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Joint hypermobility syndrome
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PBC and Joint Hypermobility Syndrome
Hi, I have
joint
hypermobility
syndrome
and possible PBC. I was just wondering if anyone else has the same two health issues. It would be nice to speak to someone is going through the same things as me.
Hi, I have
joint
hypermobility
syndrome
and possible PBC. I was just wondering if anyone else has the same two health issues. It would be nice to speak to someone is going through the same things as me.
MSJT
in
PBC Foundation
6 months ago
Raynauds and Hypermobility
Hello, I've been diagnosed with primary Raynauds which is getting worse. I've had blood tests to rule out other conditions, but they've all been negative. Should I be pushing for a nailfold capillorthingy (technical term...)? I've also got colitis, irritable bladder, some joint hypermobility so I'm
Hello, I've been diagnosed with primary Raynauds which is getting worse. I've had blood tests to rule out other conditions, but they've all been negative. Should I be pushing for a nailfold capillorthingy (technical term...)? I've also got colitis, irritable bladder, some joint hypermobility so I'm
Boudica78
in
Scleroderma & Raynaud's UK (SRUK)
3 months ago
newly diagnosed
Hi all, I was diagnosed around two days ago with fibromyalgia and hypermobility syndrome (eds), although I’ve been struggling for a while now, I’m struggling to take in the diagnosis, I was just wondering if anyone had any advice to give or suggestions on what to do next. Thanks in advance :) x
Hi all, I was diagnosed around two days ago with fibromyalgia and hypermobility syndrome (eds), although I’ve been struggling for a while now, I’m struggling to take in the diagnosis, I was just wondering if anyone had any advice to give or suggestions on what to do next. Thanks in advance :) x
Pink_piglet
in
Fibromyalgia Action UK
4 months ago
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Could my son have Ehlers-Danlos? Who to ask about diagnosis?
Hi everyone, I've joined the group today as I'm not sure if my son has hypermobile EDS and I'm not sure where to turn and what to do next. He has lots of niggly health issues which I'm starting to think might be EDS (or I could be adding 2+2=5). Since he was about 6 months old he has suffered horrendously
Hi everyone, I've joined the group today as I'm not sure if my son has hypermobile EDS and I'm not sure where to turn and what to do next. He has lots of niggly health issues which I'm starting to think might be EDS (or I could be adding 2+2=5). Since he was about 6 months old he has suffered horrendously
CN4321
in
Ehlers-Danlos Support UK
11 months ago
First post.
Warning, long post. 2 am and I have cleaned the kitchen now I can move, even folded the t towels neatly in their box. I could do more but don’t want to wake hubby. I have always loved my fitness, I was a runner and training for an Ironman when things started to go wrong. First joint replacement at
Warning, long post. 2 am and I have cleaned the kitchen now I can move, even folded the t towels neatly in their box. I could do more but don’t want to wake hubby. I have always loved my fitness, I was a runner and training for an Ironman when things started to go wrong. First joint replacement at
TiaPasha
in
PMRGCAuk
6 days ago
Lumbar arthrodesis
Hello. My daughter had lumbar surgery after a car accident months ago. I am looking for someone who had this kind of surgery too, who could share tips on recovering, therapy, pain handling.
Hello. My daughter had lumbar surgery after a car accident months ago. I am looking for someone who had this kind of surgery too, who could share tips on recovering, therapy, pain handling.
Planetaoplastico
in
Stanmore Young Spine Group
1 month ago
Intro
Hi. I've been on HealthUnlocked for some time now and for some reason, my profile states I've not introduced myself. I've written a bio within my profile which summarises my journey with sJIA. I've had systemic juvenile idiopathic arthritis for over fifty years and early on had periods of remission
Hi. I've been on HealthUnlocked for some time now and for some reason, my profile states I've not introduced myself. I've written a bio within my profile which summarises my journey with sJIA. I've had systemic juvenile idiopathic arthritis for over fifty years and early on had periods of remission
WilfDog
in
JIA-at-NRAS
1 month ago
shift work
Hi all, so glad I found this group.Diagnosed 10 years ago and have always worked night shifts, I’m now being told I must work 12 hour days (7-7.30)as well even though occupational health advise nights only, stiffness and pain in the mornings make it impossible to be anywhere for 7am in the morning, nevermind
Hi all, so glad I found this group.Diagnosed 10 years ago and have always worked night shifts, I’m now being told I must work 12 hour days (7-7.30)as well even though occupational health advise nights only, stiffness and pain in the mornings make it impossible to be anywhere for 7am in the morning, nevermind
Nitenurse63
in
NRAS
3 months ago
Facet joints
Hi,I recently went to see a consultant. I have a.10 year history of l5/s1 disc protrusion. Pain has changed the last few years and has been more in the facet joints. I have had 2 lots of facet injections over the last 2 years however had a bad flare up about 5 months ago which I am still recovering
Hi,I recently went to see a consultant. I have a.10 year history of l5/s1 disc protrusion. Pain has changed the last few years and has been more in the facet joints. I have had 2 lots of facet injections over the last 2 years however had a bad flare up about 5 months ago which I am still recovering
AMS_1
in
Pain Concern
3 months ago
Ceasing Apixaban
I am due for knee joint replacement surgery. Can anyone relate their experience with stopping and starting Apixaban before and after the operation. I also take Ramipril, will I need to stop this for a while?. Thanks
I am due for knee joint replacement surgery. Can anyone relate their experience with stopping and starting Apixaban before and after the operation. I also take Ramipril, will I need to stop this for a while?. Thanks
johnkeithdowning
in
AF Association
3 months ago
Happy New Year
Not much to post here but felt motivated to greet this helpful community into 2024, my fourth year living with PMR or at the very least the dregs and after effects. Indeed I often feel as though I have a hangover! I have been pretty much signed off by my rheumatologist on a permanent 4mg of pred as he
Not much to post here but felt motivated to greet this helpful community into 2024, my fourth year living with PMR or at the very least the dregs and after effects. Indeed I often feel as though I have a hangover! I have been pretty much signed off by my rheumatologist on a permanent 4mg of pred as he
marionofnorwich
in
PMRGCAuk
5 months ago
Over 50
I have been struggling withy weight for years. I started putting on weight when I started depression medication. Now I'm over 50 still battling obesity. Growing up I was very active,but that has decreased due arthritis and joint replacements. I'm starting a new year looking for support from others.
