Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

59,469 members • 66,515 posts

All posts for May 2024

Fibromyalgia Poem 2

Some disabilities are invisibleInfact some cannot be seen This evil fibromyalgia Brings a new definition to...

Some disabilities are invisibleInfact some cannot be seen This evil fibromyalgia...

Fibroguy66

•3 hours ago

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I felt that,

I've never actually felt a flare,days before I get one, Normally I just get it thrown at me without warning, Hmmmm interesting 🤔 does anyone else get a...

I've never actually felt a flare,days before I get one, Normally I just get it ...

Debsdelight72

•9 hours ago

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Feeling lost and fed up....

Hi everyone, i just wanted to post how im feeling, you dont need to reply or anything, i just had to vent, this weekend has been crappy, and a family member...

Hi everyone, i just wanted to post how im feeling, you dont need to reply or any...

fibrogirl41

•16 hours ago

10 Replies

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Refused PIP

I applied for PIP last year and was refused. I had to go to an assessment in the town centre. They didn't even contact my GP about my medical notes.I think...

I applied for PIP last year and was refused. I had to go to an assessment in the...

RACHPOW79

•17 hours ago

2 Replies

Pins & needles in obscure places...

Hi all, Just a random question... I get pins and needles in the top of my thighs if I stand still for more than a few minutes or if I walk for more than a...

Hi all, Just a random question... I get pins and needles in the top of my thi...

Bacaloca

•1 day ago

3 Replies

What Do You Do When Pain Consultants Say They Can Do No More For You "Fibromyalgia"

Don't say call the Ghost Busters 😂 either. Is a professional consultants words in verbal or written the final professional...

Don't say call the Ghost Busters 😂 either. Is a professional consultants words ...

Fibroguy66

•2 days ago

13 Replies

Spike in pressure in head

Hi all, and happy friday. Question. Does anyone ever get a sudden pressure in their head where they can feel and hear their blood pounding in their head....

Hi all, and happy friday. Question. Does anyone ever get a sudden pressure in ...

Sal87

•2 days ago

10 Replies

PIP Claim

Hi, I am about to put a claim in for PIP & would really appreciate any help or tips to assist me with it as I have heard it is a bit of a minefield! I have...

Hi, I am about to put a claim in for PIP & would really appreciate any help or t...

Faxgirl

•3 days ago

7 Replies

So true

We can all relate to this 🥰

Tommygurl

•3 days ago

7 Replies

Jaw & tongue movement problems with fibromyalgia

Does anyone suffer with the above issues or just one of two please ?Would love to hear any personal well detailed issues or logical medical...

Does anyone suffer with the above issues or just one of two please ?Would love t...

Fibroguy66

•3 days ago

7 Replies

This might sound weird....

I'm feeling very strange for me. I'm incredibly irritable, tearful( more than usual), and hate having clothes on. Feel like I'm burning and suffocating...

I'm feeling very strange for me. I'm incredibly irritable, tearful( more than us...

Smilesalot

•4 days ago

25 Replies

Dizziness

I was supposed to be attending a funeral today but my dizziness is the worst its ever been. I went to the shop to get some air was talking to a lady and almost...

I was supposed to be attending a funeral today but my dizziness is the worst its...

Sleepyhead_

•4 days ago

10 Replies

PIP awarded until 2031

I had my PIP assessment over the phone, it was a good experience, I shared this with you guys on here. I did not have to exaggerate my symptoms, some of the...

I had my PIP assessment over the phone, it was a good experience, I shared this ...

vikki123456

•4 days ago

4 Replies

PiP review update

Hi just thought I would share this information with you for those awaiting their PIP reveiw. Mine is due to end June 2024 I put my papers in 11 mths ago . My...

Hi just thought I would share this information with you for those awaiting their...

Debbiedo2

•5 days ago

19 Replies

Fibromyalgia An Insight

Imagine if you will or can that fibromyalgia is like a massive electrical storm or a massive electrical explosion inside your body.Every...

Imagine if you will or can that fibromyalgia is like a massive electrical storm ...

Fibroguy66

•7 days ago

11 Replies

The Fibromyalgia Poem

When the days get longAnd the nights become longer Just listen to yourself And let your body become stronger. The pain & the...

When the days get longAnd the nights become longer Just listen to yourself And l...

Fibroguy66

•7 days ago

19 Replies

neck and shoulder pain

hi, newly diagnosed with fibromyalgia and this past 2 days I have had neck pain going down into my shoulder blades & I have a strange sensation, like there’s...

hi, newly diagnosed with fibromyalgia and this past 2 days I have had neck pain ...

Catty29

•7 days ago

9 Replies

Video on History of Fibromyalgia

It is International Awareness Day which falls on Florence Nightingales birthday each year. Around the world on May 12th there are events, awareness being...

It is International Awareness Day which falls on Florence Nightingales birthday ...

desquinn

Partner•7 days ago

5 Replies

Advice on working /college courses, looking for work with fibromyalgia...

Hi everyone, I hope you are all doing okay, i just have been wondering what on earth to do college course wise, work wise, i want to work but dont know where...

Hi everyone, I hope you are all doing okay, i just have been wondering what on e...

fibrogirl41

•7 days ago

3 Replies

SORRY

I'm sorry My opinion caused offence,The reason I wrote it on this forum was because I've discovered that getting cranky effects makes my Fibro tingle I...

I'm sorry My opinion caused offence,The reason I wrote it on this forum was beca...

Debsdelight72

•8 days ago

4 Replies

They’re growing

Almost 6 months now, Juno & Gordy really keep us busy. Took them to the beach over bank holiday and they love sand!!!

Almost 6 months now, Juno & Gordy really keep us busy. Took them to the beach o...

Gulfstream_Maggie

•8 days ago

3 Replies

Check out our new awareness video

Check out our new YouTube Video for May 12th which is International Fibromyalgia Awareness Day https://youtu.be/5AM_wcL5G0s?si=_3R2tn16fxKRRUpv

Check out our new YouTube Video for May 12th which is International Fibromyalgia...

desquinn

Partner•8 days ago

4 Replies

MRI Scan was pure hell.

Hi, First post since my introduction post, (Still a bit nervous) Hope I've put it in the right place. And I am doing it right. Sorry if I'm/it's not. Am I...

Hi, First post since my introduction post, (Still a bit nervous) Hope I've put ...

saxcat

•9 days ago

19 Replies

Just checking in

Hello everybody, I have been reading and answering posts and hoping for some of you the warmer weather may be helping alittle ? It seemed that Winter hung...

Hello everybody, I have been reading and answering posts and hoping for some of ...

Yassytina

FMA UK Volunteer•10 days ago

7 Replies

Feeling unemployable

I’m trying to find a new job, applying all over the place but having a lot of “thanks but no thanks”. Starting to feel very old, tired and unwanted. I do...

I’m trying to find a new job, applying all over the place but having a lot of “t...

Gulfstream_Maggie

•10 days ago

17 Replies

advice on cooling blankets etc I am at my wits end 🙈

Hi all, I am having trouble with regulating my body temperature- I know this can be a symptom of fibro. It is really bad going from cold to boiling within...

Hi all, I am having trouble with regulating my body temperature- I know this can...

Molliesmamma

•10 days ago

9 Replies

Pain in nose

I've woken up today with pain towards the top of my nose .I can't believe how painful it is to touch . I've had this before many times over the years . Is this...

I've woken up today with pain towards the top of my nose .I can't believe how pa...

Tommygurl

•10 days ago

8 Replies

Good news people😁😊😀

Demon our swan is coming home shortly🤗🤗🤗🤗🤗🤗😎😎😎😎😍😍😍😍😍😍.I hope he's in a good mood lol Dawn 🤗🤗🤗🙃

Demon our swan is coming home shortly🤗🤗🤗🤗🤗🤗😎😎😎😎😍😍😍😍😍😍.I hope he'...

Smilesalot

•12 days ago

34 Replies

Dreaming

Hello, I've been having a stint of dreams at the moment where I always end up getting hurt. That pain is there when I wake up. Like if I exert myself, get hit...

Hello, I've been having a stint of dreams at the moment where I always end up g...

Jmw78

•12 days ago

2 Replies

55 large and hurting.. Losing weight is hard.. Any tips appreciated.. 💖

55.. Large and hurting.. Exercises and cooking getting harder by the day.. Flares becoming more regular.. Now having to get help with gardening and cleaning.....

55.. Large and hurting.. Exercises and cooking getting harder by the day.. Flare...

Sunseaslim123

•12 days ago

17 Replies

Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

All posts for May 2024

Fibromyalgia Poem 2

I felt that,

Feeling lost and fed up....

Refused PIP

Pins & needles in obscure places...

What Do You Do When Pain Consultants Say They Can Do No More For You "Fibromyalgia"

Spike in pressure in head

PIP Claim

So true

Jaw & tongue movement problems with fibromyalgia

This might sound weird....

Dizziness

PIP awarded until 2031

PiP review update

Fibromyalgia An Insight

The Fibromyalgia Poem

neck and shoulder pain

Video on History of Fibromyalgia

Advice on working /college courses, looking for work with fibromyalgia...

SORRY

They’re growing

Check out our new awareness video

MRI Scan was pure hell.

Just checking in

Feeling unemployable

advice on cooling blankets etc I am at my wits end 🙈

Pain in nose

Good news people😁😊😀

Dreaming

55 large and hurting.. Losing weight is hard.. Any tips appreciated.. 💖

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