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Switch from Besremi to Ruxolitinib
Dear all After 18 months on Besremi my oncologist and I made the decision to move on and so am starting on Rux. In brief, I titrated up from 100 ug (Sep 2022) to 500 ug Bes and was at that dose for 9 months. I was CHR for the last 5 months of this period. My platelet count however crashed in Oct
Dear all After 18 months on Besremi my oncologist and I made the decision to move on and so am starting on Rux. In brief, I titrated up from 100 ug (Sep 2022) to 500 ug Bes and was at that dose for 9 months. I was CHR for the last 5 months of this period. My platelet count however crashed in Oct
gjh8733
in
MPN Voice
3 months ago
Itching and Hives
hello!! I was wondering if anyone has the same problems as me and can offer some advice! Since about age 9 (I am 26 now) I have been getting hives throughout my whole body every single day. My doctors can’t figure out what’s going on and no medication helps! I am on Plaquenil, Gabapentin, Zyrtec,
hello!! I was wondering if anyone has the same problems as me and can offer some advice! Since about age 9 (I am 26 now) I have been getting hives throughout my whole body every single day. My doctors can’t figure out what’s going on and no medication helps! I am on Plaquenil, Gabapentin, Zyrtec,
Shubertrachel
in
Fibromyalgia Action UK
4 months ago
New to MPN Voice
Hi, I'm in my upper 40s, diagnoses with PV several years ago. My platelets were just shy of 1.1M at the peak before starting Besremi in May 2023. At that time I was getting a phlebotomy about every 2.5 months to keep HCT below 45. Like others have said on this board, it seems the evidence is strong
Hi, I'm in my upper 40s, diagnoses with PV several years ago. My platelets were just shy of 1.1M at the peak before starting Besremi in May 2023. At that time I was getting a phlebotomy about every 2.5 months to keep HCT below 45. Like others have said on this board, it seems the evidence is strong
Luthorville
in
MPN Voice
4 months ago
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Itchy skin, scratchy eyes, heat and humidity…. 🤔
Good morning from Brisbane, Australia 👋🏻 I’ve got ET JAK2 pos and have started to get the itchies 😆 I have read that it’s common with PV but I wondered about ET? I’ve been trially contact lenses and my eyes aren’t so happy with them. I’ve tried a variety, some monthly’s, some dailies. My left eye
Good morning from Brisbane, Australia 👋🏻 I’ve got ET JAK2 pos and have started to get the itchies 😆 I have read that it’s common with PV but I wondered about ET? I’ve been trially contact lenses and my eyes aren’t so happy with them. I’ve tried a variety, some monthly’s, some dailies. My left eye
Pachena
in
MPN Voice
4 months ago
Help - What This Allergy or Asthma Can Be?
Hi guys, I need your help as my doctors do not give me much information or to be precise been with two allergy doctors, both gave me different opinions so i don't know what to do. Long story short, i'm a runner and after flu a year ago I started having issues with chest tightness during some of my runs
Hi guys, I need your help as my doctors do not give me much information or to be precise been with two allergy doctors, both gave me different opinions so i don't know what to do. Long story short, i'm a runner and after flu a year ago I started having issues with chest tightness during some of my runs
Desoo
in
Asthma Community Forum
6 months ago
Ra and ear problems
I have ra and am taking rinvoq. only recently started having some ear problems fluid on ears and a full feeling causing me to have trouble sleeping. I haven't had any signs of cold or allergies either. the doctor said to use Zyrtec which did not help and I was wondering if anyone has had any ear issues
I have ra and am taking rinvoq. only recently started having some ear problems fluid on ears and a full feeling causing me to have trouble sleeping. I haven't had any signs of cold or allergies either. the doctor said to use Zyrtec which did not help and I was wondering if anyone has had any ear issues
gnstric66
in
NRAS
7 months ago
Anxiety and A-Fib
I had anxiety over getting a Cochlear Implant done. I was taking Atarax on top of Zyrtec which causes QT Elongation. So I was diagnosed with AFIB and sent to the ER. Prescribed Metoprolol and a 81 mg aspirin. I didn't take the Metoprolol because it was on a Recall list by the FDA for 3 months as it
