I seem to be getting worse and having no good days😢.Any advice anyone ?
I'm doing physio every morning. I'm eating less, but the burning skin spread today - Sunday-
My mood has plummeted lately.
Well you all known the symptoms😨🤕😟
Now I'm going to bed .
I'll try to be cheery tomorrow hugs and love to you all 😀 nite sweeties Dawn 🤗🤗🤗🙃🤗🤗
hey hun, are you doing too much in the morning, remember to pace, we can’t do it all in one goal, simple light stretching, easing into where you can feel the pain, then focus on that bit, don’t over stretch, and don’t push the muscles that can’t cope, nice and easy, leave the physio, until you can cope with it.
I’m with you with pain sweetie, chin up, I hope the sand man visits you tonight, and you sleep well, gentle hugs 🤗.
Thank you sweetie 🤗🤗.I'll abide by ur advice.
I hope my Covid jab doesn't set me off🙄 .
I just feel I've let people down if I don't do my physio exercises.
I am particularly stressed these days tho.
I hope you are well and not struggling too much hugs sweetie 🤗🤗Dawn
I hope the jab doesn’t cause any more problems 🤞
I know what you mean about letting people down, but I am supposed to do my trapz exercises every morning, but if it’s too painful, I miss it, physio would understand, we can’t always do our exercises 🥴
Take some time, and try a bit of mindfulness, imagine yourself somewhere special, try and see it in your mind, it sometimes helps to lift the mood 🤗🤗
Hi sorry for late reply, have had gastroenteritis I believe from my symptoms. I hope like me you are feeling even a bit better than you were🌻🌻🤗🤗🤗
Had Covid jab. Pains about the same except my my jab arm to be expected.Yes at the moment I'm a bit better in the head except exhaustion but what is new😉
My joints have kicked off big style meh.
But it's a sunny day so far but cold.
How are you feeling sweetie Dawn 🤗🤗🤗🤗🤗🤗😋
😍😊😍Dawn
Ahh, I’m much better now thanks and went back to work today and was pleased to as I was fed up and missed everyone 😁I’m glad you are feeling slightly better and jab went ok 👌 you may feel a little sore in the next day or so but at least it’s out of the way 💕🤗xx
Hi sweetie 😀🤗🤗😍,Congratulations on being back at work!!!🤗🤗🤗🤗😍😘😃😄😁😀😊🙂🤗😉😅.
I hope everything goes well and you enjoy it😎😍🤗. Take it easy tho sweetie 🙂.
I'll be thinking about you sweetie hugs 🤗🤗🤗🤗🤗🤗🤗😇Dawn
Hi blue 52. I also suffer bad with fybro. I get up. And if I don't feel to bad. I dash about and try doing things like I used to do. Then I crash and burn like I feel total dreadful exhaustion like I can't walk and have to lay down. So I understand why some days we struggle to even get up x
I’m exhausted, reading this 😂, no wonder you crash and burn, baby steps. Xx
Shazzafloyd,
We all know it, about spoons (and forks)
Trying to stop before we get to the stage of no-return, I go over every single time, But I practically live in my bed, It's just so much more to just get back in when I know I get comfy cosy watch a bit of tv,and a hobbby or two, Then my animals will line up to say Hi, I'm just here for the food,
I have some really nice P'J's,some which can and have been worn out side when clothes can be less comfortable,
Gunna do whatcha gunna do to survive
Hi sweetie Shazzafloyd🤗I totally get not being able to walk. I struggled to get up but I'm determined lol. My Copd is playing up meh. I've been struggling to breathe and had to use oxygen.
I'll give you extra hugs 🤗🤗Dawn 😍🤗😃😄😅😆😉😍😎😋😊😀😁🙂🤗🤗🤗🤗🤗🤗🤗🤔
You take care of yourself sweetie🙏❤
R bless you thankyou for the hugs they made me feel I'm not alone xx
Hello I’m so sad you’re in the middle of this. I’m just coming out the other side of a flare that started before Christmas and it was miserable. The better weather and lighter days are helping me a bit. My GP also did a lot of med changing and moved me to duloxotine from sertraline. It could be worth talking to your GP on reviewing your medication as well potentially. Lots of lovely people here suggested baths to me when I was very bad. And I’ve found that helps a lot. I’m also back in counselling which is kind of helping though I prepare before each session so I can steer it towards what I want to talk about! My main issue is doing too much so I totally understand - when I’m in pain or have low mood I do things to take my mind off everything and end up flattened with fatigue. I’m putting alarms on my phone to take regular breaks! My physio prescribed getting outside every day for a walk - last few weeks I’ve been gardening instead of walking and it’s great for your mood; walking this time of year is lovely also - so much happening in nature to look at. I find that helps my mood a lot. Sorry for giant reply - I hope some of this helps a bit. I’m so sorry for how you’re feeling and sending you love. This is such a lovely and supportive community and made me feel much less isolated when I was at my worst. Xxxx
Hi kikimouse17Thank you for replying🤗 and for a wonderful reply.
