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Fibromyalgia Action UK

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PIP awarded until 2031

I had my PIP assessment over the phone, it was a good experience, I shared this with you guys on here. I did not have to exaggerate my symptoms, some of the...

I had my PIP assessment over the phone, it was a good experience, I shared this ...

vikki123456

•18 minutes ago

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PiP review update

Hi just thought I would share this information with you for those awaiting their PIP reveiw. Mine is due to end June 2024 I put my papers in 11 mths ago . My...

Hi just thought I would share this information with you for those awaiting their...

Debbiedo2

•5 hours ago

1 Reply

Fibromyalgia An Insight

Imagine if you will or can that fibromyalgia is like a massive electrical storm or a massive electrical explosion inside your body.Every...

Imagine if you will or can that fibromyalgia is like a massive electrical storm ...

Fibroguy66

•2 days ago

11 Replies

Want to take advantage of all our features? Just log in!

The Fibromyalgia Poem

When the days get longAnd the nights become longer Just listen to yourself And let your body become stronger. The pain & the...

When the days get longAnd the nights become longer Just listen to yourself And l...

Fibroguy66

•2 days ago

11 Replies

neck and shoulder pain

hi, newly diagnosed with fibromyalgia and this past 2 days I have had neck pain going down into my shoulder blades & I have a strange sensation, like there’s...

hi, newly diagnosed with fibromyalgia and this past 2 days I have had neck pain ...

Catty29

•3 days ago

8 Replies

Video on History of Fibromyalgia

It is International Awareness Day which falls on Florence Nightingales birthday each year. Around the world on May 12th there are events, awareness being...

It is International Awareness Day which falls on Florence Nightingales birthday ...

desquinn

Partner•3 days ago

5 Replies

Advice on working /college courses, looking for work with fibromyalgia...

Hi everyone, I hope you are all doing okay, i just have been wondering what on earth to do college course wise, work wise, i want to work but dont know where...

Hi everyone, I hope you are all doing okay, i just have been wondering what on e...

fibrogirl41

•3 days ago

2 Replies

SORRY

I'm sorry My opinion caused offence,The reason I wrote it on this forum was because I've discovered that getting cranky effects makes my Fibro tingle I...

I'm sorry My opinion caused offence,The reason I wrote it on this forum was beca...

Debsdelight72

•3 days ago

4 Replies

They’re growing

Almost 6 months now, Juno & Gordy really keep us busy. Took them to the beach over bank holiday and they love sand!!!

Almost 6 months now, Juno & Gordy really keep us busy. Took them to the beach o...

Gulfstream_Maggie

•4 days ago

3 Replies

Check out our new awareness video

Check out our new YouTube Video for May 12th which is International Fibromyalgia Awareness Day https://youtu.be/5AM_wcL5G0s?si=_3R2tn16fxKRRUpv

Check out our new YouTube Video for May 12th which is International Fibromyalgia...

desquinn

Partner•4 days ago

4 Replies

MRI Scan was pure hell.

Hi, First post since my introduction post, (Still a bit nervous) Hope I've put it in the right place. And I am doing it right. Sorry if I'm/it's not. Am I...

Hi, First post since my introduction post, (Still a bit nervous) Hope I've put ...

saxcat

•5 days ago

18 Replies

Just checking in

Hello everybody, I have been reading and answering posts and hoping for some of you the warmer weather may be helping alittle ? It seemed that Winter hung...

Hello everybody, I have been reading and answering posts and hoping for some of ...

Yassytina

FMA UK Volunteer•5 days ago

7 Replies

Feeling unemployable

I’m trying to find a new job, applying all over the place but having a lot of “thanks but no thanks”. Starting to feel very old, tired and unwanted. I do...

I’m trying to find a new job, applying all over the place but having a lot of “t...

Gulfstream_Maggie

•5 days ago

17 Replies

advice on cooling blankets etc I am at my wits end 🙈

Hi all, I am having trouble with regulating my body temperature- I know this can be a symptom of fibro. It is really bad going from cold to boiling within...

Hi all, I am having trouble with regulating my body temperature- I know this can...

Molliesmamma

•6 days ago

9 Replies

Pain in nose

I've woken up today with pain towards the top of my nose .I can't believe how painful it is to touch . I've had this before many times over the years . Is this...

I've woken up today with pain towards the top of my nose .I can't believe how pa...

Tommygurl

•6 days ago

8 Replies

Good news people😁😊😀

Demon our swan is coming home shortly🤗🤗🤗🤗🤗🤗😎😎😎😎😍😍😍😍😍😍.I hope he's in a good mood lol Dawn 🤗🤗🤗🙃

Demon our swan is coming home shortly🤗🤗🤗🤗🤗🤗😎😎😎😎😍😍😍😍😍😍.I hope he'...

Smilesalot

•7 days ago

34 Replies

Dreaming

Hello, I've been having a stint of dreams at the moment where I always end up getting hurt. That pain is there when I wake up. Like if I exert myself, get hit...

