Multiple System Atrophy Trust | HealthUnlocked

It’s with a heavy heart that I post this as Les Passed away this morning from this terrible disease 💔 He is now out of this nightmare to be free again He...

It’s with huge sadness I'm letting you know that after a severe bout of pneumonia Jackie, my deepest love and soulmate, passed away in my arms on Wednesday....

I can only sit to stand with hubby’s help. I don’t have any balance and use an electric wheelchair downstairs and a walker upstairs. I still have strong legs...

hi everyone my husband has just started midrodine after taking fludrocortisone for a couple of months. It hasn’t stopped him falling. He has postural...

I don`t post on here too often but have had some good advise and information from you all in the past. I am sad to say that Graham passed away on Sunday,. He...

Hi everyone. I’m new to the forum. Recently diagnosed with MSA after four years of symptoms. Does anyone experience severe foot pain at night? I get cramps in...

Hi everyone my husband has hypertension one of the symptoms of MSA and been taking fludrocortisone. It hasn’t helped so the doctor wants to change it and try...

My wife was diagnosed with Parkinson's in September 2023 but on seeing a neurologist last week he says she might have msa.She's been on madopar since September...

Hi, I've been on this chatroom for a few years now and my first post was desperately trying to work out what signs to look out for so i had an idea how much...

Hi. Please can anyone tell me if they’ve gone for car adaptions like changes to the passenger seat/ hoist etc rather than a WAV? I’m trying to work out which...

Hi fellow members Been a little while since I posted on here and that’s because I’ve been busy living each day while I can. I am 75 years old and was...

My husband was diagnosed in early 2020 with MSA. The decline was rapid - he is now on PEG for feeds, intermittent urine catheter, flatus tube for bowel...

A gent sat next to me on the train one day and pulled out his phone. After glancing at his phone he leans over to me shows me a picture and says "isn't she...

Hi, does anyone use a powered wheelchair.? which model? Any tips much appreciated. Thanks, chin

Hiya everyone I am new here. My wife have MSA-c for a few years She recently have a severe breathing issue. She breathes heavily and making a sound like...

My husband is in a really low mood recently, due to his deteriorating MSA-C. I am wondering if anyone has been prescribed anything to lift their mood. He was...

quickie, does anyone else get swollen feet?

I was diagnosed with msa-c end of January last year aged 43. Took a couple of years to find out my issues I was having but I was wondering if anyone on here...

Does anyone know of a gp or...who specializes in msa-in the south coast of nsw, australia???tia

A man starts work at London zoo. It’s a big zoo so they give him a golf buggy to drive between the different parts of the site. Anyway, he’s in the bird house....