Search
Search
About
Log in
Join
Experiences with
Organ transplant
Posts
Communities
3,338 public posts
Filter results
Shingrix vaccine for immunosuppressed people aged 50+
transplant
●those who are receiving or have received in the previous 3 months targeted therapy for autoimmune disease, such as JAK inhibitors or biologic immune modulators including ●B-cell targeted therapies (including rituximab but for which a 6 month period should be considered immunosuppressive)
transplant
●those who are receiving or have received in the previous 3 months targeted therapy for autoimmune disease, such as JAK inhibitors or biologic immune modulators including ●B-cell targeted therapies (including rituximab but for which a 6 month period should be considered immunosuppressive)
Sharitone
in
PMRGCAuk
7 months ago
Prednisone for treatment of AIG
I've just been started on Prednisone or Prednisolone, immunosuppressant steroids, for treatment of Autoimmune Gastritis/autoimmune PA. This has recently, within the last few years been shown to possibly heal AIG, although not entirely cure. It is also used to prevention immune system rejection of organ
I've just been started on Prednisone or Prednisolone, immunosuppressant steroids, for treatment of Autoimmune Gastritis/autoimmune PA. This has recently, within the last few years been shown to possibly heal AIG, although not entirely cure. It is also used to prevention immune system rejection of organ
Rexz
in
Pernicious Anaemia Society
3 months ago
Kidney patients waiting for a transplant deserve better
There has been a unanimous passage of the
Organ
Procurement
Transplant
Act in the U.S. Take a moment to say thank you to your lawmaker for prioritizing patients. #MyKidneyVoice https://bit.ly/3KBMdNr
There has been a unanimous passage of the
Organ
Procurement
Transplant
Act in the U.S. Take a moment to say thank you to your lawmaker for prioritizing patients. #MyKidneyVoice https://bit.ly/3KBMdNr
JackieJ_NKF
Partner
in
Kidney Transplant
9 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
PIP assessment
Waiting for a multi
organ
transplant
. It has impacted all areas of my life so have been encouraged to request PIP but I’ve heard they decline lots of people. Thank you!!
Waiting for a multi
organ
transplant
. It has impacted all areas of my life so have been encouraged to request PIP but I’ve heard they decline lots of people. Thank you!!
GEMMA1991
in
British Liver Trust
1 year ago
Expanding Living Donation: Understanding the Key Legislation
Every day, 12 people die waiting for a kidney
transplant
. Living
organ
donation plays a vital role in addressing this crisis. However, many potential living donors face barriers that discourage them from pursuing this life-saving act.
Every day, 12 people die waiting for a kidney
transplant
. Living
organ
donation plays a vital role in addressing this crisis. However, many potential living donors face barriers that discourage them from pursuing this life-saving act.
JackieJ_NKF
Partner
in
Kidney Donation
23 days ago
NCGS/Celiac disease
Hello, I am looking for anyone who has developed NCGS or Celiac disease since having kidney transplant. I am three years post-transplant and have been suffering GI side effects since 6 months post-surgery. The immunosuppressants I have been taking are Tacrolimus and Myfortic. The transplant center
Hello, I am looking for anyone who has developed NCGS or Celiac disease since having kidney transplant. I am three years post-transplant and have been suffering GI side effects since 6 months post-surgery. The immunosuppressants I have been taking are Tacrolimus and Myfortic. The transplant center
6821green
in
Kidney Transplant
5 days ago
Weight gain - how to control it.
I'm now 13 months post kidney transplant. Since the transplant I have put on at least 15 pounds but it keeps going up - I was only 4-5 pounds and then it went up to about 10 pounds and then 15 pounds. Even though I try to exercise and I do watch what I eat too (my wife's a nurse so I rarely get by
I'm now 13 months post kidney transplant. Since the transplant I have put on at least 15 pounds but it keeps going up - I was only 4-5 pounds and then it went up to about 10 pounds and then 15 pounds. Even though I try to exercise and I do watch what I eat too (my wife's a nurse so I rarely get by
Tankjsl
in
Kidney Transplant
10 days ago
Disability information
Biliary CirrhosisPrimary Biliary Cirrhosis – Condition and Symptoms The liver secretes bile, a bodily fluid that is essential for the body to digest fats. It also helps the body to rid itself of toxic substances, cholesterol, and worn-out red blood cells. The ducts that release bile can become damaged
Biliary CirrhosisPrimary Biliary Cirrhosis – Condition and Symptoms The liver secretes bile, a bodily fluid that is essential for the body to digest fats. It also helps the body to rid itself of toxic substances, cholesterol, and worn-out red blood cells. The ducts that release bile can become damaged
DonnaBoll
Administrator
in
PBC Foundation
11 days ago
Psychological and fitness assessment form
Hi, I’m filling in my transplant assessment form for a meeting in a few weeks time and some of the questions seem vague. There is a question regarding how healthy I feel today with a scale from 1 to 10 ( eq5d ). Does this refer to mental, physical or general health ? Also , if you say you feel too
Hi, I’m filling in my transplant assessment form for a meeting in a few weeks time and some of the questions seem vague. There is a question regarding how healthy I feel today with a scale from 1 to 10 ( eq5d ). Does this refer to mental, physical or general health ? Also , if you say you feel too
Bootsforlife
in
British Liver Trust
11 days ago
Vasculitis in the pancreas?
