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itp(information)
Hi all, I have been dealing with Itp since December 2022. My numbers fluctuate from 50k-76k. In march 2024 I had an Ivig infusion with decadron 10mg to increase platelets for a dental surgery. Before the infusion my platelets were 76k. I have done 3 tests from march till now and platelets are decreasing
Hi all, I have been dealing with Itp since December 2022. My numbers fluctuate from 50k-76k. In march 2024 I had an Ivig infusion with decadron 10mg to increase platelets for a dental surgery. Before the infusion my platelets were 76k. I have done 3 tests from march till now and platelets are decreasing
05Pink
in
ITP Support Association
9 days ago
Immune issues with donor eggs
Hi there,I'm just wondering if any of you have been successful with using donor eggs if you have an auto immune issue or have elevated NK cells and/or cytokines. I'm worried that we will go down the donor route and then fail anyway because of my immune issues despite any embryos being good quality.
Hi there,I'm just wondering if any of you have been successful with using donor eggs if you have an auto immune issue or have elevated NK cells and/or cytokines. I'm worried that we will go down the donor route and then fail anyway because of my immune issues despite any embryos being good quality.
Anisha29
in
Fertility Network UK
17 days ago
IvIg Infusions
Finished my IvIg infusions this week. After my two infusions (been doing this for almost 3 years) I’m getting more and more fatigued as time goes by. It takes me up to 3-5 days to get over. It has done a wonderful job at keeping me well. I certainly don’t want to come across as ungrateful. Any pointers
Finished my IvIg infusions this week. After my two infusions (been doing this for almost 3 years) I’m getting more and more fatigued as time goes by. It takes me up to 3-5 days to get over. It has done a wonderful job at keeping me well. I certainly don’t want to come across as ungrateful. Any pointers
robster1
in
My MSAA Community
18 days ago
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Recurrent implantation failure - please give me hope
Hello my lovely support team. I'll try and keep this rotten history of mine very very brief.......43 years old, all embryos created between 40-42. Trying since I was 36. Just one natural chemical at 41yo. So far, 5 failed transfers of 6 good-decent embryos. All bfn, no chemicals or anything else. 4 collections
Hello my lovely support team. I'll try and keep this rotten history of mine very very brief.......43 years old, all embryos created between 40-42. Trying since I was 36. Just one natural chemical at 41yo. So far, 5 failed transfers of 6 good-decent embryos. All bfn, no chemicals or anything else. 4 collections
Joeysjourney
in
Fertility Network UK
24 days ago
Early results of the Pirtobrutinib, Obinituzumab, Venetoclax trial I'm on have just been published
Dr. Jain of M.D. Anderson has published an oral abstract in advance of the European Hematological Association Congress June 13-16, 2024: https://library.ehaweb.org/eha/2024/eha2024-congress/422268/nitin.jain.combined.pirtobrutinib.venetoclax.and.obinutuzumab.in.first-line.html [i]
Abstract: S164
Dr. Jain of M.D. Anderson has published an oral abstract in advance of the European Hematological Association Congress June 13-16, 2024: https://library.ehaweb.org/eha/2024/eha2024-congress/422268/nitin.jain.combined.pirtobrutinib.venetoclax.and.obinutuzumab.in.first-line.html [i]
Abstract: S164
SeymourB
in
CLL Support
25 days ago
Action too late
I very well can understand your Frustration. My IVIG introduction was very late, not considering my close to 0 Immunity. The result was as well Double Pneumonia, unbelievable hurting caught for 6 month, which produced a Hernia. After being on a Roller-Coaster I have moe or less settled and try the
I very well can understand your Frustration. My IVIG introduction was very late, not considering my close to 0 Immunity. The result was as well Double Pneumonia, unbelievable hurting caught for 6 month, which produced a Hernia. After being on a Roller-Coaster I have moe or less settled and try the
Traudel
in
CLL Support
29 days ago
Kesimpta and IVIG?
I have had many infections over the last 4 months. I have been on Kesimpta for 2years. Anyone else have that problem? Any luck with immuno therapy? Thank you!
