Posts - My MSAA Community | HealthUnlocked

My MSAA Community

9,072 members • 20,811 posts

All posts for May 2024

OCrevus

thank you everyone who responded to my post. I wish I could call my neurologist but I have to go to VA for care and calling anyone is impossible. By the time...

thank you everyone who responded to my post. I wish I could call my neurologist ...

Scooterboo1973

•9 hours ago

1 Reply

PS- nothing happened in public-it was in the privacy of our room & I had a pad. it was also at midnight-he was suppose to help but oh well

getting to the late show was more important…. so i’ll be mad at him in this venue

getting to the late show was more important…. so i’ll be mad at him in this ven...

HouseElfWon

•1 day ago

Be the first to reply

taking the win and trying to accept the fact the fact that my husband is an idiot and just doesn’t get a lot of stuff

i am venting here because i dont want to fight with his dumb ass. I love him very much but he’s being an idiot right now. yesterday we had a wonderful day in...

i am venting here because i dont want to fight with his dumb ass. I love him ver...

HouseElfWon

•1 day ago

7 Replies

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Vumerity

Anyone on Vumerity (Tecfidera generic)? I saw some older threads but nothing recent. Switching from Copaxone 40MG soon, which has been amazing for me, but skin...

Anyone on Vumerity (Tecfidera generic)? I saw some older threads but nothing rec...

SGL33

•2 days ago

5 Replies

Autoinjector

Got a letter from Shared Solutions saying not to use the injector I have been using for years. Is there another to use with Copaxone 40mg? Read about the...

Got a letter from Shared Solutions saying not to use the injector I have been us...

Christopher04

•3 days ago

14 Replies

MS Workouts

They are offering the ability to purchase one of the mini courses they offer as rentals that you can keep forever. The offer is only good on Memorial Day. You...

They are offering the ability to purchase one of the mini courses they offer as ...

ahrogers

•3 days ago

2 Replies

Greetings

Hello people. I've been living with MS since 2006. The early stages were maddening. No doctor seemed to know what was wrong. The could be this or that was...

Hello people. I've been living with MS since 2006. The early stages were maddeni...

Biggums

•3 days ago

15 Replies

impaction

How do you deal with constipation leading to impaction? Obviously the goal is not to get to that point and I do not know how I got here but I am in bad shape....

How do you deal with constipation leading to impaction? Obviously the goal is no...

Tulip77

•3 days ago

20 Replies

Biomarkers to Assess Multiple Sclerosis

Some review and maybe something new. Recent research on fluid biomarkers in multiple sclerosis (MS) frames an emerging picture of two aspects of the...

Some review and maybe something new. Recent research on fluid biomarkers in mul...

BettysMom

•3 days ago

1 Reply

Overwhelmed

Hello, can anyone share any tips on how to stay positive when you feel overwhelmed with the condition or the future. Thanks

Hello, can anyone share any tips on how to stay positive when you feel overwhelm...

Ramdogg

•4 days ago

30 Replies

Bad Week

My husband who has secondary progressive MS has had a really bad week with sciatica pain. Trying to obtain help to control the pain so he can get some sleep...

My husband who has secondary progressive MS has had a really bad week with sciat...

mathematics

•4 days ago

39 Replies

MRI Aternatives

Hello MS family, I have a question by chance do you know of any other MRI alternatives for scans? I used to be in a pediatric MS group where they shared...

Hello MS family, I have a question by chance do you know of any other MRI alter...

EmpressArtist

•4 days ago

9 Replies

OCrevus

I was on OCrevus but it made my hair fall out a lot and made my skin aweful. They changed me to the original version of OCrevus that starts with K and I will...

I was on OCrevus but it made my hair fall out a lot and made my skin aweful. The...

Scooterboo1973

•5 days ago

3 Replies

Needing Advice

I am in a relationship with someone who has MS. Our relationship is new and after a few weeks he told me he has MS. I went home and cried because it isn't fair...

I am in a relationship with someone who has MS. Our relationship is new and afte...

TeacherAssistant

•5 days ago

23 Replies

What's New in MS Research - May 2024

The May edition of “What’s New in MS Research” features a wide variety of topics and recent research findings presented during the annual meeting of the...

The May edition of “What’s New in MS Research” features a wide variety of topics...

DanaMSAA

Partner•6 days ago

2 Replies

IvIg Infusions

Finished my IvIg infusions this week. After my two infusions (been doing this for almost 3 years) I’m getting more and more fatigued as time goes by. It takes...

Finished my IvIg infusions this week. After my two infusions (been doing this f...

robster1

•6 days ago

28 Replies

Finally it's happened to me... homelessness.

....section 8 is closed in Oklahoma. Ugggghhhh my trailer had sevear water damage from our storms and window seals are bot covered by my insurance. A kind...

....section 8 is closed in Oklahoma. Ugggghhhh my trailer had sevear water damag...

Allen5280

•7 days ago

61 Replies

Physical therapy, anyone?

They're coming to my house to assess me so I'm going to throw myself on the floor to get my money's worth.😂

They're coming to my house to assess me so I'm going to throw myself on the flo...

falalalala

•7 days ago

36 Replies

Diagnosed in march. I can't believe its happened.

Hi all, well here I am. 42 years old and diagnosed with ms. The neurologists are very "here take the brochures have a read and met me know what treatment you...

Hi all, well here I am. 42 years old and diagnosed with ms. The neurologists are...

anetap4545

•7 days ago

104 Replies

Diagnosed for 40th Birthday!

Goodbye Dirty Thirties.... and welcome Filthy Forties! I'm a scientist and engage in facts and also loves live music, puppies, kids... Hiya ALL!

Goodbye Dirty Thirties.... and welcome Filthy Forties! I'm a scientist and engag...

ImmaNew

•9 days ago

18 Replies

Hi my MS family 🙂

I had an intrathechal pain pump placed on 5-2 & didn’t have it turned on until 5-9. Then I needed an increase on 5-14. It’s not working, so I’m asking for...

I had an intrathechal pain pump placed on 5-2 & didn’t have it turned on until 5...

Sweetheartonvdayl

•9 days ago

3 Replies

Hi my MS family 🙂

I had an intrathechal pain pump placed on 5-2 & didn’t have it turned on until 5-9. Then I needed an increase on 5-14. It’s not working, so I’m asking for...

I had an intrathechal pain pump placed on 5-2 & didn’t have it turned on until 5...

Sweetheartonvdayl

•9 days ago

8 Replies

Tysabri Infusions

Good Morning & Happy Sunday Guys!! Just an Update! My daughter Melani Grace is now 9 months & time is flying by! But after meeting with my Nuerologist, I've...

Good Morning & Happy Sunday Guys!! Just an Update! My daughter Melani Grace i...

Marz91

•10 days ago

6 Replies

Pain!

I have been in bed for the past two hours crying with horrible pain, breathing like I am in labor. It seemed like the only thing that made sense. If I thought...

I have been in bed for the past two hours crying with horrible pain, breathing l...

Amore55

•10 days ago

30 Replies

nursing home

I am a 71 year old female. I live in a nursing home for 16 years. I would like to talk to someone like me.

I am a 71 year old female. I live in a nursing home for 16 years. I would like...

Girafflover

•11 days ago

28 Replies

Kesimpta

Hello, Hope everyone is ok and enjoying some sunshine. Over in the UK we aren't blessed with too much, but at the moment it is very fine :-) Anyhow, I moved...

Hello, Hope everyone is ok and enjoying some sunshine. Over in the UK we aren'...

Jasperdoo

•11 days ago

8 Replies

Mermaidia?

To some of the “old timers” here, has anyone heard from Mermaidia? She was always so much fun. I could hear her British accent in her posts! Please let us...

To some of the “old timers” here, has anyone heard from Mermaidia? She was alway...

Amore55

•11 days ago

7 Replies

Visitor

Murphy stopped by the other day to make my cat jealous.😆

falalalala

•12 days ago

32 Replies

RRMS and God

I took the diagnosis extremely bad. My first flare left me in the hospital where drs and nurses came and left and priests came to pray over me and my name was...

I took the diagnosis extremely bad. My first flare left me in the hospital where...

SuperMom1921s

•12 days ago

34 Replies

Abra cadabra

I hope this finds everyone well. It's kind of a rainy day here in Georgia. Let me come to my point to see if there are any of you who might be going through...

I hope this finds everyone well. It's kind of a rainy day here in Georgia. Let...

Atlproctor

•13 days ago

15 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for May 2024

OCrevus

PS- nothing happened in public-it was in the privacy of our room & I had a pad. it was also at midnight-he was suppose to help but oh well

taking the win and trying to accept the fact the fact that my husband is an idiot and just doesn’t get a lot of stuff

Vumerity

Autoinjector

MS Workouts

Greetings

impaction

Biomarkers to Assess Multiple Sclerosis

Overwhelmed

Bad Week

MRI Aternatives

OCrevus

Needing Advice

What's New in MS Research - May 2024

IvIg Infusions

Finally it's happened to me... homelessness.

Physical therapy, anyone?

Diagnosed in march. I can't believe its happened.

Diagnosed for 40th Birthday!

Hi my MS family 🙂

Hi my MS family 🙂

Tysabri Infusions

Pain!

nursing home

Kesimpta

Mermaidia?

Visitor

RRMS and God

Abra cadabra

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