I get my Covid jab at lunch time. So I'll see the outdoors. It's too cold for me still.
Yes the people on this forum are brilliantly friendly and helpful.
I can't walk far and use my wheelchair when I out.
I like the sound of ur physio😁.
I've been on venlafaxine for many years but don't feel it helps as much but am terrified of getting worse.
I'm so tired already and I'm annoyed with myself.
Yes this community is a life saver🙂🤗🤗🤗😃😍
I hope you have a good day sweetie hugs 🤗Dawn 🤗🤗🤗🙃🤗🤗🤗😍
🤗♥️🥰🙏🕊🌿🌸🦋
R thankyou so.much xx
hugs to you too and hope you get over this flare very soon. It’s a wretched condition! The thing I find the most tiring is trying to explain that I might look ok but I’m actually not! It’s constant! Hugs and have the loveliest day xxx
That is the problem I find I also suffer with fibro. But trying to explain to someone that dosnt suffer with this condition dosnt understand it at all I'm so glad I can read and give me comfort to here othere people that do suffer on this site x
It hurts when people judge. So I find it easier to withdraw from people physically and mentally.I'm still learning on here but so far I hope I haven't upset anyone ?
Because we understand each other and this terrible syndrome on here we can talk freely. I've never had that before so it's wonderful ❤.
I'm trying to compliment everyone but tiredness is messing me up.
Lol I'll stop but thank you sweetie s Dawn 🤗🤗🤗🙃🤗🤗🤗😍
Thankyou x
Hi sorry to hear that you are in so much pain, there's good advice in the previous answers so I won't repeat what they have said. Hope you feel ok after your covid jab. Sending gentle hugs your way. x Lesley x
Thank you sweetie 🤗🤗🤗🙃😌😌😍
Thank you so much xx
Morning Dawn, you sound like me trying too do your physio and maybe over doing it alittle, like Blue says try and paste more (must take my own advice as this morning I’ve been run over by a truck😜) they say the weather is warming up this week 😃yippee, Iv e brought some hemp cream and my hubbie is rubbing that in my neck shoulder blades. Lower back (the bits I cannot reach ) I’m willing too try anything. I missed my soak last night through sheer fatique so it’s a must tonite with some Epsom salts. Keep your chin up we can chat here and try cheer each other up xx
Thank you sweetie 🤗,Let me know if the help cream works ?
Voltarol works briefly but I'm allergic to it meh
You do cheer me up😀😊😃😍Dawn
Oh bless you, well last week I eventually gave in too meds Weds for infected tonsils (oh joy ) I tried too get threw my week with odd sleeps and pacing and helping my daughter who has yet another infection for UTI/kidneys, then had this silly idea of having my friends (married couple round Saturday too watch football and cook them a meal(our Ipswich town are fighting hard in the top 3 of Championship league football) we drew ☹️I took lamb out of the freezer night before mixed it with bistro gravy and red wine and shoved it in the oven on 160 for 3 half hours , got my head down and somehow how managed too dish up a meal and even make a crumble, hubbie washed up and I got in my recliner too watch with my friend . Great I thought box ticked , then Sunday my little grandad boy says can we have a barbecue 😎😂so they came at 4ish , I chopped up a side salad , made a curried rice salad with left over chicken, hubbie cooked the meat on the Barbie ,and me and my daughter flopped till it was cooked 😆. If you’ve read this you’ve done well 😅today the truck has run over one s body xx
Blooming well done sweetie 🙂🤗!!!!!If it's not cooked for me I don't eat.
When Jon went away for 2weeks I lived off weetabix and pots of rice pudding. And ate very little. But you have astounded me.
I can't stand for very long or walk far.
Just had jab. Jon did too. It usually screws him over so fingers crossed he's ok this time.
You should be proud of yourself sweetie 🙂🤗🤗🤗,
I'm sorry you have both been poorly🙁🤗🤗🤗
My lungs have been playing up meh but I have copd.
