Posts - My Ovacome | HealthUnlocked

My Ovacome

17,798 members • 20,035 posts

All posts for May 2024

Muscinous ovarian cancer

Hi, I am diagnosed with mucinous cancer following initial benign ovary mass in 2021 when i had the tumour removed as well as hysterectomy and appendix...

Hi, I am diagnosed with mucinous cancer following initial benign ovary mass in 2...

Cah60

•3 hours ago

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What's on at Ovacome next week? (week commencing Monday 27 May 2024)

Good morning everyone This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week....

Good morning everyone This is our weekly post to let you know about the diffe...

OvacomeSupport

Partner•9 hours ago

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Worried my Ca125 is 145 after 5 chemos, one to go.

Hello ladies I am almost to the end of first line treatment for stage 4 clear cell. I had 3 chemos, then successful surgery, then 2 more chemos. My final one...

Hello ladies I am almost to the end of first line treatment for stage 4 clear ce...

Kazzh

•1 day ago

6 Replies

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Birmingham Health and Wellbeing Day - 29th June

Good morning all, You are all warmly invited to join our next Health and Wellbeing Day which will be taking place in Birmingham (very close to the NEC) on...

Good morning all, You are all warmly invited to join our next Health and Wellbe...

OvacomeSupport

Partner•1 day ago

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A Happy Day

Just wanted to post this happy news. My son is getting married tomorrow. 👰 🤵 When I got diagnosed Sept 22 I wasn’t even sure I’d make this day. Fast...

Just wanted to post this happy news. My son is getting married tomorrow. 👰 🤵 ...

SuffolkJen

•1 day ago

22 Replies

worried pelvic pain

Getting a lot of pelvic pain in the last few days...very swollen belly. Any tips? Tried heat but that didn't seem to do anything. Making me feel weak and...

Getting a lot of pelvic pain in the last few days...very swollen belly. Any tips...

Ova104

•2 days ago

30 Replies

Raised liver function

Just a quick update from my last post. Had review by oncologist on Monday, my liver function is greatly improved so they have agreed it's ok to go on holiday...

Just a quick update from my last post. Had review by oncologist on Monday, my li...

Bluedoor24

•2 days ago

3 Replies

Ovacome Day

I would just like to thank the Ovacome team for organising this for us. It was great to chat to people and all the talks were really informative and the...

I would just like to thank the Ovacome team for organising this for us. It was...

candyapplegrey

•3 days ago

3 Replies

Update

Hi wonderful warriors, I had my oncology appointment today & lymph nodes enlarged in my pelvis & under my arm. So platinum chemo for me starting tomorrow....

Hi wonderful warriors, I had my oncology appointment today & lymph nodes enlarge...

Pixiepurple

•3 days ago

16 Replies

Hi has anyone with mucinous had avistan with treatment? Thanks in advance

My wife has been diagnosed

Molste

•3 days ago

2 Replies

Recurence

Hi wondered what side effects with niropirad as am being offereredjust out hospital after total hysterectomy omentom removed and shock stoma was given...

Hi wondered what side effects with niropirad as am being offereredjust out hos...

PaumicB123

•3 days ago

13 Replies

second opinion

hello, Everyone I read on here a lot about second opinion, which doctors hospital, do ladies recommend, I have seen Christina fotoloupa, very soon after my...

hello, Everyone I read on here a lot about second opinion, which doctors hospita...

Balliol15

•4 days ago

6 Replies

Blood levels

I just received results for my blood tests and My white blood count, RBC and neutrophils has all dropped drastically. I only had one treatment on paradoxil...

I just received results for my blood tests and My white blood count, RBC and neu...

Jacquiemoo

•5 days ago

7 Replies

peewee

hello everyone just wondering I have been on rucaparib for about 6 weeks but my ca125 are still going up from 27 then 43 and now 171 getting a bit stressed but...

hello everyone just wondering I have been on rucaparib for about 6 weeks but my ...

Peewe

•7 days ago

5 Replies

Need advice please

I have posted on here on my situation. Diagnosed with stage 3c fallopian tube cancer. Went into remission and now it came back with enlarged lymph nodes that...

I have posted on here on my situation. Diagnosed with stage 3c fallopian tube c...

Jacquiemoo

•7 days ago

6 Replies

Raised liver function on niraparib

Good morning all,This is my first post although I have found the site very helpful during my journey, and thank everyone for sharing their experiences. It's...

Good morning all,This is my first post although I have found the site very helpf...

Bluedoor24

•7 days ago

13 Replies

gBRCA WT?

Hi ladies, Just a quick question. This has been added to my diagnosis on my letter but I didn't notice. I was told I didn't have BRCA gene. Is this what that...

Hi ladies, Just a quick question. This has been added to my diagnosis on my let...

candyapplegrey

•8 days ago

10 Replies

Swimming advice

Hello to all you amazing, strong, determined beautiful ladies 😍 I have always been an avid regular swimmer, the last 5 years I have swam in the sea and lakes...

Hello to all you amazing, strong, determined beautiful ladies 😍 I have always b...

Kazzh

•8 days ago

11 Replies

Primary Peritoneal Cancer

I was diagnosed with PPC stage III C in April of 2023. After consulting with onocologist and gynecologist/oncologist it was decided to do 3 rounds of...

I was diagnosed with PPC stage III C in April of 2023. After consulting with ono...

Hockeymom52

•9 days ago

16 Replies

Members day

Hello! I'm going to be attending the members day on Saturday on behalf of my mum and just wondered who else was planning to be there? There's at least a few...

Hello! I'm going to be attending the members day on Saturday on behalf of my mum...

georgiageorgia182

•9 days ago

8 Replies

lapararoscopy

I have a complex cyst probably 7.2-7.4cm and have been told that I will need eventual laparascopy. I am back 23rd of July again for another tvultrasound to...

I have a complex cyst probably 7.2-7.4cm and have been told that I will need eve...

Ova104

•10 days ago

16 Replies

helpful article

Sznurkowski JJ. To Bev or Not to Bev during Ovarian Cancer Maintenance Therapy? Cancers (Basel). 2023 May 30;15(11):2980. doi: 10.3390/cancers15112980. PMID:...

Sznurkowski JJ. To Bev or Not to Bev during Ovarian Cancer Maintenance Therapy? ...

delia2

•11 days ago

9 Replies

Neuropathy worse after covid jab, anyone?

After my recent ninth Covid jab (second time with Moderna), I found I had reactions (have always had none before, lucky me). First I developed the grandly...

After my recent ninth Covid jab (second time with Moderna), I found I had reacti...

Trickysite

•11 days ago

3 Replies

port installation

Hi all, Tomorrow I will have Port implanted because I have my hands inflamed. I am so scared, did someone have a port? If it’s painful? How you feeling with...

Hi all, Tomorrow I will have Port implanted because I have my hands inflamed. ...

Green999

•11 days ago

15 Replies

Elahere

After 4+ years of successful treatment with Carboplatin for metastatic ovarian cancer the carbo has stopped working. This week I will start a brand new drug...

After 4+ years of successful treatment with Carboplatin for metastatic ovarian c...

Why4300

•12 days ago

12 Replies

Caylex not working - Topotecan (Hycamtin) next.

Hi everyone Anyone else been on this? Caylex not working for me What else did you try after Caylex? And - side effects of Topotecan? What should I look...

Hi everyone Anyone else been on this? Caylex not working for me What else did...

Itha

•12 days ago

13 Replies

Worried and looking for reassurance

Is anyone able to share positive stories of having more than two reoccurrences? I’m worried about my friend and would love to hear about others who are still...

Is anyone able to share positive stories of having more than two reoccurrences? ...

Star_22

•13 days ago

8 Replies

Ovacome clinical update day 18 May 2024 London

Hello All You are warmly invited to join us for our annual clinical update day on Saturday 18 May from 9:30am to 4:30pm. This event is for anyone affected by...

Hello All You are warmly invited to join us for our annual clinical update day ...

OvacomeSupport

Partner•13 days ago

2 Replies

Hair, brows and eyelashes!

Hi All! I was diagnosed in Nov of 2022 with stage 4b lung cancer and later, in May of 2023 with ovarian cancer. Not a metastisis but a second primary cancer....

Hi All! I was diagnosed in Nov of 2022 with stage 4b lung cancer and later, in ...

SuziSch

•14 days ago

16 Replies

Hernia from debulking

Greeting all. I had debulking in October. Now on avastin maintenance every 3 weeks. In late February I developed incisional hernia. By march it was huge....

Greeting all. I had debulking in October. Now on avastin maintenance every 3 ...

chocolatemilk44

•14 days ago

12 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for May 2024

Muscinous ovarian cancer

What's on at Ovacome next week? (week commencing Monday 27 May 2024)

Worried my Ca125 is 145 after 5 chemos, one to go.

Birmingham Health and Wellbeing Day - 29th June

A Happy Day

worried pelvic pain

Raised liver function

Ovacome Day

Update

Hi has anyone with mucinous had avistan with treatment? Thanks in advance

Recurence

second opinion

Blood levels

peewee

Need advice please

Raised liver function on niraparib

gBRCA WT?

Swimming advice

Primary Peritoneal Cancer

Members day

lapararoscopy

helpful article

Neuropathy worse after covid jab, anyone?

port installation

Elahere

Caylex not working - Topotecan (Hycamtin) next.

Worried and looking for reassurance

Ovacome clinical update day 18 May 2024 London

Hair, brows and eyelashes!

Hernia from debulking

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