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Pernicious Anaemia Society

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C-Reactive Protein Test

Good day everyone. Has anyone has their levels checked? Does high levels correlate with PA and Autoimmune Gastritis? Thank you

Good day everyone. Has anyone has their levels checked? Does high levels correl...

Canadian77

•6 hours ago

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extreme fatigue

After two years of treatments for Pernicious Anaemia I still struggle with fatigue. I've been working out and riding a bike as much as energy levels allow me....

After two years of treatments for Pernicious Anaemia I still struggle with fatig...

djrpdx

•8 hours ago

4 Replies

B12 Deficiency, recently diagnosed, seeking advice.

Hi, I was initially diagnosed with carpal tunnel syndrome about 18 months ago, due to numbness, pins and needles and burning sensations in my left arm / hand...

Hi, I was initially diagnosed with carpal tunnel syndrome about 18 months ago, ...

Dfthbhjj

•8 hours ago

4 Replies

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Methylation to feel good

Hi Folks, Thank you for all the advice and words of encouragement. I’ve been reading a lot of papers on methylation and the effects on the body, below is an...

Hi Folks, Thank you for all the advice and words of encouragement. I’ve been re...

Karenedawson

•16 hours ago

3 Replies

Is serum folate levels the level of b12?

I received this as a blood result 3 weeks after receiving my b12 injection but I am confused. Does this tell me the level of b12 in my blood or folate? There...

I received this as a blood result 3 weeks after receiving my b12 injection but I...

Lynne81

•1 day ago

5 Replies

US Compounding Pharmacies Making Hydroxocobalamin That Take Insurance?

Hello, The latest update regarding the lack of availability of Actavis/Teva 30ml hydroxocobalamin vials in the US is forcing me to look for a long term...

Hello, The latest update regarding the lack of availability of Actavis/Teva 30m...

mcg-woo

•1 day ago

13 Replies

Methylcobalamin injection Supplies

I need to purchase methylcobalamin ampoules, does anyone have a good source for good quality stuff. I get adenosylcobalalimin from Arnika but not sure if...

I need to purchase methylcobalamin ampoules, does anyone have a good source for ...

jamaica105

•2 days ago

3 Replies

Neurology Doc advice

saw neurology consultant few days ago re the MRI scan I had after a stroke last year. And when I mentioned how my memory banks were badly affected and also...

saw neurology consultant few days ago re the MRI scan I had after a stroke last ...

Beadbuddy

•2 days ago

14 Replies

Symprove for digestive issues?

I have read that some people have had help with Symprove. What symptoms would you say it helps with most. I have some IBS like pains, some bloating and...

I have read that some people have had help with Symprove. What symptoms would yo...

Chickens44

•3 days ago

15 Replies

scared myself silly

hi, I’m in the midst of investigating why my B12 deficiency has occurred- whether it’s h.pylori, AIG, PA etc And I’ve managed to scare myself silly about AIG...

hi, I’m in the midst of investigating why my B12 deficiency has occurred- whethe...

PlatypusProfit8077

•3 days ago

30 Replies

still low energy & weak arm/leg

Hi, I’ve 24 loading doses of 1000mcg B12 through the GP, although many of my symptoms have gone (falling over, rapid heartbeat, breathlessness, double vision,...

Hi, I’ve 24 loading doses of 1000mcg B12 through the GP, although many of my sy...

Karenedawson

•3 days ago

14 Replies

How overcome a high B12 test from when I must supplement to function?

Both intrinsic factor and parietal antibody tests were positive ("abnormal") with B12 >2000. Methylmalonic Acid is normal at .28. I have Hashimoto's and other...

Both intrinsic factor and parietal antibody tests were positive ("abnormal") wit...

Pamelayne

•4 days ago

49 Replies

Wrong time to reduce SSRIs?

I was on 150mg of sertraline, I cut it down to 125mg earlier this year. A few days ago I cut the dose down to 100mg. I am having a few withdrawal symptoms,...

I was on 150mg of sertraline, I cut it down to 125mg earlier this year. A few da...

Chickens44

•4 days ago

8 Replies

Autoimmune Chronic Gastiritis

Hi Folks, Found this article on Autoimmune Chronic Gastiritis if anyone interested… https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10934127/

Hi Folks, Found this article on Autoimmune Chronic Gastiritis if anyone intere...

Karenedawson

•5 days ago

15 Replies

17 May Pernicious Anaemia blog

I've finally managed to read alot of this. Was pleased to see the society's statement about the new NICE guidelines . Highlighted incase anyone missed it .

I've finally managed to read alot of this. Was pleased to see the society's stat...

Nackapan

•5 days ago

11 Replies

Imbibe B12 Ampoules ?

hello, seems a strange question. I decided to try some Panpharma ampoules and the stinging is unbearable. Sane needles, tried different spots same awful...

hello, seems a strange question. I decided to try some Panpharma ampoules and t...

Wheat

•5 days ago

20 Replies

Has anyone tried Neovos for an MMA urine test please?

Hi...wondering if anyone has tried these for tests please? I've used St Thomas hosp in past but they stopped over covid and am awaiting to hear back from them...

