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Switch from Besremi to Ruxolitinib
Dear all After 18 months on Besremi my oncologist and I made the decision to move on and so am starting on Rux. In brief, I titrated up from 100 ug (Sep 2022) to 500 ug Bes and was at that dose for 9 months. I was CHR for the last 5 months of this period. My platelet count however crashed in Oct
Dear all After 18 months on Besremi my oncologist and I made the decision to move on and so am starting on Rux. In brief, I titrated up from 100 ug (Sep 2022) to 500 ug Bes and was at that dose for 9 months. I was CHR for the last 5 months of this period. My platelet count however crashed in Oct
gjh8733
in
MPN Voice
2 months ago
Itching and Hives
hello!! I was wondering if anyone has the same problems as me and can offer some advice! Since about age 9 (I am 26 now) I have been getting hives throughout my whole body every single day. My doctors can’t figure out what’s going on and no medication helps! I am on Plaquenil, Gabapentin, Zyrtec,
hello!! I was wondering if anyone has the same problems as me and can offer some advice! Since about age 9 (I am 26 now) I have been getting hives throughout my whole body every single day. My doctors can’t figure out what’s going on and no medication helps! I am on Plaquenil, Gabapentin, Zyrtec,
Shubertrachel
in
Fibromyalgia Action UK
3 months ago
New to MPN Voice
Hi, I'm in my upper 40s, diagnoses with PV several years ago. My platelets were just shy of 1.1M at the peak before starting Besremi in May 2023. At that time I was getting a phlebotomy about every 2.5 months to keep HCT below 45. Like others have said on this board, it seems the evidence is strong
Hi, I'm in my upper 40s, diagnoses with PV several years ago. My platelets were just shy of 1.1M at the peak before starting Besremi in May 2023. At that time I was getting a phlebotomy about every 2.5 months to keep HCT below 45. Like others have said on this board, it seems the evidence is strong
Luthorville
in
MPN Voice
4 months ago
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Itchy skin, scratchy eyes, heat and humidity…. 🤔
Good morning from Brisbane, Australia 👋🏻 I’ve got ET JAK2 pos and have started to get the itchies 😆 I have read that it’s common with PV but I wondered about ET? I’ve been trially contact lenses and my eyes aren’t so happy with them. I’ve tried a variety, some monthly’s, some dailies. My left eye
Good morning from Brisbane, Australia 👋🏻 I’ve got ET JAK2 pos and have started to get the itchies 😆 I have read that it’s common with PV but I wondered about ET? I’ve been trially contact lenses and my eyes aren’t so happy with them. I’ve tried a variety, some monthly’s, some dailies. My left eye
Pachena
in
MPN Voice
4 months ago
Help - What This Allergy or Asthma Can Be?
Hi guys, I need your help as my doctors do not give me much information or to be precise been with two allergy doctors, both gave me different opinions so i don't know what to do. Long story short, i'm a runner and after flu a year ago I started having issues with chest tightness during some of my runs
Hi guys, I need your help as my doctors do not give me much information or to be precise been with two allergy doctors, both gave me different opinions so i don't know what to do. Long story short, i'm a runner and after flu a year ago I started having issues with chest tightness during some of my runs
Desoo
in
Asthma Community Forum
6 months ago
Ra and ear problems
I have ra and am taking rinvoq. only recently started having some ear problems fluid on ears and a full feeling causing me to have trouble sleeping. I haven't had any signs of cold or allergies either. the doctor said to use Zyrtec which did not help and I was wondering if anyone has had any ear issues
I have ra and am taking rinvoq. only recently started having some ear problems fluid on ears and a full feeling causing me to have trouble sleeping. I haven't had any signs of cold or allergies either. the doctor said to use Zyrtec which did not help and I was wondering if anyone has had any ear issues
gnstric66
in
NRAS
7 months ago
Anxiety and A-Fib
I had anxiety over getting a Cochlear Implant done. I was taking Atarax on top of Zyrtec which causes QT Elongation. So I was diagnosed with AFIB and sent to the ER. Prescribed Metoprolol and a 81 mg aspirin. I didn't take the Metoprolol because it was on a Recall list by the FDA for 3 months as it
