Posts - My MSAA Community | HealthUnlocked

My MSAA Community

9,019 members • 20,711 posts

Sort posts by:

CD20 Therapies (Ocrevus, Kesimpta, etc.) and potentially serious dental problems

This was an interesting post on the MS-blog. You have to get past the Dustin Hoffman in Marathon Man reference (which was a memorable scene!) to get down to...

This was an interesting post on the MS-blog. You have to get past the Dustin Hof...

CatsandCars

•2 hours ago

Be the first to reply

Foot drop

Has anyone with foot drop found a shoe type that works well? The shoe on my foot drop foot always scraps and wears out before the other one. Any...

Has anyone with foot drop found a shoe type that works well? The shoe on my foo...

punterstein

•23 hours ago

4 Replies

Good Morning gang members it’s a little chilly and had couple inches of snow ❄️

Well finally feeling a little better and probably due a meeting today 👍🏼 Had a splurge of energy yesterday and dusted the house then vacuumed and mopped...

Well finally feeling a little better and probably due a meeting today 👍🏼 Had a...

Kenu

•1 day ago

15 Replies

Want to take advantage of all our features? Just log in!

As if MS wasn't enough, I have osteoporosis

HelloAs if MS wasn't enough, I now have osteoporosis. Which could be why I fell and broke my shoulder in December. My primary doctor has put me on boniva....

HelloAs if MS wasn't enough, I now have osteoporosis. Which could be why I fel...

jkdavid99

•1 day ago

9 Replies

DBS operation

I’ve been approved by Kaiser for a DBS (Deep Brain Stimulation) operation for my MS/essential tremors. Would like to talk to someone who’s had the same...

I’ve been approved by Kaiser for a DBS (Deep Brain Stimulation) operation for my...

Potatoskins

•2 days ago

1 Reply

Home from Neuro

Today was my 6 month appt with my Neuro. I told her about a horrible breakthrough migraine I had over the past weekend. I am to take 800mg of Ibroproferin. She...

Today was my 6 month appt with my Neuro. I told her about a horrible breakthroug...

bxrmom

•2 days ago

10 Replies

Lynnie THE BikerChick is back

I was very activein this grourp until last fall. Sometime between Oct. & Thanksgiving, I Just lost interest in everything. I do read along,but rarely...

I was very activein this grourp until last fall. Sometime between Oct. & Thanks...

CalfeeChick2

•2 days ago

7 Replies

Good chilly May morning 🥶

Good morning with windchill it’s 22 degrees in Pocatello Idaho that’s at least 20 degrees below average. I’m still toughening it out in my shorts 🩳 it is...

Good morning with windchill it’s 22 degrees in Pocatello Idaho that’s at least 2...

Kenu

•2 days ago

11 Replies

MS with normal MRI

Gavin Giovanoni at Bart's in the UK writes that it is possible to have MS with a normal MRI. I found this to be pretty surprising, so I thought I would share...

Gavin Giovanoni at Bart's in the UK writes that it is possible to have MS with a...

CatsandCars

•2 days ago

6 Replies

Thankful for another day!

Thankful that I feel good today! I appreciate everyone's comments on my last post. One thing that I didn't do in the beginning of my diagnosis was to quit...

Thankful that I feel good today! I appreciate everyone's comments on my last po...

drumbugg

•3 days ago

10 Replies

DMT's

Have no limits. My Ex-neurologist tried the same thing on me. I was 60 and taking tecfidera. Found another neuro (script writer). I am 62 and still on it....

Have no limits. My Ex-neurologist tried the same thing on me. I was 60 and tak...

Birdloverforever

•3 days ago

4 Replies

New to the community

Hi. I just joined the community today. I was diagnosed in the early 2000's after having optic neuritis twice. My neurologist thinks I had MS since at least...

Hi. I just joined the community today. I was diagnosed in the early 2000's aft...

jezebellydancer

•4 days ago

16 Replies

Renee

I was diagnosed with MS in1992 . I was in remission 1995, until about 2021 when I had symptoms which were worse than the first time. I have loss the use of...

I was diagnosed with MS in1992 . I was in remission 1995, until about 2021 when...

Renms-1950

•4 days ago

6 Replies

new symptoms

I’m 42 and was diagnosed with RRMS on 4/6/22. I started Kesimpta in June 2022. I guess 2 years is good. But I think I’m experiencing a relapse now. I have had...

I’m 42 and was diagnosed with RRMS on 4/6/22. I started Kesimpta in June 2022. I...

KissMyGrits

•4 days ago

7 Replies

hello there

Well let me try this again. My name is Gabi, I’ve had MS for most of my adult life. I love my family and I’m fortunate to live right next to them. My daughter...

Well let me try this again. My name is Gabi, I’ve had MS for most of my adult li...

HeilbronnerMaedel

•4 days ago

23 Replies

Hello there

Me name is Gabi and I’ve had to MS for most of my childhood. I’ve had

HeilbronnerMaedel

•4 days ago

4 Replies

Kesimpta and IVIG?

I have had many infections over the last 4 months. I have been on Kesimpta for 2years. Anyone else have that problem? Any luck with immuno therapy?...

I have had many infections over the last 4 months. I have been on Kesimpta for 2...

pihokken

•4 days ago

7 Replies

Fatigued!

