Vasculitis UK | HealthUnlocked

Hi All I’d really interested in hearing from anyone who has been told they’ll be on predisolone for good. I’ve been on it for 13 years, varying doses but...

I was diagnosed with EGPA in December 2020, following intensive treatment including cyclophosphamide infusions I went into remission the following April. Since...

Hi everyone. I have been on methotrexate and prednisolone for nearly three years for Vasculitis GPA along with blood thinners and statins etc, was also on...

Hi, Hope all are doing well. Making slow progress here, but all going in the right direction so I am told. Feel better than the beginning of the year for...

Hello, recently diagnosed with renal-limited vasculitis and trying to adjust lifestyle as best I can. Quit alcohol and eating a healthy diet which feels...

I used to find the posts from other patients very useful but now I don't see any, just bits to say it is Vasculitis Awareness month or something.

Has anyone with GPA or MPA been diagnosed with pancreatic issues due to vasculitis? Hubby had has GPA for 15 years, kidney transplant and sinus involvement and...

Don’t want to bore you all but I have had a couple of developments recently apart from having my Rituximab extended for another year. Firstly I am on statins...

Hello I started induction treatment about a month ago with very limited eGFR change and was wondering for those who have gone a full 6 months whether it...

Hello, tomorrow I have my 2nd vasculitis treatment (high-dose steroids plus rituximab) and just wondering if there is much difference between the 1st and 2nd...

Hullo,Does anyone have advice on what happens to your skin after stopping MTX.I have been on MTX for 2 years for LVV,the first year at 20mg the second at...

I was helping another cerebral/CNS vasculitis patient tonight about incontinence. Which can be a common symptom of brain vasculitis, whether a primary...

Hi all, my urine samples have started showing leukocytes protein and blood. I have GPA which mainly affects my lungs and now sinuses. I guess I just want to...

ERN RITA & EUVAS webinar: Infections in ANCA Associated Vasculitis Save the date: Tuesday 21 May 2024, 12:00-13:00 CET | You can find all ERN RITA...

We have noticed that the awareness posts have been dominating the community page and we see less posts from our members. Therefore, with exception of the...

Hi, Has anyone else experienced this? I’ve woken up today with rust like staining, mainly on my left hand with a little on my right. No logical cause from...

Our chair Dorothy Ireland has a special birthday today! Happy 70th Dorothy! May - Day 11 #vasculitis awareness month. Let's celebrate Dorothy's special...

Every time I have I have a blood test - about every 2 weeks currently - it's reported on as having raised neutrophils. The kidney function has returned to...

Hi all.Hope your all doing really well this Tuesday. Yesterday I went to my Dentist for my routine check up and Polish and had the polish and clean first then...

May - Day 16 vasculitis awareness month. Early diagnosis and treatment are the key for best prognosis! Take a moment to read Helen's story! To donate to...

Today is International Vasculitis Awareness Day! Spread the word! May - Day 15 #vasculitis awareness month. Life is beautiful, don't let vasculitis tell...

May - Day 14 #vasculitis awareness month. Vasculitis is a life changing illness! Take a moment to read Wendy's story! To donate to #VasculitisUK ‘s...

May - Day 29 Vasculitis Awareness Month Our own 'nose ambassador's' story today! The impact of the ''limited'' vasculitis in her life was certnly not...

I am a mother of a 20 year-old daughter who was diagnosed with IGAv/HSP In February 2024. Her first flareup was very bad, ulcerated and has left pretty bad...

May - Day 22 Vasculitis Awareness Month Vasculitis is a life changing illness affecting many aspects of the patient's life. Being diagnosed with vasculitis,...

May - Day 31 Vasculitis Awareness Month - The vasculitis diagnosis and treatment doesn't only affect the patient, it is life changing for their loved ones...

May - Day 30 Vasculitis Awareness Month - Large Vessel Vasculitis is rare, can be complex and can be difficult to diagnose as symptoms may confuse the...

May - Day 30 Vasculitis Awareness Month Vasculitis affects both males and females and sometimes comes with symptoms that can mislead the clinicians. And that...

May - Day 18 #vasculitis awareness month. Vasculitis can be an ''invisible'' illness. Ali says: 'When people see me, they tell me how well I look, and if...

Last chance to share your health care experience as a patient and help us get enough data to drive a change for the benefit of patients living with Vasculitis,...