I had anxiety over getting a Cochlear Implant done. I was taking Atarax on top of Zyrtec which causes QT Elongation. So I was diagnosed with AFIB and sent to the ER. Prescribed Metoprolol and a 81 mg aspirin. I didn't take the Metoprolol because it was on a Recall list by the FDA for 3 months as it
FiberedOut555
in
AF Association
1 year ago
Update 7.6
Happy to say that the news remains favorable on all fronts. I reviewed my PV status with the MPN Specialist at Johns Hopkins. I remain in a complete hematologic response at 150mcg Besremi. Tolerance remains the same, with mild lymphopenia, borderline neutropenia, and mild itching. I switched to
Happy to say that the news remains favorable on all fronts. I reviewed my PV status with the MPN Specialist at Johns Hopkins. I remain in a complete hematologic response at 150mcg Besremi. Tolerance remains the same, with mild lymphopenia, borderline neutropenia, and mild itching. I switched to
hunter5582
in
MPN Voice
1 year ago
ADT failure
We saw my Dad's MO on 5/23. Over the course of 4 weeks my dad's PSA moved from 1.46 to 2.14, He said we need to be on Zytiga for three months before we can deem it a failure, but just like Xtandi, it appears my dad had limited help with it. We have talked about the next steps, chemo and pluvicto. My
We saw my Dad's MO on 5/23. Over the course of 4 weeks my dad's PSA moved from 1.46 to 2.14, He said we need to be on Zytiga for three months before we can deem it a failure, but just like Xtandi, it appears my dad had limited help with it. We have talked about the next steps, chemo and pluvicto. My
lgutman
in
Advanced Prostate Cancer
3 hours ago
I want to give up. I have no energy to keep going.
Hi all, I've been suffering for the past many years. Since 2022 everything went downhill and I had to quit my job as I can't function. I'm 40 years old. I was tested for everything under the sun and everything is down to thyroid. I have Hashis. I have tried many med combos, everything fails on me. Recently
Hi all, I've been suffering for the past many years. Since 2022 everything went downhill and I had to quit my job as I can't function. I'm 40 years old. I was tested for everything under the sun and everything is down to thyroid. I have Hashis. I have tried many med combos, everything fails on me. Recently
Incoguto
in
Thyroid UK
6 hours ago
Side effect of Lupron
We have a quesiton about swelling foot and ankle after Lupron injection and wonder if anyone has had a similar experience. My husband was just diagnosed with PC back in April, and he is on ADT while waiting for his CK treatment this month. After three-weeks of Lupron injection, he now has a swollen
We have a quesiton about swelling foot and ankle after Lupron injection and wonder if anyone has had a similar experience. My husband was just diagnosed with PC back in April, and he is on ADT while waiting for his CK treatment this month. After three-weeks of Lupron injection, he now has a swollen
kiyo
in
Prostate Cancer Network
18 hours ago
Hypogonadism, heat flushing, and testosterone replacement
Hi all, It is almost a year since I had my external beam radiation for Gleason 7 (3+4) PCa (see my profile). So far so good: 4 PSA tests were reassuringly low. I am now almost 82 and I am hoping to deal with my strange heat-flushing problem, which I have had for several years. It predates my cancer
Hi all, It is almost a year since I had my external beam radiation for Gleason 7 (3+4) PCa (see my profile). So far so good: 4 PSA tests were reassuringly low. I am now almost 82 and I am hoping to deal with my strange heat-flushing problem, which I have had for several years. It predates my cancer
Smarks42
in
Prostate Cancer Network
20 hours ago
Ultrahypofractional RT and ADT for Int. Risk PC
I am a 60 year old recently diagnosed PC with a PSA of 11.3 and ultra sound biopsy grade cT1c Gleason 3+4 = 7 Right basal and 3+3 on Right medial only 2 of 12 cores contain cancer. MRI showed PI Rads 5 lesion in right basal peripheral zone and extension into right seminal vesicle. Chose to go with
I am a 60 year old recently diagnosed PC with a PSA of 11.3 and ultra sound biopsy grade cT1c Gleason 3+4 = 7 Right basal and 3+3 on Right medial only 2 of 12 cores contain cancer. MRI showed PI Rads 5 lesion in right basal peripheral zone and extension into right seminal vesicle. Chose to go with
Salmon64
in
Prostate Cancer Network
20 hours ago
Hot Flashes
Centrum is advertising a number of products that reduce hot flashes in post menopausal women. Are any of these effective for those of us on ADT ?
