Ataxia UK | HealthUnlocked

Hi, I really miss the old me before I had ataxia. Ataxia took so much away from me and no one understands how hard it is not being able to do so many things...

I wonder if any one else has the same experience as me. We all know how important exercise is for neurological conditions so I followed the conditions of a...

You have to be hard to have ataxia so I think we should all get together to beat Russia we will become the SAS ie the Special Ataxia Service Russia will not...

I have a COMPEX SP8.0 (it is not cheap, and it is the best EMS on the market) and it can be adjusted based on its measurement of the muscles. I am not taking...

Hello, I was diagnosed 7 years ago with SCA unknown cause, following blood tests. Does anyone else suffer with vestibular dysfunction? I’m seeing a vestibular...

Hello I have SCA6 and it has been effecting my life for about 5 years, I am 67 years old, Just recently my hands have started to shake. If I just hold...

I have SCA3 and have looked into best devices to assist getting around safely. I can recommend the E-Traveller Electric Rollator. It is available from...

Hi everyone, My mother has just been diagnosed with Spinocerebellar Ataxia 48. We have been told it’s very rare but this could be due to only recently finding...

Hi folk, I have not written anything on here for a while, but I have two questions. The first one is, can people teach themselves to walk again to cerebellar...

What is a Molli Suit A comfortable jacket and trousers with built-in electro-stimulation for adults and children living with motor function and other...

Tried using an EMS machine for 4/5 days not sure if it helped peripheral neuropathy but it really made my burning hot feet worse at night I was up every...

Hi everyone I have gluten ataxia and am curious if peripheral neuropathy is limited to just autoimmune ataxias or do other types like hereditary and acquired...

Wounded on patrol in the Middle East and a Motar Shell hit my section and I received gunshot wounds to head, eyes, brain with Shrapnel entering my Cerebellum...

Is it possible to resort to pharmacological coma when a person suffering from ataxia has to remain tied to the bed and is fed artificially?

Hi all, sorry I haven't posted anything for ages but sometimes life is like that. I have finally got some sort of diagnosis. I had more genetic testing a...

My G.P has prescribed me Tizanidine for my spasms at their worst they kept me awake throughout the night, now great no spasms in the night. She has also...

I confess I got this idea from an earlier post. Copied the concept as a compliment to the original (unknown) author while using words to describe my...

Thank you so much to all the people who took the trouble to answer my query about how much exercise to do. There was so much good advice and sharing of...

My best friend 👍🏻

I lost this site gain. Why?

Bill Treacher, played the part of Arthur Fowler, for many years in the TV series Eastenders. https://www.ataxia.org.uk/in-memory-bill-treacher/?fbclid=

If you or someone you know is over 18 and has a confirmed diagnosis of a hereditary form of ataxia, you could take part in a new study on strength and balance...

Researchers from King’s College London, software developers, and a group of people living with long-term conditions have co-designed a new intervention to help...