liver lesions: I got the CT results... - SHARE Metastatic ...

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liver lesions

BluHydrangea profile image
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I got the CT results today and I have multiple lesions showing in different liver lobes. I am currently on Flosodex and Piqray. Wondering about MRI or Biopsy? Med change? My head is spinning.šŸ’”

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BluHydrangea profile image
BluHydrangea
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So sorry to hear that you have this new result. Praying there are good answers for you soon šŸ™ā¤ļøšŸ™

Hazelgreen profile image
Hazelgreen

Liver lesions are not unexpected when you have metastatic breast cancer. Fortunately, the liver is a large organ, and may well continue to function. I have had metastatic breast cancer since 2019 with multiple sites including my liver. However, all my liver measures continue to be in the normal range so I have avoided surgery. I simply continue taking ribociclib with letrozole to stop all my cancer sites from growing.

HelenWi profile image
HelenWi

Dear Bluhydrangea, Try to put the worry and overthinking aside until you see your onco. They will have a plan and you will carry on,. I totally know how hard that is and Iā€™m sure you know all about ā€œliving in the presentā€ too šŸ˜‰. But Iā€™ve really been working on banishing fear and living my best life and after a while it starts working. Like you, Iā€™ve been on Piqray (for 15 months) and I just had a PET scan, will see onco on Wednesday. I am sort of expecting it to progress because markers have been higher. My blood pressure definitely goes up once Iā€™m in the doctorā€™s waiting room but until then, I just ignore the whole thing. I donā€™t even look at the bloodwork results and I never look at the scan report until after Iā€™ve seen the doctor. This isnā€™t to say Iā€™m passive ā€” Iā€™ve done a lot of research and have gotten second opinion about possible follow on therapies ā€” but I just really try to just pretend that everything is normal in the meantime.

By the way thereā€™s another drug that targets pic3ca and itā€™s called Truqap.

LDR1 profile image
LDR1

Hi BluHydrangea , I know itā€™s a shock when the cancer moves to a new area. Mine went to the liver in Dec2022 and it felt very daunting. The good news is there are many treatment options in the toolbox. In my case I went to Xeloda, Piqray, then IV chemo. Iā€™ve tolerated them all and still feel pretty normal on a physical level. Your doctor will guide you on next steps ā€¦ best of luck and stay strong!

Artesa profile image
Artesa

I am sorry to hear of the change but reading the comments allows for some hope . It looks like there are effective treatment options and you will still feel good. As LDR1 says, stay strong, you are not alone. Sending you good energyā™„ļø

LibraryGeek profile image
LibraryGeek

I know this is upsetting but there will be a way forward. I also got progression in the liver after 3 stable years on Letrozole/Palbociclib but managed to continue for another year before having to change. Since then have only had success for 6 months at a time, partly I think because I have developed resistance to hormone treatments. I have just done 6 months on Paclitaxel and will soon have latest CT results so am praying it is still working. I havenā€™t had any pain or other symptoms from the liver involvement. Hoping this is sorted out for you soon, sending hugs in the meantime.

Jackie x

love2golfwell profile image
love2golfwell

I'm so sorry that you are experiencing this. Hoping when you talk with your doctor he or she will have some good answers for you as to what is next. Sending hugs and prayers.

Kcap430 profile image
Kcap430

When my CT showed progression to liver my doctor ordered an MRI to confirm. From there a biopsy was done to check for mutations.

Itā€™s always unnerving when we have a change of any sort. Once your new plan is in place you will get to a better place mentally.

Hang on sisteršŸ’—

Totheriver profile image
Totheriver

So sorry to hear this. Thinking of youšŸ™šŸ’•

Gingerann1 profile image
Gingerann1

I havenā€™t had to deal with progression yet šŸ™šŸ» but always waiting for that other shoe to drop. Try to stay positive and keep putting one foot in front of the other. Just like LDR1 mentioned, there are many tools in the toolbox and more in the pipeline! Praying youā€™ll find some peace and know we are all here for you.

cpidacks profile image
cpidacks

I have a tumor in my liver which is inoperable. I have been on Faslodex since 2019 and so far I am progression free. My liver function tests are in the normal range and tumor markers are normal. I had an ultrasound, CT scan, MRI, PET scan and liver biopsy. I have MRI's every 4-5 months. Keep us posted, Good luck to all of us in our journey.

Figletf profile image
Figletf

My Breast Cancer metastisized in 2019 to my liver and bones.I have been on numerous treatments since then.I currently am on Enhertu and it has been the best yet (having no side effects other than hair loss and manageable constipation).

Most days I feel perfectly fine .

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