Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

59,557 members • 66,624 posts

All posts for May 2024

Pip help

Hi lovely people I have a question i am waiting on a decision for pip and have just found out my Dr has diagnosed me with fibromyalgia amongst other ting do I...

Hi lovely people I have a question i am waiting on a decision for pip and have j...

Suzeinwoody

•3 hours ago

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Fibromyalgia Inspiration Guides Us

We are all human wherever you are in the world 🌎 We didn't ask for this pain we all bare,day in day out. Only through prayer 🙏🏻 & faith & hope,we can move...

We are all human wherever you are in the world 🌎 We didn't ask for this pain we...

Fibroguy66

•3 hours ago

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Duloxetine and sore gums

Hi everyone, Hope everyone is well as can be ☺️ I was wondering if anyone on Duloxetine or Amitriptyline experiences sore gums? I went to the dentist...

Hi everyone, Hope everyone is well as can be ☺️ I was wondering if anyone on Du...

misspicky82

•14 hours ago

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Fibromyalgia Is Destroying Me

Cannot put really into words how I feel anymore.In 1996 I was electrocuted in a terrible accident which was not my fault...

Cannot put really into words how I feel anymore.In 1996 I was electrocuted in a ...

Fibroguy66

•1 day ago

46 Replies

Think its a flare? Help

So fibro can just flare up? My neck hurts so bad & under 1 of my shoulder blades? Is this right? #frustrated

So fibro can just flare up? My neck hurts so bad & under 1 of my shoulder blades...

KBACS

•1 day ago

9 Replies

Thanking again,

Again my Fibro family Has had what I call the miracle of love, kindness and positive thoughts, At least my confusion is greatly improving, I feel there was...

Again my Fibro family Has had what I call the miracle of love, kindness and po...

Debsdelight72

•2 days ago

3 Replies

PIP telephone consultation- feeling very anxious

Good Afternoon or is it. I’m in so much pain and burning everywhere. Can anyone give me any tips, feeling anxious about my PIP Telephone Consultation on June...

Good Afternoon or is it. I’m in so much pain and burning everywhere. Can anyone ...

Fibrokim

•2 days ago

5 Replies

Anyone used Dr Dani Gordon @The London Resilience Clinic

hi I have a diagnosis of Fibromyalgia, along with underactive thyroid, arthritis, chronic fatigue (long covid) and diverticula desiease (from pain relief...

hi I have a diagnosis of Fibromyalgia, along with underactive thyroid, arthriti...

Field007

•2 days ago

5 Replies

OT Referral / Blue Badge

I am in the process of applying for PIP and my GP practice social worker recommended getting help from my local Citizens Advice when filling in the form I...

I am in the process of applying for PIP and my GP practice social worker recomme...

kikimouse17

•3 days ago

7 Replies

Amitriptyline

So hi every1 the last 3mths ive uped & uped my dose im fine for a few weeks then wake up in the most horrific pain! Is this normal?! Help

So hi every1 the last 3mths ive uped & uped my dose im fine for a few weeks then...

KBACS

•3 days ago

14 Replies

Does Anyone Ever Feel Like There Body Is Heavy Like Wearing Deep Sea Dive Suit When Walking

Really feeling like I have mentioned above & was wondering if anyone else feels the same in the physical nature etc. Most...

Really feeling like I have mentioned above & was wondering if anyone else feels ...

Fibroguy66

•3 days ago

22 Replies

Thanking

Thank you so much for your lovely kind messages, I still can't focus and as I'm typing my brain is begining to sludge Your messages of wellness and healing...

Thank you so much for your lovely kind messages, I still can't focus and as I'...

Debsdelight72

•4 days ago

1 Reply

Tina sleep

does anybody at night fall asleep for bit then awake most of night I’m always tired in the day, I have pain killers at night so help me nod of then after...

does anybody at night fall asleep for bit then awake most of night I’m always ti...

Lovecoffee

•4 days ago

8 Replies

Burning legs

Does anybody else have burning hot legs at night?

Weynouthsrb

•4 days ago

4 Replies

Does anybody else feel that their diagnosis might be wrong?

About a year ago, I was given a fibromyalgia diagnosis by a rheumatologist. It felt a bit like a diagnosis of last resort. However, I didn't know much about...

About a year ago, I was given a fibromyalgia diagnosis by a rheumatologist. It ...

Fedupandtiredout

•5 days ago

39 Replies

bladder issues

Hi Fibro Family, I hope you are all coping these days. I have a few health conditions problems with my neck (spondylitis) knee damage (Chondromalacia )...

Hi Fibro Family, I hope you are all coping these days. I have a few health co...

1499

•5 days ago

34 Replies

This Poem Goes Out To People Who Are In Relationship Who Suffer With Fibromyalgia But The Male Or Female Is Narrow Minded And Thoughtless

When you first met meYou were eager & keen Until my illness appeared And now you are so mean....