I'm new here. Just wanted to see if anyone else feels how I do: Everyday I plan to be more productive. I just get so tired! I try to eat well, exercise as much...

I'm new here. Just wanted to see if anyone else feels how I do: Everyday I plan ...

drumbugg

•4 days ago

23 Replies

Age and therapies

Several years ago, when I turned 70, my neurologist took me off Ocrevus due to my age. I was doing good on it with no side effects except a migraine right...

Several years ago, when I turned 70, my neurologist took me off Ocrevus due to m...

Mom4JS

•4 days ago

13 Replies

Driving

Has anyoine ever had their car modified for hand controls for braking and accellerating? How much was the cost?

Has anyoine ever had their car modified for hand controls for braking and accell...

whwiechm

•4 days ago

12 Replies

It has been a long weekend.

Yesterday we laid Bills remains to rest by his family. It was a good service even brought some family members we hadn't seen in 5 or 6 years. Today we went...

Yesterday we laid Bills remains to rest by his family. It was a good service e...

kycmary

•5 days ago

12 Replies

Octave Blood test

https://multiplesclerosisnewstoday.com/news-posts/2023/09/06/octaves-ms-blood-test-accurately-captures-disease-activity-study/#:~:text=Octave’s%20MS%20disease%2

https://multiplesclerosisnewstoday.com/news-posts/2023/09/06/octaves-ms-blood-te...

MaryAZ

•5 days ago

7 Replies

Convinced I have MS but diagnosed with something else

Hi, At age 27 I went to the neurologist after having strange symptoms for about a year. I immediately thought I had MS. However, the doctors think I have...

Hi, At age 27 I went to the neurologist after having strange symptoms for about...

Frenchfryqueen

•5 days ago

21 Replies

End of MRI Access Fund

Hi All, OMG: I was told yesterday that MSAA's MRI Access Fund is no longer available. Although I have Medicare, getting the financial assistance with...

Hi All, OMG: I was told yesterday that MSAA's MRI Access Fund is no longer av...

donna0329

•6 days ago

9 Replies

Testing for MS and MRI differences

Hello folks I’m a 34 year old female actually based in the UK but I figure this will tally across most countries. I currently being referred to neurologist...

Hello folks I’m a 34 year old female actually based in the UK but I figure this...

Chaucer89

•7 days ago

33 Replies

A Glimpse Inside – The Power of Imaging Biomarkers

This article provides terrific details and insights into what information MRIs can provide for our physicians and for all of us with MS....

This article provides terrific details and insights into what information MRIs c...

BettysMom

•7 days ago

3 Replies

I am still here.

The last 5 days seems like a never ending merry go round ride. It is coming together slowly & by the grace of God! I know where my darling is ... he is in...

The last 5 days seems like a never ending merry go round ride. It is coming toge...

kycmary

•8 days ago

16 Replies

Newest edition of The Motivator!

The latest edition of MSAA's magazine, The Motivator, is here! Featuring a follow-up to our previous cover story, this issue provides additional details on...

The latest edition of MSAA's magazine, The Motivator, is here! Featuring a fo...

DanaMSAA

Partner•8 days ago

1 Reply

Foralumab found to ease fatigue in SPMS patients in access program

Fully 70% of patients with nonactive secondary progressive multiple sclerosis (SPMS) who received foralumab nasal spray in an expanded access program (EAP)...

Fully 70% of patients with nonactive secondary progressive multiple sclerosis (S...

BettysMom

•9 days ago

4 Replies

head pain

What’s thus !! base of head aches migraine. Eyes hurt , weak all over and lethargic cannot move about my muscles spasms . Is it a relapse it’s been 3 weeks...

What’s thus !! base of head aches migraine. Eyes hurt , weak all over and leth...

309Ygi

•9 days ago

5 Replies

Write a post or ask a question

Search posts

Pinned Posts

See all

Newest edition of The Motivator!

Upcoming Webinar: Movement for MS

New Podcast Series from MSAA!

MS Awareness Month!

7 Year Anniversary!

Latest poll

See all polls

Have you ever attended a webinar hosted by MSAA?

Vote

Topics

All posts(1023)

Living with MS(479)

Treatments(196)

Introduce yourself!(114)

Symptoms(108)

MSAA News(53)

See all topics

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

CD20 Therapies (Ocrevus, Kesimpta, etc.) and potentially serious dental problems

Foot drop

Good Morning gang members it’s a little chilly and had couple inches of snow ❄️

As if MS wasn't enough, I have osteoporosis

DBS operation

Home from Neuro

Lynnie THE BikerChick is back

Good chilly May morning 🥶

MS with normal MRI

Thankful for another day!

DMT's

New to the community

Renee

new symptoms

hello there

Hello there

Kesimpta and IVIG?

Fatigued!

Age and therapies

Driving

It has been a long weekend.

Octave Blood test

Convinced I have MS but diagnosed with something else

End of MRI Access Fund

Testing for MS and MRI differences

A Glimpse Inside – The Power of Imaging Biomarkers

I am still here.

Newest edition of The Motivator!

Foralumab found to ease fatigue in SPMS patients in access program

head pain

Search posts

Pinned Posts

Latest poll

Have you ever attended a webinar hosted by MSAA?

Topics

Archive