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PSP Association

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cannabidioids in treatment

Good morning, I read about a case report of a patient diagnosed with PSP who had considerable improvement after using cannabidiol, is anyone using...

Good morning, I read about a case report of a patient diagnosed with PSP who had...

FeemDeus

•7 hours ago

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PSP Research

My husband died in hospital earlier this year (2024). He was diagnosed with PSP just before Christmas. Like a lot of people, his outpatient care was blighted...

My husband died in hospital earlier this year (2024). He was diagnosed with PSP...

Hidden

•10 hours ago

1 Reply

Ulcers

Unfortunately my mum does just not have PSP at the age of 87 she also has the worst ulcer you can have and she is allergic to the antibiotics that can treat it...

Unfortunately my mum does just not have PSP at the age of 87 she also has the wo...

Blitzford72

•24 hours ago

4 Replies

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Late stage cbd information

My mum Stella is 82 and has CBD I think she is in the later stages of the disease. But I’m not really sure what late stages are! She was finally diagnosed...

My mum Stella is 82 and has CBD I think she is in the later stages of the dise...

Jiggyjo

•24 hours ago

9 Replies

Recent PSP diagnosis

Hello everyone. My dad is 75 and for the last 4 years we have been on the understanding that he had gait apraxia. We saw a neurologist today who had been...

Hello everyone. My dad is 75 and for the last 4 years we have been on the unders...

Pickle28

•1 day ago

1 Reply

US Representative Wexton

https://www.youtube.com/watch?v=ywWVZeMdX8U I hope this link works. It’s a story from CNN about the representative who was diagnosed with PSP a year ago....

https://www.youtube.com/watch?v=ywWVZeMdX8U I hope this link works. It’s a sto...

easterncedar

•2 days ago

4 Replies

I have been recently diagnosed with PSP

I was recently diagnosed with PSP which explains the many falls I have been having. I have had problems with imbalance/falls for around 2/3 years, and have...

I was recently diagnosed with PSP which explains the many falls I have been havi...

MullerRice

•3 days ago

9 Replies

Beyond... The PSP Chronicles

Yeah, so I've been a little busy the last little while with The PSP-CBD Ice Cream Challenge, getting the manuscript ready for publication earlier this week and...

Yeah, so I've been a little busy the last little while with The PSP-CBD Ice Crea...

pspchronicles

•4 days ago

8 Replies

Tim Brown did it again 🌻

I found out today that the fourth installment of the PSP Chronicles is available on Amazon so I've ordered my copy Beyond... The PSP Chronicles...

I found out today that the fourth installment of the PSP Chronicles is available...

Bergenser

•4 days ago

7 Replies

Entering the final stage of PSP

We went to see mum's consultant on wed He didn't tell me anything I didn't already see in mum 😔 Her speech is unrecognizable and very difficult to hear what...

We went to see mum's consultant on wed He didn't tell me anything I didn't alrea...

Blitzford72

•5 days ago

4 Replies

Dad in hospital

My dad has sp and is I'm hospital with pneumonia which they are treating. He has to be on level 4 for food yet the hospital offerhom food he can't eat ,...

My dad has sp and is I'm hospital with pneumonia which they are treating. He has...

MyDad1

•6 days ago

13 Replies

Any advice please!

Hi everyone, I’m new to this forum so just wondered whether anyone could offer any words of wisdom. My dad was diagnosed with PSP at the beginning of the...

Hi everyone, I’m new to this forum so just wondered whether anyone could offer...

Sunshine1005

•9 days ago

15 Replies

Sounding off

Well, I've been reading posts here for the last few years and, although informative, I didn't think I'd want / need to post myself ... How things change! My...

Well, I've been reading posts here for the last few years and, although informat...

Leygonie

•9 days ago

28 Replies

Speakunique

Has anyone any experience with Speakunique, please? My wife has just banked her voice and is waiting for the PSPA funding. On the Speakunique website it...

Has anyone any experience with Speakunique, please? My wife has just banked her...

Pspuser

•11 days ago

8 Replies

CHC Funding For PSP

Hi , just wanted to tell you my husband who has PSP, has just been awarded fully funded CHC funding .I’m not going to say the process isn’t difficult or...

Hi , just wanted to tell you my husband who has PSP, has just been awarded full...

bladesmad

•12 days ago

11 Replies

levodopa side effect

hello, My mom has not been diagnosed officially yet. Her doctor said it might be psp mixing with ftd. Her cognitive deficits can easily be recognized....

hello, My mom has not been diagnosed officially yet. Her doctor said it might b...

Hopeless03

•12 days ago

6 Replies

Bowl exploration

My mum has had diahorea for about 2 months. Gp thinks that psp has effected stomach and bowl muscles and has suggested she goes to hospital for exploration. We...

My mum has had diahorea for about 2 months. Gp thinks that psp has effected stom...

nanwoo

•13 days ago

5 Replies

PEG feed methods - pros and cons

my husband is having a PEG fitted tomorrow. The nurse has given us two options for feeding - either a pump that runs all day or bolus (?) feeds 4 or 5 times a...

my husband is having a PEG fitted tomorrow. The nurse has given us two options f...

SunriseLegend

•14 days ago

13 Replies

chronic constipation

My husband is suffering with chronic constipation. I am sure this is contributing to his mood, not sleeping and restlessness. He seems more confused not...

My husband is suffering with chronic constipation. I am sure this is contributin...

Licquoricelover

•16 days ago

15 Replies

PSP story

My dad has been living with PSP for over 5 years his feet have turned in so unable to walk, his eyes don’t shut even when asleep, his frustration is...

My dad has been living with PSP for over 5 years his feet have turned in so unab...

Independenceday

•16 days ago

6 Replies

Flashing lights

Mum has recently started having problems not being able to see due to flashing lights in her eyes ,this is all new Mum has only been diagnosed in the last...

Mum has recently started having problems not being able to see due to flashing l...

Blitzford72

•16 days ago

2 Replies

Managing Burnout

My husband was recently diagnosed with PSP, which comes on the tail of a stage 4 cancer diagnosis (he's in remission as of now). We're both already deep into...

My husband was recently diagnosed with PSP, which comes on the tail of a stage ...

MLea

•17 days ago

18 Replies

CBD - do sufferers always end up needing wheelchairs?

I posted a while ago re whether we convert my parents’ house into having a downstairs bedroom and shower room for my mum, who has CBD. Thank you so much for...

I posted a while ago re whether we convert my parents’ house into having a downs...

PeterPanandLostBoys

•18 days ago

14 Replies

dreaming or hallucinating?

My husband has psp. I’m trying to figure out if he is dreaming or hallucinating. When he is asleep, sometimes he does hand movements, calls out the strangest...

My husband has psp. I’m trying to figure out if he is dreaming or hallucinating....

Pinkcamelia

•18 days ago

11 Replies

15.17

photo

Guddukumar

•19 days ago

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15.17

photo

Guddukumar

•19 days ago

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Covid and PSP

My husband who has PSP has Covid now (for the first time). He is in our community hospital for IV fluids and antibiotics. They said Covid medication is...

My husband who has PSP has Covid now (for the first time). He is in our communit...

Rose1sunflower

•20 days ago

4 Replies

Raynor Winn

Nice to have a chat with Raynor after her show with Gigspanner in Worcester last night.

Nice to have a chat with Raynor after her show with Gigspanner in Worcester last...

AnnesHusband

•20 days ago

5 Replies

Peg Feeding

Hi all my husband dx in 2018 currently in hospital having had aspiration pneumonia, urine infection, bowl infection, COVID and a further chest infection. He is...

Hi all my husband dx in 2018 currently in hospital having had aspiration pneumon...

Northstar1

•22 days ago

21 Replies

2024 PSP & CBD Ice Cream Challenge

My bad friends. I've been extremely busy with this year's Ice Cream Challenge and getting the fourth book ready for publication, that I forgot to post this...

My bad friends. I've been extremely busy with this year's Ice Cream Challenge an...

pspchronicles

•23 days ago

15 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

cannabidioids in treatment

PSP Research

Ulcers

Late stage cbd information

Recent PSP diagnosis

US Representative Wexton

I have been recently diagnosed with PSP

Beyond... The PSP Chronicles

Tim Brown did it again 🌻

Entering the final stage of PSP

Dad in hospital

Any advice please!

Sounding off

Speakunique

CHC Funding For PSP

levodopa side effect

Bowl exploration

PEG feed methods - pros and cons

chronic constipation

PSP story

Flashing lights

Managing Burnout

CBD - do sufferers always end up needing wheelchairs?

dreaming or hallucinating?

15.17

15.17

Covid and PSP

Raynor Winn

Peg Feeding

2024 PSP & CBD Ice Cream Challenge

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive