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Stomach heavy is due to a swollen spleen?

My wife has had CLL since 2020 and is still in the W&W stage. For the past few months, she has complained that her stomach is becoming heavy, implying that it...

My wife has had CLL since 2020 and is still in the W&W stage. For the past few ...

Sagarcanada

•6 hours ago

4 Replies

low white cells

I am half way through my O&V treatment. I have finished my infusions am I am just on venetoclax. The problem is I am on a max dose of 200g per day rather...

I am half way through my O&V treatment. I have finished my infusions am I am ju...

Farleytiff

•15 hours ago

6 Replies

Reactions to COVID boosters

Hi, I've been getting the COVID boosters in the UK on a regular basis, but my reaction each time has gotten worse. With the one six months ago and the one last...

Hi, I've been getting the COVID boosters in the UK on a regular basis, but my re...

SAT_poet

•17 hours ago

4 Replies

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Great news from my MDAnderson doctor

I was originally diagnosed in May, 2011 and had a long 9 year watch and wait. Feb,2020 Dr Thompson put me on Calquence as I was become a little anemic...

I was originally diagnosed in May, 2011 and had a long 9 year watch and wait. ...

DGG1931

•1 day ago

28 Replies

Blood results

Hi This is my latest blood results and I'm aware they have been rising consistently now for over a year as well as having skin papuals which indicate cll...

Hi This is my latest blood results and I'm aware they have been rising consisten...

cartwheels

•1 day ago

1 Reply

Extreme fatigue and low blood pressure

Hi just wondering if anyone who experiences hitting the wall or for no particular reason feels empty of energy has tried taking their own blood pressure ? I...

Hi just wondering if anyone who experiences hitting the wall or for no particula...

Notmuchenergy

•1 day ago

15 Replies

Root canal while on Acalabrutinib

I am having a root canal in two weeks, and I wonder if I need to stop Acalabrutinib for 3 days before the treatment? any experience with that?

I am having a root canal in two weeks, and I wonder if I need to stop Acalabruti...

RamOren

•2 days ago

5 Replies

tp53 mutation

Hi All, my dad has been diagnosed with CLL and has just had it confirmed that he has the TP53 mutation/deletion. He is stable at the moment and is currently on...

Hi All, my dad has been diagnosed with CLL and has just had it confirmed that he...

Fortheloveoffarming

•2 days ago

8 Replies

Bendamustine

Hi Male from 1946. Diagnosed for CLL in 1995. 2013 : Leukeran + Rituximab In 2021 I received only 1 cycle of Bendamustine (90) + Rituximab. No further...

Hi Male from 1946. Diagnosed for CLL in 1995. 2013 : Leukeran + Rituximab ...

dickcll

•2 days ago

7 Replies

Pemgarda

I’ve been offered the Pemgarda infusion but was told I was the only patient who requested it at my oncology office. Has anyone received it?

I’ve been offered the Pemgarda infusion but was told I was the only patient who ...

Cllinmaryland

•2 days ago

7 Replies

Act QUICKLY. L&LS Financial Assistance OPEN for CLL Patients

I applied and received award news in ten minutes....

Lily_Pad_Master

•2 days ago

Be the first to reply

Validation

I am positively buzzing after my two days at parliament in Wellington Aotearoa NZ as part of a summit focused on valuing life. I guess I had lost my...

I am positively buzzing after my two days at parliament in Wellington Aotearoa N...

Kiwidi

•3 days ago

2 Replies

i had my blood work done ,my wbc count is 28.0 and my lymphocyte count is 24.6 erd blood cell 4.53 platelet 106 ,8 weeks on brukinsa.

i was diognosed with 4th stage cll/sll ten years ago now i had my blood work done today my wbc count is 28.0 and my absolute lymphocyte count is 24.6, red...

i was diognosed with 4th stage cll/sll ten years ago now i had my blood work don...

ceciljr1958

•3 days ago

2 Replies

do I need the spring Covid shot?

I have had 7 covid shots since the start of Covid. On October 10 of 2023 I received the Moderna bivalent booster, as well as the flu shot and RSV shot. I...

I have had 7 covid shots since the start of Covid. On October 10 of 2023 I rece...

Claybuster

•3 days ago

9 Replies

Latest results questions

I need help, does anyone understand these results. I am currently on the Bruin 321 clinical trial and am on 3rd cycle of Pirtobrutinib. So far things are going...

I need help, does anyone understand these results. I am currently on the Bruin 3...

rcusher

•4 days ago

9 Replies

covid shot

hello , I just had another Covid shot, and each time I have had a large swollen lymph node I Under the arm where I had the injection, but this time I have two...

hello , I just had another Covid shot, and each time I have had a large swollen ...

Grandmajoanie

•4 days ago

9 Replies

Nattokinase

Does anyone take natto or vitamin k, and does it help with side fx of acalabrutinib? Thanks.

Does anyone take natto or vitamin k, and does it help with side fx of acalabruti...

Zabb

•4 days ago

13 Replies

Acalabrutinib, venetoclax and obinutuzumab in relapsed CLL: Phase 2 CLL2-BAAG trial results from the German CLL Study Group

Some very encouraging news for those with unmutated IGHV and/or TP53 aberrations, who are wondering how they will fare with a subsequent treatment. This phase...

Some very encouraging news for those with unmutated IGHV and/or TP53 aberrations...

AussieNeil

Administrator•4 days ago

8 Replies

CLL + nephrotic syndrome: furosemide problem

Hello, I'm here to share something with the community that may be important for those who have had nephrotic syndrome related to an infiltration of CLL in the...

Hello, I'm here to share something with the community that may be important for ...

BMFCDRW

•4 days ago

5 Replies

Reoccurring CLL

Hello Everyone I haven't been posted anything for a while. My father started venclyxto treatment last week he is doing ok at the moment he only complaining...

Hello Everyone I haven't been posted anything for a while. My father started ve...

agneshun

•5 days ago

4 Replies

CLL, Alcalabrutinib, Gout & Steroids

Hi I’ve Three years on Acalabrutinib, I’ve developed gout and had a few episodes, some are more severe than others. The doctor prescribed a course of...

Hi I’ve Three years on Acalabrutinib, I’ve developed gout and had a few episo...

Tomaljoe69

•5 days ago

38 Replies

Wendy

My husband was diagnosed in 2010 at the age of 40. 2013 he had FCR. 11 years later, he is in week 5 of venteclax, Rituximab to follow next month. Swollen...

My husband was diagnosed in 2010 at the age of 40. 2013 he had FCR. 11 years lat...

Fluxthecat10

•5 days ago

2 Replies

What is the longest remission that I can hope for?

I am wondering if there is any guide as to how long remission after modern treatments might last? For example V and O - are there any stats as to people who've...

I am wondering if there is any guide as to how long remission after modern treat...

Research123

•5 days ago

12 Replies

Understanding my Karyotype report

Hi all, I’m recently diagnosed and just got my most recent labs back for 1) IGHV, 2) Karyotype, and 3) Beta 2 Microglubin ————— For reference: IGHV -...

Hi all, I’m recently diagnosed and just got my most recent labs back for 1) IGHV...

CBSN

•5 days ago

3 Replies

Is Septrin (Co-trimoxazole) a lifelong medication

Greetings. Septrin was part of the medication I started at the commencement of Ibrutinib. I take 1 tab 960 mg evey alternate days. Have been on it for about 6...

Greetings. Septrin was part of the medication I started at the commencement of I...

Oldscores1

•5 days ago

32 Replies

Fish Panel Results/Husbands Passing

Fish Panel Results Tumor/ Prognostic Markers: CD38+ ZAP70+ IgVH unmutated Trisomy 12. My husband was diagnosed with CLL 5 years ago . His CLL doctor...

Fish Panel Results Tumor/ Prognostic Markers: CD38+ ZAP70+ IgVH unmutated T...

Debcap61

•6 days ago

8 Replies

anemia

I have been on watch and wait for three years, I mostly had SLL, with alot of lymph node involvement. The last couple of months my hemoglobin and hematocrit...

I have been on watch and wait for three years, I mostly had SLL, with alot of ly...

Gino23

•6 days ago

25 Replies

lymph node swelling

Hi Everyone, I haven’t posted in a while. I have cll diagnosed in 2019. Now with with decent labs but lately my arm pits have been super itchy with what...

Hi Everyone, I haven’t posted in a while. I have cll diagnosed in 2019. Now wi...

sbkris1

•6 days ago

6 Replies

WBC and Lymphocytes are increasing

Hello everyone, I am posting after a year. My wife was diagnosed with CLL in 2020. She is still in W&W form. Her WBC and Lymphocyte are climbing linearly....

Hello everyone, I am posting after a year. My wife was diagnosed with CLL in 20...

Sagarcanada

•6 days ago

20 Replies

Devastated

I went to my first three month blood test today. I am at Rai 0. I feel great. My WBC and Lymphocytes doubled in 3 months. I am starting V and O on Monday. I am...

I went to my first three month blood test today. I am at Rai 0. I feel great. My...

EastBayDad

•7 days ago

97 Replies

Write a post or ask a question

Posts - CLL Support | HealthUnlocked

CLL Support

Stomach heavy is due to a swollen spleen?

low white cells

Reactions to COVID boosters

Great news from my MDAnderson doctor

Blood results

Extreme fatigue and low blood pressure

Root canal while on Acalabrutinib

tp53 mutation

Bendamustine

Pemgarda

Act QUICKLY. L&LS Financial Assistance OPEN for CLL Patients

Validation

i had my blood work done ,my wbc count is 28.0 and my lymphocyte count is 24.6 erd blood cell 4.53 platelet 106 ,8 weeks on brukinsa.

do I need the spring Covid shot?

Latest results questions

covid shot

Nattokinase

Acalabrutinib, venetoclax and obinutuzumab in relapsed CLL: Phase 2 CLL2-BAAG trial results from the German CLL Study Group

CLL + nephrotic syndrome: furosemide problem

Reoccurring CLL

CLL, Alcalabrutinib, Gout & Steroids

Wendy

What is the longest remission that I can hope for?

Understanding my Karyotype report

Is Septrin (Co-trimoxazole) a lifelong medication

Fish Panel Results/Husbands Passing

anemia

lymph node swelling

WBC and Lymphocytes are increasing

Devastated

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