I have had many infections over the last 4 months. I have been on Kesimpta for 2years. Anyone else have that problem? Any luck with immuno therapy? Thank you!
pihokken
in
My MSAA Community
1 month ago
Success stories/advice after multiple miscarriages
Hi, I’ve had it confirmed today that I’m having a missed miscarriage. Should have been 7+5 weeks but the gestational sac was empty (I’ve had multiple scans over the past 12 days so it’s definitely over). This is now my third miscarriage so I can add the 1% recurrent miscarriage statistic to all these
Hi, I’ve had it confirmed today that I’m having a missed miscarriage. Should have been 7+5 weeks but the gestational sac was empty (I’ve had multiple scans over the past 12 days so it’s definitely over). This is now my third miscarriage so I can add the 1% recurrent miscarriage statistic to all these
Ctk123
in
Fertility Network UK
1 month ago
Follow up T3 question
Okay, so, it has only recently reached my consciousness that the fact that my thyroid "died" (I got a goiter and my TSH was only barely above "normal" so at first they didn't want to treat me even though I gained 30lbs in a month and lost all my body hair and on and on) at the exact same moment (literally
Okay, so, it has only recently reached my consciousness that the fact that my thyroid "died" (I got a goiter and my TSH was only barely above "normal" so at first they didn't want to treat me even though I gained 30lbs in a month and lost all my body hair and on and on) at the exact same moment (literally
BlueGreenWordyDoc
in
Thyroid UK
2 months ago
Raised TNF alpha? Any advice
hi all Is this raised tnf my clinic haven't said it is they said I need ivig for my pgs embryo transfer. Looking at my results above are my TNF not elevated? If so what treatment or tests did you have to help you get your bfp? Thanks
hi all Is this raised tnf my clinic haven't said it is they said I need ivig for my pgs embryo transfer. Looking at my results above are my TNF not elevated? If so what treatment or tests did you have to help you get your bfp? Thanks
Poop84
in
Fertility Network UK
2 months ago
CLL + Bladder cancer + prostate cancer
I've been diagnosed with Cll since 2016 and been on Acalabrutinib for 2 years which is working really well along with monthly plasma ivig infusions. I'm 63 and male and fit and active. I just got diagnosed with Bladder cancer with a medium grade carcinoma. My uroligist has burnt the 2 spots she found
I've been diagnosed with Cll since 2016 and been on Acalabrutinib for 2 years which is working really well along with monthly plasma ivig infusions. I'm 63 and male and fit and active. I just got diagnosed with Bladder cancer with a medium grade carcinoma. My uroligist has burnt the 2 spots she found
Brucex100
in
CLL Support
2 months ago
Intralipids, IVIG experience?
Hi, is there any of you who suffered from a number of implantation failures and finally achieved successful pregnancy by using intralipids / IVIG? Any good (or bad) experiences of using them?
Hi, is there any of you who suffered from a number of implantation failures and finally achieved successful pregnancy by using intralipids / IVIG? Any good (or bad) experiences of using them?
