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Meningitis Now

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Meningitis for 3 months

Reading some of these posts made me feels so much better. I started university in September and got meningitis in my first week. I spent 3 weeks bedridden with...

Reading some of these posts made me feels so much better. I started university i...

Lx_chxrlx

•5 months ago

7 Replies

Trying my best to keep going

words can’t describe the ups and downs of my journey since meningitis I had to leave my uni course, I moved back to hometown, I was working in completely new...

words can’t describe the ups and downs of my journey since meningitis I had to...

BChappers

•7 months ago

1 Reply

Hair loss

Hi there I'm 36 and from NZ. Currently 3 months post Bacterial Meningitis after a CSF leak. Prior brain surgery 3 weeks before. Spent 6 weeks all up in...

Hi there I'm 36 and from NZ. Currently 3 months post Bacterial Meningitis after ...

Amelia2023

•10 months ago

6 Replies

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It’s not hearing loss, it’s Eustachian Tube Dysfunction (they think)

Since having bacterial meningitis in January 2023, my ears have felt sort of blocked. After my follow up appointment a couple of weeks of coming out of...

Since having bacterial meningitis in January 2023, my ears have felt sort of blo...

ElephantLover2023

•1 year ago

10 Replies

Rheumatoid Meningitis Recovery

Has anyone out there had rheumatoid meningitis? I was recently treated for it and am looking for others who have had this experience or just experience with...

Has anyone out there had rheumatoid meningitis? I was recently treated for it an...

ChiChiCo

•1 year ago

2 Replies

meningoencephalitis

Hi. I’m new here having come to the party late 😜 In February 2018 in was hospitalised with a mystery illness that kept the doctors guessing for quite a...

Hi. I’m new here having come to the party late 😜 In February 2018 in was hosp...

N3771

•1 year ago

7 Replies

Bacterial meningitis in the PICU … 5 days in.

Hi. I’m Kellie, and I’m currently in the PICU with my 13 year old son Charlie who is on the Autism spectrum and has been diagnosed with Bacterial Meningitis....

Hi. I’m Kellie, and I’m currently in the PICU with my 13 year old son Charlie wh...

CharliesMama

•1 year ago

4 Replies

Meningitis questionnaire for university project

Hi there everybody, I'm currently in my first year at university studying visual communication and for my next project it is a self negotiated brief - meaning...

Hi there everybody, I'm currently in my first year at university studying visual...

greentraveller

•1 year ago

4 Replies

'It was only viral meningitis'

This is the sentence I have had said to me 100 times since going to hospital for 5 nights back in july 2022 for meningitis. I have constantly felt as though I...

This is the sentence I have had said to me 100 times since going to hospital for...

greentraveller

•1 year ago

18 Replies

Bacterial meningitis and hair loss

Has anyone else experienced severe loss of hair post bacterial meningitis?I appreciate I have had a near death experience, my family was called in at one point...

Has anyone else experienced severe loss of hair post bacterial meningitis?I appr...

BMMSwarrior

•1 year ago

12 Replies

I AM BEYOND FRUSTRATED

I found a link last week for the Viral Meningitis Survey Results. I copied it and printed it off. But . . . . now that I want to access it again the url does...

I found a link last week for the Viral Meningitis Survey Results. I copied it a...

Mercy7

•2 years ago

1 Reply

i feel guilty

Good Afternoon, I write this today being a survivor. My battle began when I was 13, I am now 37. I was diagnosed with bacterial meningitis and I basically...

Good Afternoon, I write this today being a survivor. My battle began when I was...

LuckyTrain85

•2 years ago

10 Replies

Optic Nerve damage long term

Hi all, I had bacterial meningitis as in 1999 as a 5 year old. Fortunantly for me it was caught early but it did impact my coordination, hearing, and vision...

Hi all, I had bacterial meningitis as in 1999 as a 5 year old. Fortunantly for...

KTTitch

•2 years ago

3 Replies

Gait issue and nerve compression

To all of you struggling with gate, see a neurologist if you haven't already. I had an ataxia gait and it was pretty bad. An MRI showed an arachnoid cyst in my...

To all of you struggling with gate, see a neurologist if you haven't already. I ...

Clumsygirl

•2 years ago

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Bladder issue

I have a hard time urinating after having BM a year ago. The only way I can do it is to severely tighten my abs and bear down hard. It's scary because it could...

I have a hard time urinating after having BM a year ago. The only way I can do i...

Clumsygirl

•2 years ago

1 Reply

2 year old won’t wake post BM

Sunday I brought my 2 year old into the emergency room due to vomiting and fever. We were sent home. I returned two hours later with an unresponsive limp...

Sunday I brought my 2 year old into the emergency room due to vomiting and fever...

gigismum

•2 years ago

16 Replies

Bacterial meningitis story/ advice needed

Hi, I am around a month into recovery from bacterial meningitis. I contracted the infection only a week after my 18th birthday and at first was really confused...

Hi, I am around a month into recovery from bacterial meningitis. I contracted th...

Sam-0

•2 years ago

8 Replies

Meningitis Sufferers

Evening all Unfortunately suffered Bacterial Meningitis in 2014 and have suffered headaches,Struggled with speech and memory amongst other symptoms ever......

Evening all Unfortunately suffered Bacterial Meningitis in 2014 and have suffere...