I hope you're both better now?🤗
Hugs sweetie Dawn 🤗🤗🤗🙃,
You see me today I look about 80 😜just slept I snored so much I kept waking myself up (don’t put Cpap mask on for any day time doses🤣your Jon sounds a good man, mine has gone off too drop a bought pasta dish off too my daughter , get the grandboys from school , then the 3 of them going out for tea, maybe it will end up with a McDonald’s 😃boys choice, one is 7yrs, and nearly 10, they will pop bsck here for an hour or so , so will try keep awake ha ha Having COPD is not easy on top of everything else and you keep your chin up xxx
You and your family sound very busy.😲 I snore myself awake lol. I fell asleep in my chair last week and Jon said I have apnoea can't spell lol but you get what I mean. He was working and I kept snoring. I'm so embarrassed lol.
I have to pace speaking to my Dr. They don't cope with a lot all at once.
Ur family sound great😉😍🤗🤗🤗.
My Copd is a nuisance at night but it's difficult to tell which is annoyance at the moment.
But I've been worse so I could be worse. That I'm thankful for😍🤗🙂😊
Hugs sweetie Dawn 🤗🤗🤗🙃🤗🤗🤗
Hi sweetie 😊♥️🥰🌿🌸🦋
Soooo sorry about your dilemma love. My bestie Blue-52 is so right you have to pace yourself.
YOU are the most important issue here. It only matters that you do what is best for you. Don’t worry about what others think…they aren’t in your body and haven’t a clue what you go through every single moment.
You ARE pushing yourself too hard.
Example.
I’ve been in a flare of multiple conditions since 2014. I haven’t been able to much of anything since then…long explanation that I’ll spare you (but would tell you if interested) used to do EVERYTHING in 4 hours because I went in a whirlwind speed working 22hours on 2 hours sleep. This caused catastrophic damage to my body now it takes me 4 hours to just study how to do one thing without flaring.
I’m hoping to get back on my elliptical but only doing 3 minutes at about 6 reps speed.
Doing twice a week for a month and slowly building from there.
I am only concerned about me not what others think or say. I’ve done too many decades pushing to continue caring for others (6 at one time) did me in.
I know that if the situation were reversed those who made snide remarks to me would never stand for me to do the same to them.
I’m in your cheering section for whatever you CAN do every day even if it is nothing…YEAH Smilesalot. ❣️❣️❣️😃🎊🎈💐
EJ 🤗♥️🥰🙏🕊🌿🌸🦋
I love your post😍😘😀😊🤗🤗🤗🤗 and I'm interested ur health.I'm brain fogging sorry. I'm exhausted so I'll do a bit of nothing but nap
Hugs sweetie Dawn 🤗🤗🤗🙃🤗🤗🤗😍❤🌶
Sweety,sweety,sweety
WHY????? When we know it's gonna go South,
You and I should know by now we have limits, Then there's that little (or large) whisper in your ear that say's Come on I'll just finish watching this or iron this and Ooh while I'm doing that, I should just......... (might be tinnitus)🤕
In the newbie days I'd be t the doctors feeling really,really 💩, I thought I'd crumple any time now,
But no! this was not a flare??? What the chuff? If not a flare than What?,when?,how?😭
As time went on the pain got worse,Change the meds,You know how it goes?
Recently I have come out of a 6 month flare, So just gently potter around then my back decides It hasn't been harsh enough recently, Gall stones are driving me up the wall, Pointless go to A&E at the moment because,they won't take it out,, (the stones or gall bladder)
So Hubby and I start "SORTING" Not even 5mins in and I'm in absolute agony
What the blood and stomach pills ( who can figure out what long standing comedy show this is said in??
Anyway we'll do a bit more after dinner,See where we get to, The wheel chair assessors are coming tomorrow so the rug doctor is on later,
Hope your feeling more cheery today? Mrs Grumpy pants 😜 seriously though 🤗🤗(((🤗))) on way Debsxx
Lol sweetie😂,I'm trying hard not to be grumpy hehehe. Thank you for making me laugh.😍🤗🤗🤗🤗🤗❤😂😂😂😉
My friend Jon does the same😉🤗
I'm gonna ask my Gp if I can swap venlafaxine to d do
alloxatine brain fog 😑 grrr😂🐽.. It's supposed to be better with pain and low mood than mine.
I need to be proactive as my Gp is ??? Not helpful.
It takes months to get thro to her🙄. I get the gall stones and bladder. Had mine out years ago but I haven't forgotten the pain😡. When are they taking urs out ?
I had key hole surgery. I hope they do it soon!!!
I have my bed bath tomorrow yey😍.
Thank you sweetie hugs 🤗🤗🤗🤗🤗🤗🤗😇Dawn
Hi Dawn love, hope you are feeling a bit better today. Its very hard not to get depressed when you have a flare like that, which seems to go on and on. I wish you better days ahead xx 💐💖🧸
Thank you very much sweetie 🙂.Had Covid jab yesterday. Jon is a mess. It always makes him poorly especially the Moderna. I'm just in more pain which is typical lol
I just had a piece of toast😍🤗 was lovely. It's rare for me to have breakfast. Jon got me some 🐑 sheep egg cups😆😃😀😍😍😍.
