Reaction to Denosumab injection: I had my first... - PMRGCAuk

PMRGCAuk

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Reaction to Denosumab injection

Japsquar profile image
11 Replies

I had my first 6 monthly injection a couple of weeks ago. 2 nights later I was up every half hour to pee and/or poo all night! Since then I've had a lot of grumbly tummy and also pain - shoulders, neck, arms - a bit like PMR but not quite. Upping the pred didn't seem to make much difference. Could these be a side effect of the injection? Has anyone else experienced this? and if so, how long might it go on?

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Japsquar profile image
Japsquar
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11 Replies
Allum profile image
Allum

Hello Japsquar. I have been having Demosumab injection, every six months for the last two years, but not had any reaction, so far. I do have a very sensitive gut, so would be surprised if this is related. I will watch for other replies with interest, as I am due another injection next week.

Japsquar profile image
Japsquar in reply to Allum

Thanks Allum, I hope that is good news for the future! For both of us. Meanwhile still a mystery!

Viveka profile image
Viveka

My mum had diverticulitis and IBS and had no problem on Denusomab.

Japsquar profile image
Japsquar in reply to Viveka

That’s good to hear, thank you!

agingfeminist profile image
agingfeminist

I have been having denusomab injections every six months for 4 years..no reactions...if symptoms continue perhaps share with your doc

Japsquar profile image
Japsquar in reply to agingfeminist

Thank you,good to hear. From what you and others are saying, this is not related which is reassuring as I probably need the injections!

pink123floyd profile image
pink123floyd

Hi Japsquar, I was on then for a number of years. I think around 4 years with no side effects at all. Even with 2 bad knees I still could get around doing may garden, my bones have approved, but I've also been having vitamins K2 (mk7), D and Calicum.

Japsquar profile image
Japsquar in reply to pink123floyd

Thank you, more good news re the injections. Glad to hear of your gardening, such a lovely morning for it today where I am in Devon! Good luck with the knees.

pink123floyd profile image
pink123floyd

Thanks need all the luck going atm but getting there .Take care stay safe.xx

Sharitone profile image
Sharitone

I also have had a few Denosumab injections with no problems. Hope you're ok next time.

Japsquar profile image
Japsquar in reply to Sharitone

Thanks, I’m getting the message that these symptoms aren’t connected with it, good to know!

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