Jazzyp9

•2 years ago

5 Replies

Feeling tired

Hi all, any feedback would be great. I was diagnosed with VM in 2018, (age 45), was in hospital for a 3 weeks, took me a long while to get back to normal but...

Hi all, any feedback would be great. I was diagnosed with VM in 2018, (age 45), ...

Christo72

•2 years ago

2 Replies

Need help on how to get care for my friend?

Please can somebody help me? One of my best friends has bacterial meningitis and brain abscesses on his brain stem. He is a month in and no better. Today his...

Please can somebody help me? One of my best friends has bacterial meningitis and...

SamRT

•3 years ago

3 Replies

Looking for other multiple amputees

Hello, I'm just looking for other multiple amputees for sharing gripes and annoyances - feel free to send me a chat message! I'm a 23 year old woman and had...

Hello, I'm just looking for other multiple amputees for sharing gripes and annoy...

legoless1998

•3 years ago

Be the first to reply

Are my vertigo, light-headedness, and headaches post-VM symptoms?

I (18F) had a pretty bad case of VM back in March of this year and recovered fully after about 6 weeks, so it's only been about 5 months since my recovery....

I (18F) had a pretty bad case of VM back in March of this year and recovered ful...

CelestialManny

•3 years ago

11 Replies

Anyone Had Cryptococcal FUNGAL meningitis?

Has anyone had cryptococcal fungal meningitis? What can you tell me about the recovery? Our daughter has been in the hospital 5 months, we are hoping she will...

Has anyone had cryptococcal fungal meningitis? What can you tell me about the re...

Hidden

•3 years ago

4 Replies

Past VM and the COVID Vaccine

Has anyone with a past history of VM taken the COVID-19 Vaccine? And If so how did you feel afterwards? And what brand did you take? My son had viral...

Has anyone with a past history of VM taken the COVID-19 Vaccine? And If so how d...

Dutch22

•3 years ago

19 Replies

Bacterial Meningitis Short Story

I ended up with bacterial meningitis and I was out of the hospital in two weeks but now suffer from epilepsy for the rest of my life but I know how hard it is...

I ended up with bacterial meningitis and I was out of the hospital in two weeks ...

AngusOG1

•3 years ago

1 Reply

Do others have vertigo (bbpv) issues after VM?

In 2015 I had viral (varicella zoster virus/ shingles) VM and besides having many other side effects that have had a huge impact on my life, i now am having...

In 2015 I had viral (varicella zoster virus/ shingles) VM and besides having man...

Christine86

•3 years ago

8 Replies

Return to sport and training

My son has just been discharged from the hospital after VM diagnosis and wants to return to high level sport. Where do I find resources on what is a sensible...

My son has just been discharged from the hospital after VM diagnosis and wants t...

MeningitisMom

•3 years ago

4 Replies

Viral meningitis do's & dont's

My daughter (5) was discharged from hospital 2 days ago with VM. Question may seem silly but can i wash her hair as normal? Im asking because of the headaches...

My daughter (5) was discharged from hospital 2 days ago with VM. Question may se...

Sounsure

•3 years ago

3 Replies

Are there any Drs in the UK that Specialises in after affects of Bacterial Meningitis?

I had BM in 2015 and since then I get numb hands tingling fingers at night only! I have had a variety of tests and Kings College London have now discharged me...

I had BM in 2015 and since then I get numb hands tingling fingers at night only!...

Floodle

•3 years ago

4 Replies

New to the community. Memory Loss, Tiredness and Speech issues.. 2 years after Viral Meningitis. Is this common?

I'll start with some background first.. I first became unwell in September 2018 following a holiday to Tenerife, which we believe was a simple chest infection....

I'll start with some background first.. I first became unwell in September 2018 ...

KennyL92

•4 years ago

4 Replies

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Posts - Meningitis Now | HealthUnlocked

Meningitis Now

All Meningitis Now posts

Meningitis for 3 months

Trying my best to keep going

Hair loss

It’s not hearing loss, it’s Eustachian Tube Dysfunction (they think)

Rheumatoid Meningitis Recovery

meningoencephalitis

Bacterial meningitis in the PICU … 5 days in.

Meningitis questionnaire for university project

'It was only viral meningitis'

Bacterial meningitis and hair loss

I AM BEYOND FRUSTRATED

﻿i feel guilty

Optic Nerve damage long term

Gait issue and nerve compression

Bladder issue

2 year old won’t wake post BM

Bacterial meningitis story/ advice needed

Meningitis Sufferers

Feeling tired

Need help on how to get care for my friend?

Looking for other multiple amputees

Are my vertigo, light-headedness, and headaches post-VM symptoms?

Anyone Had Cryptococcal FUNGAL meningitis?

Past VM and the COVID Vaccine

Bacterial Meningitis Short Story

Do others have vertigo (bbpv) issues after VM?

Return to sport and training

Viral meningitis do's & dont's

Are there any Drs in the UK that Specialises in after affects of Bacterial Meningitis?

New to the community. Memory Loss, Tiredness and Speech issues.. 2 years after Viral Meningitis. Is this common?

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Pinned Posts

Latest poll

Were you given information about recovery following your meningitis experience by your doctor or the hospital? (verbally or written)

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i feel guilty