How are you today sweetie.? What are you up to?
I'm in pain and pooped but I want to keep an eye on Jon.
Although very tired I am having a better morning🤗🤗🤗🤗😍😍😍😃😀😊.
Thank you Elaine2000756
It means a lot🤗🤗🤗🤗🤗🤗🤗😍😇🙂😊😁
Haha thought you might like that,
I know the Doc we had 1st was 💩 Husband and wife, When we had our 1st appointment John was still using the walker, He said John was an alcoholic and was he still drinking as well as his other stuff???
(I'm going to have to write these down as I hear them,as there is no chance I'll spell them)
But I might have to do it in bits and bobs,with slips and slops as my brain fog is giving me mass pain today, Possibly when I fell last week?
When John was young (er)😉 ha was an anastective technition (Told you it was chuffed)
If you haven't already guessed I use the word chuffed chuffing chuffness and the occasional chuff you, instead of the 'F' word, I recon you've already got it because your not daft,😊)
He was out with his friends and sister,When he suddenly dropped to the floor unconscious, He was rushed to the same hospital where he worked! They cut him from his chest to his pelvis, He had some thing like perititosomething?? He was at deaths door this was back 1975,
after nearly a year, he wanted to go back to work,They said he would have to go right back to his 2nd year of training, He left,
At this point John's not comfortable about me telling everyone our lives being posted 🤗
I'll leave it for now,
This is what ruined Pen Pals, with pen and paper,an envelope through the door,not a brown 1 or another bill Think about possibly do the pen pal thing and let me know what you think? It's perfectly fine if you say no🙂
Hope your evening goes as well as can be🤗🤗
I like the idea very much sweetie😀. Please excuse my terrible writing😂😂😂😂😉😆.I occasionally use chuff.
I understand John's point of view sweetie. I personally no longer care altho I have sensitive days lol. It depends who I'm talking to😉
I'm losing my brain power so catch up later?
Hugs sweetie Dawn 🤗🤗🤗🙃🤗
Lakeside, the Downs, Standlake, Witney. Oxford OX29 7SH. Dawn Dean. Please allow for brain fog.I'm in pain 😢. Hugs sweetie Dawn 🤗🤗🤗🙃🤗🤗🤗😍❤❤
There was me being discrete on the chat flying paper thing Lol Thank you,3am now I really need to sleep 🤗
Hope you manage a sleep and get your pain in check a bit more,
I can't believe it's the 4am If I don't get to sleep in the next hour, I will scream 🙄🙄😒
Hi sweetie I'm sorry ur still awake at that time. Yesterday was the same for me. I'm not surprised you want to scream🙍.What are you up to today sweetie? Other than snoozing lol.
My meds are just not strong enough.
My Copd is being a bugger lately which reminds me to do my blood sugars and insulin.
I farted 😂and blamed Jon😳😉.
Hope you're ok sweetie hugs 🤗🤗🤗🙃😌😌😍🙏💜
Grrrrr😒😒 10 past 5, 💩💩 O'clock
John woke me up at 8 with a brew and I've been battling this damn head ache ever since, I've been writing off and on and so far I've thrown out about six times so I don't know what the heck your getting,🥲😊
I might just wait for your's 😉
John took the furries to get their spring cut, The older dog had to be carried all the way, I'm telling him to take her to the vets, but I think John knows as well as I know She's no life left in her and she's been sleeping much more than she's awake,
😪🤤😴😴😴I think she's in a lot of pain and I don't think she should have to suffer, If I had a choice I'd rather be put to sleep myself, Then I look around and think, Would I?
Really? It's tough
If we need to blame anyone else we blame it on 1 of the girls 😆😆😆
Lol my dogs would look at us in disgust lol but my God did they stink hehehe.What kind of dogs do you have ?
I'm sorry I'm late on but I had a very painful night and it didn't improve when I got up..
Jon n I share a nicer house but split the rent. The extra comes from me. It helps my mental health greatly.
Our neighbours are old. Shot I should be writing this on paper. No chance today.
It's a tough choice. Is she in pain relief ?🤗
Personally I think you'll know when it's time..
