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Sonitus soundbite
Hi all, Has anyone had any experience of using the Soundbite device to address hearing loss in one ear after acoustic
neuroma
surgery? Just looking at options as I'm struggling a bit, so it would be good to hear of others experience.
Hi all, Has anyone had any experience of using the Soundbite device to address hearing loss in one ear after acoustic
neuroma
surgery? Just looking at options as I'm struggling a bit, so it would be good to hear of others experience.
domforr
in
Acoustic Neuroma Support
20 days ago
Diagnosed today with an acoustic Neuroma.
I have just been told this morning that my MRI confirmed an acoustic
neuroma
. The ENT Doctor said he is now referring me to a specialist in Manchester. Can anyone tell me what to expect now ? Did anyone have any treatment for it ? Thank you.
I have just been told this morning that my MRI confirmed an acoustic
neuroma
. The ENT Doctor said he is now referring me to a specialist in Manchester. Can anyone tell me what to expect now ? Did anyone have any treatment for it ? Thank you.
Reddington__
in
Acoustic Neuroma Support
5 months ago
2 acoustic neuromas
Apparently the brain can compensation for a
neuroma
on one side but not if you have one on both sides. The deafness also becoming a real issue as hearing now almost gone on the right, still have some hearing in the left but not much. I won’t mention the tinnitus!!!! Many thanks
Apparently the brain can compensation for a
neuroma
on one side but not if you have one on both sides. The deafness also becoming a real issue as hearing now almost gone on the right, still have some hearing in the left but not much. I won’t mention the tinnitus!!!! Many thanks
Operalovers
in
Acoustic Neuroma Support
3 months ago
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musician - hearing loss after surgery
Hi, I am a 49 year old musician and I was diagnosed with an Acoustic
Neuroma
in December 2023 and had to have surgery a few weeks later due to the size of the tumour and how ill I was. Since then I have been in recovery trying to get back all my functions (balance, stamina etc).
Hi, I am a 49 year old musician and I was diagnosed with an Acoustic
Neuroma
in December 2023 and had to have surgery a few weeks later due to the size of the tumour and how ill I was. Since then I have been in recovery trying to get back all my functions (balance, stamina etc).
domforr
in
Acoustic Neuroma Support
3 months ago
How often do you have MRI scans?
I was diagnosed with a 5mm acoustic
neuroma
a year ago after having chronic migraine and several other neurological symptoms for a few years. A month ago, I had another MRI to check if the tumour has grown. It hasn't, it's the same size.
I was diagnosed with a 5mm acoustic
neuroma
a year ago after having chronic migraine and several other neurological symptoms for a few years. A month ago, I had another MRI to check if the tumour has grown. It hasn't, it's the same size.
Lemon00
in
Acoustic Neuroma Support
12 days ago
Not sure what to do next
I rang the GP and spoke to yet another one who revealed the GP's think I might have an acoustic
neuroma
. She got me an urgent brain CT scan (not MRI) with and without contrast to check for lesions, stroke etc on account of the blackouts. It wasn't specifically looking for an acoustic
neuroma
.
I rang the GP and spoke to yet another one who revealed the GP's think I might have an acoustic
neuroma
. She got me an urgent brain CT scan (not MRI) with and without contrast to check for lesions, stroke etc on account of the blackouts. It wasn't specifically looking for an acoustic
neuroma
.
Sootymouse
in
Acoustic Neuroma Support
6 months ago
Surgery or radiotheraphy?
Hi, I writing this post on behalf if my husband who is 41 and was diagnosed with an acoustic
neuroma
in January. He has been referred to The Queen Elizabeth under Richard Irving and we had a lengthy discussion last week about options as the tumour is at a size where it needs treatment.
Hi, I writing this post on behalf if my husband who is 41 and was diagnosed with an acoustic
neuroma
in January. He has been referred to The Queen Elizabeth under Richard Irving and we had a lengthy discussion last week about options as the tumour is at a size where it needs treatment.
Zhad
in
Acoustic Neuroma Support
1 month ago
Dull pain back of head and neck.
Doctor referred him on the 2 week urgent referral for suspected acoustic
neuroma
. Been to ENT this week, now waiting for MRI and hearing test. Does anyone else suffer from the fullness feeling and tiredness all the time?
Doctor referred him on the 2 week urgent referral for suspected acoustic
neuroma
. Been to ENT this week, now waiting for MRI and hearing test. Does anyone else suffer from the fullness feeling and tiredness all the time?
Donners2
in
Acoustic Neuroma Support
8 months ago
Dentistry.
I have PMR and have also been treated for Acoustic
Neuroma
by Gamma Knife surgery.The Acoustic
Neuroma
is no longer active but damage remains. I presently take 10mgm Prednisone daily in one dose. I need several dental extractions on the same side (upper jaw).
I have PMR and have also been treated for Acoustic
Neuroma
by Gamma Knife surgery.The Acoustic
Neuroma
is no longer active but damage remains. I presently take 10mgm Prednisone daily in one dose. I need several dental extractions on the same side (upper jaw).
Busyrobyn
in
PMRGCAuk
4 months ago
Hearing Aids?
