Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

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Interesting new targeted therapy trial

I like this company’s mission. They have a Phase 1/2 trial underway at Mass General in Boston with a new miRNA-10b treatment....

I like this company’s mission. They have a Phase 1/2 trial underway at Mass Gen...

Best521

•21 hours ago

1 Reply

Capivasertib, fulvestrant

Ibrance 100 mg. Letrozole seemed to decrease 7 areas of Mets. MRI to pelvic, lumber shows progression of Lumbar L1 ,and lesions right pelvic bone. Nov 2023....

Ibrance 100 mg. Letrozole seemed to decrease 7 areas of Mets. MRI to pelvic, l...

Hidden

•1 day ago

2 Replies

Trodelvy after one year update

Hello and please excuse the lengthy post as I have a lot bouncing around in my head. I want to review my treatment path so far: I was diagnosed denovo in...

Hello and please excuse the lengthy post as I have a lot bouncing around in my h...

Iwasborntodothis

•2 days ago

33 Replies

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fasoldex

been on this for 9 months now doing well 🙏anyone else good reports 👍

Live2024

•3 days ago

21 Replies

fatigue

I have been on Ibrance plus Faslodex since 2018. I have been able to meet 2 more grandchildren and see them grow. I am extremely grateful for this. However the...

I have been on Ibrance plus Faslodex since 2018. I have been able to meet 2 more...

3sofar

•4 days ago

17 Replies

WHAT SHOULD I AVOID TAKING WITH IBRANCE

I am a Nigerian ,a single lady of 32years ,I was diagnosed of metastatic breast cancer on September 2023 then I redid my biopsy for a second opinion and it was...

I am a Nigerian ,a single lady of 32years ,I was diagnosed of metastatic breast ...

RuchiM

•5 days ago

16 Replies

Skull mets

Skull met - does anyone have pain or tenderness with skull mets? If so how long does it last or how frequently?

Skull met - does anyone have pain or tenderness with skull mets? If so how long...

Elle713

•6 days ago

24 Replies

Metastasis breast cancer

I jave neen daignosed with Metastasis breast cancer stage 4. I am on capecitabine 500 mg 2 tabs and capecitabine 150 mg tablet 2 tabs . Two weeks tablets and...

I jave neen daignosed with Metastasis breast cancer stage 4. I am on capecitabin...

Bikeriding

•6 days ago

7 Replies

Dana Farber 2nd opinion?

I just got back my PET/CT results from yesterday. Bad! I have never had so much progression. Little spots, some new, some growing from last time, mostly in...

I just got back my PET/CT results from yesterday. Bad! I have never had so much ...

TammyCross

•8 days ago

33 Replies

Orserdo

I am going to start Orserdo soon because my V erzenio quit working, How are you feeling while taking Orserdo. Thank You Helena

I am going to start Orserdo soon because my V erzenio quit working, How are you ...

Iwouldlike2knowmore

•9 days ago

6 Replies

liver lesions

I got the CT results today and I have multiple lesions showing in different liver lobes. I am currently on Flosodex and Piqray. Wondering about MRI or Biopsy?...

I got the CT results today and I have multiple lesions showing in different liv...

BluHydrangea

•10 days ago

12 Replies

ibrance

thanks for all the responses. I’ve been fighting metastatic bc since 2011 after 19 years from original diagnosis stage 2. Prognosis was very good. Surprised...

thanks for all the responses. I’ve been fighting metastatic bc since 2011 after ...

Jewelyn

•11 days ago

36 Replies

Ibrance followup for 73 months

I had been looking for this article since a friend was denied Ibrance after being successfully treated on it for 6 years. Finally found it. You may find it...

I had been looking for this article since a friend was denied Ibrance after bein...

genealogy74

•11 days ago

10 Replies

Ribocyclib dose

Hi there everyone, Thanks for the support, warmth and information of this platform. It is a really special community. My mother is managing metastatic...

Hi there everyone, Thanks for the support, warmth and information of this plat...

Stefftrees

•11 days ago

12 Replies

Am I crazy

Hi everyone. I am HER2+ with mets to liver and bone. After treatment liver lesions undetectable and bone is stable I have been stable with no progression...

Hi everyone. I am HER2+ with mets to liver and bone. After treatment liver les...

Onedayatatime60

•12 days ago

41 Replies

ibrance

I’ve been taking ibrance with faslodex since 2018. I had to stop taking ibrance because of hospitalization (3) for infections that I needed my immune system to...

I’ve been taking ibrance with faslodex since 2018. I had to stop taking ibrance ...

Jewelyn

•12 days ago

30 Replies

NED/NEAD and 5-13 markers

For those of you who are NED or NEAD, what are your 5-13 tumor marker numbers? Are your numbers in the "normal" range? Have any of you been 0 (zero)?

For those of you who are NED or NEAD, what are your 5-13 tumor marker numbers? ...

Greatday2

•13 days ago

16 Replies

where to donate unused meds

hi everyone - I recently transitioned from ibrance and exemastane to Faslodex and Perjeta Herceptin injections and now I have a lot of unused and brand new...

hi everyone - I recently transitioned from ibrance and exemastane to Faslodex an...

Georgelila

•13 days ago

20 Replies

pertinieum meds

hi. I am so nervous. They found Mets in my lining and it is causing ascites. Does anyone have any of these issues. I’m really trying to connect with someone...

hi. I am so nervous. They found Mets in my lining and it is causing ascites. Doe...

marianne88

•15 days ago

30 Replies

Does anyone have muscle and bone pain with falodex and has it helped with cancer markers??

I have been on exemethzine for 4 years and now my CA 15 is rising and was switched to falodex. I have terrible muscle weakness and bone pain. Has anyone...

I have been on exemethzine for 4 years and now my CA 15 is rising and was switch...

Mcangel11

•15 days ago

4 Replies

Joint pain

I started on an aromatese inhibitor about a year ago. At first I had some pain and weakness in my right wrist. This eventually went away. I am now having...

I started on an aromatese inhibitor about a year ago. At first I had some pain...

Suite1000

•17 days ago

25 Replies

Advice

Dear friends, the doctor recommended to do oblation on the liver, I have 2.8 cm met. If anyone has experience with this procedure, I would like to know. What...

Dear friends, the doctor recommended to do oblation on the liver, I have 2.8 cm ...

yevgeniakoretskaya

•21 days ago

9 Replies

leg and foot numbness and skin turns bright red in shower/heat

recently on Orserdu. Weird things happening. legs and feet very numb. And I have hands , feet and legs turning off color in warm shower. Feel completely...

recently on Orserdu. Weird things happening. legs and feet very numb. And I ha...

Elle713

•22 days ago

12 Replies

Bone Mets on Skull

I have new bone met on skull showed in recent brain scan. They are discussing targeted radiation but waiting on my PT scan to see if I have any progression...

I have new bone met on skull showed in recent brain scan. They are discussing t...

Elle713

•23 days ago

16 Replies

Chemotherapy holiday

Good morning to all! I was diagnosed stage 4 mbc, er+, pr+, her2 low to+, 2 years ago. I also found out last summer I have the PIK3 mutation...not much luck...

Good morning to all! I was diagnosed stage 4 mbc, er+, pr+, her2 low to+, 2 year...

Tuckermom

•23 days ago

33 Replies

Hospice

Sharing that my daughter and I are meeting with hospice for in home hospice care this afternoon. I was going to wait for one more CT scan and oncologist...

Sharing that my daughter and I are meeting with hospice for in home hospice care...

NPmary

•24 days ago

67 Replies

tumor marker levels

depends on the tumor marker test. For CEA, under 5 is normal. For CA-15, I think under 20 is normal.

depends on the tumor marker test. For CEA, under 5 is normal. For CA-15, I think...

Fiercelypink

•24 days ago

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Changing treatment drugs again …

I have been on a trial drug ( OP 1250) and Kisqali for 2 months.. and unfortunately they didn’t work..my ANC is now at 0.6 ! So I need to wait before I start...

I have been on a trial drug ( OP 1250) and Kisqali for 2 months.. and unfortunat...

Salmon4

•25 days ago

4 Replies

Does anybody get severe cramps; legs,pectoral and feet?

I have been on Ibrance for nearly 6 years. I feel I am doing well overall but I get very painful muscle cramps. I have experimented with Magnesium Oxide,...

I have been on Ibrance for nearly 6 years. I feel I am doing well overall but I ...

1horse

•26 days ago

16 Replies

Normal range for tumor markers?

Does anyone know the normal range for tumor markers - for breast cancer? Does everybody (including people without cancer) have some in their body or should it...

Does anyone know the normal range for tumor markers - for breast cancer? Does ev...

Greatday2

•26 days ago

20 Replies

Write a post or ask a question

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

Interesting new targeted therapy trial

Capivasertib, fulvestrant

Trodelvy after one year update

fasoldex

fatigue

WHAT SHOULD I AVOID TAKING WITH IBRANCE

Skull mets

Metastasis breast cancer

Dana Farber 2nd opinion?

Orserdo

liver lesions

ibrance

Ibrance followup for 73 months

Ribocyclib dose

Am I crazy

ibrance

NED/NEAD and 5-13 markers

where to donate unused meds

pertinieum meds

Does anyone have muscle and bone pain with falodex and has it helped with cancer markers??

Joint pain

Advice

leg and foot numbness and skin turns bright red in shower/heat

Bone Mets on Skull

Chemotherapy holiday

Hospice

tumor marker levels

Changing treatment drugs again …

Does anybody get severe cramps; legs,pectoral and feet?

Normal range for tumor markers?

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