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Experiences with
Haemolytic anaemia
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Acalabrutinib to treat CLL & AIHA
I have been on W&W since 2018 but in this last year have had four admissions to hospital with Auto Immune
Haemolytic
Anaemia
, all admissions required blood transfusions and I felt pretty poorly with breathlessness, fatigue and very low Hb.
I have been on W&W since 2018 but in this last year have had four admissions to hospital with Auto Immune
Haemolytic
Anaemia
, all admissions required blood transfusions and I felt pretty poorly with breathlessness, fatigue and very low Hb.
Wen_dy
in
CLL Support
5 months ago
Buscopan Injection For Colonoscopy
As anyone had a Buscopan injection before a colonoscopy, concerned as have AFib, Hypothyroidism and
Haemolytic
Anaemia
. Is it necessary to have one of these injections?
As anyone had a Buscopan injection before a colonoscopy, concerned as have AFib, Hypothyroidism and
Haemolytic
Anaemia
. Is it necessary to have one of these injections?
thyreoidea
in
Thyroid UK
9 months ago
TSH 50.5
I have congenital
haemolytic
anaemia
( pyruvate kinase deficiency) with associated iron overload. I am 68 years old. Should I be having antibody tests? Which medication shoul I be on? Is there anything I can do to assist myself?
I have congenital
haemolytic
anaemia
( pyruvate kinase deficiency) with associated iron overload. I am 68 years old. Should I be having antibody tests? Which medication shoul I be on? Is there anything I can do to assist myself?
Porcelet
in
Thyroid UK
7 months ago
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Haematologist’s unsupportive B12 response
My own research brings up
haemolytic
anaemia
, another autoimmune disease where the immune system attacks red blood cells. Thank you all in advance 🙏☺️
My own research brings up
haemolytic
anaemia
, another autoimmune disease where the immune system attacks red blood cells. Thank you all in advance 🙏☺️
GoneWithTheWind1972
in
Pernicious Anaemia Society
1 month ago
Does anyone on this forum have Primary Auto Immune Haemolytic Anaemia (AIHA)
Are there any other people on this forum who have Primary Auto Immune
Haemolytic
Anaemia
(AIHA)
Are there any other people on this forum who have Primary Auto Immune
Haemolytic
Anaemia
(AIHA)
thyreoidea
in
Thyroid UK
11 months ago
CoQ10 Supplement
I ask because I have
Haemolytic
Anaemia
where my Mechanical Valves destroy the red blood cells before the end of the natural life cycle, so I dont produce sufficient Haemoglobin, which in turn causes other issues. As I say, not after advice, just curious. Heed
I ask because I have
Haemolytic
Anaemia
where my Mechanical Valves destroy the red blood cells before the end of the natural life cycle, so I dont produce sufficient Haemoglobin, which in turn causes other issues. As I say, not after advice, just curious. Heed
Hidden
in
British Heart Foundation
1 year ago
What is folic acid used for?
For other reasons, nothing to do with Pernicious Anaemia, I was checking the Patient Information Leaflet for a UK folic acid product. And I noticed this bit: [i]Ennogen Pharma Limited[/i] [i]
Folic Acid Tablets 5mg
[/i] [i]1. WHAT FOLIC ACID TABLETS ARE AND[/i] [i]WHAT THEY ARE USED FOR[/i]
For other reasons, nothing to do with Pernicious Anaemia, I was checking the Patient Information Leaflet for a UK folic acid product. And I noticed this bit: [i]Ennogen Pharma Limited[/i] [i]
Folic Acid Tablets 5mg
[/i] [i]1. WHAT FOLIC ACID TABLETS ARE AND[/i] [i]WHAT THEY ARE USED FOR[/i]
helvella
in
Pernicious Anaemia Society
8 hours ago
Rituximab and Denosumab
Has anyone had a Denosumab injection after having a Retuximab infusion. I have just had my second infusion and due a Denosumab injection soon. Just read that Denosumab can increase the risk of serious infection with Rituximab. Rheumatology have said that it's OK, but I don't trust them.
Has anyone had a Denosumab injection after having a Retuximab infusion. I have just had my second infusion and due a Denosumab injection soon. Just read that Denosumab can increase the risk of serious infection with Rituximab. Rheumatology have said that it's OK, but I don't trust them.
Jacko37
in
NRAS
21 hours ago
blood results. Advice please.
Might anyone have any comments on these blood results please? Quite a lot tested and all normal range … so why do I Still continue to have symptoms? Latest results from 28 May Alanine transaminase (ALT) in Serum or Plasma 28 May 18 U/L in range Albumin 28 May 40 g/L in range Alkaline Phosphatase
Might anyone have any comments on these blood results please? Quite a lot tested and all normal range … so why do I Still continue to have symptoms? Latest results from 28 May Alanine transaminase (ALT) in Serum or Plasma 28 May 18 U/L in range Albumin 28 May 40 g/L in range Alkaline Phosphatase
Quinc
in
Thyroid UK
22 hours ago
this is my folate level from my tests
I take folic acid 5mg, b12 2000, and vitamin d which I think is 1000 daily. Are these ok?
I take folic acid 5mg, b12 2000, and vitamin d which I think is 1000 daily. Are these ok?
Kimmi01
in
Thyroid UK
1 day ago
understanding test results
recently been told my b12 levels are on the low side and have had 4 out of my 5 loading doses. Just checked the rest of my blood test results and some of my levels are out of ref range. I don’t really understand them all. I’m currently 12 weeks pregnant if that changes anything. I feel pretty pants if
recently been told my b12 levels are on the low side and have had 4 out of my 5 loading doses. Just checked the rest of my blood test results and some of my levels are out of ref range. I don’t really understand them all. I’m currently 12 weeks pregnant if that changes anything. I feel pretty pants if
Greydonkey
in
Pernicious Anaemia Society
1 day ago
Follow up Results with my Gp after having Medicheck privately . Any help would be amazing.
Hi All Thanks again for all your support if i didn't have this group to chat with I think I would have gone crazy. These were my Private blood tests done 4 ish weeks ago. CRP 0.305 Ferritin 30.8 range 30-169 Folate 12.2 B12 64.3 range 37.5-188 Vit d active 64 TSH 3.54 range 0.27-4.2 Free T3 3.8 range
Hi All Thanks again for all your support if i didn't have this group to chat with I think I would have gone crazy. These were my Private blood tests done 4 ish weeks ago. CRP 0.305 Ferritin 30.8 range 30-169 Folate 12.2 B12 64.3 range 37.5-188 Vit d active 64 TSH 3.54 range 0.27-4.2 Free T3 3.8 range
Tinkerbell_84
in
Thyroid UK
2 days ago
please help with figuring out what is wrong
I posted recently that my Mom’s Hemoglobin is dropping, same as RBC and Hemocrit, while MCV and MCH are high. She was diagnosed with Macrocytic Anemia but doctors can’t figure out the cause. The hematologist did bone marrow biopsy, PET scan and over 50 blood test, all normal except for Copper and Ferritin
I posted recently that my Mom’s Hemoglobin is dropping, same as RBC and Hemocrit, while MCV and MCH are high. She was diagnosed with Macrocytic Anemia but doctors can’t figure out the cause. The hematologist did bone marrow biopsy, PET scan and over 50 blood test, all normal except for Copper and Ferritin
Simonapo
in
Pernicious Anaemia Society
2 days ago
New Blood Results - help please
I’ve received my latest blood results and they seem quite random compared to my last set of results. My GP has asked to speak to me and review them but wanted to ask for some advice from the brilliant people here first… For ref, my levo was increased from 125 to 150mcg in February 24. I’ve been feeling
I’ve received my latest blood results and they seem quite random compared to my last set of results. My GP has asked to speak to me and review them but wanted to ask for some advice from the brilliant people here first… For ref, my levo was increased from 125 to 150mcg in February 24. I’ve been feeling
SleepingDisco
in
Thyroid UK
2 days ago
Folic acid and iron
Just finished loading doses for b12 still feel awful. My folate is low so does that mean I need to take folic acid tablets or iron tablets?
Just finished loading doses for b12 still feel awful. My folate is low so does that mean I need to take folic acid tablets or iron tablets?
gemmacampbell
in
Pernicious Anaemia Society
2 days ago
Is serum folate levels the level of b12?
I received this as a blood result 3 weeks after receiving my b12 injection but I am confused. Does this tell me the level of b12 in my blood or folate? There are no other test results that refer to b12. I am currently suffering very badly with the symptoms of low b12 despite having my 3 monthly injections
I received this as a blood result 3 weeks after receiving my b12 injection but I am confused. Does this tell me the level of b12 in my blood or folate? There are no other test results that refer to b12. I am currently suffering very badly with the symptoms of low b12 despite having my 3 monthly injections
Lynne81
in
Pernicious Anaemia Society
4 days ago
How overcome a high B12 test from when I must supplement to function?
Both intrinsic factor and parietal antibody tests were positive ("abnormal") with B12 >2000. Methylmalonic Acid is normal at .28. I have Hashimoto's and other autoimmune conditions and I recently learned my mom was being treated for PA when she passed. After suffering so many of the symptoms of PA for
Both intrinsic factor and parietal antibody tests were positive ("abnormal") with B12 >2000. Methylmalonic Acid is normal at .28. I have Hashimoto's and other autoimmune conditions and I recently learned my mom was being treated for PA when she passed. After suffering so many of the symptoms of PA for
Pamelayne
in
Pernicious Anaemia Society
6 days ago
Blood test results
Hi all, can i have some help with blood test results? went to GP with symptoms of Hypothyroid, family history as both parents are diagnosed hypo. I was sent for full bloods incluing thyroid function 1/5/24 (bloods taken about 11am) HbA1c 31 mmol n/a Haemantinic serum vit b12 322ng/l 189-883
Hi all, can i have some help with blood test results? went to GP with symptoms of Hypothyroid, family history as both parents are diagnosed hypo. I was sent for full bloods incluing thyroid function 1/5/24 (bloods taken about 11am) HbA1c 31 mmol n/a Haemantinic serum vit b12 322ng/l 189-883
cheekysaph
in
Thyroid UK
8 days ago
Advice on Blood results please?
Hi, I'm not diagnosed with any thyroid problems but have had numerous blood tests over the last 4 years because of severe menopause symptoms that have not responded to HRT. Would you be able to have a look and see what you think please? I have also included some of the vitamins tested.
Hi, I'm not diagnosed with any thyroid problems but have had numerous blood tests over the last 4 years because of severe menopause symptoms that have not responded to HRT. Would you be able to have a look and see what you think please? I have also included some of the vitamins tested.
jca123
in
Thyroid UK
8 days ago
seeing neurologist, advice on b12 injections welcomed…
hi all? have been prescribed with PA. My ferritin levels are normal - 177 Vitamin D- 70. I have finished loading does for b12 last week. My last reading was 188 2 weeks ago but imagine it’s greater than 2000 now. My folate was low - 3.5. My Gp has helpfully given me folic acid 5 mg a day
hi all? have been prescribed with PA. My ferritin levels are normal - 177 Vitamin D- 70. I have finished loading does for b12 last week. My last reading was 188 2 weeks ago but imagine it’s greater than 2000 now. My folate was low - 3.5. My Gp has helpfully given me folic acid 5 mg a day
Damacian
in
Pernicious Anaemia Society
9 days ago
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