Have to go pee😉.Hugs sweetie Dawn 🤗🤗🤗🤗🤗🤗😋😋
There is no number Sweetz ?🤔 House number
🥺🥺🥺🥺🥺🥺 Please I must sleep tonight😴😴😴😴
😵💫😵💫😵💫😵💫😵💫🤪🤪🤪🤪🤪🤪🤪🤪🤪🤪🤪🤪🤪🤪
Oh sweetie I'm sorry you didn't sleep!!!!!!We don't have a number which is stupid.
It's just Lakeside, the Downs ,Standlake, Witney, etc.
I had a terrible night and day today 😢.
Feel like been kicked in the kidneys and head etc.
How are you doing sweetie?🤗🤗🤗🙂🤗🤗😇😍💜
Aww bless you,
I spend all night wishing I could fall asleep and then all day trying to stay awake, It doesn't work, I'm fighting with it now,😭 usual aches and pains It's my back and sciatica really cant get in a good position at the moment, Might just spend half an hour bagging more stuff for donating and tip,
This will make you giggle a bit
We decided we would have takeout 2 times a week because we don't want John to get over tired, EVERY single shop in a mile radius knows John and starting to get freebies, He talks so much to them I'm sure they do it to get him out! LOL fish and chips they gave him 2 cans of pop. Chinese, prawn crackers (Cat and Dogs love them) Frankies, We get 2 cans of pop and extra little pots of dipping and a small fries,😊
John says Frankies tonight😋 It's like KFC but nicer and not as expensive, It is also near the Costa so John brings me a frappe back too, We know it's naughty, The way we look at it , We've given up too much already,
Have you had all your medicines today? I hate it when something kicks in and won't sod off, Hope you can get some rest, There's some classic programmes on this evening Starting with Keeping up appearances and Last of the summer wine,The John gets the remote for a couple of hrs, All this exitement,
Lol. That's excellent all those freebies.I've got my blanket and hat on brrr.
I go to bed at 7-8 pm.
We have naughty stuff to😍🤗🤗🤗 can't live without them.
I've tried the healthy Fibro diets. I felt worse. Go figure. I'm much better diet wise but Jon's such a good cook especially YouTube curries lol tasty and healthier.
Brrr.
We don't have any take aways near by so they have to deliver.
I'm hungry now lol !!!🤗🤗🤗🤗
Hugs sweetie Dawn 🤗🤗🤗🙃🤗🤗🤗🤗😴😴😴😴hope you sleep 🤗
Sciatica ?🤗 sweetie no wonder ur not sleeping.I get it now and then or bursitis and it's agony.😢😢😢. I hope I haven't jinxed myself lol.
I can't cope with more pain.
Ur very brave.
I hope you don't mind swearing as I swear a lot but I also like fake swears lol. Sorry I'm hogging you. My guts have decided to play up and the geese are fighting bfn sweetie hugs 🤗🤗🤗🙃
LOL I swear too just not on line, I'll get barred, The only swear word I will not say is
The' C 'one
How do you feel about tattoo's?
I jinxed my self years and years ago, I said John could put me out to grace when I starting peeing myself!!! I don't think it counts the 1's when you laugh,cough and sneeze 🤧🤧 Oh dear!!! lol
The more serious was, I'm not afraid to die, I am afraid however of pain!
The 💩💩 thing is I have been in such pain everyday since😂😨
Oh sweetie I hate that ur in any pain😩Good morning afternoon to you.
I have 5 tattoos. They're cover ups mainly small.
Do you have any ?🤗
I'm incontinent. But do what I can to control it.
Just a teaser...I have a poop 🔪knife😝😏🙄🤗🤗🤗🤗🤗🤗🤗🤗🤗😍😍😍😍😍😇😇😇🤗🤗🤗🤗🤗🤗😂😂😂😂😂😂😂😂😂😂😂😂😂guess what it is and see if you still want to be friends😂😂😂😂😂😂😂😂lol hahaha.
I agree it's not the dying it's the pain.
Sometimes I think I've reached my limit I take extra medicine sleep and know I was so close.
Cripes that is like a curse.
I'm up shop cream without a paddle today meh
Hugs sweetie Dawn 🤗🤗🤗🙃🤗🤗🤗🤗🤗🤗🤗🤗🤗did you sleep ?
Hi Dawn
Sending you lots of 🤗🤗🤗🤗🤗. I'm in the same boat as you. It's horrible!! I know your pain. Hope you have a good day xx
Thank you CleopatraS 🤗🤗🤗🤗I'm sorry ur suffering.😢. It's not good is it. I hope you can relax in the heat. I can breathe better at the moment yey 😍.
Hugs Cleopatra S, Dawn 🤗🤗🤗🙃🤗🤗🤗🤗🤗
Flare
Flare
To the end of the rainbow 
Fibromyalgia flare ups
Never liked the holidays. 