I have been struggling withy weight for years. I started putting on weight when I started depression medication. Now I'm over 50 still battling obesity. Growing up I was very active,but that has decreased due arthritis and joint replacements. I'm starting a new year looking for support from others.
Jerry02
2023 December
in
Weight Loss Support
5 months ago
Sacroiliac joint fusion
After many painful years I'm on the NHS list for sacroiliac joint fusion. Of course there is a 12 month waiting list. Has any one had this operation done privately? Struggling to find a private consultant in Yorkshire.
After many painful years I'm on the NHS list for sacroiliac joint fusion. Of course there is a 12 month waiting list. Has any one had this operation done privately? Struggling to find a private consultant in Yorkshire.
eeeee
in
Pelvic Pain Support Network
6 months ago
Wrist Ulna Head Joint Replacement
Has anyone had their wrist ulna head joint replaced due to RA and if so, how are you doing now?
Has anyone had their wrist ulna head joint replaced due to RA and if so, how are you doing now?
ellilu58
in
NRAS
6 months ago
hip replacement advice
Has anyone had joint replacement after being diagnosed with MBC? If so, do you have any advice? I was diagnosed with MBC to the bones and liver July 2020. After radiation and several lines of drug treatment, I was diagnosed with severe osteoarthritis in my right hip a year ago. I had existing painful
Has anyone had joint replacement after being diagnosed with MBC? If so, do you have any advice? I was diagnosed with MBC to the bones and liver July 2020. After radiation and several lines of drug treatment, I was diagnosed with severe osteoarthritis in my right hip a year ago. I had existing painful
ClarenceO
in
SHARE Metastatic Breast Cancer
6 months ago
Hypermobility/HEDS recommendation?
Hi there. Thanks for taking the time to read my post. I posted on the EDS forum but it’s not very active and no response yet. I have recently been diagnosed with PoTs and have fibromyalgia and erythromelalgia. I’m in the watch and wait category I believe for auto immune inc lupus but at my recent autonomics
Hi there. Thanks for taking the time to read my post. I posted on the EDS forum but it’s not very active and no response yet. I have recently been diagnosed with PoTs and have fibromyalgia and erythromelalgia. I’m in the watch and wait category I believe for auto immune inc lupus but at my recent autonomics
Winter_night
in
LUPUS UK
1 year ago
Recommendations for an EDS specialist in London?
Hi there. Thanks for taking the time to read my post. I have recently been diagnosed with PoTs and I also have fibromyalgia and erythromelalgia. At my recent autonomics appointment my hyperflexible joints were mentioned and I was asked if I'd been assessed for hypermobile EDS. I would like to find someone
Hi there. Thanks for taking the time to read my post. I have recently been diagnosed with PoTs and I also have fibromyalgia and erythromelalgia. At my recent autonomics appointment my hyperflexible joints were mentioned and I was asked if I'd been assessed for hypermobile EDS. I would like to find someone
Winter_night
in
Ehlers-Danlos Support UK
1 year ago
Lixisenatide as a treatment for early Parkinson’s disease progression
In this randomized controlled trial, lixisenatide reduced motor disability progression in Parkinson’s patients. 2. Individuals in the lixisenatide group experienced greater gastrointestinal side effects rates than individuals in the placebo group. Evidence Rating Level: 1 (Excellent) https:/
In this randomized controlled trial, lixisenatide reduced motor disability progression in Parkinson’s patients. 2. Individuals in the lixisenatide group experienced greater gastrointestinal side effects rates than individuals in the placebo group. Evidence Rating Level: 1 (Excellent) https:/
Farooqji
in
Cure Parkinson's
5 days ago
Stimulation period and exercise
Hello everyone,I am doing IVF through the NHS and I am now waiting for the next stage which is ovarian stimulation. The doctor told me in the first appointment that during stimulation I won't be able to do any exercise because of the ovarian torsion. I understood this was for two weeks but I have been
Hello everyone,I am doing IVF through the NHS and I am now waiting for the next stage which is ovarian stimulation. The doctor told me in the first appointment that during stimulation I won't be able to do any exercise because of the ovarian torsion. I understood this was for two weeks but I have been
Amarillo-
in
Fertility Network UK
7 days ago
Thyroid Dysfunction and PD
So I thought I'd cross-search some of my health challenges and whadyaknow: https://academic.oup.com/cei/article/208/3/372/6578682. Shut your mush and take your Ldopa, though I'm non-responsive. Doc, I'm photophobic, can't open my eyes in the morning ALO, blepharospasm...Read it's predictive years before
So I thought I'd cross-search some of my health challenges and whadyaknow: https://academic.oup.com/cei/article/208/3/372/6578682. Shut your mush and take your Ldopa, though I'm non-responsive. Doc, I'm photophobic, can't open my eyes in the morning ALO, blepharospasm...Read it's predictive years before
Dabaa
in
Cure Parkinson's
8 days ago
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