Has anyone with GPA or MPA been diagnosed with pancreatic issues due to vasculitis? Hubby had has GPA for 15 years, kidney transplant and sinus involvement and most often in remission until now. He has lost 40 pounds( not trying) and must take enzymes to digest food with a very bland diet. All this happened
Has anyone with GPA or MPA been diagnosed with pancreatic issues due to vasculitis? Hubby had has GPA for 15 years, kidney transplant and sinus involvement and most often in remission until now. He has lost 40 pounds( not trying) and must take enzymes to digest food with a very bland diet. All this happened
Sandalsforever
in
Vasculitis UK
12 days ago
Liver transplant
Anyone taking Envarsus after being on Adoport after liver transplant and had any side effects.
Anyone taking Envarsus after being on Adoport after liver transplant and had any side effects.
Ttck1825
in
British Liver Trust
12 days ago
fibro-scan results
I was diagnosed with a slight fatty liver a few years ago. I rarely drink alcohol. My hepatologist send me for an out of the blue Fivro-scan. My daughter came in with me and I was told my scores where very high which was a huge shock The kPa was 321 and was told 400 is max for liver transplant. The fatty
I was diagnosed with a slight fatty liver a few years ago. I rarely drink alcohol. My hepatologist send me for an out of the blue Fivro-scan. My daughter came in with me and I was told my scores where very high which was a huge shock The kPa was 321 and was told 400 is max for liver transplant. The fatty
Maggie153
in
British Liver Trust
14 days ago
Liver transplant vs kidney transplant
For those who have had both, could you let me know if one was "better" or "worse" than the other? I had my liver transplant Sept 22, and though initially recovering well, had a bout of CMV which went on for a long time, and over the last year struggling with poor kidney function, which is currently
For those who have had both, could you let me know if one was "better" or "worse" than the other? I had my liver transplant Sept 22, and though initially recovering well, had a bout of CMV which went on for a long time, and over the last year struggling with poor kidney function, which is currently
taar
in
Kidney Transplant
19 days ago
A sad passing....
The gentleman with the first pig kidney transplant has passed away. https://www.theguardian.com/science/article/2024/may/12/pig-kidney-xenotransplant-patient-dies-two-months-later In better news there has been a second pig kidney transplant! https://www.theguardian.com/us-news/2024/apr/24/new-jersey-woman-pig-kidney-transplant
The gentleman with the first pig kidney transplant has passed away. https://www.theguardian.com/science/article/2024/may/12/pig-kidney-xenotransplant-patient-dies-two-months-later In better news there has been a second pig kidney transplant! https://www.theguardian.com/us-news/2024/apr/24/new-jersey-woman-pig-kidney-transplant
Earther
in
Kidney Transplant
19 days ago
Liver Health
For anyone in Ohio or close by, please plan to come to this event. My Doctor Dr. Na Li is putting it on. When: Saturday, June 15, 10 a.m. – Noon Where: River Crossing Park, 6635 Riverside Dr., Dublin, OH What: Ask questions and discover the latest treatment options from the liver specialists and
For anyone in Ohio or close by, please plan to come to this event. My Doctor Dr. Na Li is putting it on. When: Saturday, June 15, 10 a.m. – Noon Where: River Crossing Park, 6635 Riverside Dr., Dublin, OH What: Ask questions and discover the latest treatment options from the liver specialists and
Alterity
in
Living with Fatty Liver and NASH
21 days ago
Cynthia Delgado and Neil Powe Named to TIME100 Health List For Fighting Kidney Transplant Bias