WaitingforGabriel
in
Fertility Network UK
3 months ago
IVIg infusion clinic help
hello, I have been advised to do both intralipid and Ivig infusion for my next FET with immunotherapy. Our doctor is ok for us to do IVIG elsewhere to save money. I’m based in London and prices for IVIg are scary. I’ve read of people who travelled to do it abroad: where did you go? What countries/
hello, I have been advised to do both intralipid and Ivig infusion for my next FET with immunotherapy. Our doctor is ok for us to do IVIG elsewhere to save money. I’m based in London and prices for IVIg are scary. I’ve read of people who travelled to do it abroad: where did you go? What countries/
Oumil
in
Fertility Network UK
3 months ago
Help with rehab at home after acute phase of autoimmune encephalitis for my 16 year old
I am mum to a 16 year old daughter who has recently been diagnosed with autoimmune encephalitis. After several weeks in and out of A&E and several other departments, where they thought it was psychological, we were referred to the neurologists by the psychiatrist who after several tests diagnosed AE
I am mum to a 16 year old daughter who has recently been diagnosed with autoimmune encephalitis. After several weeks in and out of A&E and several other departments, where they thought it was psychological, we were referred to the neurologists by the psychiatrist who after several tests diagnosed AE
Cat29red
in
Encephalitis Society
3 months ago
Advice needed
Hi everyone - after a bit of advice from the collective brain :) We are incredibly lucky enough to have a little boy from our 6th transfer in 2021, and had 5 frozen embryos at the clinic should we decide to try for a sibling. We've now done 2 FETs with exactly the same protocol (steroids / intralipids
Hi everyone - after a bit of advice from the collective brain :) We are incredibly lucky enough to have a little boy from our 6th transfer in 2021, and had 5 frozen embryos at the clinic should we decide to try for a sibling. We've now done 2 FETs with exactly the same protocol (steroids / intralipids
Millbanks
in
Fertility Network UK
3 months ago
IVIG with CALR ET
Has anyone with ET/MPN ever received IVIG? I have ET and my platelets are in the mid to high 500k range on 1000mg HU daily. IVIG has a risk for blood clots but it appears to be one of the few things that might help with a severe neuropathy I’ve developed. My docs think I will be ok but I am quite nervous
Has anyone with ET/MPN ever received IVIG? I have ET and my platelets are in the mid to high 500k range on 1000mg HU daily. IVIG has a risk for blood clots but it appears to be one of the few things that might help with a severe neuropathy I’ve developed. My docs think I will be ok but I am quite nervous
George1976
in
MPN Voice
3 months ago
Provenge immunotherapy
After 5.5 years on Lupron (no Zytiga, Xtandi, Daro, etc.), my PSA hit its highest points ever (1.92), although I'm still not 2 points above my lowest reading of 0.5 (only one of those). I'm metastatic and was at diagnosis, so still have prostate. I've been researching Provenge a bit, and understand that
After 5.5 years on Lupron (no Zytiga, Xtandi, Daro, etc.), my PSA hit its highest points ever (1.92), although I'm still not 2 points above my lowest reading of 0.5 (only one of those). I'm metastatic and was at diagnosis, so still have prostate. I've been researching Provenge a bit, and understand that
dhccpa
in
Advanced Prostate Cancer
1 day ago
Borderline TSH during cancer treatment
Hi folks! Haven't been on here for some time but in the interim I have been treated for Chronic Myeloid Leukaemia. Had chemo in September last year which was successful (minus a few hiccups like fungal pneumonia that put me in ICU!) and currently on home oral chemo, antifungals and antibiotics daily
Hi folks! Haven't been on here for some time but in the interim I have been treated for Chronic Myeloid Leukaemia. Had chemo in September last year which was successful (minus a few hiccups like fungal pneumonia that put me in ICU!) and currently on home oral chemo, antifungals and antibiotics daily
spongecat
in
Thyroid UK
1 day ago
It’s Been A While
Sorry I am unloading here because some of you guys will understand. I was diagnosed 19 years ago at age 45. I was single then. Life was okay for a while. Then lupron kicked in. I have had no libido for 18.5 years. I’m an only child, Mom passed 23 years ago and I lost Dad 2 years ago. One month after
Sorry I am unloading here because some of you guys will understand. I was diagnosed 19 years ago at age 45. I was single then. Life was okay for a while. Then lupron kicked in. I have had no libido for 18.5 years. I’m an only child, Mom passed 23 years ago and I lost Dad 2 years ago. One month after
MJCA
in
Prostate Cancer And Gay Men
2 days ago
Letrozole alone after a year of chemo
Hi everyone, my mom is currently being treated with only letrozole after a year of chemo which didn't work very well (she is 100% Er and Pr). She took it for 5 months after taxol and it worked much better, now she has a follow-up Pet scan after another 5 months. I wanted to know if any of you have successfully
Hi everyone, my mom is currently being treated with only letrozole after a year of chemo which didn't work very well (she is 100% Er and Pr). She took it for 5 months after taxol and it worked much better, now she has a follow-up Pet scan after another 5 months. I wanted to know if any of you have successfully
Shumawy
in
SHARE Metastatic Breast Cancer
2 days ago
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