Hello, I've been having a stint of dreams at the moment where I always end up g...

Jmw78

•7 days ago

2 Replies

55 large and hurting.. Losing weight is hard.. Any tips appreciated.. 💖

55.. Large and hurting.. Exercises and cooking getting harder by the day.. Flares becoming more regular.. Now having to get help with gardening and cleaning.....

55.. Large and hurting.. Exercises and cooking getting harder by the day.. Flare...

Sunseaslim123

•7 days ago

16 Replies

Naproxen or similar (NSAID)

Good morning all, Has anyone else had kidney problems with taking Naproxen or similar? I have been diagnosed now with Chronic Kidney disease which is...

Good morning all, Has anyone else had kidney problems with taking Naproxen or ...

Nelly1

•7 days ago

6 Replies

pip audit

hi I had my assessment last week I called today for copy of my report , they said it’s in audit and will delay things has anyone else had this and if so how...

hi I had my assessment last week I called today for copy of my report , they sai...

Labcoligreen2

•8 days ago

3 Replies

Samwebster

Anyone advice for longTerm insomnia after Exposure to chemicals

Samwebster

•8 days ago

3 Replies

Beau’s Lines

Hi All, Has anyone suffered from Beau’s Lines on both big toes? Only just noticed them…🙁 Is it linked to Fibro? Don’t want to go to Dr if another Fibro...

Hi All, Has anyone suffered from Beau’s Lines on both big toes? Only just notic...

CarolineMKR

•8 days ago

2 Replies

We had ☔.

It wasn't supposed to rain. But it's now 🌞 again.I had vine tomatoes before. Threw my blanket on the floor and what looks like a spider lands at Jon's feet...

It wasn't supposed to rain. But it's now 🌞 again.I had vine tomatoes before. Th...

Smilesalot

•8 days ago

3 Replies

Hi sweetie s. Just joined and wanted to thank all the people who responded kindly. Means a lot.

I have a confession to make😉I call everyone sweetie because I can't remember named or faces also cos I like people. I'm embarrassed 😳 but my brain fog is...

I have a confession to make😉I call everyone sweetie because I can't remember na...

Smilesalot

•8 days ago

4 Replies

husband Fibro and interstitial cystiyis

my husband age 63 today is struggling with the pain of both Fibro and IC even though on duloxetine, mirabegron , high dose Gabapentin , tonne of paracetamol...

my husband age 63 today is struggling with the pain of both Fibro and IC even th...

Fibrofibrofibro

•8 days ago

6 Replies

Being sick and not feeling brilliant...

Hi i dont know why ive been sick a few times and my stomach aches a bit after being sick, i think something didnt agree with me, or i caught a bug, i hope i...

Hi i dont know why ive been sick a few times and my stomach aches a bit after be...

fibrogirl41

•9 days ago

11 Replies

Pip award update

Good morning all.As a follow up from my previous post,on Saturday I received the dreaded letter about my pip assessment. I had received a text message 7...

Good morning all.As a follow up from my previous post,on Saturday I received the...

Jaxm66

•9 days ago

17 Replies

new symptoms

Hi all, I’ve had Fibromyalgia for 4 years. Every day seems to bring a new symptom. For the past week I have had burning sensation in my hands and feet. Is this...

Hi all, I’ve had Fibromyalgia for 4 years. Every day seems to bring a new sympto...

196912

•10 days ago

5 Replies

Dealing with others

Hello people, Just wondering if anyone has any techiques/tactics for dealing with others when struggling with pain? I find I'm completely shutting down and not...

Hello people, Just wondering if anyone has any techiques/tactics for dealing wit...

MJH43

•10 days ago

5 Replies

hi does anyone else get swollen ankles, feet and lower legs and add in itching and small blister . Thank you

swollen itchy ankles

Dory10

•10 days ago

19 Replies

Write a post or ask a question

Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

PIP awarded until 2031

PiP review update

Fibromyalgia An Insight

The Fibromyalgia Poem

neck and shoulder pain

Video on History of Fibromyalgia

Advice on working /college courses, looking for work with fibromyalgia...

SORRY

They’re growing

Check out our new awareness video

MRI Scan was pure hell.

Just checking in

Feeling unemployable

advice on cooling blankets etc I am at my wits end 🙈

Pain in nose

Good news people😁😊😀

Dreaming

55 large and hurting.. Losing weight is hard.. Any tips appreciated.. 💖

Naproxen or similar (NSAID)

pip audit

Samwebster

Beau’s Lines

We had ☔.

Hi sweetie s. Just joined and wanted to thank all the people who responded kindly. Means a lot.

husband Fibro and interstitial cystiyis

Being sick and not feeling brilliant...

Pip award update

new symptoms

Dealing with others

hi does anyone else get swollen ankles, feet and lower legs and add in itching and small blister . Thank you

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