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Experiences with
Hydroxycarbamide
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Hydroxycarbamide
Hello I’m taking
Hydroxycarbamide
500mg daily for the last 3 years for ET jak2 positive. Yesterday 4 of my fingernails came away from the skin bed…… so sore and painful. I have asked Doc Google who says this can be caused by long term chemotherapy medication.
Hello I’m taking
Hydroxycarbamide
500mg daily for the last 3 years for ET jak2 positive. Yesterday 4 of my fingernails came away from the skin bed…… so sore and painful. I have asked Doc Google who says this can be caused by long term chemotherapy medication.
YBSx
in
MPN Voice
23 days ago
Hydroxycarbamide
Has anyone experienced similar feeling and could the
Hydroxycarbamide
be a possible cause after 6 years? Kind regards
Has anyone experienced similar feeling and could the
Hydroxycarbamide
be a possible cause after 6 years? Kind regards
Edinburgh1953
in
MPN Voice
1 month ago
Should I change my medication
Has anyone out there changed from
hydroxycarbamide
to Anagrelide with success.
Has anyone out there changed from
hydroxycarbamide
to Anagrelide with success.
Lilbert
in
MPN Voice
6 hours ago
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medication choices
After complaining about feeling constant headaches, fatigue and generally feeling very unwell, my
hydroxycarbamide
was reduced to one every other day The day after not taking
hydroxycarbamide
my symptoms reduce a little bit, but then the day after taking
hydroxycarbamide
my symptoms come back with
After complaining about feeling constant headaches, fatigue and generally feeling very unwell, my
hydroxycarbamide
was reduced to one every other day The day after not taking
hydroxycarbamide
my symptoms reduce a little bit, but then the day after taking
hydroxycarbamide
my symptoms come back with
Greengolfer
in
MPN Voice
3 months ago
Treatment Change, question
I'm in the process in changing my medication from
hydroxycarbamide
to Pegasys. I'm currently on both whilst still taking the
hydroxycarbamide
I am introducing the interferon at 45mg every 2 weeks, for 8 weeks, I'm into my 7th week, so far so good.
I'm in the process in changing my medication from
hydroxycarbamide
to Pegasys. I'm currently on both whilst still taking the
hydroxycarbamide
I am introducing the interferon at 45mg every 2 weeks, for 8 weeks, I'm into my 7th week, so far so good.
Swim360
in
MPN Voice
1 month ago
Hydroxycarbamide Dose
Thank you to every one that replied with help and advice regarding my question about the dose increase , it’s always so very helpful to ask questions on here and get the answers from you all with your own experiences. I am very grateful and it’s much appreciated . I wish you all the very best on your
Thank you to every one that replied with help and advice regarding my question about the dose increase , it’s always so very helpful to ask questions on here and get the answers from you all with your own experiences. I am very grateful and it’s much appreciated . I wish you all the very best on your
Yoganana1
in
MPN Voice
1 month ago
Hydroxycarbamide Dose
I am just wondering if anyone else has experienced Hydroxy not working as well after a time? I have been only taking it for 2 years now and all seems to have been going well until a couple of months ago when my platelets started to rise again. I have had another visit to consultant today and they are
I am just wondering if anyone else has experienced Hydroxy not working as well after a time? I have been only taking it for 2 years now and all seems to have been going well until a couple of months ago when my platelets started to rise again. I have had another visit to consultant today and they are
Yoganana1
in
MPN Voice
1 month ago
ischaemic heart disease with E/T
hi all I’m 68 male had splenectomy in 2014 started
hydroxycarbamide
in 2015 high risk E/T and PV I’m on lots medication and 1500 mg daily
Hydroxycarbamide
I recently had a heart angiogram which shown high calcification in my main LAD heart artery moderate to severe They put me on Apixiban and atorvastatin
hi all I’m 68 male had splenectomy in 2014 started
hydroxycarbamide
in 2015 high risk E/T and PV I’m on lots medication and 1500 mg daily
Hydroxycarbamide
I recently had a heart angiogram which shown high calcification in my main LAD heart artery moderate to severe They put me on Apixiban and atorvastatin
Phil1955
in
MPN Voice
9 days ago
Hydroxycarbamide
hello everyone I have ET JAK2 positive and take
Hydroxycarbamide
. I take this in the evening. My haematologist nurse has informed me this should be taken in the morning. What time of day do you take your. I understood that the evening is better so any affects are while you sleep.
hello everyone I have ET JAK2 positive and take
Hydroxycarbamide
. I take this in the evening. My haematologist nurse has informed me this should be taken in the morning. What time of day do you take your. I understood that the evening is better so any affects are while you sleep.
