cirrhosis
Hi This is my first post since being diagnosed with the above condition. I have now stopped drinking. I am confused with the staging element. I would be grateful for clarification in layman terms. I am awaiting an MRI of my liver and heart. I have also recently been diagnosed with dilated cardiomyopathy
Hi This is my first post since being diagnosed with the above condition. I have now stopped drinking. I am confused with the staging element. I would be grateful for clarification in layman terms. I am awaiting an MRI of my liver and heart. I have also recently been diagnosed with dilated cardiomyopathy
Vindhot-65
in
British Liver Trust
2 days ago
Dienogest
Hi all, My 17 year old daughter has just had her follow up post op appointment following a laparoscopy which she had last October. She has confirmed Endometriosis and all the surface (that they could see) Endo was removed. Unfortunately her pain has not improved and she says it's the same as before the
Hi all, My 17 year old daughter has just had her follow up post op appointment following a laparoscopy which she had last October. She has confirmed Endometriosis and all the surface (that they could see) Endo was removed. Unfortunately her pain has not improved and she says it's the same as before the
Welshpearl
in
Endometriosis UK
2 days ago
Terminal ileitis
My colonoscopy found mild inflammation in the TI area which they said looked like Terminal Ileitis. Biopsies were taken but they came back normal. I haven't discussed the results with my consultant yet as I had to give in a stool sample to check the calprotectin level first. It looks like it isn't Crohn's
My colonoscopy found mild inflammation in the TI area which they said looked like Terminal Ileitis. Biopsies were taken but they came back normal. I haven't discussed the results with my consultant yet as I had to give in a stool sample to check the calprotectin level first. It looks like it isn't Crohn's
Sunita77
in
Crohn's and Colitis Support
3 days ago
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