I had anxiety over getting a Cochlear Implant done. I was taking Atarax on top of Zyrtec which causes QT Elongation. So I was diagnosed with AFIB and sent to the ER. Prescribed Metoprolol and a 81 mg aspirin. I didn't take the Metoprolol because it was on a Recall list by the FDA for 3 months as it
FiberedOut555
in
AF Association
1 year ago
Update 7.6
Happy to say that the news remains favorable on all fronts. I reviewed my PV status with the MPN Specialist at Johns Hopkins. I remain in a complete hematologic response at 150mcg Besremi. Tolerance remains the same, with mild lymphopenia, borderline neutropenia, and mild itching. I switched to
Happy to say that the news remains favorable on all fronts. I reviewed my PV status with the MPN Specialist at Johns Hopkins. I remain in a complete hematologic response at 150mcg Besremi. Tolerance remains the same, with mild lymphopenia, borderline neutropenia, and mild itching. I switched to
hunter5582
in
MPN Voice
1 year ago
5 Year old with asthma
Hello all. My son is 5 years old (6 in February) and was diagnosed with asthma 3 years ago. He was a very normal healthy baby boy. When he was age 2 he started getting sick literally every single day after he ate any type of food. For a year they gave him steroids and he gained a lot of weight. At age
Hello all. My son is 5 years old (6 in February) and was diagnosed with asthma 3 years ago. He was a very normal healthy baby boy. When he was age 2 he started getting sick literally every single day after he ate any type of food. For a year they gave him steroids and he gained a lot of weight. At age
Timt17
in
Asthma Community Forum
1 year ago
Unbearable itching! Any ideas to calm it down?
Hello all, I started with ET but now have PV and have been on Peg for about 6 weeks with phlebotomies occasionally. My Hematocrit has gone down but my platelets are going up so the MPN Dr wants me to take Hydroxyurea at 500 2-3 times a week with low dose of Peg at 60. He really wants me back on hydrea
Hello all, I started with ET but now have PV and have been on Peg for about 6 weeks with phlebotomies occasionally. My Hematocrit has gone down but my platelets are going up so the MPN Dr wants me to take Hydroxyurea at 500 2-3 times a week with low dose of Peg at 60. He really wants me back on hydrea
Airslie
in
MPN Voice
2 years ago
Seasonal Allergies
Hi! On V and O treatment plan and can feel it's seasonal allergies - backdrip and swollen glands but all clear no covid and no white gunk or anything. So basic question..... what do you guys do for allergies? Claritin is a bust, wondering if Zyrtec is ok? Yes I know I can call my provider but just
Hi! On V and O treatment plan and can feel it's seasonal allergies - backdrip and swollen glands but all clear no covid and no white gunk or anything. So basic question..... what do you guys do for allergies? Claritin is a bust, wondering if Zyrtec is ok? Yes I know I can call my provider but just
Gardengirl44
in
CLL Support
2 years ago
Big pharma never rest. A sad tale of corporate greed run amok.
Johnson & Johnson and a New War on Consumer Protection The company has spent billions on cases about one of its most popular products. As its executives try a brazen new legal strategy to stop the litigation, corporate America takes note. "
But what few of those consumers grasped until a series of
Johnson & Johnson and a New War on Consumer Protection The company has spent billions on cases about one of its most popular products. As its executives try a brazen new legal strategy to stop the litigation, corporate America takes note. "
But what few of those consumers grasped until a series of
MBAnderson
in
Cure Parkinson's
2 years ago
Immunologist/Allergist Appointment
I had an appointment with the immunologist/allergist. As I had written earlier, I was extremely nervous and doubtful about the whole thing. He turned out to be very nice, a great listener, didn't look at me like I had 2 heads, knowledgeable. I started with only 2 main concerns - the almost daily diarrhea
I had an appointment with the immunologist/allergist. As I had written earlier, I was extremely nervous and doubtful about the whole thing. He turned out to be very nice, a great listener, didn't look at me like I had 2 heads, knowledgeable. I started with only 2 main concerns - the almost daily diarrhea
Pumpkin2009
in
LUPUS UK
2 years ago
Besremi and Zyrtec
Hi.........I'm going through the process of getting approved for Besremi. My not specialist hem is worried about me taking Zyrtec, She told me that I need to stop taking once I start Besremi. I take it for bad allergies and my PV JAk2+. Anyone been told this or are there folks still taking Zyrtec?
