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Experiences with
Jakafi
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Anxiety
What do others on
Jakafi
take with severe anxiety?
What do others on
Jakafi
take with severe anxiety?
DaisyJayne1
in
MPN Voice
1 month ago
Muddled
Hi All - the brain is muddled and I can’t find what I’m looking for but remember seeing a discussion about taking Vit D3 while on
Jakafi
(rux) for my PV.
Hi All - the brain is muddled and I can’t find what I’m looking for but remember seeing a discussion about taking Vit D3 while on
Jakafi
(rux) for my PV.
Anouchka
in
MPN Voice
1 month ago
Jakafi and night
Anyone else on
Jakafi
/ruxolitinib and have their head “racing” at bedtime? I guess sort of like you’ve had several cups of coffee and laid down to sleep.
Anyone else on
Jakafi
/ruxolitinib and have their head “racing” at bedtime? I guess sort of like you’ve had several cups of coffee and laid down to sleep.
ProudHarry
in
Fight MPN
4 months ago
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Taking Prolia with Rusolitinib (Jakafi)
I have been taking
Jakafi
(15 mg) twice a day for the last 3 years for my polycythemia vera. I also take blood thinners for my thrombocytosis since I have had blood clots in my lungs twice in the last 2 years.
I have been taking
Jakafi
(15 mg) twice a day for the last 3 years for my polycythemia vera. I also take blood thinners for my thrombocytosis since I have had blood clots in my lungs twice in the last 2 years.
Buggerbear
in
MPN Voice
1 month ago
Co pay assistance exhausted for Jakafi
Are there any other assistance programs for
Jakafi
out there! TIA! Kim
Are there any other assistance programs for
Jakafi
out there! TIA! Kim
Wewo01
in
MPN Voice
3 months ago
ET: Changing from HU to Jakafi or an Interferon treatment
I now have the choice between
Jakafi
(Ruxolitinib) or one of the Interferon treatments. My instinct points to
Jakafi
particularly as it's supposed to influence JAK2.
I'd be grateful to hear from anyone who has taken this step, i.e. from HU to
.
I now have the choice between
Jakafi
(Ruxolitinib) or one of the Interferon treatments. My instinct points to
Jakafi
particularly as it's supposed to influence JAK2.
I'd be grateful to hear from anyone who has taken this step, i.e. from HU to
.
Bodensee
in
MPN Voice
5 months ago
Jakafi out of stock
Hi all fellows in MPN, I just met my doc and informed that Malaysia especially Kuala Lumpur hospitals out of stock for
Jakafi
and Pegasys. If you have a plan to see your doc in very near time, pls ensure to ask more for your buffer stock. Cheers
Hi all fellows in MPN, I just met my doc and informed that Malaysia especially Kuala Lumpur hospitals out of stock for
Jakafi
and Pegasys. If you have a plan to see your doc in very near time, pls ensure to ask more for your buffer stock. Cheers
william-Indo
in
MPN Voice
4 months ago
Antiinflammatory medications with Jakafi
I've read that there is a moderate risk of bleeding after using ibuprofen with
Jakafi
. I'd appreciate hearing reactions from people on
Jakafi
who have taken ibuprofen and other anti-inflammatory medications. Which anti-inflammatory medications would minimize the risk of such interactions?
I've read that there is a moderate risk of bleeding after using ibuprofen with
Jakafi
. I'd appreciate hearing reactions from people on
Jakafi
who have taken ibuprofen and other anti-inflammatory medications. Which anti-inflammatory medications would minimize the risk of such interactions?
sbs_patient
in
MPN Voice
7 months ago
PV and AMD?
I've had PV since 2015 and have been on
Jakafi
for 18 months. I've recently been diagnosed with age-related macular degeneration and have been treated with intravitreous avastin. I've seen some papers suggesting that AMD is more common for people with MPNs. Has anyone else had this experience?
I've had PV since 2015 and have been on
Jakafi
for 18 months. I've recently been diagnosed with age-related macular degeneration and have been treated with intravitreous avastin. I've seen some papers suggesting that AMD is more common for people with MPNs. Has anyone else had this experience?
sbs_patient
in
MPN Voice
5 months ago
itching
I plan to stay on Besremi unless it makes sense to switch to
Jakafi
, which I hear is excellent at controlling itch. I just got word from my dermatologist that some people have felt relief with a combination of Zrtec or Allegra and Pepcid.
I plan to stay on Besremi unless it makes sense to switch to
Jakafi
, which I hear is excellent at controlling itch. I just got word from my dermatologist that some people have felt relief with a combination of Zrtec or Allegra and Pepcid.