When you first met meYou were eager & keen Until my illness appeared And now you...

Fibroguy66

•6 days ago

11 Replies

Fibromyalgia Poem 4

I closed my eyesAnd tried to sleep Just lying there Counting sheep. But suddenly Without a trace Along came...

I closed my eyesAnd tried to sleep Just lying there Counting sheep. But suddenly...

Fibroguy66

•6 days ago

6 Replies

Fibromyalgia Poem 3

For where does this come fromThis terrible pain This daily nightmare Which drives you insane. Fibromyalgia Comes in all...

For where does this come fromThis terrible pain This daily nightmare Which drive...

Fibroguy66

•6 days ago

7 Replies

POTs and fibromyalgia

Hello, Hope everyone is enjoying the sun. At my rheumatologist appointment for Fibro , they performed a 'Lean Test ' and discovered there is dysfunction in...

Hello, Hope everyone is enjoying the sun. At my rheumatologist appointment fo...

Audreyrocks

•6 days ago

5 Replies

Forced to quit.

Looking for some advise, I informed my employer that I have fibromyalgia in March, I had an occupational health meeting on Monday, the school I work at was...

Looking for some advise, I informed my employer that I have fibromyalgia in Marc...

Berryzzz

•7 days ago

13 Replies

Taking the plunge ...

Hoping to lose some of my excess weight to help my poor body and reduce the pain. I don't think been overweight and having fibro are good companions....

Hoping to lose some of my excess weight to help my poor body and reduce the pai...

Dizzytwo

Moderator•7 days ago

22 Replies

Weather change fibro

Thought I would share this

Tommygurl

•7 days ago

2 Replies

Emojis in posts

We have had conversations over the years about the use of images, jokes and also emojis. Just thought I would bring it up again so people are aware. Some...

We have had conversations over the years about the use of images, jokes and also...

desquinn

Partner•8 days ago

10 Replies

Debsdelight72 is badly flaring

Please could people send her hugs 🤗and love to remind her we're thinking of her. Also hugs to all in pain 😢 and in need of a...

Please could people send her hugs 🤗and love to remind her we're thinking of her...

Smilesalot

•8 days ago

13 Replies

fibromyalgia

I have osteoarthritis and fibromyalgia does anybody feel dizzy at times, I take duloxtine, been waiting for pain mangermemt for 8 months, when rain the pain so...

I have osteoarthritis and fibromyalgia does anybody feel dizzy at times, I take ...

Lovecoffee

•8 days ago

10 Replies

Lymphatic drainage ,pain and swelling

Good morning I hope you all feel well or better than usual where I have been in so much pain again lots of places u know what I mean but particularly down my...

Good morning I hope you all feel well or better than usual where I have been in ...

Jugglinglife

•8 days ago

1 Reply

Weather

It rained all day yesterday and a bit today ...Today I have been in so much pain . I went to work it's got worse as the days gone on . My head and neck and...

It rained all day yesterday and a bit today ...Today I have been in so much pain...

Tommygurl

•8 days ago

6 Replies

Allergies and Fibromyalgia

I don't know if this well help anybody but even if it helps one person, then that would be great. I haven't posted on here for a very long time but feel I...

I don't know if this well help anybody but even if it helps one person, then tha...

Sally444

•9 days ago

9 Replies

Supporting evidence for PIP

I’m ploughing through the online form and it keeps saying about supporting evidence. I was diagnosed in 2021 by my then GP in the midlands over the Covid...

I’m ploughing through the online form and it keeps saying about supporting evide...

Gulfstream_Maggie

•10 days ago

12 Replies

Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

All posts for May 2024

Pip help

Fibromyalgia Inspiration Guides Us

Duloxetine and sore gums

Fibromyalgia Is Destroying Me

Think its a flare? Help

Thanking again,

PIP telephone consultation- feeling very anxious

Anyone used Dr Dani Gordon @The London Resilience Clinic

OT Referral / Blue Badge

Amitriptyline

Does Anyone Ever Feel Like There Body Is Heavy Like Wearing Deep Sea Dive Suit When Walking

Thanking

Tina sleep

Burning legs

Does anybody else feel that their diagnosis might be wrong?

bladder issues

This Poem Goes Out To People Who Are In Relationship Who Suffer With Fibromyalgia But The Male Or Female Is Narrow Minded And Thoughtless

Fibromyalgia Poem 4

Fibromyalgia Poem 3

POTs and fibromyalgia

Forced to quit.

Taking the plunge ...

Weather change fibro

Emojis in posts

Debsdelight72 is badly flaring

fibromyalgia

Lymphatic drainage ,pain and swelling

Weather

Allergies and Fibromyalgia

Supporting evidence for PIP

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