Posts - The UK Mastocytosis Support Group | HealthUnlocked

The UK Mastocytosis Support Group

549 members • 244 posts

All posts for April 2021

Antibody test

Hi all, has anyone been offered or requested an antibody test after two doses of vaccine? As many of us will be immunocompromised it would be good to know how...

Hi all, has anyone been offered or requested an antibody test after two doses of...

Stone17

•3 years ago

6 Replies

UP and food intolerances

Hey guys, I have UP and have recently been experiencing periods of fatigue particularly in the early afternoon and evening. I’ve never had any known allergies...

Hey guys, I have UP and have recently been experiencing periods of fatigue parti...

Jazzsinger77

•3 years ago

4 Replies

Xolair

Does anyone have any experience with Xolair for reoccurring infections, a stubborn bladder infection, inflammation and mast cells that won’t calm down!? Thank...

Does anyone have any experience with Xolair for reoccurring infections, a stubbo...

JKUK

•3 years ago

1 Reply

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Peer support for my friend to work through PTSD & alcohol dependency from MCAS

I'm here to help my dear, wonderful friend find supportive peers who have also struggled with the PTSD that came from the trauma of MCAS. She's working to end...

I'm here to help my dear, wonderful friend find supportive peers who have also s...

Caringforafriend

•3 years ago

4 Replies

Might I have Mastocytosis rather than MCAS?

Hi, I experienced a very strange phenomenon last night that I've never had before and it's made me question my diagnosis of MCAS. I had a reheated (pretty...

Hi, I experienced a very strange phenomenon last night that I've never had befor...

Chancery

•3 years ago

15 Replies

GP just not listening

I was diagnosed with UP in 2017 and at the time I had a serum tryptase blood test which came back normal. I was prescribed 40mg of loratadine a day as a...

I was diagnosed with UP in 2017 and at the time I had a serum tryptase blood tes...

CCottrell93

•3 years ago

2 Replies

MCAS experts

Hi everyone Does anyone know of any MCAS experts in the UK? Ideally London. I’m just doing my research! Thank you

Hi everyone Does anyone know of any MCAS experts in the UK? Ideally London. ...

JKUK

•3 years ago

5 Replies

Cats and Dogs

Hi everyone, I have MCAS - which has been flaring up a lot for the past year. Does anyone have any experience with cats or dogs? Are you much worse when...

Hi everyone, I have MCAS - which has been flaring up a lot for the past year. ...

JKUK

•3 years ago

1 Reply

Anyone with UP had these symptoms?

Hi guys, This may be unrelated to my ultcaria pigmentosa. but wondering if any of you have ever had any of these symptoms or could explain them: -occasional...

Hi guys, This may be unrelated to my ultcaria pigmentosa. but wondering if any o...

Jazzsinger77

•3 years ago

13 Replies

Which is safe food?

I'm new here. I would appreciate some information for my friend who can't eat anything without often having (severe) diarrhea, bloating, pain in the Douglas...

I'm new here. I would appreciate some information for my friend who can't eat a...

Greteltje

•3 years ago

4 Replies

Newbie

Hi I’m new to this support group and wanting to see if anyone can relate or help me to understand some symptoms I have. In November I had a big and severe...

Hi I’m new to this support group and wanting to see if anyone can relate or he...

Girlwithallergy

•3 years ago

2 Replies

Good news & bad news

Hi all I hope everyone is enjoying the sun shine. Any way so I was looking through my journal and the meds I take. I’m on duloxetien which is amazing for pain...

Hi all I hope everyone is enjoying the sun shine. Any way so I was looking throu...

Tiggerakafidgity

•3 years ago

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Another gastric flare-up

Hi everyone, I'm new here, although I did participate at the conference and Agm in January, which by the way was great (thank you very much Jess). Just...

Hi everyone, I'm new here, although I did participate at the conference and Agm ...

bcbg57

•3 years ago

8 Replies

Refused COVID-19 vaccination

Hi all I’m new to this part of the site but oftern frequent the other parts with my on going illnesses lol. Well,I merrily turned up to get the injection after...

Hi all I’m new to this part of the site but oftern frequent the other parts with...

Tiggerakafidgity

•3 years ago

12 Replies

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Posts - The UK Mastocytosis Support Group | HealthUnlocked

The UK Mastocytosis Support Group

All posts for April 2021

Antibody test

UP and food intolerances

Xolair

Peer support for my friend to work through PTSD & alcohol dependency from MCAS

Might I have Mastocytosis rather than MCAS?

GP just not listening

MCAS experts

Cats and Dogs

Anyone with UP had these symptoms?

Which is safe food?

Newbie

Good news & bad news

Another gastric flare-up

Refused COVID-19 vaccination

Search posts

Pinned Posts

Latest poll

Which Adrenaline Auto-Injector (AAI) do you prefer?

Topics

Archive