Hi.........I'm going through the process of getting approved for Besremi. My not specialist hem is worried about me taking Zyrtec, She told me that I need to stop taking once I start Besremi. I take it for bad allergies and my PV JAk2+. Anyone been told this or are there folks still taking Zyrtec?
nyelynndesigns
in
MPN Voice
2 years ago
Compounding & HyproMellose
I have asked a compounding pharmacy to make something equivalent to ibuprofen and Zyrtec - without Propylene Glycol. When I went to pick it up I discovered they had used HyproMellose as the filler. The pharmacist is telling me they contacted the manufacturer, that it is plant based and "should be" okay
I have asked a compounding pharmacy to make something equivalent to ibuprofen and Zyrtec - without Propylene Glycol. When I went to pick it up I discovered they had used HyproMellose as the filler. The pharmacist is telling me they contacted the manufacturer, that it is plant based and "should be" okay
findtheanswernow
in
Allergic to Glycols
2 years ago
Vaccine induced myocarditis
Hi! I’m new here and wanted to share my daughter’s story, get support, and see what’s helping everyone. My 20 year old daughter started having chest pain 24 hours after her second Moderna. She had it on September 10th. She woke the morning after with fever, body aches, and headache. She told me that
Hi! I’m new here and wanted to share my daughter’s story, get support, and see what’s helping everyone. My 20 year old daughter started having chest pain 24 hours after her second Moderna. She had it on September 10th. She woke the morning after with fever, body aches, and headache. She told me that
Ellis0796
in
British Heart Foundation
3 years ago
Adventures with Cabazitaxel
Hey gang, Was supposed to begin the first of six Cabazitaxel sessions last Friday(the six Taxotere rechallenge failed) , but the pharmacy messed up the mixture and it got moved to today! Looked up the cost, and Kaiser wasted $7800 with that error. Hoping the switch to Cabazitaxel does the job.
Hey gang, Was supposed to begin the first of six Cabazitaxel sessions last Friday(the six Taxotere rechallenge failed) , but the pharmacy messed up the mixture and it got moved to today! Looked up the cost, and Kaiser wasted $7800 with that error. Hoping the switch to Cabazitaxel does the job.
dockam
in
Advanced Prostate Cancer
3 years ago
Uticaria(hives)/hypothyroid/Hashimoto’s
I have seen several posts with people being thyroid patients and having hivesThe onset of my hives started 9/22/2021They have been horrendous to say the least Ended up in the emergency room on 10/3/21 where I couldn’t breathe and wheezing. They used an EPI, pepcid and a couple other things and so far
I have seen several posts with people being thyroid patients and having hivesThe onset of my hives started 9/22/2021They have been horrendous to say the least Ended up in the emergency room on 10/3/21 where I couldn’t breathe and wheezing. They used an EPI, pepcid and a couple other things and so far
marchm2016
in
Thyroid UK
3 years ago
Covid question again
Hello everyone Tomorrow might be the dreaded shot(vaccine) I am terrified once again. I will get Pfizer. There was once a post of people that had the vaccine and if they had any side effects. I cant find it, even after searching for it. Can i ask again. I am so scared. But I also know soon
Hello everyone Tomorrow might be the dreaded shot(vaccine) I am terrified once again. I will get Pfizer. There was once a post of people that had the vaccine and if they had any side effects. I cant find it, even after searching for it. Can i ask again. I am so scared. But I also know soon
jkdavid99
in
My MSAA Community
3 years ago
PV pinching - seriously can’t take it!
Hi everyone... just need to put this out to people who would understand.... i was diagnosed with PV 3 years ago and had some kind of uneventful itching for years before that but I’m now at a point where I am just so tired of the intense pinching/itching which started a year ago....... I can’t
Hi everyone... just need to put this out to people who would understand.... i was diagnosed with PV 3 years ago and had some kind of uneventful itching for years before that but I’m now at a point where I am just so tired of the intense pinching/itching which started a year ago....... I can’t
Hidden
in
MPN Voice
3 years ago
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