Hi...wondering if anyone has tried these for tests please? I've used St Thomas h...

Jo5454

•6 days ago

13 Replies

Nerve Conduction Test

I have just been advised by GP to take a Nerve Conduction Test for peripheral neuropathy that I continue to experience despite self-injecting EOD for the last...

I have just been advised by GP to take a Nerve Conduction Test for peripheral ne...

Libuse

•6 days ago

21 Replies

Quick Update

Still doing the work to find how to thrive and adjusting to improved suplimentation. I embrace not letting my neurological system languish in the smoldering...

Still doing the work to find how to thrive and adjusting to improved suplimentat...

WIZARD6787

•6 days ago

Be the first to reply

Pascoe B12 in the USA?

Is it possible to buy the Pascoe B12 in the USA? Last B12 shot I had, one my insurance would allow, gave me an allergic reaction. Was told by some...

Is it possible to buy the Pascoe B12 in the USA? Last B12 shot I had, one my ...

highlandcottage8

•6 days ago

16 Replies

Crawling skin on legs

Hi everyone just a question, does anyone experience numbness and bright red feet in middle of night coupled with lower back pain. Also my thighs and calves...

Hi everyone just a question, does anyone experience numbness and bright red feet...

gpw61

•6 days ago

3 Replies

seeing neurologist, advice on b12 injections welcomed…

hi all? have been prescribed with PA. My ferritin levels are normal - 177 Vitamin D- 70. I have finished loading does for b12 last week. My last...

hi all? have been prescribed with PA. My ferritin levels are normal - 177 ...

Damacian

•6 days ago

7 Replies

Pernicious anaemia

My 14 year old daughter has been mainly in bed sleeping for 7 to 8 weeks. She sleeps most of the time and is complaining of aches throughout her body. I have...

My 14 year old daughter has been mainly in bed sleeping for 7 to 8 weeks. She sl...

TracyEsmond

•7 days ago

43 Replies

B12 injections - advice please

Hi, I have been diagnosed with hypothyroidism, but also have very low B12 levels (not clear if PA). I was prescribed B12 injections privately -...

Hi, I have been diagnosed with hypothyroidism, but also have very low B12 leve...

TheMudRunner

•7 days ago

20 Replies

B12 injections and holiday abroad

Hi, Just need some advice please on packing B12 ampoules and injection paraphernalia and going through security please. Thank you

Hi, Just need some advice please on packing B12 ampoules and injection parapher...

Fluffyone

•7 days ago

9 Replies

Intrinsic Factor result

bit disappointing it didn’t come back positive., but I know they don’t always accurately reflect the underlying condition.It also means my pernicious anaemia...

bit disappointing it didn’t come back positive., but I know they don’t always ac...

Chickens44

•7 days ago

14 Replies

Peripheral neuropathy and neurology's response

Hi. I've posted a couple of times recently so I'll start with a precise and then my ask! I was diagnosed with Vitamin B12 deficiency in 2015 - I wasn't tested...

Hi. I've posted a couple of times recently so I'll start with a precise and then...

LizWilsonpa

•7 days ago

27 Replies

More b12 injections

I'm currently on loading dose 5 out of 6. The doctor said to have 6 loading doses followed by one every 12 weeks. I'm feeling worse from the loading doses what...

I'm currently on loading dose 5 out of 6. The doctor said to have 6 loading dose...

gemmacampbell

•7 days ago

19 Replies

Functional Gerd/Heartburn

Good day everyone, has anyone ever researched this topic ? I was diagnosed with AIG few months back, started EOD injections and recently developed what feels...

Good day everyone, has anyone ever researched this topic ? I was diagnosed with...

Canadian77

•7 days ago

9 Replies

Should I go back to every other day injections?

It has been quite a while since I have posted. I have been doing monthly inspections for well over a year but have started having vertigo, heart palpitations...

It has been quite a while since I have posted. I have been doing monthly inspec...

Nanc72

•8 days ago

3 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

C-Reactive Protein Test

extreme fatigue

B12 Deficiency, recently diagnosed, seeking advice.

Methylation to feel good

Is serum folate levels the level of b12?

US Compounding Pharmacies Making Hydroxocobalamin That Take Insurance?

Methylcobalamin injection Supplies

Neurology Doc advice

Symprove for digestive issues?

scared myself silly

still low energy & weak arm/leg

How overcome a high B12 test from when I must supplement to function?

Wrong time to reduce SSRIs?

Autoimmune Chronic Gastiritis

17 May Pernicious Anaemia blog

Imbibe B12 Ampoules ?

Has anyone tried Neovos for an MMA urine test please?

Nerve Conduction Test

Quick Update

Pascoe B12 in the USA?

Crawling skin on legs

seeing neurologist, advice on b12 injections welcomed…

Pernicious anaemia

B12 injections - advice please

B12 injections and holiday abroad

Intrinsic Factor result

Peripheral neuropathy and neurology's response

More b12 injections

Functional Gerd/Heartburn

Should I go back to every other day injections?

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive