Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,111 members • 23,260 posts

All posts for November 2019

How were most of you diagnosed? Wondering how it is confirmed with such unreliable tests

With the antibody test being so unreliable. How is Pernicios anemia usually diagnosed? Is it usually an endoscope? Wondering how they can absolutely...

With the antibody test being so unreliable. How is Pernicios anemia usually dia...

CW12

•5 years ago

18 Replies

New PAS support group in UK

Hi All, I noticed that there is a new PAS support group in UK in East Sussex. https://pernicious-anaemia-society.org/community/member-support-groups/ That...

Hi All, I noticed that there is a new PAS support group in UK in East Sussex. ht...

Sleepybunny

•5 years ago

1 Reply

Prostate Cancer

Some of you may already know it has been discovered that there are 2 types of Prostate. Cancer. One of them is extremely aggressive and if not treated ASAP the...

Some of you may already know it has been discovered that there are 2 types of Pr...

Melbourne-Girl

•5 years ago

1 Reply

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Help with a mystery needed

In August I went went to a neurologist who tested my b12 levels because of neurological symptoms. I requested the test because in 2012 when I was trying to get...

In August I went went to a neurologist who tested my b12 levels because of neuro...

CW12

•5 years ago

54 Replies

Interesting Metro article last week

Did anyone read the Metro article (Trends section, p37 :Thursday, Nov 21st) : "The Gender Health Gap Nearly Killed Me" by Nicole Mowbray ? One line...

Did anyone read the Metro article (Trends section, p37 :Thursday, Nov 21st) : "T...

Cherylclaire

Forum Support•5 years ago

20 Replies

Guidelines re treatment with normal B12 levels

Family history of pernicious anaemia. I’ve had various symptoms for a long time. Bloods are normal. GP won’t treat for B12 deficiency despite being...

Family history of pernicious anaemia. I’ve had various symptoms for a long time...

Howzer

•5 years ago

5 Replies

Influenza A

A few years ago I was privileged to work with a Director of the World Health Organisation who was one of the top five experts Globally on influenza A. I will...

A few years ago I was privileged to work with a Director of the World Health Org...

Melbourne-Girl

•5 years ago

7 Replies

Why are B 12 injections given at my GP surgery So painful

Hi Why is it that the B12 injections I receive in my shoulders at my GP surgery are much more painful that the injections I give myself in my thigh I have...

Hi Why is it that the B12 injections I receive in my shoulders at my GP surgery ...

Active57

•5 years ago

22 Replies

B12 / Folate levels after blood test. Please help!

Hi, I had a blood test at my GP surgery in September and my results were: Serum B12 level: 119 ng/L (150-900) Serum Folate level: 2.3 ug/L (3.1-19.9) I...

Hi, I had a blood test at my GP surgery in September and my results were: Seru...

Sarahlouise1980

•5 years ago

4 Replies

Getting ill around injection time

Hi, I'm just wondering if anyone else gets an Illness every time their b12 is due? Mines due next week and I've got laryngitis and conjunctivitis, 3 months ago...

Hi, I'm just wondering if anyone else gets an Illness every time their b12 is du...

Teach2706

•5 years ago

8 Replies

Having difficulty ordering B12 injections from VersandApo.

I have ordered over 2 years ago but you could click on English to translate page. I’ve been on VersandApo site today and there’s no option for English. I...

I have ordered over 2 years ago but you could click on English to translate page...

Ryaan

•5 years ago

11 Replies

Giving myself B12 injections

I can’t take anymore of being ill so I’m going to buy my own B12 injection. How do I start??

I can’t take anymore of being ill so I’m going to buy my own B12 injection. How ...

Queeniz

•5 years ago

39 Replies

Still tired during injections

I’m B12 and iron deficient, I get my injections every three months, however I’m finding as I’m creeping up to the next injection, I’m becoming extremely weak...

I’m B12 and iron deficient, I get my injections every three months, however I’m ...

Lion3

•5 years ago

2 Replies

Burning feet

Has anyone a burning sensation in their feet?

CW12

•5 years ago

18 Replies

Help with Doctors

Hi there, I am looking for some advice. My husband has recently been diagnosed with Pernicious Anemia with his initial blood test showing his B12 to be 72. My...

Hi there, I am looking for some advice. My husband has recently been diagnosed w...

LeilaB2019

•5 years ago

10 Replies

Help

I’m from India and moving to Canada I badly need injections twice a week and acc to my doc I need once a month...I do SI and here in India we get it from any...

I’m from India and moving to Canada I badly need injections twice a week and acc...

Gunj_redjem

•5 years ago

3 Replies

B12 tablets along side injections

Hi everyone. I have b12 injections every 8/10 weeks and I'm really struggling at the minute..I'm feeling so tired tingling hands feet ..I had injections 4...

Hi everyone. I have b12 injections every 8/10 weeks and I'm really struggling at...

Befree

•5 years ago

4 Replies

B12 results

Hi I have a B12 deficiency and have injections every 8 weeks, a recent blood test of my B12 showed results of 150 pmol/L is this a level you would expect 4...

Hi I have a B12 deficiency and have injections every 8 weeks, a recent blood tes...

Wendyr2010

•5 years ago

7 Replies

B13

Are most on this site from the UK?

Buggs6

•5 years ago

3 Replies

Folic acid query.

Hello, I have PA and have 3 monthly B12 injections, I'm always low in Vit D and Folate which my doctor tells me is in the normal range and nothing to worry...

Hello, I have PA and have 3 monthly B12 injections, I'm always low in Vit D and ...

Brownie49

•5 years ago

8 Replies

Low iron

My ferritine was 59ug/dl 2 weeks ago. I have been having my periods for 5 days every 28 days for years. My doc gave me iron supplement once a day. I have been...

My ferritine was 59ug/dl 2 weeks ago. I have been having my periods for 5 days ...

Blueazul

•5 years ago

7 Replies

Eyelid Flicker getting seriously worse

Hi can I just ask here because it would seem an improbable cause to the medical profession, but it is really getting on my nerves that amongst all of the other...

Hi can I just ask here because it would seem an improbable cause to the medical ...

Newcastlelover

•5 years ago

3 Replies

Can mild incline in potassium levels after b12 inj therapy explain heart palpitation and anxiety?

I'm probably deficient in b12 as I have many of the relevant symptoms (including neurological) so I started b12 injection therapy in the advice of my Doctor....

I'm probably deficient in b12 as I have many of the relevant symptoms (including...

Shajarin

•5 years ago

7 Replies

Bleeding

I’ve been injecting eight weekly for just over a year - in between eight weekly injections from the GP. I’ve never hurt myself or bruised. Last week I injected...

I’ve been injecting eight weekly for just over a year - in between eight weekly ...

Dragonwalker

•5 years ago

3 Replies

Another stomach question

My hemotologist recommended I see a gastroenterologist. I know they are looking for atrophy and NETS. What do they do if there is atrophy? Just wondering...

My hemotologist recommended I see a gastroenterologist. I know they are looking...

CW12

•5 years ago

17 Replies

Ferratin iron tablets and tiredness

I have b12 injections every 10 weeks but also diagnosed with iron anemia in june. Ferratin was 3 - now 32 (5months 2 tablets at day) but still tired, folate...

I have b12 injections every 10 weeks but also diagnosed with iron anemia in june...

miccy5

•5 years ago

4 Replies

Am I deficient in b12

Hi I’ve been having what I think are b12 symptoms for years but my blood test are always in range (200-899) 231,245,223,251 and most recently 253 this is ove a...

Hi I’ve been having what I think are b12 symptoms for years but my blood test ar...

Sweenco

•5 years ago

19 Replies

What to do?

Shaky legs,tremors,shortness of breath,anxiety,dizziness,taken infinite shots and also taking weekly shots ...what to do? As per my doc I should only b taking...

Shaky legs,tremors,shortness of breath,anxiety,dizziness,taken infinite shots an...

Gunj_redjem

•5 years ago

4 Replies

Blood test results - low RDW

Hi all, I've been combing through my medical records and I see that I have had a low RDW value flagged in several blood test results. Does anyone know if this...

Hi all, I've been combing through my medical records and I see that I have had a...

MariaMe

•5 years ago

3 Replies

Can Iron Supplement cause rapid heart beat and anxiety?

I'm probably deficient in b12 as I have many of the relevant symptoms (including neurological) so I started b12 injection therapy in the advice of my Doctor....

I'm probably deficient in b12 as I have many of the relevant symptoms (including...

Shajarin

•5 years ago

31 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All things Pernicious Anaemia Society(77)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for November 2019

How were most of you diagnosed? Wondering how it is confirmed with such unreliable tests

New PAS support group in UK

Prostate Cancer

Help with a mystery needed

Interesting Metro article last week

Guidelines re treatment with normal B12 levels

Influenza A

Why are B 12 injections given at my GP surgery So painful

B12 / Folate levels after blood test. Please help!

Getting ill around injection time

Having difficulty ordering B12 injections from VersandApo.

Giving myself B12 injections

Still tired during injections

Burning feet

Help with Doctors

Help

B12 tablets along side injections

B12 results

B13

Folic acid query.

Low iron

Eyelid Flicker getting seriously worse

Can mild incline in potassium levels after b12 inj therapy explain heart palpitation and anxiety?

Bleeding

Another stomach question

Ferratin iron tablets and tiredness

Am I deficient in b12

What to do?

Blood test results - low RDW

Can Iron Supplement cause rapid heart beat and anxiety?

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive