Posts - Multiple System Atrophy Trust | HealthUnlocked

Multiple System Atrophy Trust

1,640 members • 1,295 posts

All posts for February 2023

Dribbling

For a few months now I've started dribbling and I have to tap my lips dry now and again.. Recently it's got much worse. In the morning I can literally scrape...

For a few months now I've started dribbling and I have to tap my lips dry now an...

•1 year ago

Bad 24 hrs

Last night I had a really bad dream and when the nurses came to wake me up to stop the noise they seemed quite annoyed because they had to change the bed. Ii...

Last night I had a really bad dream and when the nurses came to wake me up to st...

•1 year ago

stiffness & pain

This week I have noticed that I am now so stiff just not in the mornings but lingers all day, with the pain intensifying too! Today can hardly move taking...

This week I have noticed that I am now so stiff just not in the mornings but lin...

•1 year ago

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Thursday Chuckle

A man wanted to get a tattoo. The only issue was, the tattoo was a devilishly intricate design. He went to his local tattoo parlour, only to get turned away...

A man wanted to get a tattoo. The only issue was, the tattoo was a devilishly in...

Paul_and_Sue_Wood

•1 year ago

Introducing myslef

Hi My name is Alec and I live in Scotland. I was diagnosed in 2022, although my symptoms were apparent since 2018. I'm looking to speak with others and...

Hi My name is Alec and I live in Scotland. I was diagnosed in 2022, although ...

•1 year ago

Struggling

...i really struggle to take care of my wife having MSA

...i really struggle to take care of my wife having MSA

•1 year ago

Advice please 😊

Good evening all, can I ask please, with MSA can your symptoms plateau and you feel a bit stronger after having a pretty torrid few months? And has anyone...

Good evening all, can I ask please, with MSA can your symptoms plateau and you f...

•1 year ago

Oh no!! Not again.....

You're possibly aware that my husband is now bed-bound with Faithfull hound Barney 🐕‍🦺 stretched out across his legs in case he tries to escape again to...

You're possibly aware that my husband is now bed-bound with Faithfull hound Ba...

•1 year ago

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Nnot a good daybadly let down...

I was admitted to hospital inn Carlisle last Saturday with a blocked bowel and have since acquired a chest infection. Lovely 🎁 wouldn't you agree. 8 days...

I was admitted to hospital inn Carlisle last Saturday with a blocked bowel and h...

•1 year ago

Thursday( ish) Chuckle

An older woman, well past child-bearing years went to a walk-in clinic where she was seen by a young, new doctor. After about 3 minutes in the exam room, the...

An older woman, well past child-bearing years went to a walk-in clinic where she...

Paul_and_Sue_Wood

•1 year ago

FATIGUE

I'm currently ab inpatient in Carlisle infirmary with something non MSArelated and have acquired a chest infection,All the staff are constantly nagging to move...

I'm currently ab inpatient in Carlisle infirmary with something non MSArelated a...

•1 year ago

The solution

To everything...... Is Victoria Wood!!!! Woke at 4.30 am, tummy pai,back pain, coughing furiously couldn't breathe ..you know just one of those days. Put...

To everything...... Is Victoria Wood!!!! Woke at 4.30 am, tummy pai,back pain,...

•1 year ago

Inpatient again

Oh I'm so fedd up withhh this pplaceHhad to come in evenn tho ii knew it was a stoma problem but iii wass ccryiing with the pain and that's not me at all....

Oh I'm so fedd up withhh this pplaceHhad to come in evenn tho ii knew it was ...

•1 year ago

dizzy

hi all I hope you’re as well as you can be. I have a question about dizziness. I would consider this my worse symptom at the moment. I Do not have OH or blood...

hi all I hope you’re as well as you can be. I have a question about dizziness. ...

•1 year ago

Blocked nose.

Hi all. I was diagnosed with MSA in 2017 and I am having problems, among others, breathing through my nose. It feels as though my nose is blocked, restricting...

Hi all. I was diagnosed with MSA in 2017 and I am having problems, among others...

•1 year ago

Update on Maggie.

Hi all, I thought I'd give an update on my friend. I've now got Maggie referred to our local hospice. Her GP wasn't too keen on this, calling her and asking "...

Hi all, I thought I'd give an update on my friend. I've now got Maggie referred ...

•1 year ago

We are still clueless

R was diagnosed with Parkinsons in December 2021 but the consultant suggested that it could be Parkinsons Plus. I question the consultant about this later...

R was diagnosed with Parkinsons in December 2021 but the consultant suggested th...

•1 year ago

Frustrating afternoon

This is not strictly about MSA, but I really need to off-load and the bottom line is due to MSA so here goes.......Has anyone found that they have trouble...

This is not strictly about MSA, but I really need to off-load and the bottom lin...

•1 year ago

Newly diagnosed

My husband was diagnosed with MSA in December and we're feeling pretty overwhelmed with it all. As well as all the physical limitations there's so much...

My husband was diagnosed with MSA in December and we're feeling pretty overwhelm...

•1 year ago

Feeling Cold

All Anyone have any thoughts on my Sue feeling cold all the time no matter how she is dressed. We know she can't "feel" the cold or hot but she now feels cold...

All Anyone have any thoughts on my Sue feeling cold all the time no matter how s...

Paul_and_Sue_Wood

•1 year ago

Thursday Chuckle

I went to Tesco today , and I was there for literally 5 minutesWhen I came out there was bloody copper writing a parking ticket for being in a handicap spot....

I went to Tesco today , and I was there for literally 5 minutesWhen I came out t...

Paul_and_Sue_Wood

•1 year ago

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ongoing symptoms ..

Wednesday I had a colonoscopy to a reason of a positive FIT test of 184. Very relieved to find nothing sinister just my very sluggish and constipated bowels....

Wednesday I had a colonoscopy to a reason of a positive FIT test of 184. Very re...

•1 year ago

Thursday Chuckle

One day, God summoned Adam for an important task he must complete... God Said, "Adam, I want you to do something for me." Adam said, "Gladly Lord, what do...

One day, God summoned Adam for an important task he must complete... God Said, ...

Paul_and_Sue_Wood

•1 year ago

medication and supplements for MSA?

what medication are people taking ? Are you taking sinemet or mucuna? Do they help? I was diagnosed with Parkinson’s in2020.””and MSAP in December 2022. My...

what medication are people taking ? Are you taking sinemet or mucuna? Do they he...

•1 year ago

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