TIME named the National Kidney Foundation/American Society of Nephrology Task Force on Reassessing the Inclusion of Race in Diagnosing Kidney Diseases, and its chair persons Cynthia Delgado, MD, FASN and Neil Powe, MD, MPH, MBA to the list of 100 individuals who most influenced global health this year
TIME named the National Kidney Foundation/American Society of Nephrology Task Force on Reassessing the Inclusion of Race in Diagnosing Kidney Diseases, and its chair persons Cynthia Delgado, MD, FASN and Neil Powe, MD, MPH, MBA to the list of 100 individuals who most influenced global health this year
JackieJ_NKF
Partner
in
Kidney Transplant
23 days ago
Reflections on a 10 day vipassana silent meditation residential
Silence…. Note: This is a prelude to Part 2 ‘Reflections on an 8-day silent zazen meditation retreat’. I found myself reflecting on this in relationship to a first residential silent meditation experience, 10 years ago. Offering you space and fodder to consider both and what may call you to the deeper
Silence…. Note: This is a prelude to Part 2 ‘Reflections on an 8-day silent zazen meditation retreat’. I found myself reflecting on this in relationship to a first residential silent meditation experience, 10 years ago. Offering you space and fodder to consider both and what may call you to the deeper
WhollyAligned
Administrator
in
Nutrition and Yoga for Health
26 days ago
ICD insertion and went for Heart Transplant
Hi friends, I have insertion of ICD on 5th April, 2024 from City Hospital, Nottingham but I am enlisted in waiting list of heart transplant from Royal popwarth Hospital, Cambridge. Suddenly I received a call from my Hospital Co-ordinator at 2.00Am midnight on 24/04/2024 that are you ready to go
Hi friends, I have insertion of ICD on 5th April, 2024 from City Hospital, Nottingham but I am enlisted in waiting list of heart transplant from Royal popwarth Hospital, Cambridge. Suddenly I received a call from my Hospital Co-ordinator at 2.00Am midnight on 24/04/2024 that are you ready to go
MIS_G
in
British Heart Foundation
28 days ago
Looking for advice please
Hello folks. I've been on here for a couple weeks reading peoples comments/stories. but have not posted anything until now. Hope you all are doing ok. Im looking for a bit of advice if anyone can help please. Back in august last year i was diagnosed with Liver cirrhosis from drinking. for the
Hello folks. I've been on here for a couple weeks reading peoples comments/stories. but have not posted anything until now. Hope you all are doing ok. Im looking for a bit of advice if anyone can help please. Back in august last year i was diagnosed with Liver cirrhosis from drinking. for the
StokieB
in
British Liver Trust
30 days ago
information about liver transplants/liver cancer
https://l.facebook.com/l.php?u=AT1q4nZnRGFEk9DREjCfOr32vqyD8L1g6K0RcC_EDbD4oCwtB3eulAZZduYdqnytaPjLXB9ZdFhw53LtO0m0MZWIG09DGKjSAU58KK3Gx6FqL1ztOVQvumdzQlbjfVPHGO8tFD2m0oK5VyAVEzzJoUzd2pJDkD8m4nCGQIsZDX8eZvxWwFuOeOlBzlzmIDXByapbNibWWnHsiBDPCpdlit3QCvc3HXSgyaugkx8LKnX9JUKbsPscdDYOai6FkVHhe7jUsezWDdM0phZl2Gas6b6w_e9YfCqvk9s_pVzncIu2r7Dt7s1gfemxBPiIXaHYEiuPp0OwY
https://l.facebook.com/l.php?u=AT1q4nZnRGFEk9DREjCfOr32vqyD8L1g6K0RcC_EDbD4oCwtB3eulAZZduYdqnytaPjLXB9ZdFhw53LtO0m0MZWIG09DGKjSAU58KK3Gx6FqL1ztOVQvumdzQlbjfVPHGO8tFD2m0oK5VyAVEzzJoUzd2pJDkD8m4nCGQIsZDX8eZvxWwFuOeOlBzlzmIDXByapbNibWWnHsiBDPCpdlit3QCvc3HXSgyaugkx8LKnX9JUKbsPscdDYOai6FkVHhe7jUsezWDdM0phZl2Gas6b6w_e9YfCqvk9s_pVzncIu2r7Dt7s1gfemxBPiIXaHYEiuPp0OwY
DonnaBoll
Administrator
in
PBC Foundation
1 month ago
1
2
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
British Liver Trust
703 results
Lung Conditions Community Forum
458 results
Kidney Transplant
431 results
View top 10 communities
Sort by
Most Relevant
Newest