Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

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Methotrexate and sun sensitivity

Hullo,Does anyone have advice on what happens to your skin after stopping MTX.I have been on MTX for 2 years for LVV,the first year at 20mg the second at...

Hullo,Does anyone have advice on what happens to your skin after stopping MTX.I ...

Oxfordboy2

•7 hours ago

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May - Vasculitis Awareness Month

May - Day 19 Vasculitis Awareness Month. Vasculitis is difficult to diagnose as it presents in many different ways and clinicians have to think out of the...

May - Day 19 Vasculitis Awareness Month. Vasculitis is difficult to diagnose as...

zoe69

Administrator•12 hours ago

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A few developments - anybody got similar

Don’t want to bore you all but I have had a couple of developments recently apart from having my Rituximab extended for another year. Firstly I am on statins...

Don’t want to bore you all but I have had a couple of developments recently apar...

Investigator1

•18 hours ago

8 Replies

Want to take advantage of all our features? Just log in!

Have your say on the way your services are working for your Rare Autoimmune Rheumatic Disease (RAIRD)

https://linktr.ee/rairdauk The link will tell you more about the survey Please complete this survey if you have not already done so - thank you Closing...

https://linktr.ee/rairdauk The link will tell you more about the survey Plea...

Suzi70

Administrator•1 day ago

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Where have all the patient posts gone?

I used to find the posts from other patients very useful but now I don't see any, just bits to say it is Vasculitis Awareness month or something.

I used to find the posts from other patients very useful but now I don't see any...

amms43

•2 days ago

8 Replies

May-Vasculitis Awareness Day

May - Day 18 #vasculitis awareness month. Vasculitis can be an ''invisible'' illness. Ali says: 'When people see me, they tell me how well I look, and if...

May - Day 18 #vasculitis awareness month. Vasculitis can be an ''invisible'' i...

zoe69

Administrator•2 days ago

1 Reply

eGFR During Induction

Hello I started induction treatment about a month ago with very limited eGFR change and was wondering for those who have gone a full 6 months whether it...

Hello I started induction treatment about a month ago with very limited eGFR cha...

Atimlin_1

•2 days ago

9 Replies

May- Vasculitis Awareness Month

May - Day 17 vasculitis awareness month. The impact of vasculitis on every aspect of the patient's life is big. Take a moment to read Sophie's story. To...

May - Day 17 vasculitis awareness month. The impact of vasculitis on every asp...

zoe69

Administrator•2 days ago

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May - Vasculitis Awareness Month

May - Day 16 vasculitis awareness month. Early diagnosis and treatment are the key for best prognosis! Take a moment to read Helen's story! To donate to...

May - Day 16 vasculitis awareness month. Early diagnosis and treatment are the...

zoe69

Administrator•4 days ago

2 Replies

International Vasculitis Awareness Day

Today is International Vasculitis Awareness Day! Spread the word! May - Day 15 #vasculitis awareness month. Life is beautiful, don't let vasculitis tell...

Today is International Vasculitis Awareness Day! Spread the word! May - Day 15...

zoe69

Administrator•5 days ago

2 Replies

May is Vasculitis awareness month

May - Day 14 #vasculitis awareness month. Vasculitis is a life changing illness! Take a moment to read Wendy's story! To donate to #VasculitisUK ‘s...

May - Day 14 #vasculitis awareness month. Vasculitis is a life changing illnes...

zoe69

Administrator•6 days ago

2 Replies

A day late - May Vasculitis Awareness Month

May - Day 13 #vasculitis awareness month. Behcets is a very rare type of vasculitis and not an easy one to live with. Take a moment to read Helen's story!...

May - Day 13 #vasculitis awareness month. Behcets is a very rare type of vascu...

zoe69

Administrator•6 days ago

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Save the date: Tuesday 21 May 2024

ERN RITA & EUVAS webinar: Infections in ANCA Associated Vasculitis Save the date: Tuesday 21 May 2024, 12:00-13:00 CET | You can find all ERN RITA...

ERN RITA & EUVAS webinar: Infections in ANCA Associated Vasculitis Save the dat...

zoe69

Administrator•7 days ago

6 Replies

May - Vasculitis Awareness Month

We have noticed that the awareness posts have been dominating the community page and we see less posts from our members. Therefore, with exception of the...

We have noticed that the awareness posts have been dominating the community page...

zoe69

Administrator•8 days ago

6 Replies

May is vasculitis awareness month

Our chair Dorothy Ireland has a special birthday today! Happy 70th Dorothy! May - Day 11 #vasculitis awareness month. Let's celebrate Dorothy's special...

Our chair Dorothy Ireland has a special birthday today! Happy 70th Dorothy! Ma...

zoe69

Administrator•9 days ago

5 Replies

May is vasculitis awareness month

May - Day 10 #vasculitis awareness month. Vasculitis can present in many different ways. GPA can affect the nose and make it collapse, it causes saddle nose....

May - Day 10 #vasculitis awareness month. Vasculitis can present in many diffe...

zoe69

Administrator•10 days ago

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May is vasculitis awareness month

May - Day 9 #vasculitis awareness month. Takayasu Arteritis is a rare type of Vasculitis with the initial symptoms arising in those between 5 and 40 years of...