Centrum is advertising a number of products that reduce hot flashes in post menopausal women. Are any of these effective for those of us on ADT ?
alperk
in
Advanced Prostate Cancer
1 day ago
How is the second generation ADT like xtandi , zytiga etc decided ?
What determines which second line ADT will be given to whom ? I see there is zytiga , xtandi , nubeqa and others. Is it just left to the MO to decide ?
What determines which second line ADT will be given to whom ? I see there is zytiga , xtandi , nubeqa and others. Is it just left to the MO to decide ?
Tinkudi
in
Advanced Prostate Cancer
1 day ago
How do I gradually run faster, what’s best?
I need to go to go out & do Wk 8 Run 2 this morning & prevaricating (but will do it) …. I’m an exceptionally slow runner and run 1 on Wednesday felt rubbish, so was good to read about Toxic 10 & Tomato Ten in someone else’s post as I do have these! (And in swimming too!) I want to run gradually faster
I need to go to go out & do Wk 8 Run 2 this morning & prevaricating (but will do it) …. I’m an exceptionally slow runner and run 1 on Wednesday felt rubbish, so was good to read about Toxic 10 & Tomato Ten in someone else’s post as I do have these! (And in swimming too!) I want to run gradually faster
Snippit
Graduate
in
Couch to 5K
2 days ago
New Labs
Sorry it has been years since able to get on my technology. Finally feeling better. These are my latest results any suggestions. Currently taking Tirosint 75mcg. May 15,2024 TSH 3rd generation 1.710 (.4-4.5 uIU/ML) T3 Reverse. 16.5 (9.0-27.0mg/dl) T3 Free 2.40 (2.40-6.80 pg/ml) T3
Sorry it has been years since able to get on my technology. Finally feeling better. These are my latest results any suggestions. Currently taking Tirosint 75mcg. May 15,2024 TSH 3rd generation 1.710 (.4-4.5 uIU/ML) T3 Reverse. 16.5 (9.0-27.0mg/dl) T3 Free 2.40 (2.40-6.80 pg/ml) T3
Thyroid66
in
Thyroid UK
3 days ago
Scary PSA results
I was diagnosed in October 2023 with Gleason 4+5=9. Tissue came from TURP. PSA was 11.8. PSMA Pet was negative for METS. Started ADT on November 9. Did 28 sessions of IMRT from Feb 12, 2024, to Mar 21, 2024. Nadir was .8 on Mar 26 and then the last two have been 1.5 and 3.1. RO said 2.8 was the
I was diagnosed in October 2023 with Gleason 4+5=9. Tissue came from TURP. PSA was 11.8. PSMA Pet was negative for METS. Started ADT on November 9. Did 28 sessions of IMRT from Feb 12, 2024, to Mar 21, 2024. Nadir was .8 on Mar 26 and then the last two have been 1.5 and 3.1. RO said 2.8 was the
7OaksTom
in
Advanced Prostate Cancer
3 days ago
apalutamide vs. abiraterone
My husband has been recommended ADT + abiraterone + prednisone for two years. My friend who is an oncologist suggested apalutamide instead as it doesn't need to be supplements with prednisone and has less side effects. Wanted your opinion.
My husband has been recommended ADT + abiraterone + prednisone for two years. My friend who is an oncologist suggested apalutamide instead as it doesn't need to be supplements with prednisone and has less side effects. Wanted your opinion.
SherryKahn
in
Advanced Prostate Cancer
4 days ago
Test results
My latest blood tests have just come back. I’d be grateful for comments from the amazing admins please. At the moment I’m not feeling great, my last tests about 8 months ago showed my B12 to be low so I started taking a liquid B12 supplement sublingually. I’m not taking any iron supplements. I take vit
My latest blood tests have just come back. I’d be grateful for comments from the amazing admins please. At the moment I’m not feeling great, my last tests about 8 months ago showed my B12 to be low so I started taking a liquid B12 supplement sublingually. I’m not taking any iron supplements. I take vit
Fox123
in
Thyroid UK
4 days ago
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