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labs results that contraindicate one another
Hi all, I’ve been having pretty constant parasthesias on both sides of my body usually worse from shoulders down to fingers, initial B12 level was 190 (was 845 four years ago). New doctor had me test for IF antibodies immediately after giving me a B12 injection which was negative and she stated
Hi all, I’ve been having pretty constant parasthesias on both sides of my body usually worse from shoulders down to fingers, initial B12 level was 190 (was 845 four years ago). New doctor had me test for IF antibodies immediately after giving me a B12 injection which was negative and she stated
Katep66875
in
Pernicious Anaemia Society
1 day ago
How often to Self Inject
Hello all. I was just wondering what you all think about how often we should inject with Vit B12. I had been taking shots since about last Dec of 22, but even though it helped, didn't help much. So after finally being diagnosed with PA, I told my wife to inject me every day for 30 days to sort of give
Hello all. I was just wondering what you all think about how often we should inject with Vit B12. I had been taking shots since about last Dec of 22, but even though it helped, didn't help much. So after finally being diagnosed with PA, I told my wife to inject me every day for 30 days to sort of give
MrJustatip
in
Pernicious Anaemia Society
7 months ago
Help with thyroid results
Hi, I’m new to this site and wondered if anyone could help me? In 2019 I had a lymph node in my neck that was raised I had a scan done and it was harmless but a “slightly enlarged lymph node” but they stated “that there was some nodular changes in my thyroid but again within the limits” so since then
Hi, I’m new to this site and wondered if anyone could help me? In 2019 I had a lymph node in my neck that was raised I had a scan done and it was harmless but a “slightly enlarged lymph node” but they stated “that there was some nodular changes in my thyroid but again within the limits” so since then
Luckygirl1
in
Thyroid UK
5 months ago
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Help Needed with Private Blood Test Results
Hello. I was diagnosed with hypothyroidism in November 2023 after a year of miserable health. My doctor prescribed 50 mcg levothyroxine (Accord brand) and I started to feel better. In January I had my next blood test (NHS). I had this test late in the morning, after I had eaten, and after taking my medication
Hello. I was diagnosed with hypothyroidism in November 2023 after a year of miserable health. My doctor prescribed 50 mcg levothyroxine (Accord brand) and I started to feel better. In January I had my next blood test (NHS). I had this test late in the morning, after I had eaten, and after taking my medication
slblue7629
in
Thyroid UK
2 months ago
Blood results - Any Advice?
Hi! Just looking for maintenance recommendations and any advice is greatly appreciated! Went to a new doctor (endocrinologist) to get a 2nd opinion on my thyroid condition. Of course, my goal is to heal and get off meds completely one day but she said she does not feel it is possible. Was first
Hi! Just looking for maintenance recommendations and any advice is greatly appreciated! Went to a new doctor (endocrinologist) to get a 2nd opinion on my thyroid condition. Of course, my goal is to heal and get off meds completely one day but she said she does not feel it is possible. Was first
Kim327
in
Thyroid UK
3 months ago
Anti thyroglobulin Antibody High
I'd a mole removed from my right shoulder blade last November that was initially feared to be cancerous, but thankfully wasn't so. Since then I have an annoying pain in my right upper abdomen. Have had an endoscopy( am awaiting report but consultant didn't seem overly concerned) had a cystoscopy which
I'd a mole removed from my right shoulder blade last November that was initially feared to be cancerous, but thankfully wasn't so. Since then I have an annoying pain in my right upper abdomen. Have had an endoscopy( am awaiting report but consultant didn't seem overly concerned) had a cystoscopy which
TOTTY1
in
Thyroid UK
1 month ago
Son tested positive for gastric parietal cell antibodies
My son has history with h pylori, which he was treated for, but the symptoms haven't gone away completely. Last week I was talking about my own b12 deficiency and he informed me he has the same symptoms. I know he has been more tried than normal, but I put it due to the h pylori, after effects. As that
My son has history with h pylori, which he was treated for, but the symptoms haven't gone away completely. Last week I was talking about my own b12 deficiency and he informed me he has the same symptoms. I know he has been more tried than normal, but I put it due to the h pylori, after effects. As that
fatfatfat
in
Pernicious Anaemia Society
9 days ago
E-Consultation Endocrinologist or Thyroid Specialist Recommendation?
Hi, I have been suffering from symptoms of hypothyroidism including extreme fatigue and sensitivity to cold. Every doctor I see says my TSH is within range and I do not have hypothyroidism. Got a nutrition test done and levels all optimal. Testosterone is optimal also. Results: TSH 2.44 (0.27-4.2)
Hi, I have been suffering from symptoms of hypothyroidism including extreme fatigue and sensitivity to cold. Every doctor I see says my TSH is within range and I do not have hypothyroidism. Got a nutrition test done and levels all optimal. Testosterone is optimal also. Results: TSH 2.44 (0.27-4.2)
Notion88
in
Thyroid UK
11 months ago
Haematologists consultant
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Windyway
in
Pernicious Anaemia Society
2 months ago
Blood Work
Hello Friends, I asked this question on my original thread but someone suggested I start a new one. I was diagnosed with Autoimmune Atrophic Gastritis 2 weeks ago and have been having a hard time mentally . My family Dr this past Friday sends me the blood tests results and says they cannot comment
Hello Friends, I asked this question on my original thread but someone suggested I start a new one. I was diagnosed with Autoimmune Atrophic Gastritis 2 weeks ago and have been having a hard time mentally . My family Dr this past Friday sends me the blood tests results and says they cannot comment
Canadian77
in
Pernicious Anaemia Society
2 months ago
TSH low the rest normal
Can anyone explain why my TSH is low yet the rest is normal? I know my new doctor will be onto this in a flash when they do a test shortly and probably reduce my levothyroxine (I`ve had this battle for years) The following is a private test T4 = 121 range 59-154 TSH
Can anyone explain why my TSH is low yet the rest is normal? I know my new doctor will be onto this in a flash when they do a test shortly and probably reduce my levothyroxine (I`ve had this battle for years) The following is a private test T4 = 121 range 59-154 TSH
destiny234
in
Thyroid UK
7 months ago
What is the difference between these two tests?
Parietal Cell Antibody, ELISA/ positive Parietal Cell Antibody with Relex to Titer/ Negative
Parietal Cell Antibody, ELISA/ positive Parietal Cell Antibody with Relex to Titer/ Negative
Tigerlilly81
in
Pernicious Anaemia Society
1 year ago
some advice needed please
Hi I’m going to see Dr Klein in Cambridge as recommended by some of you guys, he has sent links to order theses products from Medisave Sharpsguard yellow 2.5ltr sharps bin professional 70% Alcohol IPA Pre- Injection Swabs x 100 BD Discardit 2 ml Concentric Tip Syringe 2 Piece x 100
Hi I’m going to see Dr Klein in Cambridge as recommended by some of you guys, he has sent links to order theses products from Medisave Sharpsguard yellow 2.5ltr sharps bin professional 70% Alcohol IPA Pre- Injection Swabs x 100 BD Discardit 2 ml Concentric Tip Syringe 2 Piece x 100
Windyway
in
Pernicious Anaemia Society
19 days ago
Positive IFA, Negative Parietal Cell, B-12 injections affect IFA test
Hello, I recently tested positive for intrinsic factor blocking antibody but the result of my parietal cell antibody test was negative. I’m curious if other members have had this same experience? My doctors have suspected a PA diagnosis for several years. An IFA test about five years ago produced
Hello, I recently tested positive for intrinsic factor blocking antibody but the result of my parietal cell antibody test was negative. I’m curious if other members have had this same experience? My doctors have suspected a PA diagnosis for several years. An IFA test about five years ago produced
mcg-woo
in
Pernicious Anaemia Society
11 months ago
T4 not being increased by GP
Hi everyone hope you are all doing g good and still fighting for your health! Following on from my previous post. A new GP in my practise wouldn’t increase my levo to 100mcg until she had the go ahead from endocrinology. They have decided that I am adequately medicated and won’t increase due to heart
Hi everyone hope you are all doing g good and still fighting for your health! Following on from my previous post. A new GP in my practise wouldn’t increase my levo to 100mcg until she had the go ahead from endocrinology. They have decided that I am adequately medicated and won’t increase due to heart
Pixie50
in
Thyroid UK
1 hour ago
Vitamin B6 in B Complexes
Seeking advice on Vitamin B6 in B Complexes. Background: Diagnosed hypothyroid since the late 1990's; switched to T3 liothyronine only since about 2014 because levothyroxine didn't help me . Diagnosed with Parkinson's (finally!) in early 2023. Currently under the care of a movement disorders specialist
Seeking advice on Vitamin B6 in B Complexes. Background: Diagnosed hypothyroid since the late 1990's; switched to T3 liothyronine only since about 2014 because levothyroxine didn't help me . Diagnosed with Parkinson's (finally!) in early 2023. Currently under the care of a movement disorders specialist
chrysalis56
in
Thyroid UK
10 minutes ago
Multiple Iron Infusions.
I had an iron infusion two years ago for RLS. Before the infusion my ferritin was down to about 100 and it rose to about 350 Unfortunately my RLS didn't respond to this and I couldn't detect any improvement over the next 12 months. My ferritin decreased over 2 years to 200 and then gradually
I had an iron infusion two years ago for RLS. Before the infusion my ferritin was down to about 100 and it rose to about 350 Unfortunately my RLS didn't respond to this and I couldn't detect any improvement over the next 12 months. My ferritin decreased over 2 years to 200 and then gradually
Graham3196
in
Restless Legs Syndrome
4 hours ago
Conversion
Hi I'm trying to make sense of something I'm reading. Does something know how to convert between nanogrammes and picomoles of T4? Best wishes H
Hi I'm trying to make sense of something I'm reading. Does something know how to convert between nanogrammes and picomoles of T4? Best wishes H
Hollins
in
Thyroid UK
2 hours ago
Have had to stop!!
Hi everyone following on from my previous post after 5 days I have had to stop the Thybon T3, headaches were all day everyday and my mood horrid just unbearable! Could not go on like that. I even split 5mg into 2.5 twice daily I would love your thoughts/advice please, Do I stay on my 50mg levo for
Hi everyone following on from my previous post after 5 days I have had to stop the Thybon T3, headaches were all day everyday and my mood horrid just unbearable! Could not go on like that. I even split 5mg into 2.5 twice daily I would love your thoughts/advice please, Do I stay on my 50mg levo for
FoxyTed
in
Thyroid UK
20 hours ago
Splitting dose of T4 experiences?
For those of you who tried.splitying your t4 dose. Did it have any effect and if so what effect?
For those of you who tried.splitying your t4 dose. Did it have any effect and if so what effect?
Clara9
in
Thyroid UK
22 hours ago
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