Pogm
in
MPN Voice
2 months ago
besremi or jakafi
The MD suggested we look at both Besremi and
Jakafi
. I’ve been combing through the product profiles and am finding myself wondering how to decide which one to go forward with. I understand that one is an injectable, so that might be a choosing point for some.
The MD suggested we look at both Besremi and
Jakafi
. I’ve been combing through the product profiles and am finding myself wondering how to decide which one to go forward with. I understand that one is an injectable, so that might be a choosing point for some.
Laluna5683
in
MPN Voice
6 months ago
Besremi benefits?
hello community, I’ve previously asked a question about Besremi vs
Jakafi
( for my husband with PV, currently on hydroxyurea) and really appreciative the responses.
hello community, I’ve previously asked a question about Besremi vs
Jakafi
( for my husband with PV, currently on hydroxyurea) and really appreciative the responses.
Laluna5683
in
MPN Voice
5 months ago
Jakafi
It has been two weeks that I am taking one pill a day. My hemoglobin today was an8 and last week was 11 ,has anyone had a drop like this and one week with just one pill? My doctor does not seem concerned because I’m feeling fine. I am rechecking next week and just nervous about it going lower
It has been two weeks that I am taking one pill a day. My hemoglobin today was an8 and last week was 11 ,has anyone had a drop like this and one week with just one pill? My doctor does not seem concerned because I’m feeling fine. I am rechecking next week and just nervous about it going lower
Ggrana3192
in
MPN Voice
9 months ago
Open letter
The biopsy revealed the genetic mutation (not sure if it was JAK2, CALR) and her hematologist prescribed
Jakafi
. Most important to our family is that Mom doesn't suffer.
The biopsy revealed the genetic mutation (not sure if it was JAK2, CALR) and her hematologist prescribed
Jakafi
. Most important to our family is that Mom doesn't suffer.
Kiruna
in
MPN Voice
3 months ago
Just diagnosed with 4.0 cm aneurysm of ascending aorta and severe calcification
I switched to
Jakafi
a few months ago and had one phlebotomy. I’m thinking it was August. The last two months my HCT has been 41 and 41.6, however my platelets continue to bounce between 700 and 800 and my white blood count between 14.8 and 15.
I switched to
Jakafi
a few months ago and had one phlebotomy. I’m thinking it was August. The last two months my HCT has been 41 and 41.6, however my platelets continue to bounce between 700 and 800 and my white blood count between 14.8 and 15.
Wewo01
in
MPN Voice
6 months ago
Besremi side effects?
He is the one that told me to think about both Besremi and
Jakafi
. I suggested that he wait to start until he has spoken with the specialist again. Thanks for any insight……
He is the one that told me to think about both Besremi and
Jakafi
. I suggested that he wait to start until he has spoken with the specialist again. Thanks for any insight……
Laluna5683
in
MPN Voice
5 months ago
Besremi or Jakafi coverage on Medicare?
Anyone on here have Medicare coverage for either of these drugs? I just went online and see that the cost would be about $3,500 a year. Thanks!
Anyone on here have Medicare coverage for either of these drugs? I just went online and see that the cost would be about $3,500 a year. Thanks!
Laluna5683
in
MPN Voice
6 months ago
Generic version of Jakafi for PV ?
Expiry of
Jakafi
(Rux ) Patent # 7,598,257 (Incyte) Patent expiration date is : 24th December 2027 Patent use: FOR TREATMENT OF POLYCYTHEMIA VERA (PV) IN PATIENTS WHO HAVE HAD AN INADEQUATE RESPONSE TO OR ARE INTOLERANT OF HYDROXYUREA Thus we can hope that a generic appears around that time for
Expiry of
Jakafi
(Rux ) Patent # 7,598,257 (Incyte) Patent expiration date is : 24th December 2027 Patent use: FOR TREATMENT OF POLYCYTHEMIA VERA (PV) IN PATIENTS WHO HAVE HAD AN INADEQUATE RESPONSE TO OR ARE INTOLERANT OF HYDROXYUREA Thus we can hope that a generic appears around that time for
Innessant
in
MPN Voice
8 months ago
Jakafi interactions
https://www.medicalnewstoday.com/articles/drugs-
jakafi
-interactions Some info on interactions with Rux/
Jakafi
, I am not sure how good quality this info is so maybe worth double checking any of it if in doubt
https://www.medicalnewstoday.com/articles/drugs-
jakafi
-interactions Some info on interactions with Rux/
Jakafi
, I am not sure how good quality this info is so maybe worth double checking any of it if in doubt
ainslie
in
MPN Voice
10 months ago
wbc keeps climbing
Now starting
Jakafi
to try to lower it.
Now starting
Jakafi
to try to lower it.
Ggrana3192
in
MPN Voice
9 months ago
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