Hi, My mum had brain surgery back in 1991 for a schwannoma/acoustic
neuroma
. Her hearing was affected but as she's got older her hearing in that ear has significantly deteriorated.
Hi, My mum had brain surgery back in 1991 for a schwannoma/acoustic
neuroma
. Her hearing was affected but as she's got older her hearing in that ear has significantly deteriorated.
Cocacolla
in
Acoustic Neuroma Support
11 months ago
Acoustic neuroma
I developed acoustic aroma about a year and a half ago. All of a sudden, my right ear felt clogged and I started to develop tinnitus. I am really upset because I don’t know what I’m in for. The worst part of this is the tinnitus. I wish that it would just go away and it would be cure for it. It’s loud
I developed acoustic aroma about a year and a half ago. All of a sudden, my right ear felt clogged and I started to develop tinnitus. I am really upset because I don’t know what I’m in for. The worst part of this is the tinnitus. I wish that it would just go away and it would be cure for it. It’s loud
Jrnyfn
in
Acoustic Neuroma Support
1 year ago
Anesthesia and PD
I’m planning on having Morton’s
neuroma
surgery in a few weeks, unless I chicken out! I’m concerned about any negative effects because of anesthesia . I’m going to check to see if doing some type of block instead of General, is a possibility.
I’m planning on having Morton’s
neuroma
surgery in a few weeks, unless I chicken out! I’m concerned about any negative effects because of anesthesia . I’m going to check to see if doing some type of block instead of General, is a possibility.
Ob6842
in
Cure Parkinson's
2 months ago
Acoustic Neuroma - MRI Report After 1.5y of Surgery
Could you please share your experience about acoustic
, anyone had this kind of MRI result after surgery ?
Could you please share your experience about acoustic
, anyone had this kind of MRI result after surgery ?
siva_s
in
Acoustic Neuroma Support
10 months ago
waiting
I was referred 2 weeks ago by A&E who picked up my
Neuroma
on a scan. The waiting is awful😞
I was referred 2 weeks ago by A&E who picked up my
Neuroma
on a scan. The waiting is awful😞
JoanneSP
in
Acoustic Neuroma Support
5 months ago
I have sleeping 14 hours per day. After one hour awake, pressure pains in head and fall asleep sitting up. What is wrong?
I had cyber knife radiation to reduce acoustic
neuroma
in head inside lining of nerve leading to hearing, eyesite and and voice.
I had cyber knife radiation to reduce acoustic
neuroma
in head inside lining of nerve leading to hearing, eyesite and and voice.
Rhm09181980
in
Acoustic Neuroma Support
6 months ago
acoustic neuroma
I was diagnosed 18 months ago and the size was 0.07 cm. Stayed that size but last mri it’s grown to 1.2 cm. Have another appointment at Mayo tomorrow
I was diagnosed 18 months ago and the size was 0.07 cm. Stayed that size but last mri it’s grown to 1.2 cm. Have another appointment at Mayo tomorrow
Poncegirl
in
Acoustic Neuroma Support
1 year ago
Susan
My husband has been diagnosed with an acoustic
neuroma
, he has to have surgery because it’s too big for radio therapy .I’m so worried about how he’ll be after the operation and whether he’ll return to full health?
My husband has been diagnosed with an acoustic
neuroma
, he has to have surgery because it’s too big for radio therapy .I’m so worried about how he’ll be after the operation and whether he’ll return to full health?
Healthcare23
in
Acoustic Neuroma Support
1 year ago
Fined for my Accoustic Neuroma
Hi, Following a recent MRI during which my AN was shown to have increased in size, I have also noticed a change in my symptoms. Although unilateral hearing loss and tinnitus have stayed the same (at least as far as I can notice), I do notice an increased unsteadiness when walking around for some time
Hi, Following a recent MRI during which my AN was shown to have increased in size, I have also noticed a change in my symptoms. Although unilateral hearing loss and tinnitus have stayed the same (at least as far as I can notice), I do notice an increased unsteadiness when walking around for some time
roland0302
in
Acoustic Neuroma Support
4 months ago
Cutie Face Number Two
MistyXx P.s, good news at last, after 17 months of waiting i've got a date for my foot op, morton's
neuroma
removal!!. 4/6 , not long at all. Its a months recovery on an improving scale.
MistyXx P.s, good news at last, after 17 months of waiting i've got a date for my foot op, morton's
neuroma
removal!!. 4/6 , not long at all. Its a months recovery on an improving scale.
misty14
in
LUPUS UK
16 days ago
confused
I have this loud noise in my head from my acoustic
neuroma
and sometimes, s as Jen people are talking , I can’t hear them, especially if there’s background noise and I get confused and agitated . I can’t say anything, because they are strangers and can’t see that I’m struggling.
I have this loud noise in my head from my acoustic
neuroma
and sometimes, s as Jen people are talking , I can’t hear them, especially if there’s background noise and I get confused and agitated . I can’t say anything, because they are strangers and can’t see that I’m struggling.
Zombi4real
in
The Brain Tumour Charity
8 months ago
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