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Peroxisome biogenesis disorders
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Loss of weight and appetite
Hi All, as you know I have now been on buprenorphine tablets (low dose) for 10 months with HUGE success.I have recently flown 11 hours from Heathrow to Arizona with NO RLS. My legs did go crazy for my first few days in the US until I worked out the time difference. My question is has anyone lost weight
Hi All, as you know I have now been on buprenorphine tablets (low dose) for 10 months with HUGE success.I have recently flown 11 hours from Heathrow to Arizona with NO RLS. My legs did go crazy for my first few days in the US until I worked out the time difference. My question is has anyone lost weight
Simkin
in
Restless Legs Syndrome
6 hours ago
Mirapexin Oxycodone
Hi, I have just had an appointment with a neurologist at UCL neurological hospital in London Queens Sq. I need to come off Mirapexin for the second time and ha ve been managing the withdrawals myself with the help of TramadolI had set such store to this appointment but came away so disappointed. The
Hi, I have just had an appointment with a neurologist at UCL neurological hospital in London Queens Sq. I need to come off Mirapexin for the second time and ha ve been managing the withdrawals myself with the help of TramadolI had set such store to this appointment but came away so disappointed. The
keiralee
in
Restless Legs Syndrome
8 hours ago
Good News!!!
My dr. approved the buprenorphine for me. I am thinking positive that it will work. She is giving me the patch. I am excited. I have to discontinue the horizant though which surprised me and of course discontinue the oxycodone. Hopefully now you won't have to listen to me complaining and I will
My dr. approved the buprenorphine for me. I am thinking positive that it will work. She is giving me the patch. I am excited. I have to discontinue the horizant though which surprised me and of course discontinue the oxycodone. Hopefully now you won't have to listen to me complaining and I will
lorri214
in
Restless Legs Syndrome
1 day ago
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Does Anyone Ever Feel Like There Body Is Heavy Like Wearing Deep Sea Dive Suit When Walking
[i]Really feeling like I have mentioned above & was wondering if anyone else feels the same in the physical nature etc.[/i]
[i] [/i]
[i]Most oddest of feelings I must say.[/i]
[i] [/i]
[i]I'm not over weight at all infact I have a very good athletic physique [/i]
[i]Really feeling like I have mentioned above & was wondering if anyone else feels the same in the physical nature etc.[/i]
[i] [/i]
[i]Most oddest of feelings I must say.[/i]
[i] [/i]
[i]I'm not over weight at all infact I have a very good athletic physique [/i]
Fibroguy66
in
Fibromyalgia Action UK
3 days ago
79946
Had PLMD for 6 years, I'm 79 and on no PLMD medication at present. The symptoms have worsened. Has anyone with below symptoms found any successful medication please? Kicking, and shaking in bed, restlessness, up and down all night, acting out dreams, sleeping on toilet, at basin, standing up, sitting
Had PLMD for 6 years, I'm 79 and on no PLMD medication at present. The symptoms have worsened. Has anyone with below symptoms found any successful medication please? Kicking, and shaking in bed, restlessness, up and down all night, acting out dreams, sleeping on toilet, at basin, standing up, sitting
79946
in
Restless Legs Syndrome
6 days ago
supplementary question ! Ubiquinol
sorry meant to also ask has anyone found taking Ubiquinol helps T4/T3 conversion? Thank you!
sorry meant to also ask has anyone found taking Ubiquinol helps T4/T3 conversion? Thank you!
Indigourchin
in
Thyroid UK
7 days ago
horizant awful
Today was my first day taking horizant and probably my last. I cant lay down for more than a secon d. I am in such agony. tomorrow i will go back on mirapex if my legs dont get better. since it is a long weekend o dr. is not available I am walking and crying all night long. I think I need a new
Today was my first day taking horizant and probably my last. I cant lay down for more than a secon d. I am in such agony. tomorrow i will go back on mirapex if my legs dont get better. since it is a long weekend o dr. is not available I am walking and crying all night long. I think I need a new
lorri214
in
Restless Legs Syndrome
7 days ago
Permanent AFib
Started on Digoxin .25 daily for past six days and cut Lopressor down to 25 twice a day. Am going to try to wean off. HR 80-110. Generally do not feel well and am going to revisit ablation. I had blurring of vision and dizziness on higher doses of Lopressor alone. Last cardioversion only lasted
Started on Digoxin .25 daily for past six days and cut Lopressor down to 25 twice a day. Am going to try to wean off. HR 80-110. Generally do not feel well and am going to revisit ablation. I had blurring of vision and dizziness on higher doses of Lopressor alone. Last cardioversion only lasted
farewelltoarms
in
Atrial Fibrillation Support
9 days ago
Abra cadabra
I hope this finds everyone well. It's kind of a rainy day here in Georgia. Let me come to my point to see if there are any of you who might be going through the same thing as me. Every once in awhile I get what I've been calling over the years "spells". I suddenly become unbelievably sleepy. I can
I hope this finds everyone well. It's kind of a rainy day here in Georgia. Let me come to my point to see if there are any of you who might be going through the same thing as me. Every once in awhile I get what I've been calling over the years "spells". I suddenly become unbelievably sleepy. I can
Atlproctor
in
My MSAA Community
15 days ago
Nebivolol 2.5mg
I started Nebivolol for my AFIB about one month ago for my heart rate! I like the drug but seem to have a lot of gas on my stomach! Has anyone else had this problem?
I started Nebivolol for my AFIB about one month ago for my heart rate! I like the drug but seem to have a lot of gas on my stomach! Has anyone else had this problem?
BaileyC57
in
Atrial Fibrillation Support
16 days ago
medication timing???
I am now almost 4 weeks free of Pramipexole 😀 I feel like I am over the worst ( back from hell) but I’m now religiously waking at 11pm then again at 12pm (and sometimes at 1am) with RLS. I have a 10 minute walk around the house and this does ease my pain. I am slowly increasing my Gabapentin dose and
I am now almost 4 weeks free of Pramipexole 😀 I feel like I am over the worst ( back from hell) but I’m now religiously waking at 11pm then again at 12pm (and sometimes at 1am) with RLS. I have a 10 minute walk around the house and this does ease my pain. I am slowly increasing my Gabapentin dose and
Cookiebum24
in
Restless Legs Syndrome
21 days ago
Extremely tired of chemical castration
I'm interested in chatting with those who have had an orchiectomy, guess thats how you spell it. I'm tired of all the side affects of cancer drugs and all the problems they cause to my body so I'm concidering having an orchiectomy. Yes I know all about what happens when you get this but as far as I'm
I'm interested in chatting with those who have had an orchiectomy, guess thats how you spell it. I'm tired of all the side affects of cancer drugs and all the problems they cause to my body so I'm concidering having an orchiectomy. Yes I know all about what happens when you get this but as far as I'm
woppaginny
in
Advanced Prostate Cancer
22 days ago
Vimpat is working for severe RLS and PLMD
I’ve had almost complete resolution of my RLS on Vimpat (lacosamide) now at 150 mg at 10 am and 10 pm. This is a remarkable turnaround in my symptoms. I started on 50 twice a day and the effect started to wane with a tolerable amount of breakthrough RLS. I increased to 100 twice a day after several weeks
I’ve had almost complete resolution of my RLS on Vimpat (lacosamide) now at 150 mg at 10 am and 10 pm. This is a remarkable turnaround in my symptoms. I started on 50 twice a day and the effect started to wane with a tolerable amount of breakthrough RLS. I increased to 100 twice a day after several weeks
SleeplessinNC
in
Restless Legs Syndrome
25 days ago
Intermittent RLS: why carbidopa/levodopa????
Can anyone enlighten me as to why the Mayo Clinic suggests carbidopa/levodopa (sinemet) as prn therapy as opposed to ropinorole/pramipexole? I used to have persistent RLS (managed with ropinorole) which thankfully stopped after I stopped my SSRI. Now it’s intermittent and I can’t understand why I should
Can anyone enlighten me as to why the Mayo Clinic suggests carbidopa/levodopa (sinemet) as prn therapy as opposed to ropinorole/pramipexole? I used to have persistent RLS (managed with ropinorole) which thankfully stopped after I stopped my SSRI. Now it’s intermittent and I can’t understand why I should
Petru
in
Restless Legs Syndrome
27 days ago
oxycodone and buprenorphine experiment
as you all may know, I thought buprenorphine was causing some pain issues so I quit taking it and went back to 5 mg of oxycodone three times a day. I gave it a solid month to be sure. this was a terrible terrible mistake. it appears the buprenorphine has changed my body. The oxy was not only mostly
as you all may know, I thought buprenorphine was causing some pain issues so I quit taking it and went back to 5 mg of oxycodone three times a day. I gave it a solid month to be sure. this was a terrible terrible mistake. it appears the buprenorphine has changed my body. The oxy was not only mostly
Marlayna67
in
Restless Legs Syndrome
29 days ago
Hives
Hi Everyone! Disgusting outbreak of hives. I have been lucky - been awhile. Usually later on in the summer. any rec’s? I am on the east coast not too sunny yet OTC & calamine. chill Any suggestions? 🎱☔️ Ty
Hi Everyone! Disgusting outbreak of hives. I have been lucky - been awhile. Usually later on in the summer. any rec’s? I am on the east coast not too sunny yet OTC & calamine. chill Any suggestions? 🎱☔️ Ty
Tennisbum
in
Hughes Syndrome APS Forum
1 month ago
Prebiotic Probiotic Antibiotic... What's the deal?
Ok... Antibiotic is just added to the post title for rhyming. This post is not about antibiotic. So what is this about? Bacillus Subtilis PXN21 beneficial for PD... And Bio-Kult sells out. Thankfully pvw2 pointed out that any Subtilis strain works L. Plantarum PS128 beneficial for PD... And
Ok... Antibiotic is just added to the post title for rhyming. This post is not about antibiotic. So what is this about? Bacillus Subtilis PXN21 beneficial for PD... And Bio-Kult sells out. Thankfully pvw2 pointed out that any Subtilis strain works L. Plantarum PS128 beneficial for PD... And
JayPwP
in
Cure Parkinson's
1 month ago
How to handle going off mirapex
My neurologist decided to take me off mirapex. This is a new neurologist since mine retired. She specializes in sleep problems. I also have sleep apnea. I dont know why she decided to take me off mirapex. When she told me I was in a state of shock. I also take oxycodone. She is taking me off
My neurologist decided to take me off mirapex. This is a new neurologist since mine retired. She specializes in sleep problems. I also have sleep apnea. I dont know why she decided to take me off mirapex. When she told me I was in a state of shock. I also take oxycodone. She is taking me off
lorri214
in
Restless Legs Syndrome
1 month ago
Pee problems
Lately my hypochondria has been in over-drive. I have incontinence. That is, when I feel like I'm done , and zip -up, I shortly see fluid has soaked into my denims. I use Myrbetriq, a drug to lessen bladder spasms. It works, that is, when I'm done I don't feel the urge to continue peeing
Lately my hypochondria has been in over-drive. I have incontinence. That is, when I feel like I'm done , and zip -up, I shortly see fluid has soaked into my denims. I use Myrbetriq, a drug to lessen bladder spasms. It works, that is, when I'm done I don't feel the urge to continue peeing
kaypeeoh
in
Cure Parkinson's
1 month ago
Motion Sickness
At the ripe old age of 77, I will be taking my first cruise this summer with my children and grandchildren. I'm trying to be prepared for anything so I asked my doctor about medications for motion sickness. He said I would not be able to use the patch that is worn behind the ear because it can cause
At the ripe old age of 77, I will be taking my first cruise this summer with my children and grandchildren. I'm trying to be prepared for anything so I asked my doctor about medications for motion sickness. He said I would not be able to use the patch that is worn behind the ear because it can cause
JudyMarieC
in
Atrial Fibrillation Support
1 month ago
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