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Experiences with
Hypomyelination and congenital cataract
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GCA-Diagnosis
So far on my journey after diagnosis of GCA was put on 60 mg Prednisone and went down slowly to none. Have been on Actemra shot weekly for 16 months now with no flare. Has anyone gotten of Actemra as well as Prednisone with no problems?
So far on my journey after diagnosis of GCA was put on 60 mg Prednisone and went down slowly to none. Have been on Actemra shot weekly for 16 months now with no flare. Has anyone gotten of Actemra as well as Prednisone with no problems?
LRevell
in
PMRGCAuk
3 days ago
Get Your Cataracts Treated!
Age-Related Macular Degeneration sufferers experience a gradual deterioration in their sight due to changes in the macular. Most sufferers are, of a certain age! Another common age-related eye condition is the development of a cataract, so it is not unusual to suffer from both conditions simultaneously
Age-Related Macular Degeneration sufferers experience a gradual deterioration in their sight due to changes in the macular. Most sufferers are, of a certain age! Another common age-related eye condition is the development of a cataract, so it is not unusual to suffer from both conditions simultaneously
Engineer46
in
Macular Society
5 days ago
Steroid injection and surgery
Hi all , I'm just wondering if anyone knows how long you have to wait after steroid injection in the bottom before having gallbladder removal I've been told operation will be in 2 to 3 mths unless a cancellation comes in. But a friend said I'll have to wait 3mths now
Hi all , I'm just wondering if anyone knows how long you have to wait after steroid injection in the bottom before having gallbladder removal I've been told operation will be in 2 to 3 mths unless a cancellation comes in. But a friend said I'll have to wait 3mths now
Trishfrog1
in
NRAS
28 days ago
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Anesthesia and PD
I’m planning on having Morton’s neuroma surgery in a few weeks, unless I chicken out! I’m concerned about any negative effects because of anesthesia . I’m going to check to see if doing some type of block instead of General, is a possibility. Has anyone had that operation, or have experience with different
I’m planning on having Morton’s neuroma surgery in a few weeks, unless I chicken out! I’m concerned about any negative effects because of anesthesia . I’m going to check to see if doing some type of block instead of General, is a possibility. Has anyone had that operation, or have experience with different
Ob6842
in
Cure Parkinson's
2 months ago
Improvement of Blood Plasmalogens and Clinical Symptoms in Parkinson's Disease by Oral Administration of Ether Phospholipids:
You got plasmalogen? Any one likes scallops? It is a lengthy article, but our HU scientists will give us their opinion. I have to find the supplement now! https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7049862/
You got plasmalogen? Any one likes scallops? It is a lengthy article, but our HU scientists will give us their opinion. I have to find the supplement now! https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7049862/
Despe
in
Cure Parkinson's
2 months ago
Taking Betmiga with Pred for Urine Control?
Just wondered if anyone takes Betmiga (Mirabegron) for better urine control and if it is advisable? Since having PMR from 2022 I have frequency and urgency bladder issues, particularly at night. I would love to sleep the night through or travel without angst! While I am on, glad to say I had the
Just wondered if anyone takes Betmiga (Mirabegron) for better urine control and if it is advisable? Since having PMR from 2022 I have frequency and urgency bladder issues, particularly at night. I would love to sleep the night through or travel without angst! While I am on, glad to say I had the
Motida
in
PMRGCAuk
2 months ago
Actemra and Extremely Fast Taper off of Prednisone
I didn't expect the following during my last appointment with my Rheumatologist: I told her that some symptoms were resurfacing after having reduced from 20mg for 2 weeks to 17.5mg, for 2 weeks (due to go down to 15mg. 2 days after appt), slight pressure in left temple and newly developed persistent
I didn't expect the following during my last appointment with my Rheumatologist: I told her that some symptoms were resurfacing after having reduced from 20mg for 2 weeks to 17.5mg, for 2 weeks (due to go down to 15mg. 2 days after appt), slight pressure in left temple and newly developed persistent
newsusy
in
PMRGCAuk
3 months ago
Get Your Cataracts Treated - Part 2
Please read my earlier "Get Your Cataracts Treated" post first and, if it sounds as if you may be having a similar experience, you can use a simple test to see how your eyes compare with other people who don't have cataracts. The test determines how well you can read very faint type. It consists of
Please read my earlier "Get Your Cataracts Treated" post first and, if it sounds as if you may be having a similar experience, you can use a simple test to see how your eyes compare with other people who don't have cataracts. The test determines how well you can read very faint type. It consists of
Engineer46
in
Macular Society
5 days ago
cataract surgery and prednisolone dose
This morning I had my eyes tested. This time last year I was told I had the beginnings of a cataract in my left eye, due to prednisolone. Today I was told that, thanks to prednisolone, the cataract is now ready for surgery. I said I didn't want it yet, because I am trying to get my prednisolone dose
This morning I had my eyes tested. This time last year I was told I had the beginnings of a cataract in my left eye, due to prednisolone. Today I was told that, thanks to prednisolone, the cataract is now ready for surgery. I said I didn't want it yet, because I am trying to get my prednisolone dose
musicalJ
in
PMRGCAuk
1 month ago
UPDATE ON CATARACT SURGERY
Hi all! Had my right eye done yesterday. Seems to have gone very well. Easy peezy. Good drugs. Took about 20 minutes at the most. Everything is so much brighter today. I can now see the dirt on my floors. Nasty! I didn't realize how difficult reading was and my specs weren't helping. Lol. I do have 3
Hi all! Had my right eye done yesterday. Seems to have gone very well. Easy peezy. Good drugs. Took about 20 minutes at the most. Everything is so much brighter today. I can now see the dirt on my floors. Nasty! I didn't realize how difficult reading was and my specs weren't helping. Lol. I do have 3
Missus835
in
PMRGCAuk
2 months ago
CATARACT SURGERY & PRED
Hi all. On Monday past I was supposed to drop my pred down to 10 mg. Instead, since Ive been in so much arm, shoulder, and neck pain I felt like I was flaring due to the fast taper rheumy has me on - I upped it to 16 mg for a few days. Today they called to say I could have my right eye cataract surgery
Hi all. On Monday past I was supposed to drop my pred down to 10 mg. Instead, since Ive been in so much arm, shoulder, and neck pain I felt like I was flaring due to the fast taper rheumy has me on - I upped it to 16 mg for a few days. Today they called to say I could have my right eye cataract surgery
Missus835
in
PMRGCAuk
2 months ago
Is there a link with taking Forstair and cataracts?
I was diagnosed with late onset asthma just before the first Covid lockdown. My eyes were always fine until then, but within a year of taking Forstair I was diagnosed with cataracts in both eyes. My research suggests the steroid in the inhaler might be responsible, but it has been dismissed by my GP
I was diagnosed with late onset asthma just before the first Covid lockdown. My eyes were always fine until then, but within a year of taking Forstair I was diagnosed with cataracts in both eyes. My research suggests the steroid in the inhaler might be responsible, but it has been dismissed by my GP
AllotmentNanna
in
Asthma Community Forum
4 months ago
is elective surgery safe to have when you are having an Ra flare ?
hello I am due to have surgery soon, my flare is still ongoing, waiting for new drugs to work, added hydroxy 200mg daily to my ongoing mtx 15mg weekly because stopping the hydroxy caused the flare. been 7 weeks since restarting hydroxy and no sign of hydroxy working yet. my elective surgery is due
hello I am due to have surgery soon, my flare is still ongoing, waiting for new drugs to work, added hydroxy 200mg daily to my ongoing mtx 15mg weekly because stopping the hydroxy caused the flare. been 7 weeks since restarting hydroxy and no sign of hydroxy working yet. my elective surgery is due
lindyloo2018
in
NRAS
4 months ago
upcoming cataract surgery
Any advice? do I take prednisone after surgery since I will be fasting overnight? How long do I have to wait until I can bend over? Does it take longer to heal with prednisone? I'm on 3 mg.
Any advice? do I take prednisone after surgery since I will be fasting overnight? How long do I have to wait until I can bend over? Does it take longer to heal with prednisone? I'm on 3 mg.
Paperroses
in
PMRGCAuk
3 months ago
Heart meds and sunlight sensitivity
I am currently taking these post cardioversion (procedure successful early November 2022) meds: morning: Entresto sacubitril/valsartan 24mg/26mg Apixiban 5mg Bisoprolol Fumarate 5 mg Spironolactone 25mg Dapagliflozin 10mg evening: Entresto sacubitril/valsartan 24mg/26mg Apixiban 5mg Bisoprolol
I am currently taking these post cardioversion (procedure successful early November 2022) meds: morning: Entresto sacubitril/valsartan 24mg/26mg Apixiban 5mg Bisoprolol Fumarate 5 mg Spironolactone 25mg Dapagliflozin 10mg evening: Entresto sacubitril/valsartan 24mg/26mg Apixiban 5mg Bisoprolol
thurstonloveseva
in
AF Association
5 months ago
Advice on Cataract surgery / narrow angle
Hi all, First I must apologise, I am new to Glaucoma and looking to get some guidance from ideally someone who may have had a similar experience. I am a 44 year old male who was diagnosed with narrow angles following a routine eye exam. My eyesight is pretty good and I only wear reading glasses occasionally
Hi all, First I must apologise, I am new to Glaucoma and looking to get some guidance from ideally someone who may have had a similar experience. I am a 44 year old male who was diagnosed with narrow angles following a routine eye exam. My eyesight is pretty good and I only wear reading glasses occasionally
Martyn321
in
Glaucoma UK
10 days ago
Cataract surgery
I often read the experiences on CLL shared by our group on HealthUnlocked, and it's reassuring. I was diagnosed with CLL in 2013. After a long period of watch and wait (W&W), I was given only 2 cycles of chemo (BR) in 2019 instead of the planned 6 cycles due to severe side effects. Fortunately, I experienced
I often read the experiences on CLL shared by our group on HealthUnlocked, and it's reassuring. I was diagnosed with CLL in 2013. After a long period of watch and wait (W&W), I was given only 2 cycles of chemo (BR) in 2019 instead of the planned 6 cycles due to severe side effects. Fortunately, I experienced
attarintiki
in
CLL Support
12 days ago
Tapering with PMR, Osteoporosis, Gall Bladder (new) and upcoming Cataract Surgery (second eye)
I feel like crap. I don't feel I should be tapering anything at this point. Was just in hospital for 3 days end of April. Gall bladder is shot. I've done something to my back, but since GP can not find xray results from May 10th (eye roll) or blood work from May 14, I'm not sure what's going on with
I feel like crap. I don't feel I should be tapering anything at this point. Was just in hospital for 3 days end of April. Gall bladder is shot. I've done something to my back, but since GP can not find xray results from May 10th (eye roll) or blood work from May 14, I'm not sure what's going on with
Missus835
in
PMRGCAuk
14 days ago
Pseudo exfoliation syndrome and cataracts
I have been told I have pseudo exfoliation syndrome, is it safe to have cataract surgery. The consultant I saw said I had 10times the risk. In the beginning I said no surgery, but my sight is blurred I have difficulty reading and watching TV.. any advice.
I have been told I have pseudo exfoliation syndrome, is it safe to have cataract surgery. The consultant I saw said I had 10times the risk. In the beginning I said no surgery, but my sight is blurred I have difficulty reading and watching TV.. any advice.
Nannyjv
in
Glaucoma UK
1 month ago
Cataract surgery due to steroid medication
Hi all, I have Minimal Change Disease and have been on various doses of prednisolone since Nov 22. I've now got cataracts and my right eye needs surgery. I'm 39 and most of the information online seems targeted at older patients. Can anyone offer advice? For instance I'm used to wearing glasses for short-sightedness
Hi all, I have Minimal Change Disease and have been on various doses of prednisolone since Nov 22. I've now got cataracts and my right eye needs surgery. I'm 39 and most of the information online seems targeted at older patients. Can anyone offer advice? For instance I'm used to wearing glasses for short-sightedness
CagePow
in
Kidney Disease
1 month ago
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