YBSx
in
MPN Voice
4 months ago
malaria
Unfortunately I cannot help although I have taken anti malaria pills in the past it was before I was on
hydroxycarbamide
Unfortunately I cannot help although I have taken anti malaria pills in the past it was before I was on
hydroxycarbamide
grandpa101
in
MPN Voice
1 month ago
Sore mouth
I am currently on 1000 mg of
hydroxycarbamide
daily. I have been experiencing a very sore mouth and tongue which is making eating and drinking uncomfortable.
I am currently on 1000 mg of
hydroxycarbamide
daily. I have been experiencing a very sore mouth and tongue which is making eating and drinking uncomfortable.
Lilbert
in
MPN Voice
3 months ago
Malaria tablets
Am on
hydroxycarbamide
and daily aspirin with a diagnosis of ET. Has anyone taken malaria tablets with such a condition? TIA.
Am on
hydroxycarbamide
and daily aspirin with a diagnosis of ET. Has anyone taken malaria tablets with such a condition? TIA.
SazzaC
in
MPN Voice
1 month ago
gastroscopy
Im anxious to know uf any member of the forum has had a Gastroscopy while taking
Hydroxycarbamide
and Xralto ( blood thinner) . Thank you
Im anxious to know uf any member of the forum has had a Gastroscopy while taking
Hydroxycarbamide
and Xralto ( blood thinner) . Thank you
Kilmichael
in
MPN Voice
4 months ago
Improvement
I immediately had my
Hydroxycarbamide
increased and my aspirin changed to Clopidogrel and now 4 weeks later my platelet count is 406. What happens now. Do I just continue taking the
Hydroxycarbamide
for the rest of my Life?
I immediately had my
Hydroxycarbamide
increased and my aspirin changed to Clopidogrel and now 4 weeks later my platelet count is 406. What happens now. Do I just continue taking the
Hydroxycarbamide
for the rest of my Life?
ArchieCatPurr
in
MPN Voice
4 months ago
Dizziness Nausea
Have PV and been on
Hydroxycarbamide
since 2021 and tolerated well. Last few month have dizziness and Nausea on and off and not good. prescribed Domperidone. Consultant says nothing to do with
Hydroxycarbamide
and see GP. GP says all OK. Please any advice
Have PV and been on
Hydroxycarbamide
since 2021 and tolerated well. Last few month have dizziness and Nausea on and off and not good. prescribed Domperidone. Consultant says nothing to do with
Hydroxycarbamide
and see GP. GP says all OK. Please any advice
Paraic2021
in
MPN Voice
6 months ago
Frequent styes
Could this be a side effect of ET or
Hydroxycarbamide
?
Could this be a side effect of ET or
Hydroxycarbamide
?
Pippapot
in
MPN Voice
29 days ago
I need advice about taking Hydroxycarbamide
I’m worried about starting my new meds and wondered how anyone taking
Hydroxycarbamide
has managed with side effects.
I’m worried about starting my new meds and wondered how anyone taking
Hydroxycarbamide
has managed with side effects.
Zoebowie
in
MPN Voice
3 months ago
Post ET MF - Advice Please
He then started taking
Hydroxycarbamide
, but he didn't tolerate it well so was switched to Anegrelide, which suited him well for many years. However, several years ago we were told his condition had progressed to MF, and his consultant put him back on
Hydroxycarbamide
.
He then started taking
Hydroxycarbamide
, but he didn't tolerate it well so was switched to Anegrelide, which suited him well for many years. However, several years ago we were told his condition had progressed to MF, and his consultant put him back on
Hydroxycarbamide
.
moongazer100
in
MPN Voice
3 months ago
Medical exemption certificate
I receive my
hydroxycarbamide
free from the hospital pharmacy , but have to pay for a prescription for my blood pressure tablets and asthma inhalers prescribed by my GP. I know certain medical conditions qualify you for all free prescriptions. What are other folks experiences in this area ?
I receive my
hydroxycarbamide
free from the hospital pharmacy , but have to pay for a prescription for my blood pressure tablets and asthma inhalers prescribed by my GP. I know certain medical conditions qualify you for all free prescriptions. What are other folks experiences in this area ?
Catbells66
in
MPN Voice
1 month ago
Viramin B12 deficiency
I am Jak 2 ET and taking 1000mg
hydroxycarbamide
daily and 75mg aspirin. I saw my consultant today and he said my vitamin B12 levels were extremely low so I have to have B12 injections every other day for two weeks then one a week for four weeks.
I am Jak 2 ET and taking 1000mg
hydroxycarbamide
daily and 75mg aspirin. I saw my consultant today and he said my vitamin B12 levels were extremely low so I have to have B12 injections every other day for two weeks then one a week for four weeks.
Lilbert
in
MPN Voice
24 days ago
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