May - Day 9 #vasculitis awareness month. Takayasu Arteritis is a rare type of ...

zoe69

Administrator•11 days ago

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May is vasculitis awareness month

May - Day 8 #vasculitis awareness month. Vasculitis can be severe, even fatal if not treated in time and correctly. GPA can severily affect kidneys and lungs...

May - Day 8 #vasculitis awareness month. Vasculitis can be severe, even fatal ...

zoe69

Administrator•12 days ago

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Exercise and Vasculitis

Hello, recently diagnosed with renal-limited vasculitis and trying to adjust lifestyle as best I can. Quit alcohol and eating a healthy diet which feels...

Hello, recently diagnosed with renal-limited vasculitis and trying to adjust lif...

Atimlin_1

•12 days ago

15 Replies

May is vasculitis awareness month

May - Day 7 #vasculitis awareness month. Fatigue is not tiredness, you don't need a good night's sleep to get over it. It is more about pacing and accepting...

May - Day 7 #vasculitis awareness month. Fatigue is not tiredness, you don't nee...

zoe69

Administrator•13 days ago

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May is Vasculitis Awarenes Month

May - Day 6 #vasculitis awareness month. Granulomatosis of Polyangiitis or GPA (former Wegener's) is the most common of the ANCA associated vasculitisdes,...

May - Day 6 #vasculitis awareness month. Granulomatosis of Polyangiitis or GPA...

zoe69

Administrator•14 days ago

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May is Vasculitis Awarenes Month

May - Day 5 Vasculitis Awareness Month. #vasculitis is a chronic autoimmune rheumatic disease. Living with it can be very challenging, not only physically,...

May - Day 5 Vasculitis Awareness Month. #vasculitis is a chronic autoimmune rh...

zoe69

Administrator•15 days ago

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May is Vasculitis Awareness Month

May - Day 4 Vasculitis Awareness Month. #vasculitis is a chronic autoimmune rheumatic disease. Flare ups are common. Eary diagnosis and early and correct...

May - Day 4 Vasculitis Awareness Month. #vasculitis is a chronic autoimmune rh...

zoe69

Administrator•16 days ago

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Hemosiderin staining?

Hi, Has anyone else experienced this? I’ve woken up today with rust like staining, mainly on my left hand with a little on my right. No logical cause from...

Hi, Has anyone else experienced this? I’ve woken up today with rust like stain...

Allotmental

•16 days ago

6 Replies

May - Vasculitis awareness month

May - Day 3 #vasculitis awareness month. Granulomatosis of Polyangiitis or GPA (former Wegener's) is an ANCA assosiated vasculitis and can be severe, even...

May - Day 3 #vasculitis awareness month. Granulomatosis of Polyangiitis or GPA...

zoe69

Administrator•17 days ago

1 Reply

Invitation

This will be very interesting and I encourage you to attend in person if you can or online. It is an opportunity to raise the patients' voice . If you will...

This will be very interesting and I encourage you to attend in person if you can...

zoe69

Administrator•17 days ago

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Vasculitis Treatment 2

Hello, tomorrow I have my 2nd vasculitis treatment (high-dose steroids plus rituximab) and just wondering if there is much difference between the 1st and 2nd...

Hello, tomorrow I have my 2nd vasculitis treatment (high-dose steroids plus ritu...

Atimlin_1

•18 days ago

12 Replies

Vasculitis Awarenes Month

May is vasculitis awareness month. Microscopic Polyangiitis (MPA) is inflammation of the small and sometimes medium sized blood vessels. It usually affects...

May is vasculitis awareness month. Microscopic Polyangiitis (MPA) is inflammati...

zoe69

Administrator•18 days ago

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Vasculitis Awareness Month

Vasculitis Awareness Month is here!Let's spread the word! Remember, every penny counts. If you can, please support VUK:...

Vasculitis Awareness Month is here!Let's spread the word! Remember, every penny...

zoe69

Administrator•19 days ago

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Covid vaccine

this morning I paid for a Covid vaccine £65. I was given the Novavax. Excellent service, not far to travel but annoying that I was not given it on the NHS as...

this morning I paid for a Covid vaccine £65. I was given the Novavax. Excellen...

Main1234

•19 days ago

2 Replies

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Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

Methotrexate and sun sensitivity

May - Vasculitis Awareness Month

A few developments - anybody got similar

Have your say on the way your services are working for your Rare Autoimmune Rheumatic Disease (RAIRD)

Where have all the patient posts gone?

May-Vasculitis Awareness Day

eGFR During Induction

May- Vasculitis Awareness Month

May - Vasculitis Awareness Month

International Vasculitis Awareness Day

May is Vasculitis awareness month

A day late - May Vasculitis Awareness Month

Save the date: Tuesday 21 May 2024

May - Vasculitis Awareness Month

May is vasculitis awareness month

May is vasculitis awareness month

May is vasculitis awareness month

May is vasculitis awareness month

Exercise and Vasculitis

May is vasculitis awareness month

May is Vasculitis Awarenes Month

May is Vasculitis Awarenes Month

May is Vasculitis Awareness Month

Hemosiderin staining?

May - Vasculitis awareness month

Invitation

Vasculitis Treatment 2

Vasculitis Awarenes Month

Vasculitis Awareness Month

Covid vaccine

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