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Ibrutinib
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Is Septrin (Co-trimoxazole) a lifelong medication
Septrin was part of the medication I started at the commencement of
Ibrutinib
. I take 1 tab 960 mg evey alternate days. Have been on it for about 6 months now.My question: is it a lifelong medication just like
Ibrutinib
? Thank you Oldscores 1
Septrin was part of the medication I started at the commencement of
Ibrutinib
. I take 1 tab 960 mg evey alternate days. Have been on it for about 6 months now.My question: is it a lifelong medication just like
Ibrutinib
? Thank you Oldscores 1
Oldscores1
in
CLL Support
23 days ago
Prostate Biopsy / Ibrutinib
I am on
Ibrutinib
for my CLL. Do I stop taking my
Ibrutinib
for a few days prior and after the biopsy? Thank you.
I am on
Ibrutinib
for my CLL. Do I stop taking my
Ibrutinib
for a few days prior and after the biopsy? Thank you.
Dyba
in
CLL Support
3 months ago
Foliculitis in legs
That used to be normal with LLC and treatment with
Ibrutinib
?
That used to be normal with LLC and treatment with
Ibrutinib
?
Denisguay
in
CLL Support
2 months ago
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transfer from Ibrutinib over to V/R
What’s the normal procedure in uk for transferring over from
Ibrutinib
to V/R,my
Ibrutinib
was stopped 4 weeks before new treatment started resulting in massive lymph node flare up and still growing 🥲
What’s the normal procedure in uk for transferring over from
Ibrutinib
to V/R,my
Ibrutinib
was stopped 4 weeks before new treatment started resulting in massive lymph node flare up and still growing 🥲
Stacky66
in
CLL Support
4 months ago
Time off Ibrutinib
I stop my
ibrutinib
before my covid vaccine with permission from my doctor. But no one can ever tell me how long after I get vaccine I should be off of
ibrutinib
for the vaccine to take hold. I've done this everytime and I get an excellent response (antibody test).
I stop my
ibrutinib
before my covid vaccine with permission from my doctor. But no one can ever tell me how long after I get vaccine I should be off of
ibrutinib
for the vaccine to take hold. I've done this everytime and I get an excellent response (antibody test).
ElMaga
in
CLL Support
2 months ago
Is this normal?
Is prescribed
Ibrutinib
at the moment. He goes for FBC every 28 days but during recent appointments he has been getting some surprise from the nurses that he has been taking
Ibrutinib
for so long.
Is prescribed
Ibrutinib
at the moment. He goes for FBC every 28 days but during recent appointments he has been getting some surprise from the nurses that he has been taking
Ibrutinib
for so long.
popys
in
CLL Support
2 months ago
Stopping Ibrutinib
I have been asked to join STATIC trial, or rahter stop taking
Ibrutinib
and see what happens. I am searching to see how others have coped when they stopped
Ibrutinib
. How soon the CLL can come back? I would welcome the stopage as my muscles ache, I am stiff and getting depression?
I have been asked to join STATIC trial, or rahter stop taking
Ibrutinib
and see what happens. I am searching to see how others have coped when they stopped
Ibrutinib
. How soon the CLL can come back? I would welcome the stopage as my muscles ache, I am stiff and getting depression?
jkl700
in
CLL Support
4 months ago
Monoclonal components
could be that 2 cps of
Ibrutinib
are not enough? Thanks for your suggestions...
could be that 2 cps of
Ibrutinib
are not enough? Thanks for your suggestions...
grazia50
in
CLL Support
3 months ago
Is it Safe to take regular oranges and coffee while on Ibrutinib?
Pls I will like to know if it is safe to take oranges ( not Seville) while on
Ibrutinib
? How safe is coffee intake also?Regards Oldscores 1
Pls I will like to know if it is safe to take oranges ( not Seville) while on
Ibrutinib
? How safe is coffee intake also?Regards Oldscores 1
Oldscores1
in
CLL Support
2 months ago
Follow up to static dilemma
As this is
ibrutinib
for me the best way ahead is the static trial. He explained that as I have been in clinical remission for a number of years I will be randomised to one of the two arms, continuing
ibrutinib
or pausing
ibrutinib
.
As this is
ibrutinib
for me the best way ahead is the static trial. He explained that as I have been in clinical remission for a number of years I will be randomised to one of the two arms, continuing
ibrutinib
or pausing
ibrutinib
.
annmcgowan
in
CLL Support
4 months ago
saw pimento
can you take saw pimento whilst on chemo
Ibrutinib
and Venetoclax? I use it fire enlarged prostate ?
can you take saw pimento whilst on chemo
Ibrutinib
and Venetoclax? I use it fire enlarged prostate ?
clifflee
in
CLL Support
3 months ago
stopping Ibrutnib before surgery?
stopping
Ibrutinib
before surgery?
stopping
Ibrutinib
before surgery?
