Pernicious Anaemia Society | HealthUnlocked

Has anybody else noticed that taking a shower triggers their neuropathy ? I have tried all different temperatures but still I suffer the burning and stinging...

Good day everyone. Was hoping to get some help from the great folks on here I was given AIG diagnosis in March, I started EOD injections 6 weeks ago. I...

Hi there, Does anyone have any POSITIVE stories of healing after reversing out please? I am in the absolute thick of it, and need something to hold me up...

Hiya all,Does anyone have any experience of sciatica linked with inadequate amounts of b12 ? I usually have injections monthly ( self inject bi- monthly and...

I have low B12 - 188 Iron Serum- 11 ( just under normal) Folate is 3.6 Iron serum 110 Vitamin D - 65 Went to doctor due to pins and needles in feet...

Hi all, I'm noticing a return of the nerve pings and tingles that first took me to the gp 5 months ago, especially the weird quivering lips... all this...

.Hi, I have been reading the results of research from a link on another website stating that supplementation of 30mg folic acid daily can reverse precancerous...

I just wanted to share my joy that I've won my battle with my local surgery to get my EOD B12 injections on NHS prescription! After complaining in a persistent...

Good day friends. Came across this study and thought I would share and open conversation. Perhaps this can help us?...

So here's the thing there must be GPs or medical professionals who are B12 deficient so it begs the question. How do they feel about how they are treated?...

Hi, for nearly 10 years I have been returning blood tests with low b12 levels, recently these have been 140 / 155 / 170 and 2 weeks ago 165. I continued to...

Hi I wonder if anyone could kindly explain about the reticulate test please? I’m on a loading dose of b12 & had this test after 2 injections. Ive had a...

I am 32 years old and had B12 deficiency. B12 was <83 pg/ml (normal 180-914) as the lab could not test below this value and Vitamin D was 16 ng/ml (normal...

hello all, I’m new here - both to B12D (?PA). 36yo female Do you find that doctors understand the reversing out symptoms? My GP is trying her hardest to...

I'm normally on the thyroid forum but have posted on here a few times and I would value your expertise. Sorry for the magnum opus post 😁 I've been on B12...

Hello lovely people. I started SI three weeks ago and each time I'm left with a red, itchy patch of above the area I've injected into (not the actual injection...

I finished my initial B12 loading almost exactly one month ago and initially felt enormously better. However, during the last week I have started to feel like...

Hi all! Had my endoscopy last Friday.. my follow up (awaiting biopsies) I have mild erosive Gastritis which I understand can prevent B12 from absorbing? My...

In a recent pathology test, my gastroenterologist was concerned with my low haemoglobin count and a high reticulocyte count. She mentioned that although I’m...

Hi, I have just been informed by my GP surgery that Cyanocobalamin injections, which I have 4 weekly, have been discontinued in England. I am allergic to...

I wonder if others on this forum have a similar problem and can help. My MIL is 91 and has some symptoms of B12D, Which could be put down to 'old age' but...

Hiya all, Thanks so much for all your help n advice from my previous post. I moved the date to start si to May 1st n even though it is only day 8 I have...

Hi I’m going to see Dr Klein in Cambridge as recommended by some of you guys, he has sent links to order theses products from Medisave Sharpsguard yellow...

Has anyone sought an explanation from their gp as to why if you have caused b12 deficiency by the deliberate use of nitrous oxide that the NHS sanctions the...

Good morning allI have run out of my methylfolate supplements I have been on B12 injections for a few years now and been taking supplements too. Just wanted to...

Hiya everyone, I'm in dire need of some help and encouragement 🤗 to begin self injecting. My Doctor turned around a week ago and told me my b12 was now...

I have accidentally purchased ampoules of cyanobalamin instead of hydroxybalamin.Am I able to use this instead as at the moment can’t find a site with...

Is there any link between PA, Hypothyroidism and type 2 diabetes?

Hi Guys I was doing my journal tonight and I thought I would look at last year same date: “20/4. V tired and sleepy despite good sleep. Aches extending...

I found this of interest. When I were diagnosed both my ESR and CRP were both above range when tested and still are !........