Endometrioma Pain

[kaitw1978]

I'm wondering if anyone can relate...

I was admitted to the hospital in April for severe right sided pain with my peroid and was diagnosed with what they thought was a simple 3.5cm ruptured hemorrhagic ovarian cyst. I had painful periods every month since and have been diagnosed now with what seems to be an endometrioma (low echo) that is now 5cms. My gyn put me on birth control (I'm 40 and haven't conceived with my hubby other than an ectopic years ago). My peroid is over and I've started the pill but this right sided pain is radiating and I have to take pain killers everyday. Does anyone know if their endometrioma pain got better being on the pill (marvelon)? I have pressure in my bum all the time and just this constant sharp pain where the endometrioma is. It's really getting me down and I just want it out but gyn wants to try 3 months constant birth control pill. It's hurts all the time. Any advice or stories are welcome. Endometrioma pain is making me feel down mentally as well as physically

[MMary-Moderator]

Hi Kaitw1978,

I’m sorry to hear about how you’ve been suffering– it sounds like you’ve had a really difficult time.

If you need someone to talk to, we do have a network of support services that are available to anybody affected by endometriosis. Our free helpline (0808 808 2227 )is run by volunteers who have personal experience of endometriosis. The helpline is open most days – the times it is open can be found here: endometriosis-uk.org/suppor...

You may also find our support groups useful as a place where you can discuss endometriosis and the issues you are facing with other sufferers. Please visit: endometriosis-uk.org/suppor... to find out if there is one in your local area. If you find there is not a face to face support group in your local area, we have an online support group.

Best Wishes

M Mary

Volunteer Moderator

Endometriosis UK

[Poppet13]

Hey Kait,

I had two 5x5cm endometriomas earlier this year, one on each ovary. The pain was unbearable. I kept thinking I had appendicitis and was vomiting all the time too. My consultant said that once it’s 5cm or over the protocol is to operate (in my hospital anyway) so I had mine removed in April. I still have some pain but nothing like before surgery. During my surgery they were also able to run dye through to check for blockages as I am ttc so that was useful too.

I also tried birth control for 3 months when waiting for my surgery but it didn’t help. I started having severe pain and vomiting even when my period wasn’t due.

I feel your pain! It’s the most awful pain I ever experienced.

[kaitw1978 in reply to Poppet13]

Oh my goodness I can't imagine having TWO of these things! The pressure from them in my bladder and bowels is awful. I hope mine doesn't get as bad as yours did. I was optimistic that the pill might calm down my ovary but so far I have pain all day long. Did you have trouble sitting? The pressure up my bum is horrible. Did you know you had endo before the cysts were discovered? Thanks so much for the chat. I feel like nobody understands but I've found some solace here

[Poppet13 in reply to kaitw1978]

You’re very welcome, it’s great to chat to someone else going through the same thing. I wasn’t diagnosed officially before April but I always knew myself I had it. I’ve always had awful periods, fainting, dizziness, feeling like I’m pooping knives, pain when urinating. I found the pill helped somewhat when I was younger but not lately. Yes I get awful shooting pains up my bum (sorry too much info) randomly when on my period, it can happen when I’m sitting, lying down, standing etc. It’s such awful pain and really hard to hide when around other people! I found that I usually felt a bit better after emptying my bowels though. I also found taking ponstan for 2 days before and the first 2 days of my period really helped initially, but then I got to the point where even that didn’t help. Do you take pain killers? I love my hot water bottle too, but not in this heat!!

[kaitw1978 in reply to Poppet13]

My gyn is putting me on birth control for 3 months straight so I don't get my peroid but it seems like too little too late. The endometrioma feels like it's taking up my whole tummy. I take Tylenol every 4 hours. My back aches too and I have pain in my cervix (doc hurt me after my last internal exam). I was taking naproxen every day but I was advised against it since it ruins the stomach lining. I dont know if I can take all these meds for 3 months everyday. Seems harmful! I love my hot water bottle. I get it piping hot even in the heatwave. I just want to feel better

[Tillyfloss]

hi. How are you feeling today? The pain from cysts can be awful and sometimes an indication of it being troublesome. I was wrongly diagnosed with a simple cyst of 3cm, it grew very quickly as it was chocolate cyst and caused a huge amount of problems. If your pain doesn't improve on the pill keep going back to your gp/ call gyn as in my case if we hadn't i would have been in big trouble. Mine on removal was the size of football, you could feel / see it and the constant pressure / pain was consuming I couldn't sleep, walking was uncomfortable and I constantly needed the loo.

don't be fobbed off you know your body and they should take you seriously, the people at are local hospital that didn't paid the price. Please feel free to msg if you want a chat/ rant. Xx

[kaitw1978]

Hi again. I'm just beside myself with pain all day long. How was recovery from your cyst removal? I'm a wedding photographer and I'm terrified I'll miss so much work. I'm having a hard time functioning at the moment though. The pain in my right pelvic area plus my back and kidney is unrelenting