Tapps
in
CLL Support
5 months ago
Chronic Lymphocytic Leukemia Therapy Guided by Measurable Residual Disease
[/i] [i]In this cohort of the FLAIR trial in which patients with previously untreated CLL were randomly assigned to receive
ibrutinib
–venetoclax,
ibrutinib
monotherapy, or FCR, we found that MRD-guided
ibrutinib
–venetoclax was superior to FCR with respect to progression-free survival (97.2% vs. 76.8%
[/i] [i]In this cohort of the FLAIR trial in which patients with previously untreated CLL were randomly assigned to receive
ibrutinib
–venetoclax,
ibrutinib
monotherapy, or FCR, we found that MRD-guided
ibrutinib
–venetoclax was superior to FCR with respect to progression-free survival (97.2% vs. 76.8%
Jm954
Administrator
in
CLL Support
5 months ago
Venetoclax & Ibrutinib
what are your experiences with Venetoclax &
Ibrutinib
treatment...side effects...length of treatments
what are your experiences with Venetoclax &
Ibrutinib
treatment...side effects...length of treatments
PajamaGame
in
CLL Support
4 months ago
high blood pressure
I am on
Ibrutinib
and was wondering if anyone else has this problem? also palpitations are frequent. Kind regards to everyone. Viv
I am on
Ibrutinib
and was wondering if anyone else has this problem? also palpitations are frequent. Kind regards to everyone. Viv
Tomich1949
in
CLL Support
2 months ago
Doing well on 140mg ibrutinib capsule for past 9 mos
Basically I'm doing about the same on the 140 mg
Ibrutinib
as I was on the 280mg
Ibrutinib
. I continue to have bouts of fatigue periodically and some moderate skin bruising continues. I also continue with my eliquis Rx for AFib and Rosuvastatinv rx.
Basically I'm doing about the same on the 140 mg
Ibrutinib
as I was on the 280mg
Ibrutinib
. I continue to have bouts of fatigue periodically and some moderate skin bruising continues. I also continue with my eliquis Rx for AFib and Rosuvastatinv rx.
Bobsterguy
in
CLL Support
6 months ago
CLL Treatment
I have been on
ibrutinib
since. Now 76 years old. I cross-country ski, golf, paddle board and generally feel pretty darn well. My doctor tells me "you're awfully healthy except for that blood thing ". So hang in there. Fly fisher 70
I have been on
ibrutinib
since. Now 76 years old. I cross-country ski, golf, paddle board and generally feel pretty darn well. My doctor tells me "you're awfully healthy except for that blood thing ". So hang in there. Fly fisher 70
Flyfisher70
in
CLL Support
1 month ago
Burning tongue and metallic taste .
Had FCR,
Ibrutinib
, and Venetoclax. I am on Venetoclax now for 18 months after 6 times of V+O. A year ago I lost my taste sense and everything tastes metallic,but the worse is a burning tongue sensation. Does it have any connetion to CLL or Venetoclax ?Gidi
Had FCR,
Ibrutinib
, and Venetoclax. I am on Venetoclax now for 18 months after 6 times of V+O. A year ago I lost my taste sense and everything tastes metallic,but the worse is a burning tongue sensation. Does it have any connetion to CLL or Venetoclax ?Gidi
GIDI
in
CLL Support
6 days ago
Considering getting a few dental implants
I have been on
Ibrutinib
for about 5+ years. Most numbers are in the normal range with the exception of my ALC which hovers around 5 -7.
I have been on
Ibrutinib
for about 5+ years. Most numbers are in the normal range with the exception of my ALC which hovers around 5 -7.
Bell53
in
CLL Support
2 months ago
Hearing Problem
Hi Everyone Interested to know has anyone had trouble with their hearing while taking
Ibrutinib
and Venetoclax. I'm around 6 months into taking the combined tablets, around 1 month ago I noticed a difference with my hearing, never had a problem with my hearing before I was diagnosed with CLL.
Hi Everyone Interested to know has anyone had trouble with their hearing while taking
Ibrutinib
and Venetoclax. I'm around 6 months into taking the combined tablets, around 1 month ago I noticed a difference with my hearing, never had a problem with my hearing before I was diagnosed with CLL.
wolfe1963
in
CLL Support
2 months ago
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